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Re: Auto Immune Disease

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Chuck and Barb and others: He did say, he took probably two of the

parathyroid glands, some muscle tissue and lymph nodules. Lab work

shows.Parathyroid tissue with crush artifact, Right thyroid-lobe measures

3.5x2.5x2cm., total collected was fresh-16.7 gram lobe with a piece of skeletal

muscle. Left thyroid received a 5.2-gram thyroid lobe measuring 3.5x2x1cm.

(Small focus of papillary carcinoma (1-mm).

Right neck: Superior: One out of one lymph with metastatic papillary

carcinoma measuring (1.5-cm) in diameter with extracapsular extension.

Middle: Two out of twelve lymph nodes contain metastatic papillary carcinoma,

largest lymph node size is (0.4-cm)

Interior: One of out eleven lymph nodes contains metastatic papillary

carcinoma, largest measuring (3-mm)

Sternocleidomastoid muscle: Normal tissue, negative for malignancy.

What is left behind the radioactive treatment in the neck area, will take care

of them.

I hope all of you can understand these items on the Lab report, better than

me.

Now for my Health Ins. to agree for the treatment. He did said, I could

switch to the Citrical from Caltrate. He is to see me again on Dec. 14th. You

would thought he would have send me to a Endocrinologist by now and let them

take over my case. Since he is a ENT Dr. ANN

________________________________

From: Virginia A. Barker <timesharer2000@...>

hypothyroidism

Sent: Tue, November 30, 2010 12:44:45 PM

Subject: Re: Auto Immune Disease

Chuck: I am going to ask him if he had to take the parathyroid glands, too. I

have it on my list, when I see him again this Thursday. He does have me taking

Caltrate which has Calcium & V-D--600mg twice a day. There are several

Caltrates, which I forgot to take the box, which show them, to the doctor when I

went last Mon. Just to make sure I got the right one. No thyroid meds yet.

Will have blood work the end of the 6 wks. Ann

Had blood work the day before my surgery at Admitting. Plus lung X-ray and EKG.

________________________________

From: Virginia A. Barker <timesharer2000@...>

hypothyroidism

Sent: Sun, November 28, 2010 10:44:08 AM

Subject: Re: Auto Immune Disease

Chuck: Yes will have the iodine ablation, but will be 6wks, he said, before

doing it.

Thanks again. Ann

________________________________

From: ChuckB <gumboyaya@...>

hypothyroidism

Sent: Sat, November 27, 2010 4:21:13 PM

Subject: Re: Auto Immune Disease

Ann,

You wrote:

> ... Will let you guys

> know later on my progress if you like.

Please do, when you feel up to it.

I sounds as if the surgeon was unable to spare the parathyroids. That

could mean additional medications to control calcium metabolism as well

as the thyroid.

Are you going to follow up with iodine ablation? Although that is a

straightforward procedure, the rules about how to do it vary between

states. Some require a hospital stay. Some recommend you spend a few

days in a hotel, where they change the linen daily. My son did it at

home, so I can describe the details for you.

Chuck

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Since I'm a lay person much of the nomenclature is beyond me but I'll

suggest a few things that might be of help. But remember, I'm no expert

on anything. More below...

..

..

> Posted by: " Virginia A. Barker " timesharer2000@...

>

<mailto:timesharer2000@...?Subject=%20Re%3A%20Auto%20Immune%20Disease>

> TimeSharer2000 <TimeSharer2000>

>

>

> Fri Dec 3, 2010 6:41 pm (PST)

>

>

>

> Chuck and Barb and others: He did say, he took probably two of the

> parathyroid glands, some muscle tissue and lymph nodules. Lab work

> shows.Parathyroid tissue with crush artifact, Right thyroid-lobe measures

> 3.5x2.5x2cm.

> , total collected was fresh-16.7 gram lobe with a piece of skeletal

> muscle. Left thyroid received a 5.2-gram thyroid lobe measuring

> 3.5x2x1cm.

> (Small focus of papillary carcinoma (1-mm).

..

..

This gives the size and weight of the removed tissue. I'd guess that he

took our quite a bit in trying to be sure he got all of the cancer.

There are over 28 grams in an oz so you can see he remove well over half

an ounce of tissue from the right thyroid lobe and well under a quarter

ounce from the left. The right tissue measured one inch by over 1.5

inch by 1/12 inch MOL. The left one measured over 1.5 inches by over

3/4 inches by 1/25 inch MOL. The left thyroid lob contained a very

small cancer, about 1/25 of an inch [diameter?].

..

..

>

> Right neck: Superior: One out of one lymph with metastatic papillary

> carcinoma measuring (1.5-cm) in diameter with extracapsular extension.

..

..

A cancer over 1/2 inch diameter. I think the extracapsular extension

means it extended outside the lymph node; not sure. But that's not the

same as metastasized.

..

..

>

> Middle: Two out of twelve lymph nodes contain metastatic papillary

> carcinoma,

> largest lymph node size is (0.4-cm)

..

..

A small cancer, well under 1/4 inch.

..

..

> Interior: One of out eleven lymph nodes contains metastatic papillary

> carcinoma, largest measuring (3-mm)

..

..

Of the interior lymph nodes there was a very tiny cancer in only one,

around 1/8 inch in diameter.

..

..

> Sternocleidomastoid muscle: Normal tissue, negative for malignancy.

..

..

No cancer found in the muscle tissue [very good news].

Bear in mind that I don't normally use metric measurements in everyday

activities so I may have screwed them up; in which case hopefully Chuck

or someone will correct them.

Best,

..

..

> What is left behind the radioactive treatment in the neck area, will

> take care

> of them.

> I hope all of you can understand these items on the Lab report, better

> than

> me.

>

> Now for my Health Ins. to agree for the treatment. He did said, I could

> switch to the Citrical from Caltrate. He is to see me again on Dec.

> 14th. You

> would thought he would have send me to a Endocrinologist by now and

> let them

> take over my case. Since he is a ENT Dr. ANN

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,

I don't have a clue about any of this, so thanks for helping to explain it to

Ann and the rest of us.

Barb

Re: Auto Immune Disease

Since I'm a lay person much of the nomenclature is beyond me but I'll

suggest a few things that might be of help. But remember, I'm no expert

on anything. More below...

..

..

> Posted by: " Virginia A. Barker " timesharer2000@...

> <mailto:timesharer2000@...?Subject=%20Re%3A%20Auto%20Immune%20Disease>

> TimeSharer2000 <TimeSharer2000>

>

>

> Fri Dec 3, 2010 6:41 pm (PST)

>

>

>

> Chuck and Barb and others: He did say, he took probably two of the

> parathyroid glands, some muscle tissue and lymph nodules. Lab work

> shows.Parathyroid tissue with crush artifact, Right thyroid-lobe measures

> 3.5x2.5x2cm.

> , total collected was fresh-16.7 gram lobe with a piece of skeletal

> muscle. Left thyroid received a 5.2-gram thyroid lobe measuring

> 3.5x2x1cm.

> (Small focus of papillary carcinoma (1-mm).

..

..

This gives the size and weight of the removed tissue. I'd guess that he

took our quite a bit in trying to be sure he got all of the cancer.

There are over 28 grams in an oz so you can see he remove well over half

an ounce of tissue from the right thyroid lobe and well under a quarter

ounce from the left. The right tissue measured one inch by over 1.5

inch by 1/12 inch MOL. The left one measured over 1.5 inches by over

3/4 inches by 1/25 inch MOL. The left thyroid lob contained a very

small cancer, about 1/25 of an inch [diameter?].

..

..

>

> Right neck: Superior: One out of one lymph with metastatic papillary

> carcinoma measuring (1.5-cm) in diameter with extracapsular extension.

..

..

A cancer over 1/2 inch diameter. I think the extracapsular extension

means it extended outside the lymph node; not sure. But that's not the

same as metastasized.

..

..

>

> Middle: Two out of twelve lymph nodes contain metastatic papillary

> carcinoma,

> largest lymph node size is (0.4-cm)

..

..

A small cancer, well under 1/4 inch.

..

..

> Interior: One of out eleven lymph nodes contains metastatic papillary

> carcinoma, largest measuring (3-mm)

..

..

Of the interior lymph nodes there was a very tiny cancer in only one,

around 1/8 inch in diameter.

..

..

> Sternocleidomastoid muscle: Normal tissue, negative for malignancy.

..

..

No cancer found in the muscle tissue [very good news].

Bear in mind that I don't normally use metric measurements in everyday

activities so I may have screwed them up; in which case hopefully Chuck

or someone will correct them.

Best,

..

..

> What is left behind the radioactive treatment in the neck area, will

> take care

> of them.

> I hope all of you can understand these items on the Lab report, better

> than

> me.

>

> Now for my Health Ins. to agree for the treatment. He did said, I could

> switch to the Citrical from Caltrate. He is to see me again on Dec.

> 14th. You

> would thought he would have send me to a Endocrinologist by now and

> let them

> take over my case. Since he is a ENT Dr. ANN

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Thanks for your input on my Lab Report, I will print it off and study it

more, since it is in inches, so to speak. Ann

Should I have the treatment done or not? I really do not want to have it

done, only if it is bad enough to do it. What is you'all think?

Ann

________________________________

From: H <macbarb0503@...>

hypothyroidism

Sent: Sat, December 4, 2010 12:10:57 PM

Subject: Re: Re: Auto Immune Disease

,

I don't have a clue about any of this, so thanks for helping to explain it to

Ann and the rest of us.

Barb

Re: Auto Immune Disease

Since I'm a lay person much of the nomenclature is beyond me but I'll

suggest a few things that might be of help. But remember, I'm no expert

on anything. More below...

..

..

> Posted by: " Virginia A. Barker " timesharer2000@...

> <mailto:timesharer2000@...?Subject=%20Re%3A%20Auto%20Immune%20Disease>

> TimeSharer2000 <TimeSharer2000>

>

>

> Fri Dec 3, 2010 6:41 pm (PST)

>

>

>

> Chuck and Barb and others: He did say, he took probably two of the

> parathyroid glands, some muscle tissue and lymph nodules. Lab work

> shows.Parathyroid tissue with crush artifact, Right thyroid-lobe measures

> 3.5x2.5x2cm.

> , total collected was fresh-16.7 gram lobe with a piece of skeletal

> muscle. Left thyroid received a 5.2-gram thyroid lobe measuring

> 3.5x2x1cm.

> (Small focus of papillary carcinoma (1-mm).

..

..

This gives the size and weight of the removed tissue. I'd guess that he

took our quite a bit in trying to be sure he got all of the cancer.

There are over 28 grams in an oz so you can see he remove well over half

an ounce of tissue from the right thyroid lobe and well under a quarter

ounce from the left. The right tissue measured one inch by over 1.5

inch by 1/12 inch MOL. The left one measured over 1.5 inches by over

3/4 inches by 1/25 inch MOL. The left thyroid lob contained a very

small cancer, about 1/25 of an inch [diameter?].

..

..

>

> Right neck: Superior: One out of one lymph with metastatic papillary

> carcinoma measuring (1.5-cm) in diameter with extracapsular extension.

..

..

A cancer over 1/2 inch diameter. I think the extracapsular extension

means it extended outside the lymph node; not sure. But that's not the

same as metastasized.

..

..

>

> Middle: Two out of twelve lymph nodes contain metastatic papillary

> carcinoma,

> largest lymph node size is (0.4-cm)

..

..

A small cancer, well under 1/4 inch.

..

..

> Interior: One of out eleven lymph nodes contains metastatic papillary

> carcinoma, largest measuring (3-mm)

..

..

Of the interior lymph nodes there was a very tiny cancer in only one,

around 1/8 inch in diameter.

..

..

> Sternocleidomastoid muscle: Normal tissue, negative for malignancy.

..

..

No cancer found in the muscle tissue [very good news].

Bear in mind that I don't normally use metric measurements in everyday

activities so I may have screwed them up; in which case hopefully Chuck

or someone will correct them.

Best,

..

..

> What is left behind the radioactive treatment in the neck area, will

> take care

> of them.

> I hope all of you can understand these items on the Lab report, better

> than

> me.

>

> Now for my Health Ins. to agree for the treatment. He did said, I could

> switch to the Citrical from Caltrate. He is to see me again on Dec.

> 14th. You

> would thought he would have send me to a Endocrinologist by now and

> let them

> take over my case. Since he is a ENT Dr. ANN

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Wow Virginia, or is it Ann? My employer's name is Virginia. I work as a care

giver. I plan on working in a grocery store. How about going to a health food

store and ask for advice on improving cancer, thyroid, etc.? I have been taking

supplements my entire life. I began eating ground flax seed. That is a good one.

Brown rice is good. I am not continuing my Enagic Kangen water business since I

did not make a sale and funds are too low to continue the maintenance on my

machine. You counld also look into drinking better water, Kangen water.

Thanks, na Sherwood

Please contact Rieben to arrange a presentation from for eventually buying

an Enagic Kangen water machine from me-Enagic Co., Ltd. c/o or Estella

Rieben-

503 871 2388

503 463 1127 FAX

david.rieben@...

“CHANGE YOUR WATER, CHANGE YOUR LIFEâ€

www.Enagic.com

From: Virginia A. Barker <timesharer2000@...>

Subject: Re: Re: Auto Immune Disease

hypothyroidism

Date: Saturday, December 4, 2010, 5:19 PM

 

Thanks for your input on my Lab Report, I will print it off and study it

more, since it is in inches, so to speak. Ann

Should I have the treatment done or not? I really do not want to have it

done, only if it is bad enough to do it. What is you'all think?

Ann

________________________________

From: H <macbarb0503@...>

hypothyroidism

Sent: Sat, December 4, 2010 12:10:57 PM

Subject: Re: Re: Auto Immune Disease

,

I don't have a clue about any of this, so thanks for helping to explain it to

Ann and the rest of us.

Barb

Re: Auto Immune Disease

Since I'm a lay person much of the nomenclature is beyond me but I'll

suggest a few things that might be of help. But remember, I'm no expert

on anything. More below...

..

..

> Posted by: " Virginia A. Barker " timesharer2000@...

> <mailto:timesharer2000@...?Subject=%20Re%3A%20Auto%20Immune%20Disease>

> TimeSharer2000 <TimeSharer2000>

>

>

> Fri Dec 3, 2010 6:41 pm (PST)

>

>

>

> Chuck and Barb and others: He did say, he took probably two of the

> parathyroid glands, some muscle tissue and lymph nodules. Lab work

> shows.Parathyroid tissue with crush artifact, Right thyroid-lobe measures

> 3.5x2.5x2cm.

> , total collected was fresh-16.7 gram lobe with a piece of skeletal

> muscle. Left thyroid received a 5.2-gram thyroid lobe measuring

> 3.5x2x1cm.

> (Small focus of papillary carcinoma (1-mm).

..

..

This gives the size and weight of the removed tissue. I'd guess that he

took our quite a bit in trying to be sure he got all of the cancer.

There are over 28 grams in an oz so you can see he remove well over half

an ounce of tissue from the right thyroid lobe and well under a quarter

ounce from the left. The right tissue measured one inch by over 1.5

inch by 1/12 inch MOL. The left one measured over 1.5 inches by over

3/4 inches by 1/25 inch MOL. The left thyroid lob contained a very

small cancer, about 1/25 of an inch [diameter?].

..

..

>

> Right neck: Superior: One out of one lymph with metastatic papillary

> carcinoma measuring (1.5-cm) in diameter with extracapsular extension.

..

..

A cancer over 1/2 inch diameter. I think the extracapsular extension

means it extended outside the lymph node; not sure. But that's not the

same as metastasized.

..

..

>

> Middle: Two out of twelve lymph nodes contain metastatic papillary

> carcinoma,

> largest lymph node size is (0.4-cm)

..

..

A small cancer, well under 1/4 inch.

..

..

> Interior: One of out eleven lymph nodes contains metastatic papillary

> carcinoma, largest measuring (3-mm)

..

..

Of the interior lymph nodes there was a very tiny cancer in only one,

around 1/8 inch in diameter.

..

..

> Sternocleidomastoid muscle: Normal tissue, negative for malignancy.

..

..

No cancer found in the muscle tissue [very good news].

Bear in mind that I don't normally use metric measurements in everyday

activities so I may have screwed them up; in which case hopefully Chuck

or someone will correct them.

Best,

..

..

> What is left behind the radioactive treatment in the neck area, will

> take care

> of them.

> I hope all of you can understand these items on the Lab report, better

> than

> me.

>

> Now for my Health Ins. to agree for the treatment. He did said, I could

> switch to the Citrical from Caltrate. He is to see me again on Dec.

> 14th. You

> would thought he would have send me to a Endocrinologist by now and

> let them

> take over my case. Since he is a ENT Dr. ANN

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I'm not exactly sure what treatment you are discussing [can't remember]

but if it's the follow-up to the cancer surgery it can be extremely

important. And if it's the radioactive iodine treatment to follow

thyroid surgery I think it's probably critical, and also probably has

fewer side effects [not sure though]. This is because the thyroid

tissue is so efficient at grabbing any iodine that it will be virtually

the only part of your body affected.

That being said I know some of the chemo therapy can be exceedingly

uncomfortable, to say the least. OTOH it's probably not nearly as

uncomfortable as dealing with end stage cancer with no hope.

Best,

..

..

>

> Posted by: " Virginia A. Barker " timesharer2000@...

>

<mailto:timesharer2000@...?Subject=%20Re%3A%20Auto%20Immune%20Disease>

> TimeSharer2000 <TimeSharer2000>

>

>

> Sat Dec 4, 2010 5:26 pm (PST)

>

>

>

> Thanks for your input on my Lab Report, I will print it off and

> study it

> more, since it is in inches, so to speak. Ann

> Should I have the treatment done or not? I really do not want to have it

> done, only if it is bad enough to do it. What is you'all think?

>

> Ann

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It's too bad you got hooked by the scammers promoting the Kangan water

MLM [Mult Level Marketing] hoax. This is a somewhat freaky video but

lays it out pretty well:

..

http://www.youtube.com/watch?v=2VP91quAPQA & feature=related

..

If you think the best place to get advice to treat cancer or thyroid

problems is a health food store then I can see how the hoax product

might appeal to you.

Luck,

..

..

>

> Posted by: " na Sherwood " shernaab@...

> <mailto:shernaab@...?Subject=%20Re%3A%20Auto%20Immune%20Disease>

> shernaab <shernaab>

>

>

> Sun Dec 5, 2010 12:22 am (PST)

>

>

>

> Wow Virginia, or is it Ann? My employer's name is Virginia. I work as

> a care giver. I plan on working in a grocery store. How about going to

> a health food store and ask for advice on improving cancer, thyroid,

> etc.? I have been taking supplements my entire life. I began eating

> ground flax seed. That is a good one. Brown rice is good. I am not

> continuing my Enagic Kangen water business since I did not make a sale

> and funds are too low to continue the maintenance on my machine. You

> counld also look into drinking better water, Kangen water.

>

> Thanks, na Sherwood

>

> Please contact Daxxxxxxxxxxxben to arrange a presentation from for

> eventually buying an Enagic Kangen water machine from me-Enagic Co.,

> Ltd. c/o Daxxxx or Exxxxxxxxxxxben-

> 50xxxxxx1 2388

> 50xxxxxxxx127 FAX

> davxxxxxxxxxxben@... <mailto:david.rieben%40juno.com>

> “CHANGE YOUR WATER, CHANGE YOUR LIFE”

>

> www.Enagic.com

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Share on other sites

      Thanks for the measurements, something I can put on mind on.

 The treatment is for the Radioactive iodine.  Will see my Health Ins. person,

who is meeting me at my Primary Care Doctor's office Monday. 5th.

  I am on a Blood pressure med., too.  I think they are wanted to put me in

another plan, for what reason, I do not know.  I will take a copy of my Lab

work

and your answer to the measurement in English.    Thanks all for your input

in

my case.

 Ann

 

 

________________________________

From: <res075oh@...>

hypothyroidism

Sent: Sun, December 5, 2010 12:52:22 PM

Subject: Re: Auto Immune Disease

I'm not exactly sure what treatment you are discussing [can't remember]

but if it's the follow-up to the cancer surgery it can be extremely

important. And if it's the radioactive iodine treatment to follow

thyroid surgery I think it's probably critical, and also probably has

fewer side effects [not sure though]. This is because the thyroid

tissue is so efficient at grabbing any iodine that it will be virtually

the only part of your body affected.

That being said I know some of the chemo therapy can be exceedingly

uncomfortable, to say the least. OTOH it's probably not nearly as

uncomfortable as dealing with end stage cancer with no hope.

Best,

..

..

>

> Posted by: " Virginia A. Barker " timesharer2000@...

> <mailto:timesharer2000@...?Subject=%20Re%3A%20Auto%20Immune%20Disease>

> TimeSharer2000 <TimeSharer2000>

>

>

> Sat Dec 4, 2010 5:26 pm (PST)

>

>

>

> Thanks for your input on my Lab Report, I will print it off and

> study it

> more, since it is in inches, so to speak. Ann

> Should I have the treatment done or not? I really do not want to have it

> done, only if it is bad enough to do it. What is you'all think?

>

> Ann

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Ann,

You wrote:

>

> ... I hope all of you can understand these items on the Lab report, better

than

> me....You would thought he would have send me to a Endocrinologist by now and

let

> them take over my case. Since he is a ENT Dr.

The report is mainly an inventory of what was removed and whether each

part contained the papillary cells. I am sure the insurance should

approve the iodine ablation, since that is a standard procedure under

these circumstances. Thyroid cells, whether normal or not, should

selectively pick up the radioactive iodine and be destroyed. This means

you will always need a thyroid hormone supplement, but it should also

get rid of any trace of the papillary cells.

You may eventually need an consulting endo for follow up, but your ENT

should be able to get the appropriate treatments started and then fine

tune it. Parathyroid involvement just means some attention will be

needed to keep your calcium and phosphorus metabolism in line.

Chuck

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Ann,

You wrote:

> ... Should I have the treatment done or not? I really do not want to have it

> done, only if it is bad enough to do it. What is you'all think?

If you mean the ablation, yes. You may even need to repeat it later.

This is definitely bad enough to require it.

Chuck

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Chuck, speaking of calcium and phosphorus, how can I set myself up on the

correct electrolyte

formula when starting with 1000 mgs per day of magnesium oxide (which seems to

be my body's limit).

 

I am currently taking 99mgs of potassium divided by 3 times a day. I have no

clue as to how to get phosporus. I take a calcium/D pill of 600 mgs and

sometimes add a Tums which is 700 or 750 (I forget).

 

I use sea salt almost exclusively. I don't usually cook with salt, but use a bit

on my food.

 

 

 

 

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

>

> ... I hope all of you can understand these items on the Lab report, better

than

> me....You would thought he would have send me to a Endocrinologist by now and

let

> them take over my case. Since he is a ENT Dr.

The report is mainly an inventory of what was removed and whether each

part contained the papillary cells. I am sure the insurance should

approve the iodine ablation, since that is a standard procedure under

these circumstances. Thyroid cells, whether normal or not, should

selectively pick up the radioactive iodine and be destroyed. This means

you will always need a thyroid hormone supplement, but it should also

get rid of any trace of the papillary cells.

You may eventually need an consulting endo for follow up, but your ENT

should be able to get the appropriate treatments started and then fine

tune it. Parathyroid involvement just means some attention will be

needed to keep your calcium and phosphorus metabolism in line.

Chuck

------------------------------------

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Roni,

With most electrolytes, including phosphorus, you get way more than you

need in a normal diet. Possible deficiencies come from failure in

absorption, processing, or excess removal. Calcium is actually toxic if

you take too much, and many studies have shown that osteoporosis is not

affected by taking extra calcium. The issue is where your body puts its

calcium. The parathyroids control this. When they fail, there are

medications that help.

If you take way too much of any one mineral, it can mess up others.

Copper and zinc are one example of such contrary minerals. Too much of

one creates an apparent deficiency of the other. Consequently, I would

suggest not over doing any one supplement. Just because a little of

something may be good, does not mean a lot would be even better.

Chuck

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THANKS CHUCK. ANN

________________________________

From: ChuckB <gumboyaya@...>

hypothyroidism

Sent: Sun, December 5, 2010 4:38:31 PM

Subject: Re: Auto Immune Disease

Ann,

You wrote:

>

> ... I hope all of you can understand these items on the Lab report, better

than

> me....You would thought he would have send me to a Endocrinologist by now and

>let

> them take over my case. Since he is a ENT Dr.

The report is mainly an inventory of what was removed and whether each

part contained the papillary cells. I am sure the insurance should

approve the iodine ablation, since that is a standard procedure under

these circumstances. Thyroid cells, whether normal or not, should

selectively pick up the radioactive iodine and be destroyed. This means

you will always need a thyroid hormone supplement, but it should also

get rid of any trace of the papillary cells.

You may eventually need an consulting endo for follow up, but your ENT

should be able to get the appropriate treatments started and then fine

tune it. Parathyroid involvement just means some attention will be

needed to keep your calcium and phosphorus metabolism in line.

Chuck

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Oh I completely agree, and I only have the copper and zinc in my multi. As for

the electrolytes

I would just like the doctor to tell me what I'm supposed to have of each. My

edema is really bad

and I need help. They all so far (3 of them) acknowledge that I have edema and

that it's bad but they don't actually do anything to help me. The Cardio took

blood tests and the kidneys were working all right and something else I can't

remember right now. The Cardio is the one who

rxd the magnesium, so I think that he should have also taken into account the

rest of them. My pressure was taken Friday in my Rheumy's office and it was

117/77, so I don't think I'm taking in too much salt. I stay under the RDA.

 

 

 

 

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

From: ChuckB <gumboyaya@...>

Subject: Re: Auto Immune Disease

hypothyroidism

Date: Sunday, December 5, 2010, 5:08 PM

Roni,

With most electrolytes, including phosphorus, you get way more than you

need in a normal diet. Possible deficiencies come from failure in

absorption, processing, or excess removal. Calcium is actually toxic if

you take too much, and many studies have shown that osteoporosis is not

affected by taking extra calcium. The issue is where your body puts its

calcium. The parathyroids control this. When they fail, there are

medications that help.

If you take way too much of any one mineral, it can mess up others.

Copper and zinc are one example of such contrary minerals. Too much of

one creates an apparent deficiency of the other. Consequently, I would

suggest not over doing any one supplement. Just because a little of

something may be good, does not mean a lot would be even better.

Chuck

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Roni,

You wrote:

> ...The Cardio is the one who

> rxd the magnesium, so I think that he should have also taken into

> account the rest of them. My pressure was taken Friday in my Rheumy's

> office and it was 117/77, so I don't think I'm taking in too much salt.

> I stay under the RDA.

Magnesium can help retain potassium, so this still might be a sodium

problem. Salt is tricky. Some people react to it with blood pressure. My

son, Mike, is an example of edema without blood pressure. The

cardiologist thinks this is due to inefficient valves which lead to

cardiac insufficiency with salt. His surgeon thinks it is something

else, but he is still obviously sensitive to salt, since he needs

diuretics to keep the edema in check.

Chuck

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Yes, I've heard the drill from them. I don't think they really know why this is

going on and so they blame it on valves. They don't seem to have any way to

prove that, so it seems like a convenient answer. There are days that I eat no

salt at all and it doesn't make a diffeence. The extra potassium helped a bit,

but not enough.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

> ...The Cardio is the one who

> rxd the magnesium, so I think that he should have also taken into

> account the rest of them. My pressure was taken Friday in my Rheumy's

> office and it was 117/77, so I don't think I'm taking in too much salt.

> I stay under the RDA.

Magnesium can help retain potassium, so this still might be a sodium

problem. Salt is tricky. Some people react to it with blood pressure. My

son, Mike, is an example of edema without blood pressure. The

cardiologist thinks this is due to inefficient valves which lead to

cardiac insufficiency with salt. His surgeon thinks it is something

else, but he is still obviously sensitive to salt, since he needs

diuretics to keep the edema in check.

Chuck

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Roni, you may know all this already, but the folks are always talking

about aldosterone/ renin and Anti Diuretic Hormone (vassopressin) and its

relationship to the fluids. It's somewhere to look if you haven't already,

although it seems horribly complex and difficult to get right through testing.

Marla

> > ...The Cardio is the one who

> > rxd the magnesium, so I think that he should have also taken into

> > account the rest of them. My pressure was taken Friday in my Rheumy's

> > office and it was 117/77, so I don't think I'm taking in too much salt.

> > I stay under the RDA.

>

> Magnesium can help retain potassium, so this still might be a sodium

> problem. Salt is tricky. Some people react to it with blood pressure. My

> son, Mike, is an example of edema without blood pressure. The

> cardiologist thinks this is due to inefficient valves which lead to

> cardiac insufficiency with salt. His surgeon thinks it is something

> else, but he is still obviously sensitive to salt, since he needs

> diuretics to keep the edema in check.

>

> Chuck

>

>

> ------------------------------------

>

>

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Yes, I've read their positions. I think they put the cart before the horse with

the vasopressin being the cart, and the organs that produce the vasopressin the

horse. If there was some vasopressin I could buy in a pill I would try it, but

so far that doesn't seem to be the case.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

From: flatwoodfarms <marlum@...>

Subject: Re: Auto Immune Disease

hypothyroidism

Date: Tuesday, December 7, 2010, 3:28 PM

Roni, you may know all this already, but the folks are always talking

about aldosterone/ renin   and  Anti Diuretic Hormone (vassopressin) and its

relationship to the fluids.  It's somewhere to look if you haven't already,

although it seems horribly complex and difficult to get right through testing.

Marla

> > ...The Cardio is the one who

> > rxd the magnesium, so I think that he should have also taken into

> > account the rest of them. My pressure was taken Friday in my Rheumy's

> > office and it was 117/77, so I don't think I'm taking in too much salt.

> > I stay under the RDA.

>

> Magnesium can help retain potassium, so this still might be a sodium

> problem. Salt is tricky. Some people react to it with blood pressure. My

> son, Mike, is an example of edema without blood pressure. The

> cardiologist thinks this is due to inefficient valves which lead to

> cardiac insufficiency with salt. His surgeon thinks it is something

> else, but he is still obviously sensitive to salt, since he needs

> diuretics to keep the edema in check.

>

> Chuck

>

>

> ------------------------------------

>

>

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Roni,

You wrote:

> Yes, I've read their positions. I think they put the cart before the

> horse with the vasopressin being the cart, and the organs that produce

> the vasopressin the horse. If there was some vasopressin I could buy in

> a pill I would try it, but so far that doesn't seem to be the case.

Why would you want to? Vasopressin is an _anti-_ diuretic. There is a

commercial mimetic called desmopressin, but that would probably increase

the edema. There have been vasopressin receptor antagonists available

since the 1990s, but they have undesirable side effects.

Chuck

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I was pretty upset when I wrote that. I don't think I even knew what I was

thinking. My feet and legs were hurting no matter if I sat, stood up or lay

down. You're right, I would not want the edema increased.

 

I have a bulletin on that, I've been taking the Triamterine (37/25) once each

morning along with a 99mg potassium pill 3x day.

 

 I have been on 1000 mgs of magnesium divided for a long time now. I have taken

the Triamterine for two days and today is the third. My edema is less for the

first time since this last flare up of the edema happened. I have an appointment

with the cardiologist who also uses alternative medicine with people like me who

are very sensitive to regular medications. I want

him to put it all out for me as far as the electrolytes, because I very strongly

believe that is where this edema is coming from. I want to know how much of each

of them I'm supposed to have

each day. I'll post what happens. My appointment is not till next week.

 

I went to my Rheumatologist who said he didn't buy that the rash is coming from

the edema, last

week, and lo and behold the Dermatologist's office just called for me to come in

for a follow up appointment. They are part of the same healthcare system, so

maybe he contacted her. He's a really good doctor and a very nice one to boot.

He also gave me a referral to an internist which

I needed to find and I have an appointment with him later next week too.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

> Yes, I've read their positions. I think they put the cart before the

> horse with the vasopressin being the cart, and the organs that produce

> the vasopressin the horse. If there was some vasopressin I could buy in

> a pill I would try it, but so far that doesn't seem to be the case.

Why would you want to? Vasopressin is an _anti-_ diuretic. There is a

commercial mimetic called desmopressin, but that would probably increase

the edema. There have been vasopressin receptor antagonists available

since the 1990s, but they have undesirable side effects.

Chuck

------------------------------------

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