Guest guest Posted April 23, 2000 Report Share Posted April 23, 2000 I do not think we need a closely moderated list. We do a pretty good job of policing ourselves. We are dealing with conflicting points of view. 99.9% of the time we handle it just fine. Steve shari dodd wrote: > Part 1.1 Type: Plain Text (text/plain) > Encoding: quoted-printable Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 Dear Shari, Would you like to come on board as co-moderator? We always can use the help. I must add tho that many people here have large problems - as no insurance, financial difficulties, little or no family support on top of being ill to point of being bedridden. Fortunatately, you have a supportive spouse and are able to work again. But, remember when you were out of interferon? I'm sorry you don't care for my moderation, but this list is about open discussion and debate, and some topics can be deleted if they are not pertintent to an individual. And for the most part I will not ban people, or dictate as what or what not to say. That is my choice and I am sticking with it. Take care, Christie >I for one enjoyed this list much more when it was moderated closely. Going over my CFSME mail has gotten to be like reading the comics; some is funny and some is ridiculous. > >Could one of the main problems be the constant tug-of-wars?? Like a power struggle.....I know more....no, I know more.....no that's not right - this is right!!!!! > >Maybe you need a life and not spend so much time on this list. Life can and really is beautiful. Turn your computer off and go visit a children's hospital. Visit the oncology floor. Trust me, you will walk out feeling very fortunate with our very small problem!! > >We need to get back to just introducing our personal method of experimental treatment and not giving lengthy self proclaimed opinions. Different treatments help different people.....let's remember this. > >I for one am finding this list extremely negative. For me personally......negativity is a stressor. And I DO NOT do stress. > >Let's get back to the reason for this list. > >Shari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 It's sounds like you need to unsubscribe yourself from the list if you have so many negative things to say about it..you don't need to bring your negaticism here and bring every body else down....for some people this list is their only link to the outside world(not me personally) and for you to be so judgemental about what people should or shouldn;t do is a bit ridiculous.....so if you don't like it LEAVE! moderator needed I for one enjoyed this list much more when it was moderated closely. Going over my CFSME mail has gotten to be like reading the comics; some is funny and some is ridiculous. Could one of the main problems be the constant tug-of-wars?? Like a power struggle.....I know more....no, I know more.....no that's not right - this is right!!!!! Maybe you ne ed a life and not spend so much time on this list. Life can and really is beautiful. Turn your computer off and go visit a children's hospital. Visit the oncology floor. Trust me, you will walk out feeling very fortunate with our very small problem!! We need to get back to just introducing our personal method of experimental treatment and not giving lengthy self proclaimed opinions. Different treatments help different people.....let's remember this. I for one am finding this list extremely negative. For me personally......negativity is a stressor. And I DO NOT do stress. Let's get back to the reason for this list. Shari This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 In a message dated 4/24/00 2:08:24 AM Central Daylight Time, egroups writes: << Would you like to come on board as co-moderator? We always can use the help. I must add tho that many people here have large problems - as no insurance, financial difficulties, little or no family support on top of being ill to point of being bedridden. >> If you look at the Onelist guidelines, this list is about discussing experimental treatments for CFS and FM. It is not about discussing treatments for Lupus, MS and other diseases. It is also not for complaining about email sent to you privately. They should be sent to the moderator. I think a lot of what Shari is requesting is that the moderators help the list members keep on subject, CFS/FM treatments. The abx info is very good info as 's recent posts indicate. Personally, I feel that the moderators that we have now are fine. However, the number of posts has gotten so large that the moderators must let members know to not post about anything other than that for which the list was set up. If you want to let someone know about your pets or personal life (nobody specific alluded to), just write to them back channel. I think if we stick to the list guidelines, we will cut down on bickering, make the digests more concise and everyone will get more out of the discussion. Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 > Good point Mike I am on a couple of other list were every body talks about everything in their life -- I just do not read 90% of the stuff. By the way my dog has been acting funny lately..... Steve > n that for which the list was set up. If you want to let someone know > about > your pets or personal life (nobody specific alluded to), just write to them > back channel. I think if we stick to the list guidelines, we will cut down on > bickering, make the digests more concise and everyone will get more out of > the discussion. > > Mike > > ------------------------------------------------------------------------ > High rates giving you headaches? The 0% APR Introductory Rate from > Capital One. 9.9% Fixed thereafter! > 1/3010/2/_/531724/_/956631217/ > ------------------------------------------------------------------------ > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 I must add tho that many people here have large problems - as no > insurance, financial difficulties, little or no family support on top of > being ill to point of being bedridden. >> This was to emphasize that compassion is needed, not to discuss these thing in detail. ---------------------------- >If you look at the Onelist guidelines, this list is about discussing >experimental >treatments for CFS and FM. It is not about discussing treatments for Lupus, >MS >and other diseases. True, there are lists for these diseases, and are great for those with clear cut MS,etc. However, there can be great overlap between signs of these diseases and CFIDS and often people are dx'ed with CFIDS and go on to have a different dx, in addition to CFIDS/FMS. I have learned that from people sharing such experiences here, and I am one of them. In addition, people can have more than one dx, again, as I do. This list is intended for anyone dealing with difficulties in diagnosis and treatment of CFS and any crossover signs. We need to also look for commonalities among the more difficult to diagnose illnesses as we have with Gulf War, Lyme, Mito and Autoimmune disease, and CFIDS is considered by some doctors as having autoimmune component. This is an *inclusive* list as opposed to *exclusive.* And so far, there has been no discussion or either MS or lupus treatments in particuliar, although I have seen lupus drugs mentioned here. --------------------------- >It is also not for complaining about email sent to you privately. They >should be >sent to the moderator. This was a first for us. We are dealing with it. ------------------------- I think a lot of what Shari is requesting is that the >moderators >help the list members keep on subject, CFS/FM treatments. The abx info is >very >good info as 's recent posts indicate. Fine too! Shari isn't too thrilled about Dr C, however, but that's alright. People can talk about him. I scroll through much of the whey dosing, but would not inhibit this talk! ---------------------- Personally, I feel that the >moderators that we have now are fine. Hot Damm! You got that right - and the members are fine too! --------------------------- However, the number of posts has gotten so large >that the moderators must let members know to not post about anything other >than that for which the list was set up. If you want to let someone know >about >your pets or personal life (nobody specific alluded to), just write to them >back channel. I think if we stick to the list guidelines, we will cut down on >bickering, make the digests more concise and everyone will get more out of >the discussion.Mike I agree for the most part because of list size. However, when there is a bit of positive personal interaction and support, lists tend to be more cohesive. However, the main focus is information based. Thanks for writing and take care, Christie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2009 Report Share Posted August 11, 2009 I am in need of a new Moderator.I need someone who understands AIH and has the time to put into the Digest DAILY. As I am stuck with old time dial up, which is very slow, I need someone who has high speed internet connection and who has the time to put into helping others here. I want to be sure that questions that are asked are answered by looking up the information and posting the links and answers. I also want someone who can post daily to encourage basic conversation in the group. All dialogue need not be liver related.... I want this groups digest to once again be something people look forward to reading........ It has lost so much this past year........... If we are to be of any help to others, as well as ourselves, we need to be posting. Before, we used to chit chat about our days.........and mix that in with our medical problems and questions. That need to be done once again. Harper has been too ill to be here........Joan has been away.and will soon go back to school..... is in school also.so........................... I hate to see this group die out after so many years.we have been here since 1996..and I since 1997. Those interested please email me personally......TYPE MODERATOR in the subject line. Thank you, Joanne Cathcart jjcathcart@... ____________________________________________________________ Digital Photography - Click Now. http://thirdpartyoffers.netzero.net/TGL2241/fc/BLSrjpYQ343BVHAkbmNPOuL9o9xNFaXMO\ DWPpxku5s4NVJyO4Ro0wcltLag/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2009 Report Share Posted August 12, 2009 Joanne: I am sorry to read this as I do remember the past conversations...not always relating to livers. I just said to my husband the other day that this site seems to be a little more 'quiet' than in the past. :-( I will miss you and the wonderful info you post...always so informative. I would love to help you, as I have one of those super quick cables, but I don't have AIH (at least not this month---you know those auto immunes...always a new surprise) and working as a consumer advocate for NBC, doesn't allow me to check daily. I have re-routed these posts to my email as opposed to the old way....I would check on all four of 'my' groups at their sites. Please don't be scarce and give my regards to my Beantown the next time you visit your hepa. Hugs, your former school mate Pam PS: My other two don't seem to be so active either, these days. Summer vacations???? > > I am in need of a new Moderator.I need someone who understands AIH and > has the time to put into the Digest DAILY. As I am stuck with old time dial > up, which is very slow, I need someone who has high speed internet > connection and who has the time to put into helping others here. I want to > be sure that questions that are asked are answered by looking up the > information and posting the links and answers. I also want someone who can > post daily to encourage basic conversation in the group. All dialogue need > not be liver related.... I want this groups digest to once again be > something people look forward to reading........ It has lost so much this > past year........... If we are to be of any help to others, as well as > ourselves, we need to be posting. Before, we used to chit chat about our > days.........and mix that in with our medical problems and questions. That > need to be done once again. Harper has been too ill to be here........Joan > has been away.and will soon go back to school..... is in school > also.so........................... I hate to see this group die out after so > many years.we have been here since 1996..and I since 1997. Those > interested please email me personally......TYPE MODERATOR in the subject > line. Thank you, Joanne Cathcart jjcathcart@... > > ____________________________________________________________ > Digital Photography - Click Now. > http://thirdpartyoffers.netzero.net/TGL2241/fc/BLSrjpYQ343BVHAkbmNPOuL9o9xNFaXMO\ DWPpxku5s4NVJyO4Ro0wcltLag/ > Quote Link to comment Share on other sites More sharing options...
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