Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 Hi, I'm genotype 1a also, and unfortunately I put off my treatment because I didn't want to go through the side effects. Now I found out that it has advanced to cirrhosis, and I have no choice. There's less chance that the treatment will work with cirrhosis, so I wish I had begun treatment sooner. I still have hope, but now I just don't have an option to have the treatment or not. I've just had my fifth shot. Not many side effects so far, just a slight fever, aches and headaches, and very tired all the time. I hope you're able to find out what's best for you from your doctor. Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 I do think that treatment is more effective if done at an early stage. From what the doc had told me, and the protocol he follows, he will probably recommend the treatment. Since I am healthy, I may have less sides. Well, mostly healthy- there have been sypmtoms, but the question remains, are they symptoms of Stage 1 Grade 1 liver disease or being overweight or getting older or a combination? I believe a combination; I try to be in tune with my self; physical, emotional and spiritual self. I was guessing Stage 1 Grade 1 from the way I feel. It really is a crap shoot- different people react differently, both to the virus and to the treatment. I hope people remember that when they give advice, or when they receive advice. I very much believe in the power of positive thinking (which includes the power of suggestion) so I am working on developing a positive mindset for the journey ahead, whichever direction it takes! Thanks for reminding where that branch sometimes leads... > > Hi, > I'm genotype 1a also, and unfortunately I put off my treatment because > I didn't want to go through the side effects. & nbsp; Now I found out > that it has advanced to cirrhosis, and I have no choice. & nbsp; There's > less chance that the treatment will work with cirrhosis, so I wish I > had begun treatment sooner. I still have hope, but now I just don't > have an option to have the treatment or not. & nbsp; I've just had my > fifth shot. & nbsp; & nbsp; Not many side effects so far, just a slight > fever, aches and headaches, and very tired all the time. & nbsp; > > I hope you're able to find out what's best for you from your doctor. > > Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 In a message dated 5/9/2003 1:57:48 PM Pacific Standard Time, mhksmom@... writes: > And Dave, I think we're all just a little bit nutty. Doesn't nutty and parent go together? It seems to here! Great news on ! And great news on gaining a son in law! K Adrienne's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2003 Report Share Posted May 10, 2003 Dave, Great news on Jen's health and marriage! Wishing you mild weather and stable barometric pressure... http://home.dejazzd.com/hower Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2003 Report Share Posted May 10, 2003 Dave, what superb family news!! Good to hear from you. Weather to the west has been " unusual " too. It's really green around here for a semi-arid area. Hi all. I haven't posted much in the last few months - life's been more than a little hectic. So, a short update. Still teaching one course in Operations Management at the University of Lethbridge. We had to move my in-laws from Penticton, BC after my father-in law had a pretty severe stroke last summer. The medical system there is " broken " (to be kind)- they told my mother-in-law that her husband would never be able to be out of a hospital/nursing home, would need total care for everything and she should get on with living alone. He's 85 and I believe that they decided not to bother with him (rationing healthcare?) so we moved them at New Years to live with us. (Westjet helped a whole bunch). He was extremely frail, with an arm and a leg totally crippled and bent from inadequate rehabilitaion, and virtually starved due to the poor/unappetizing food provided there. There is a great rehabilitation program for stroke victioms in Lethbridge and he is now doing fine - looks like he may even be able to stand independently soon and perhaps will walk a few steps by summer. He is mentally bright and his speech is returning - very slowly. He's able to drive an electric wheelchair and Veteran;s Affairs is going to provide one for him amongst other things they are taking care of. (He's a WWII vet with overseas Army service). I'm glad to see the RISG is hanging in there with many stalwarts helping a lot and posting regularly - I read the consolidated emails virtually every day. My ongoing teatment with Sulfasalazine and Vioxx etc is working well for the arthritis, the pacemaker is taking care of the heart block just fine, and the ultravate is taking care of the skin condition when it periodically flares. I seem to be in remission from iritis after many years of flareups - and that's great too. So, apart from the unrelenting fatigue and poor sleep, I'm able to function OK most days. Getting up in the morning makes for a great day - all else is just degrees of excellence. Barry Stannard Lethbridge RS etc since 1970 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2003 Report Share Posted May 10, 2003 In a message dated 5/10/2003 9:32:42 PM Pacific Standard Time, barry-stannard@... writes: > Getting up in the morning makes > for a great day - all else is just degrees of excellence Barry great to hear from you! So glad you were able to move your parents to be with you. Bless You!!! Take care and I will look forward to reading your posts when you are able to post! WIshing you and your family all the best! K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2003 Report Share Posted May 11, 2003 Dave+: Congrats on the new addition to your family and the wedding! God bless you and your family. Kathy from WI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2003 Report Share Posted May 12, 2003 You would think I would learn the first time. Darn and Drat Re: Re: News > Great news from you Barry. For those that do not know, Barry lives about a > 100 or so miles from where I live. He may have seen me in a couple of > parades in Lethbridge or at a National Basketball Championship series at > LCC. > > BTW the lucky couple are off on a Caribean Cruise on Friday. Not to worry, > Murray has won a cruise 7 times in as many years. He works for Minolta and > extremely effective. > > > +Dave > > > --- > Outgoing mail is certified Virus Free. > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.478 / Virus Database: 275 - Release Date: 07/05/2003 > > --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.478 / Virus Database: 275 - Release Date: 07/05/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 NEWS ====== New Strategy For UK Pharmacists Unveiled http://www.epilepsy.org.uk/news/index.html? & issue=157#Pharmacists Consultation Period For Study Of Newer Medication Extended http://www.epilepsy.org.uk/news/index.html? & issue=157#Medication Campaign To Reduce Sri Lankan Student " Drop-Out " Levels http://www.epilepsy.org.uk/news/index.html? & issue=157#Lanka Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 > It is the Magno Magic, a small bioresonance apparatus, which can be > carried on a trousers belt. Interesting... are these being sold via the Internet somewhere? Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 Hello Marc, at the moment, they are only sold by a physician. It was my idea for the one against electrosensibility. I want it first extensively tested in order to know if it functions well, and does what I want it to do. I have sorted out many frequencies, in order to find the right ones. It was Royal Rife who found this system of frequencies in order to cure cancer among other diseases. That was around 1930 ! I'll keep you informed. I just posted the information in order to let people know that behind the scenes a lot of work is going on to improve their often hopeless situation. Greetings, Claessens member Verband Baubiologie www.milieuziektes.nl www.hetbitje.nl checked by Norton Antivirus Re: news > > It is the Magno Magic, a small bioresonance apparatus, which can be > > carried on a trousers belt. > > Interesting... are these being sold via the Internet somewhere? > > Marc > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 Hi ! You say that it is low frequency fields from the cooling fan! It is not necessary so, because the fan-blades might reflect an incoming RF-signal and then modulate it (OK, the signal will be pulse modulated with low pulse rate). greetings Anders sson wrote: > Hello, > > I have placed on my website www.milieuziektes.nl, also on the english pages, > a new item. > > It can be found under *Alternativ* and then *Bioresonance*. > > It is the Magno Magic, a small bioresonance apparatus, which can be carried > on a trousers belt. > > My wife is testing it now, and after two days the results are very > promising. > > F.i. we have a cooling fan on the ceiling, and normally, when she is in the > living room, I must disconnect it, because the fields are hindering her. > Not now. So that is lowfrequency. > When she walks on the streets, where a lot of high frequency is around, she > gets a very dry mouth. > Not today. > > Greetings, > Claessens > member Verband Baubiologie > www.milieuziektes.nl > www.hetbitje.nl > checked by Norton Antivirus > We keep the results posted. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 Hello Anders, no, our rooms are shielded, so there are practically no RF signals coming in. The effect with the ventilator is the same as with the refrigerator and the automatic coffeemachine. Greetings, Claessens member Verband Baubiologie www.milieuziektes.nl www.hetbitje.nl checked by Norton Antivirus Re: news > Hi ! > > You say that it is low frequency fields from the cooling fan! > > It is not necessary so, because the fan-blades might reflect an incoming > RF-signal and then modulate it (OK, the signal will be pulse modulated > with low pulse rate). > > > greetings > > Anders sson > > wrote: > > Hello, > > > > I have placed on my website www.milieuziektes.nl, also on the english pages, > > a new item. > > > > It can be found under *Alternativ* and then *Bioresonance*. > > > > It is the Magno Magic, a small bioresonance apparatus, which can be carried > > on a trousers belt. > > > > My wife is testing it now, and after two days the results are very > > promising. > > > > F.i. we have a cooling fan on the ceiling, and normally, when she is in the > > living room, I must disconnect it, because the fields are hindering her. > > Not now. So that is lowfrequency. > > When she walks on the streets, where a lot of high frequency is around, she > > gets a very dry mouth. > > Not today. > > > > Greetings, > > Claessens > > member Verband Baubiologie > > www.milieuziektes.nl > > www.hetbitje.nl > > checked by Norton Antivirus > > We keep the results posted. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 Thanks Stacia. We are so very excited and can't believe it's actually going to happen. We have been trying for an eternity so we are so grateful it has finally happened! Alia and Caroline, age 2, poly and uveitis Re: News Alia, Congratulations to you and your hubby and Caroline!! I hope you are feeling well and cherish your alone time with Caroline, as that will change!!! Stacia and Hunter 8 systemic, iritis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2005 Report Share Posted August 14, 2005 On 8/14/05, Sue in NJ <susang3@...> wrote: > > > In other news, I read that has signed a deal with Sirius Satellite > radio to host a program starting in October. It'll be 3 HOURS of > answering listener mail and giving advice. Anyone know how much this radio > service costs? A radio itself is about $100, isn't it? Then add $50/month > for the service? Sorry, . Can't afford you. > The monthly subscription fee for Sirius is $12.95. ;-) Crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2005 Report Share Posted August 15, 2005 > The monthly subscription fee for Sirius is $12.95. ;-) I guess they have different packages at various costs, like cable tv does, because I saw a few ads where when you buy the radio from *whatever* store then you can sign up to Sirius for 6 months at the special low price of $49.99/month. Hmmm, I just checked the Sirius website at their " plans " and see the $12.95/month is the most expensive there is. http://www.sirius.com/servlet/ContentServer?pagename=Sirius/CachedPage & c=Pag e & cid=1065475754240 I wonder what the heck the newspaper ads were talking about then for $50/month? Still, with our finances stretched as thin as they are now, even that small amount is too much to bear. Thanks for the correction, anyway. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 >>>Sounds like it had to be IV which last time I looked at the DAN! protocol wasn't in there. Very sad I still read of folks doing IV DMPS with their kids............. Mandi in Dorset I hate to report sad news, but this story needs to be told. Today, astory will come out in the news about a family whose five year oldchild with autism died while undergoing chelation therapy. Thefamily, from the Pittsburgh area, was seeing a "doctor" who claimedto follow the DAN! protocol. (Details are sketchy at this time -- weare unsure of the doctor's qualifications. We will keep you posted.)The child died in the doctor's office, while undergoing therapy.Please, before you try any new therapies, we urge you to research thephysician, the methods, and the safety. Some of these therapies arequite dangerous. We're not telling you what to do, we're just urgingyou to use caution.We all do what we think is best for our children, and sometimes weare desperate. While we've heard stories of chelation success, it isdefinitely a dangerous process. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Hi Mandi and list mates, This is just appalling please keep us up to date Mandi as we know you will. If our paediatricians get to hear about stories like this, it will make the struggles of us all so much tougher. At a time when so many good people are trying to help their children its a very sad situation. Poor family I cant imagine what they must be feeling...as it says keep them in our prayers..... Best Wishes Caroline Traa, Aberdeenshire Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 In a message dated 24/08/2005 17:19:58 GMT Daylight Time, lorene.amet@... writes: If anyone has more specific info that would be welcome. The only type of chelation to be done in a practitioner's office is iv EDTA, is that what it was? if >>>Nobody knows as yet whether the story is real and if it was what the issues were but I am sure it won;t be long Folks still do IV DMPS in some DAN! drs offices also................... Mandi in Dorset Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Dear all, If anyone has more specific info that would be welcome. The only type of chelation to be done in a practitioner's office is iv EDTA, is that what it was? if not, then I think it would be some time to clearly demonstrate that the chelation itself has caused the death. After all if someone dies in its sleep we do not run around saying he died because of it. So, we should be concerned sure, and get as informed as possible for the treatment of our own children, whilst for this story, we must get clearer explanations for what is happening before jumping to conclusions. Maybe this information is known to someone, please share if you know anything. Lorene Joanne Burke wrote: > > > *From:* " banmercury " <gillespies62599@...> > *Date:* Wed Aug 24, 2005 3:33 pm > *Subject:* Child with autism died while undergoing chelation > therapy. banmercury <banmercury> > Offline Offline <ymsgr:sendIM?banmercury> > Send Email Send Email > <csb-autism-rx/post?postID=n94-GURSb01Of-GU\ pc9zY_4sgH4yUVKqH0TeGmmmx89IShHWlxXbc6iBr-QbMWuuLG2Spgbg7OOOVzYMmKYvklMZCcLkSfpE\ CgVxDx3jcUVc> > > > FW: from vaccinines_and_autism to ASD_Kids at > > Dear Members/Friends, > It is a very sad state that we as parents find ourselves in > because of this mercury toxicity. To lose a child because of choices > that we make in order to heal our children has got to be the worst > scenario imaginable. It is without doubt my greatest fear. > > DEB > A very sad story in Pittsburgh > > > > Dear AutismLink subscribers: > > I hate to report sad news, but this story needs to be told. Today, a > story will come out in the news about a family whose five year old > child with autism died while undergoing chelation therapy. The > family, from the Pittsburgh area, was seeing a " doctor " who claimed > to follow the DAN! protocol. (Details are sketchy at this time -- we > are unsure of the doctor's qualifications. We will keep you posted.) > > The child died in the doctor's office, while undergoing therapy. > > Please, before you try any new therapies, we urge you to research the > physician, the methods, and the safety. Some of these therapies are > quite dangerous. We're not telling you what to do, we're just urging > you to use caution. > > We all do what we think is best for our children, and sometimes we > are desperate. While we've heard stories of chelation success, it is > definitely a dangerous process. > > Our children are so very fragile, and we fight for them as best we > can with whatever we think will work. Please keep this family in > your thoughts and prayers. > > Sadly, > > Waeltermann > AutismLink Director > > > > DISCLAIMER > No information contained in this post is to be construed as medical > advice. If you need medical advice, please seek it from a suitably > qualified practitioner. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2005 Report Share Posted October 18, 2005 At 01:16 PM 10/18/2005, Hardin wrote: >I made my weight loss goal of 105 pounds. 105!!!! wowowowow!!! super job valerie! you must be so proud and happy!!! ::double high five:: enjoy your rewards!!! you sure do deserve them! :*carolyn. -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.323 / Virus Database: 267.12.1/135 - Release Date: 10/15/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2005 Report Share Posted October 18, 2005 In a message dated 10/18/2005 12:26:25 PM US Eastern Standard Time, pvisser@... writes: made my weight loss goal of 105 pounds. That is so awesome!!!! ~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 Late on this, but a BIG congrats, ! Donna --- Hardin <vhardin@...> wrote: > I made my weight loss goal of 105 pounds. > I am getting master cook and I get some nice new > fitting cloths and new make > up. > After I maintain for a few months I want to reward > myself with a DVD. > > > > > Hardin Melville > > > __________________________________ FareChase: Search multiple travel sites in one click. http://farechase. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2006 Report Share Posted July 29, 2006 Thanks very much for the article. Exercise is something I'm very interested in, as it is one of the things that keeps me sane! I find it amusing though, that they needed to do focus groups to work out why people with arthritis exercise less than the general population - it seems kind of obvious (Well, there's the pain and fatigue for starters.) I agree that knowing how to modify various forms of exercise is essential: Most exercise books and websites don't consider that people may be in pain and/or have limited mobility or flexibility. It irritates me that often the advice is to walk regularly - but with arthritis in my knee and hip, walking is the worst thing for me - except for running of course! Swimming and cycling are much more gentle on the joints. It took me a lot of research to be able to adapt my pre-arthritis exercise routines to suit a 'disabled me'. Being stubborn probably helps too, as I make exercise a non-negotiable part of my schedule (but modifying/reducing it, if I have swollen joints). I wonder if it might be more difficult to start exercising, if a person with arthritis was previously not active, as compared to an already active person modifying their fitness activities? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 Hi I can only talk from my own experience yes it is more difficult to start and exercise regimen but it can be done. I did that when I started into the Mascot business in 1985. The Fitness Trainer for the local college sat down with me and between us and a doctor's letter we came up with an exercise program designed for me. I also used to do the game warm ups with the teams I represented. For Rroary it was on skates, and the rest in Nike shoes made for the type of usage I would give them. The Nike's were supplied free of charge by Nike. Some of the shoes had aditional industrial strength Velcro on them that allowed the costume to go over them and stay there. The mascot costumes saved my life, so to speak, as I had to exercise to do them. The pain never really went away, just under control with Tylenol 3's and NSAIDS. I was not a model of physical fitness before I did that. Before, exercise was walking to the beer store and picking up a case of beer then lugging the empties back to the bottle depot. My doctor still says I was better off as a mascot health wise, just that I couldn't do it anymore thanks to my heart. Myself, I think it was the fun of being a mascot and entertaining folks that kept the pain in check. That was the point in Cousin's book, " The Anatomy of an Illness " , where he proved to his doctor and himself that a good belly laugh would keep the pain at bay for an hour or two. Believe me, I had my share of belly laughs making people laugh. The best part of it was the anonymity the costumes afforded as I did not speak in them and very few people knew who was in a given costume. Just when folks thought they had it figured out I would put someone else in a costume and I would show up watching that particular game. One thing I must say though, if you are going to start exercising, start slowly with low impact exercises. Those of us with AS have to develop and maintain good upper body strength as we do not have the strength we would like in our legs and back. Give it a try . Fr. Dave I wonder if it might be more difficult to start exercising, if a person with arthritis was previously not active, as compared to an already active person modifying their fitness activities? . Quote Link to comment Share on other sites More sharing options...
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