Guest guest Posted May 1, 2001 Report Share Posted May 1, 2001 6 month old daughter Angelina was diagnosed with torticollis (left tilt) at her well visit last thursday and was referred to a physical therapist by her ped. Her appt is this thursday with the pt. I found this site yesterday and have done some research. I went home last night and looked down on top of her head and noticed that her right side is bulged more than the left and that her right side of her forhead looks a bit larger than the left and same with her cheek. I don't know where to go to from here. Do I wait and talk with the PT on thursday to confirm or call her ped to look at her to confirm. Please help me. I am very nervous about this. Thanks in advance. and Angie. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Lynn my grandson is the same way and he is 13 maybe we could get them to gether on my e mail is shannie_k@... From: Lynn Reynolds <lindaburkins@...>Subject: ( ) New here - need advice Date: Monday, August 3, 2009, 12:53 PM Hi all. I'm new here. Have son with asperger's whose almost 13. We have been managing his behavior well with therapy and special school until the last year and a half. His beloved grandma died and he started having occasional tantrums. Moved him to new private school and behavior improved for a while. Still occasional tantrums but more rare. Then two months ago I was told I might have uterine cancer. Had hysterectomy July 10 and was negative for cancer ( although it was precancer). Anyway, chris is completely falling apart with bigger and more violent tantrums almost daily . We thought it would let up after my surgery, but I am very weak and incapitated and will be for at least another month. The sight of me so weak is no doubt upsetting. But he is now having violent tantrums every other day - yelling, throwing things, cussing, spitting at his dad. No threats orewards seem to work. Seeing the psychologist isn't helping either. His dad is taking him to our doctor tomorrow and we suspect medication is our only remaining option, at least to try and get him under control until I'm well. Any advice on meds or other strategies is welcome! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2009 Report Share Posted August 4, 2009 Lynn from what I have read on the National Institute of Health that both SSRI's (prozac, zoloft) and Rispedal have been trialed for kids with AS. It has been explained to be that SSRI's like prozac or zoloft are often prescribed first to people/children because of there low side effect profiles. Our daughter was started on a low dose of zoloft and every few weeks it is increase 10mg. So far it has been 3 weeks no change yet, but with AS kids they often start very low and go slow. I also know rispedal is often prescribed if kids are aggressive. Something out of this class of meds may be prescribed. They often act very fast within a few days. These often are not prescribed first, it just seems to be the protocal. Weight gain is sometimes an issue. The other ideas I have is to keep him on a ridgid schedule, meals, extra sleep. Don't let him stay up late or get too obessed with too much computer or TV. Have him read to you or tell you about his special interest rather than retreat into his own world. It is a lot of work I know. I noticed when I am busy my daughter's behavior can be worse if she is lost in her own world. As far as behavioral methods you can start up a sticker chart again. Tell him he gets check marks/stickers if he stays calm. Give him lots of checks. The rewards can be 30 minutes of a board game with Dad, to stay up an extra hour, or a few dollars. It can bring focus to his life. When he does yell/tantrum catch him at the start and tell him you CAN'T give him a check for that behavior. That is it. No further punishment. I hope you are feeling better soon! Pam > > Hi all. I'm new here. Have son with asperger's whose almost 13. We have been managing his behavior well with therapy and special school until the last year and a half. His beloved grandma died and he started having occasional tantrums. Moved him to new private school and behavior improved for a while. Still occasional tantrums but more rare. Then two months ago I was told I might have uterine cancer. Had hysterectomy July 10 and was negative for cancer ( although it was precancer). Anyway, chris is completely falling apart with bigger and more violent tantrums almost daily . We thought it would let up after my surgery, but I am very weak and incapitated and will be for at least another month. The sight of me so weak is no doubt upsetting. But he is now having violent tantrums every other day - yelling, throwing things, cussing, spitting at his dad. No threats orewards seem to work. Seeing the psychologist isn't helping either. His dad is taking him to our doctor tomorrow and we suspect medication is our only remaining option, at least to try and get him under control until I'm well. Any advice on meds or other strategies is welcome! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2009 Report Share Posted August 4, 2009 Thanks Pam. I suspect the doc will suggestf zoloft. We've always been good about creating a routine, but it's all been very disrupted with my surgery. Hopefully things will settle down. Lynn > > > > Hi all. I'm new here. Have son with asperger's whose almost 13. We have been managing his behavior well with therapy and special school until the last year and a half. His beloved grandma died and he started having occasional tantrums. Moved him to new private school and behavior improved for a while. Still occasional tantrums but more rare. Then two months ago I was told I might have uterine cancer. Had hysterectomy July 10 and was negative for cancer ( although it was precancer). Anyway, chris is completely falling apart with bigger and more violent tantrums almost daily . We thought it would let up after my surgery, but I am very weak and incapitated and will be for at least another month. The sight of me so weak is no doubt upsetting. But he is now having violent tantrums every other day - yelling, throwing things, cussing, spitting at his dad. No threats orewards seem to work. Seeing the psychologist isn't helping either. His dad is taking him to our doctor tomorrow and we suspect medication is our only remaining option, at least to try and get him under control until I'm well. Any advice on meds or other strategies is welcome! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2009 Report Share Posted August 4, 2009 Hi Lynn, Well first off I am glad that your negative. Second, I have a son who is 14 w/AS, ADHD and moderate LD's.. we have been up and down throughout the years but seem to finally have leveled off. DJ is on a cocktail of meds for the different problems that he faces daily but we have thankfully been able to decrease his meds significantly in the last 4 months but only because I switched doctors. Anyway, depending on the diagnosis that he has and his ability to tolerate medication and side effects you may find that he is going to go through many more tantrums and meltdowns in the near future if that route is your chosen. I also have used behavior modification as the key player in DJ's life since he was about 5 which was long before we got the AS diagnosis. It is heart breaking and emotionally draining to see your child upset and out of control, this is something that we had many years of practice with due to a mediation roller coaster. I would have to think that most of the behavior that you are seeing is due to the fact that he knows the stable pyramid in his life is now vulnerable and that is killing him. My son would absolutely be the same way, we are tighter than tight. If you have been able to go this long with no meds then holy congrats because you made if much further than most of us. He is also going through puberty which I can never tell which is which anymore.. is he being a teen or is he a defiant AS kid? It all sort of blends after a while. Love, hugs, patience and more understanding than any one person should have to give out is the only thing that gets us through this incredible journey. For the anger I would try the Resprideral, this seems to work well for anger and anxiety also. Yes, there was a huge write up about this stuff about a month ago causing 'boobs' in kids, but be warned that these are the kids that are on very high doses for long periods of time and it seems to depend on the make-up of the child. My son is on 1mg, he is 14yrs old and about 115 lbs- so he is on a very low dose. DJ also takes paxil for his anxiety- this helps but be warned that it may have a reverse affect if there is an over dosage (again he is on a low dose). The two of these plus his adhd med helps him focus, control his emotions and see the world as we see it w/o confusion and agitation. Anxiety is a horrible thing and these kids seem to get alot of it. Anyway- good luck, sorry so long. If you want you can email me offline.. unfortunately I have too many years of medication advice to give.. but we have finally reached our 'perfect meds'.. they are tweaked here and there but we are on the right road!! rsSupport , " Lynn Reynolds " <lindaburkins@...> wrote: > > Hi all. I'm new here. Have son with asperger's whose almost 13. We have been managing his behavior well with therapy and special school until the last year and a half. His beloved grandma died and he started having occasional tantrums. Moved him to new private school and behavior improved for a while. Still occasional tantrums but more rare. Then two months ago I was told I might have uterine cancer. Had hysterectomy July 10 and was negative for cancer ( although it was precancer). Anyway, chris is completely falling apart with bigger and more violent tantrums almost daily . We thought it would let up after my surgery, but I am very weak and incapitated and will be for at least another month. The sight of me so weak is no doubt upsetting. But he is now having violent tantrums every other day - yelling, throwing things, cussing, spitting at his dad. No threats orewards seem to work. Seeing the psychologist isn't helping either. His dad is taking him to our doctor tomorrow and we suspect medication is our only remaining option, at least to try and get him under control until I'm well. Any advice on meds or other strategies is welcome! > Quote Link to comment Share on other sites More sharing options...
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