Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Congratulations on your progress. What are you taking now? Harper AIH dx 2000 [ ] Looking for advice! Hey, I'm new to the group and am looking for some advice. I was diagnosed at Stage 3 in January 2008 with AIH. My system has responded very well to, first the prednisone and now the Imuran. Have been in chemical remission for over a year now, and everything is looking great. The advice I'm looking for is anyone who has quit taking the medication and if they had a relapse? I discussed this with my doc on my last visit and he has suggested I give it another 6 months and then go thru another biopsy before discontinuing the meds. I can't see taking the meds for the rest of my life if I don't have to. Any advice? Thanks, Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Hi, I have been on meds for about 10 years now. And overall I’m doing really good. We’ve tried to come off the meds two times now but every time I’ve had a relapse after ¾ year. However, next spring we’ll try again! My doc will the monitor me very well and meanwhile I’ll just believe I’m cured and healthy! Never give up hope. And if we do need them lets be just thankful for the meds. Take care Loes _____ From: [mailto: ] On Behalf Of Harper Sent: December 8, 2009 10:46 AM Subject: Re: [ ] Looking for advice! Congratulations on your progress. What are you taking now? Harper AIH dx 2000 [ ] Looking for advice! Hey, I'm new to the group and am looking for some advice. I was diagnosed at Stage 3 in January 2008 with AIH. My system has responded very well to, first the prednisone and now the Imuran. Have been in chemical remission for over a year now, and everything is looking great. The advice I'm looking for is anyone who has quit taking the medication and if they had a relapse? I discussed this with my doc on my last visit and he has suggested I give it another 6 months and then go thru another biopsy before dis continuing the meds. I can't see taking the meds for the rest of my life if I don't have to. Any advice? Thanks, Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 I take 100 mg Azathioprine daily and really don't want to take it if I don't have to. (side effects).  Thanks,  Becky    From: Harper <flatcat9@...> Subject: Re: [ ] Looking for advice! Date: Tuesday, December 8, 2009, 9:46 AM  Congratulations on your progress. What are you taking now? Harper AIH dx 2000 [LiverSupport- L] Looking for advice! Hey, I'm new to the group and am looking for some advice. I was diagnosed at Stage 3 in January 2008 with AIH. My system has responded very well to, first the prednisone and now the Imuran. Have been in chemical remission for over a year now, and everything is looking great. The advice I'm looking for is anyone who has quit taking the medication and if they had a relapse? I discussed this with my doc on my last visit and he has suggested I give it another 6 months and then go thru another biopsy before discontinuing the meds. I can't see taking the meds for the rest of my life if I don't have to. Any advice? Thanks, Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Becky-- I was diagnosed 6 years ago. Went into remission on prednisone which was gradually reduced and have been on 100 mg of azathioprine for several years. I too, did not want to take this drug or at least a lower dose if I didn't have to so asked my doctor on my last visit (August) if I could try to lower it. He agreed to try and gave me a script for 75 mg tablets. Had my next routine LFT labs two months later and and they were on the rise again (ALT close to 200). He put me back on prednisone for a month and back up to 100 mg of Aza. This is the second time this has happened so am reconciled to the fact that I am one of the high percentage of people with AIH who will flare when meds are reduced or withdrawn. Many others are different so after some time your doctor will agree to have you try. Beulah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 Beulah,  Thanks for the input. My doc did state that he would check the state of my liver prior to going off the meds and then would do labs every couple of weeks thereafter.  I've had several different opinions about going off the meds and I'm still not sure what I'm going to do. I have always heard that when you go off the meds and it does flare back up it does so much more aggressively??? Am just looking for any experiences others have had.  Thanks,  Becky-Tx From: HSayerjr@... <HSayerjr@...> Subject: Re: [ ] Looking for advice! Date: Tuesday, December 8, 2009, 7:01 PM  Becky-- I was diagnosed 6 years ago. Went into remission on prednisone which was gradually reduced and have been on 100 mg of azathioprine for several years. I too, did not want to take this drug or at least a lower dose if I didn't have to so asked my doctor on my last visit (August) if I could try to lower it. He agreed to try and gave me a script for 75 mg tablets. Had my next routine LFT labs two months later and and they were on the rise again (ALT close to 200). He put me back on prednisone for a month and back up to 100 mg of Aza. This is the second time this has happened so am reconciled to the fact that I am one of the high percentage of people with AIH who will flare when meds are reduced or withdrawn. Many others are different so after some time your doctor will agree to have you try. Beulah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 I've heard that often, but I don't recall what the particular sources have been. I much prefer to give people a particular site, or, preferably, sites, rather than just saying " this is so " , but I can't do that right now. I have always heard that when you go off the meds and it does flare back up it does so much more aggressively??? Harper AIH dx 2000, now in remission fatty iiver dx 2009 Re: [ ] Looking for advice! Date: Tuesday, December 8, 2009, 7:01 PM Becky-- I was diagnosed 6 years ago. Went into remission on prednisone which was gradually reduced and have been on 100 mg of azathioprine for several years. I too, did not want to take this drug or at least a lower dose if I didn't have to so asked my doctor on my last visit (August) if I could try to lower it. He agreed to try and gave me a script for 75 mg tablets. Had my next routine LFT labs two months later and and they were on the rise again (ALT close to 200). He put me back on prednisone for a month and back up to 100 mg of Aza. This is the second time this has happened so am reconciled to the fact that I am one of the high percentage of people with AIH who will flare when meds are reduced or withdrawn. Many others are different so after some time your doctor will agree to have you try. Beulah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 Harper how was your fatty liver diagnosed? From: flatcat9@... Date: Wed, 9 Dec 2009 20:48:45 -0500 Subject: Re: [ ] Looking for advice! I've heard that often, but I don't recall what the particular sources have been. I much prefer to give people a particular site, or, preferably, sites, rather than just saying " this is so " , but I can't do that right now. I have always heard that when you go off the meds and it does flare back up it does so much more aggressively??? Harper AIH dx 2000, now in remission fatty iiver dx 2009 Re: [ ] Looking for advice! Date: Tuesday, December 8, 2009, 7:01 PM Becky-- I was diagnosed 6 years ago. Went into remission on prednisone which was gradually reduced and have been on 100 mg of azathioprine for several years. I too, did not want to take this drug or at least a lower dose if I didn't have to so asked my doctor on my last visit (August) if I could try to lower it. He agreed to try and gave me a script for 75 mg tablets. Had my next routine LFT labs two months later and and they were on the rise again (ALT close to 200). He put me back on prednisone for a month and back up to 100 mg of Aza. This is the second time this has happened so am reconciled to the fact that I am one of the high percentage of people with AIH who will flare when meds are reduced or withdrawn. Many others are different so after some time your doctor will agree to have you try. Beulah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 The definitive diagnosis came from a biopsy this summer. This biopsy was a by-blow of another procedure, a major operation affecting my stomach, chest, lung area. As long as as the mid-section was open and the liver fully revealed anyway, the surgeon offered to do a thorough liver biopsy. The biopsy showed that AIH was in remission and that I have fatty liver. I don't know what kind of fatty liver, other than that it's non-alcoholic. I believe fatty liver was visible in a sonogram last year, but I'm not absolutely certain of that. I had an improperly chatty sonogram technician . . . A trans-jugular biopsy in 2006 gave similar results, but I think they weren't taken completely seriously because the sample was small. At any rate, I continued taking Prednisone, with poor results. Now I'm trying (once again) to wean off Prednisone. I've been repeatedly unsuccessful in the past. Prednisone was probably the cause of fatty liver development. I'll continue taking Imuran for at least another year, and quite possibly for much longer. Harper AIH dx 2000 CD dx 2002 Fatty liver dx 2009? Harper how was your fatty liver diagnosed? Re: [ ] Looking for advice! Date: Tuesday, December 8, 2009, 7:01 PM Becky-- I was diagnosed 6 years ago. Went into remission on prednisone which was gradually reduced and have been on 100 mg of azathioprine for several years. I too, did not want to take this drug or at least a lower dose if I didn't have to so asked my doctor on my last visit (August) if I could try to lower it. He agreed to try and gave me a script for 75 mg tablets. Had my next routine LFT labs two months later and and they were on the rise again (ALT close to 200). He put me back on prednisone for a month and back up to 100 mg of Aza. This is the second time this has happened so am reconciled to the fact that I am one of the high percentage of people with AIH who will flare when meds are reduced or withdrawn. Many others are different so after some time your doctor will agree to have you try. Beulah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2009 Report Share Posted December 10, 2009 Becky, I was diagnosed in 1999 with AIH, but had elevated liver enzymes since 1992. In '99 I was prescribed Prednisone and Imuran. I was eventually weaned off the prednisone and kept on Imuran. In the beginning of 2000, I decided to go off all the medication. I was eating healthier, took off alot of weight and joined a gym. In June of that year a had a major flare up and again needed to go back on the medications. After I was weaned from the steroids again, I again went off all the drugs in early 2001. I stayed off until 2006. That's when my immune system went crazy and again was put back on the steriods and Imuran. I was weaned off the steroids after a year and still continue with 100 mgs of Imuran. I was very blessed to be able to go off and on the medication effectively. I will continue with the Imuran indefinitely as my liver counts are just about normal and appear to me in remission. I would recommend that as long as you are having positive results with the Imuran, stay on a maintenance dose. Just my two cents worth. Blessings, Kim H. 41 y/o SC, dx 1999 AIH, 2006 SLE, 2009 Poss sjogren's - but God is Good!! > > > From: HSayerjr@... <HSayerjr@...> > Subject: Re: [ ] Looking for advice! > > Date: Tuesday, December 8, 2009, 7:01 PM > > > Â > > > > Becky-- I was diagnosed 6 years ago. Went into remission on prednisone > which was gradually reduced and have been on 100 mg of azathioprine for > several years. I too, did not want to take this drug or at least a lower dose > if I didn't have to so asked my doctor on my last visit (August) if I > could try to lower it. He agreed to try and gave me a script for 75 mg > tablets. Had my next routine LFT labs two months later and and they were on the > rise again (ALT close to 200). He put me back on prednisone for a month and > back up to 100 mg of Aza. This is the second time this has happened so am > reconciled to the fact that I am one of the high percentage of people > with AIH who will flare when meds are reduced or withdrawn. Many others are > different so after some time your doctor will agree to have you try. Beulah > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2009 Report Share Posted December 10, 2009 Thanks for the advice. I will definitely take everything into consideration before discontinuing the aza.  Best wishes,  Becky-Tx From: flaladyluck <flaladyluck@...> Subject: [ ] Re: Looking for advice! Date: Thursday, December 10, 2009, 5:49 AM  Becky, I was diagnosed in 1999 with AIH, but had elevated liver enzymes since 1992. In '99 I was prescribed Prednisone and Imuran. I was eventually weaned off the prednisone and kept on Imuran. In the beginning of 2000, I decided to go off all the medication. I was eating healthier, took off alot of weight and joined a gym. In June of that year a had a major flare up and again needed to go back on the medications. After I was weaned from the steroids again, I again went off all the drugs in early 2001. I stayed off until 2006. That's when my immune system went crazy and again was put back on the steriods and Imuran. I was weaned off the steroids after a year and still continue with 100 mgs of Imuran. I was very blessed to be able to go off and on the medication effectively. I will continue with the Imuran indefinitely as my liver counts are just about normal and appear to me in remission. I would recommend that as long as you are having positive results with the Imuran, stay on a maintenance dose. Just my two cents worth. Blessings, Kim H. 41 y/o SC, dx 1999 AIH, 2006 SLE, 2009 Poss sjogren's - but God is Good!! > > > From: HSayerjr@... <HSayerjr@.. .> > Subject: Re: [LiverSupport- L] Looking for advice! > LiverSupport- Lgroups (DOT) com > Date: Tuesday, December 8, 2009, 7:01 PM > > >  > > > > Becky-- I was diagnosed 6 years ago. Went into remission on prednisone > which was gradually reduced and have been on 100 mg of azathioprine for > several years. I too, did not want to take this drug or at least a lower dose > if I didn't have to so asked my doctor on my last visit (August) if I > could try to lower it. He agreed to try and gave me a script for 75 mg > tablets. Had my next routine LFT labs two months later and and they were on the > rise again (ALT close to 200). He put me back on prednisone for a month and > back up to 100 mg of Aza. This is the second time this has happened so am > reconciled to the fact that I am one of the high percentage of people > with AIH who will flare when meds are reduced or withdrawn. Many others are > different so after some time your doctor will agree to have you try. Beulah > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2009 Report Share Posted December 10, 2009 Becky, every couple of weeks may not be long enough for the discontinuation to be recognized by your body. I wouldn't do the first one until one month after, but that's just me. My idiot gastro waited for 3 months!!! (I misspoke earlier, Becky and Harper. Brain was AWOL!) In my case the flare up was much more severe, but I imagine it might depend on how long you have been off the Imuran. My highest lft's ever were 3 months after I discontinued Imuran. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2009 Report Share Posted December 10, 2009 I have tried a couple of times to go off the medications ( prednisone and imuran) but have had no success. Each time I have had major flare ups and each one was worse than the one before. I am able to be off the prednisone but have to stay on 100mg of the Imuran. So far it has been 2 yrs with just the Imuran and I am still doing good. My labs are almost always close to normal. My 2 cents. Sorry it took me so long to respond. the WV hillbilly LOVE IS IN ALL THINGS AND IN ALL THINGS IS LOVE ________________________________ From: becky casilhas <bcasilhas@...> Sent: Thu, December 10, 2009 10:39:09 AM Subject: Re: [ ] Re: Looking for advice! Thanks for the advice. I will definitely take everything into consideration before discontinuing the aza. Best wishes, Becky-Tx From: flaladyluck <flaladyluck> Subject: [LiverSupport- L] Re: Looking for advice! LiverSupport- Lgroups (DOT) com Date: Thursday, December 10, 2009, 5:49 AM Becky, I was diagnosed in 1999 with AIH, but had elevated liver enzymes since 1992. In '99 I was prescribed Prednisone and Imuran. I was eventually weaned off the prednisone and kept on Imuran. In the beginning of 2000, I decided to go off all the medication. I was eating healthier, took off alot of weight and joined a gym. In June of that year a had a major flare up and again needed to go back on the medications. After I was weaned from the steroids again, I again went off all the drugs in early 2001. I stayed off until 2006. That's when my immune system went crazy and again was put back on the steriods and Imuran. I was weaned off the steroids after a year and still continue with 100 mgs of Imuran. I was very blessed to be able to go off and on the medication effectively. I will continue with the Imuran indefinitely as my liver counts are just about normal and appear to me in remission. I would recommend that as long as you are having positive results with the Imuran, stay on a maintenance dose. Just my two cents worth. Blessings, Kim H. 41 y/o SC, dx 1999 AIH, 2006 SLE, 2009 Poss sjogren's - but God is Good!! > > > From: HSayerjr@... <HSayerjr@.. .> > Subject: Re: [LiverSupport- L] Looking for advice! > LiverSupport- Lgroups (DOT) com > Date: Tuesday, December 8, 2009, 7:01 PM > > > Â > > > > Becky-- I was diagnosed 6 years ago. Went into remission on prednisone > which was gradually reduced and have been on 100 mg of azathioprine for > several years. I too, did not want to take this drug or at least a lower dose > if I didn't have to so asked my doctor on my last visit (August) if I > could try to lower it. He agreed to try and gave me a script for 75 mg > tablets. Had my next routine LFT labs two months later and and they were on the > rise again (ALT close to 200). He put me back on prednisone for a month and > back up to 100 mg of Aza. This is the second time this has happened so am > reconciled to the fact that I am one of the high percentage of people > with AIH who will flare when meds are reduced or withdrawn. Many others are > different so after some time your doctor will agree to have you try. Beulah > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 I would just like to point out that chemical remission may not be true remission. The disease can continue even if the lft's don't reflect it. Which is why it keeps coming back and thus why I no longer stop the meds. If the disease is at bay, I want to keep it that way. But that's just my choice. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 Kay,  You're probably right about testing too early. My doc did say he wanted to watch it closely which makes me feel good about his plan. I wouldn't feel comfortable going 3 months before lab work!  Thanks for the info! Becky-Tx From: Kitty <kuerston@...> Subject: [ ] Re: Looking for advice! Date: Thursday, December 10, 2009, 6:56 PM  Becky, every couple of weeks may not be long enough for the discontinuation to be recognized by your body. I wouldn't do the first one until one month after, but that's just me. My idiot gastro waited for 3 months!!! (I misspoke earlier, Becky and Harper. Brain was AWOL!) In my case the flare up was much more severe, but I imagine it might depend on how long you have been off the Imuran. My highest lft's ever were 3 months after I discontinued Imuran. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 Thanks for the feedback. I have yet to find someone who has been able to stay off the aza for more than 2 years w/o a flare up. Now I'm wondering what causes the flare ups? I'm convinced my AIH was brought on my stress!  Becky-Tx From: flaladyluck <flaladyluck> Subject: [LiverSupport- L] Re: Looking for advice! LiverSupport- Lgroups (DOT) com Date: Thursday, December 10, 2009, 5:49 AM Becky, I was diagnosed in 1999 with AIH, but had elevated liver enzymes since 1992. In '99 I was prescribed Prednisone and Imuran. I was eventually weaned off the prednisone and kept on Imuran. In the beginning of 2000, I decided to go off all the medication. I was eating healthier, took off alot of weight and joined a gym. In June of that year a had a major flare up and again needed to go back on the medications. After I was weaned from the steroids again, I again went off all the drugs in early 2001. I stayed off until 2006. That's when my immune system went crazy and again was put back on the steriods and Imuran. I was weaned off the steroids after a year and still continue with 100 mgs of Imuran. I was very blessed to be able to go off and on the medication effectively. I will continue with the Imuran indefinitely as my liver counts are just about normal and appear to me in remission. I would recommend that as long as you are having positive results with the Imuran, stay on a maintenance dose. Just my two cents worth. Blessings, Kim H. 41 y/o SC, dx 1999 AIH, 2006 SLE, 2009 Poss sjogren's - but God is Good!! > > > From: HSayerjr@... <HSayerjr@.. .> > Subject: Re: [LiverSupport- L] Looking for advice! > LiverSupport- Lgroups (DOT) com > Date: Tuesday, December 8, 2009, 7:01 PM > > > Â > > > > Becky-- I was diagnosed 6 years ago. Went into remission on prednisone > which was gradually reduced and have been on 100 mg of azathioprine for > several years. I too, did not want to take this drug or at least a lower dose > if I didn't have to so asked my doctor on my last visit (August) if I > could try to lower it. He agreed to try and gave me a script for 75 mg > tablets. Had my next routine LFT labs two months later and and they were on the > rise again (ALT close to 200). He put me back on prednisone for a month and > back up to 100 mg of Aza. This is the second time this has happened so am > reconciled to the fact that I am one of the high percentage of people > with AIH who will flare when meds are reduced or withdrawn. Many others are > different so after some time your doctor will agree to have you try. Beulah > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2009 Report Share Posted December 12, 2009 Becky, in all likelihood, the " flare-ups " are just a reflection of an untreated autoimmune disease. Autoimmune diseases have no cure yet because they haven't found a way to cure autoimmunity. Just my opinion, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2011 Report Share Posted July 27, 2011 could it be that your adrenals have got worse and worse and reduced your bodys demand for thyroid because your adrenals have got weaker, lowering the tsh. adrenals and thyroid work together. to quote dr rind " A low function in one can look like a high function in the other. " Check out dr rind's site: http://www.drrind.com/therapies/metabolic-symptoms-matrix http://www.drrind.com/therapies/metabolic-therapy chris > > My hypothyroid journey has been a long and complicated one. I was originally told I was borderline when I was a child, I think around 11 and since then, any time I've pushed for them to do something about it I've just got the same thing, you're borderline we'll test in another year. > > Some of my symptoms Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2011 Report Share Posted July 27, 2011 I would go back to Dr Abbott and say that you felt a slight improvement on the Levo, but that you were not given adequate time to see if it worked weel. You have been feeling rotten for so many years now and things get no better but simply get worse. Your symptoms are classic hypothyroid. Ask if you can go back on either Levo or betterstill NDT (Natural Deseiccated Thyroid supplement) and treat until you feel better in yourself. That you are being confined in a life of illness and unhappiness and you would at least like to give it agood go with thyroid support. See If he is happy to support you in that. He sounds quite reasonable for a doctor!! tehe. Sally xx Some of my symptoms include- excessive tiredness- weight gain, it isn't all down to a thyroid problem I'm sure but I know I find it easy to gain and hard to lose- pins and needles- insomnia- i often get upper respiratory tract infections, though only just realised this is a side effect of hypothyroidism- puffy face- hoarse voice (i think anyway!)- cold intolerance-unrefreshing sleep-asthma, which i didn't realise is a symptom either- very brittle hair, my hair has seriously thinned out as well. I used to have a lot of hair as a child!- dry, flaky skin- my leg gets numb and tingly sometimes- headaches- irregular periods (like at the moment I'm currently having an extremely light period that's currently on day 8!)- poor concentration, i can just completely lose it half way through a sentence and not know what i'm on about!Any advice? Does this now seem like I don't have a thyroid problem and I should just leave it at that? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2011 Report Share Posted July 27, 2011 To be honest, no idea! I don't really know anything about adrenals or anything. Just surprised that they only tested my TSH and nothing else. > > > > My hypothyroid journey has been a long and complicated one. I was originally told I was borderline when I was a child, I think around 11 and since then, any time I've pushed for them to do something about it I've just got the same thing, you're borderline we'll test in another year. > > > > Some of my symptoms > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2011 Report Share Posted July 27, 2011 I've made an appointment to see my doctor again on monday morning and I'm basically going to say that I'm just not happy with being told I'm normal and that's it. Something is wrong and something needs to be done. He's a great doctor and he was the one that put me on levothyroxine in the first place so he may well still be of help. I don't know whether the normal no action was him saying that or just the receptionist saying that's what the lab results said. She didn't even want to book me an appointment, kept saying I was normal and don't need to see the doctor but eventually gave in. But to be honest, he's definitely the best doctor I've ever had! He's the only one that treated me as a person and a case of symptoms rather than a textbook case, so maybe he'll still be of help. After all, only spoken to the receptionist not him! I'm still surprised that my TSH has stayed at almost what I was on when I was on 50mg of levothyroxine > I would go back to Dr Abbott and say that you felt a slight improvement on the Levo, but that you were not given adequate time to see if it worked weel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2011 Report Share Posted July 27, 2011 ok those were just my thoughts. The TSH isn't the be all and end all, it's just a pituitary hormone. If you read this article you'll more about the thyroid and pituitary. It is long but well worth reading. http://nahypothyroidism.org/deiodinases http://nahypothyroidism.org/ - is a good site, i think. You may have other conditions associated with hypothyroid that can stop thyroid working well, things like low ferritin, low vitamin D3 and so on. You'll need to check the files for more information - the file called 'why thyroid hormone stops working' may help you. thyroid treatment/files/ so if you have symptoms of hypothyroidism perhaps it'd be worthwhile your doctor giving you a proper trial of thyroid. but do read the information referenced above which explains why thyroid hormone might not help and please read the deiodinase article for a better understanding of TSH etc. > > To be honest, no idea! I don't really know anything about adrenals or anything. Just surprised that they only tested my TSH and nothing else. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2011 Report Share Posted July 27, 2011 >I don't know whether the normal no action was him saying that or just the receptionist saying that's what the lab results said. She didn't even want to book me an appointment, kept saying I was normal and don't need to see the doctor but eventually gave in. Good luck with your appointment. I think the receptionists are in the routine of saying " your results are fine, no action needed " all the time, if they come back in range. So chances are it would have been an automatic comment, that no action needed, as she would have read the computer screen. I doubt that came from the GP. Fiona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2011 Report Share Posted July 27, 2011 that could be low Vitamin A hypothyroid people have problems converting beta carotene to vitamin A (google it... :-) ) http://www.nutri-facts.org/Deficiency.135+M54a708de802.0.html Vitamin A deficiency is also related to immunodeficiency, diminishing the ability to fight infections. Even children who are only mildly deficient in vitamin A have a higher incidence of respiratory disease and diarrhea as well as a higher rate of mortality from infectious disease (especially measles) compared to children who consume sufficient vitamin A (32). i had low vitamin A and was told by my dr to take Vitamin A from fish oil for a few months. Vitamin D3 is important, too.... > > - i often get upper respiratory tract infections, though only just realised this is a side effect of hypothyroidism Quote Link to comment Share on other sites More sharing options...
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