Guest guest Posted December 25, 2002 Report Share Posted December 25, 2002 Hi Mickianne, You might be subclinical thyroid. That is what I am. With the synthroid, my TSH was ok but I was having all the symptoms. I did basal body temps to find out about the subclinical and got my doc to give Armour. It has made a HUGE HUGE difference in all the symptoms except losing weight (to be fair I haven't really given the weight loss a good shot since starting the armour...now that christmas is over that is going to be changing). Janine > Hi - -mickianne here- - -I just was reading posts and I know > something is going on with me- -my hair is almost to the point of > being bald on the top of my hesd in the crown area. It is so thin you > can see the scalp. I had thyroid checked but they only do a tsh and i > think it was like 1.5. The doc referred me to an endo but I can't get > in any quicker than Mar.24th. He also told me to try & use rogaine > for women. Has any one tried this stuff? I heard it works in some > cases but there are other symptoms. I am very vain about this. I was > tempted to visit a beautician that does extensions but it may make > even more hair fall out. I may go & see what she thinks about it. I > really don't want to have to start wearing a wig. Not only that, but > I am starting to break out on my face. Those deep little pimples that > hurt and last a week or more before going away. Just another thing > to make me go crazier than I already am!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2003 Report Share Posted July 30, 2003 Hi : I have stayed a week in Milville, nj-- myself- stayed with a friend and her Dad--- quite a few yrs ago--I was a year out of highschool. I was lonely, though. I was young, had friends come to get me--- I went back to upstate, New York. It is a small world... Went to one of the boardwalks nearby, that was fun..... I have traveled alot--- picked apples in Washington State-- Washington is beautiful and ver laid-back-- enjoed the apple picking-- right now, can't think of the town, but, way up in the mountains--- it was beautiful--it was chelan, Wa.-- Sorry, got off track--- Hope everyone having a good day. Love, Gaynel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2009 Report Share Posted January 22, 2009 - when I first asked about quality of her care and second opinions I did not realize that you had seen Chesson and corresponded with Rae. I feel very bad for you because the answers are indeed very conflicting. The ultimate decision, unfortunately, will have to be yours. Has Dr. Keating responded? Also, remember we called your case to Dr. Furman's attention, and you will no doubt hear from him. I told you in my first e-mail that 17p patients generally do not respond well to Fludarabine, and I see that Dr. Rai confirmed that, but suggested it anyway. So far the only strange thing that I have heard is the 140,000 lymphocytes, which I find hard to believe with a WBC of 100,000. Normally lymphocyte count is a percentage of WBC. Older people are frequently given Chlorambucil and Rituxan. FR is certainly more aggressive than that. Revlimid is in trial stage, and I have had a number of elderly people on the group who responded to it with great difficulty. Please understand that this is a patient's thought, albeit one who has been around for a bit! I would go with Chlorambucil and Rituxan, or Bendamustine and Rituxan. But lets see what Keating and Furman say. Best, Inauguration '09: Get complete coverage from the nation's capital. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2009 Report Share Posted January 22, 2009 - thank you for that info - there is no doubt that your Mom is sick, but you need to consider that she's feeling well and is 83 years old. My guiding principle in such a situation would be to give her as much time as possible, without excessive discomfort. That is why I made the suggestions I made. Inauguration '09: Get complete coverage from the nation's capital. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2009 Report Share Posted January 22, 2009 Hi , Thank you for your concern. We are struggling because we have been told by Rai that FR is good, just don't do the whole cylce, just 3 or 4 monhts if she responds well. Keating said 17p response is "disappointing," with FR, but still do it because sometimes people respond. We are very confused, scared and concerned. We keep being told that our mother will feel so great after treatment, but she does not feel bad now, she has a great quality of life, we do not want to take that from her. I worry that we may be taking good quality of life from her, rather than giving her more. I am sorry if I confused things, her present Lymphocyte count is 140,000-3. If her markers were different, I may look at the FR treatment differently. With 17p, and all her other markers showing a more aggresive form, I don't know that FR is the right thing. Thank you so much, Re: - - - when I first asked about quality of her care and second opinions I did not realize that you had seen Chesson and corresponded with Rae. I feel very bad for you because the answers are indeed very conflicting. The ultimate decision, unfortunately, will have to be yours. Has Dr. Keating responded? Also, remember we called your case to Dr. Furman's attention, and you will no doubt hear from him. I told you in my first e-mail that 17p patients generally do not respond well to Fludarabine, and I see that Dr. Rai confirmed that, but suggested it anyway. So far the only strange thing that I have heard is the 140,000 lymphocytes, which I find hard to believe with a WBC of 100,000. Normally lymphocyte count is a percentage of WBC. Older people are frequently given Chlorambucil and Rituxan. FR is certainly more aggressive than that. Revlimid is in trial stage, and I have had a number of elderly people on the group who responded to it with great difficulty. Please understand that this is a patient's thought, albeit one who has been around for a bit! I would go with Chlorambucil and Rituxan, or Bendamustine and Rituxan. But lets see what Keating and Furman say. Best, Inauguration '09: Get complete coverage from the nation's capital. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2009 Report Share Posted January 22, 2009 , Thank you. I feel the same way that I will be making her "sick" when she is still functioning so well. Re: - - - thank you for that info - there is no doubt that your Mom is sick, but you need to consider that she's feeling well and is 83 years old. My guiding principle in such a situation would be to give her as much time as possible, without excessive discomfort. That is why I made the suggestions I made. Inauguration '09: Get complete coverage from the nation's capital. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.