Re: 7 yr old with autoimmune hepatitis

[Guest guest]

Everyone here will be glad to help you. With everyone that posts on this site,

you're sure to find answers that you may be looking for and lots of support.

s_bravard <bravard3@...> wrote: I post on the other website

as well. But I am seeing some new names. I

registered so i thought i would give it a try.

My 7 yr old daugther was recently diagnosed with autoimmune hepatitis

Type 2 She was diag in May of This Yr. She is currently on Imuran the

generic form. She was on Prednisone for only one month.

Her specialist says she is at a stage 2 . Whatever that means.

[Guest guest]

My heart goes out to you for having a child with this disease. Take heart in

that it can be managed. The stage and grade relate to the amount of damage

and the amount of inflammation respectively. So, your daughter's stage means

that she has some damage to her liver but not extensive. It is a blessing that

they have diagnosed her before anymore damage is done. This is considered

early in the process, to catch someone at stage 2. You might want to ask her

doc

what grade she is in. This would tell you how active the liver disease is by

the amount of inflammation occurring. Inflammation that is not treated,

turns into more cellular damage. If possible, see a good heptologist (liver

specialist), not just a gastroenterologist.

Roxanne

In a message dated 9/28/2006 9:09:30 A.M. Central Standard Time,

lindawootten@... writes:

My 7 yr old daugther was recently diagnosed with autoimmune hepatitis

Type 2 She was diag in May of This Yr. She is currently on Imuran the

generic form. She was on Prednisone for only one month.

Her specialist says she is at a stage 2 . Whatever that means.

[Guest guest]

Such a difficult thing for you to have to contend with! It is frightening to

see your children ill. Work with your doctor...tis disease can be controlled

with medication, but indeed it is frightening to read about. This board is a

great help and full of information!

Debby

[ ] 7 yr old with autoimmune hepatitis

I post on the other website as well. But I am seeing some new names. I

registered so i thought i would give it a try.

My 7 yr old daugther was recently diagnosed with autoimmune hepatitis

Type 2 She was diag in May of This Yr. She is currently on Imuran the

generic form. She was on Prednisone for only one month.

Her specialist says she is at a stage 2 . Whatever that means.

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[Guest guest]

Oh my Dear,

What a cruel thing to happen to your daughter, you and your family. I would

certainly get a second opinion. You can also as another pathologist to read the

slide. No one is perfect.

Be sure to ask if your doc eats liver, if they do they need more education on

liver

functions) And you need a new doc. (yes I do this with all my doc's)

When I was first diagnosed I had gone through at least 7 diagnosis. And, at

least 10 doc appointments and a biopsy.

I think I speak for many when I tell you I will pray and hope for you

daughter's quick recovery

Love and Peace

ne

[Guest guest]

I live in the St. Louis area and my Hepatologist is Dr. Lisker-Mehlman. He's

part of group at Washington University School of Medicine/ Hospital. The

office is very

busy but I like the convenience of the having all the testing one might need

it the same building (labs, radiology, etc.). This building is called CAM

(Center for Advanced Medicine). And am especially pleased with my nurse

co-ordinator, .

What part of of St.Louis does your daughter live in?

s_bravard <bravard3@...> wrote:

My daughter sees a doctor in St Louis Mo. He will be moving away from

the area. She will get a new one in Nov . He is a Liver Specialist/

Hepatologist/Gastroentologist. Their is a whole list of them in the

group. I have sent for a copy of her liver biospy. I want to see for

myself what it says. I didn't feel her doc took her disease very

seriously. Although, he did turn our lives upside down prior to

diagnosis.

[Guest guest]

How frightening for you! I hope your new doctor will be better. Debby

[ ] 7 yr old with autoimmune hepatitis

My daughter sees a doctor in St Louis Mo. He will be moving away from

the area. She will get a new one in Nov . He is a Liver Specialist/

Hepatologist/Gastroentologist. Their is a whole list of them in the

group. I have sent for a copy of her liver biospy. I want to see for

myself what it says. I didn't feel her doc took her disease very

seriously. Although, he did turn our lives upside down prior to

diagnosis.

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[Guest guest]

>

> I post on the other website as well. But I am seeing some new names.

I

> registered so i thought i would give it a try.

>

> My 7 yr old daugther was recently diagnosed with autoimmune hepatitis

> Type 2 She was diag in May of This Yr. She is currently on Imuran the

> generic form. She was on Prednisone for only one month.

> Her specialist says she is at a stage 2 . Whatever that means.

>

That is great news that she was on Prednisone for only a month! My

daughter was diagnosed with AIH when she was 3. She has been on pred,

or some other steroid for the last 5 years, and has never been able to

get off of it. She is also on Imuran.

Bruce

[Guest guest]

Oh you poor parents with these little ones with such a horrible disease! My

heart goes out to you all!

Debby

[ ] Re: 7 yr old with autoimmune hepatitis

>

> I post on the other website as well. But I am seeing some new names.

I

> registered so i thought i would give it a try.

>

> My 7 yr old daugther was recently diagnosed with autoimmune hepatitis

> Type 2 She was diag in May of This Yr. She is currently on Imuran the

> generic form. She was on Prednisone for only one month.

> Her specialist says she is at a stage 2 . Whatever that means.

>

That is great news that she was on Prednisone for only a month! My

daughter was diagnosed with AIH when she was 3. She has been on pred,

or some other steroid for the last 5 years, and has never been able to

get off of it. She is also on Imuran.

Bruce

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[Guest guest]

I am in St. Louis and have a top notch liver doc. He is Bruce Bacon at St.

Louis U. I highly recommend him.

Roxanne

[Guest guest]

In a message dated 9/30/2006 10:40:57 P.M. Central Standard Time,

lindawootten@... writes:

live in the St. Louis area and my Hepatologist is Dr. Lisker-Mehlman. He's

part of group at Washington University School of Medicine/ Hospital. The

office is very

busy but I like the convenience of the having all the testing one might need

it the same building (labs, radiology, etc.). This building is called CAM

(Center for Advanced Medicine). And am especially pleased with my nurse

co-ordinator, .

What part of of St.Louis does your daughter live in?

,

I am in St. Louis too. I am being treated at St. Louis U.

Roxanne

[Guest guest]

I live in Arnold (one exit south of St. Louis). What area do you live in? My

neighbor just had her 1st visit with Dr. Bacon & really liked him.

Re: [ ] 7 yr old with autoimmune hepatitis

In a message dated 9/30/2006 10:40:57 P.M. Central Standard Time,

lindawootten@... writes:

live in the St. Louis area and my Hepatologist is Dr. Lisker-Mehlman. He's

part of group at Washington University School of Medicine/ Hospital. The

office is very

busy but I like the convenience of the having all the testing one might need

it the same building (labs, radiology, etc.). This building is called CAM

(Center for Advanced Medicine). And am especially pleased with my nurse

co-ordinator, .

What part of of St.Louis does your daughter live in?

,

I am in St. Louis too. I am being treated at St. Louis U.

Roxanne