News

June 1, 2000

In a message dated 06/01/2000 3:13:01 PM Central Daylight Time,

ninjagrandma@... writes:

<< i have some lesions on the brainstem, from my

liver disease. no treatment but they can slow the progress. also have sleep

apnea. the hardest part is that i can't take care of my kids anymore- they

are going to live with their dad, 800 miles away. i should be back on in

about a week, but wanted to update you. ne >>

ne, you are in my prayers today. Sending hugs and thoughts.

Lillian

February 11, 2001

Connie

That is good news but you are right about the blood work that is important

while on the treatment. You have to keep up on that because that seems to be

where it shows up if you have a problem first. We go to the doctor tomorrow

hoping my husband gets off the combo then but you just never know. Seems

like 18 months would be long enough. You are in our thoughts and prayers

that you find the answer to the problem of the blood work. Hang in there you

will find a way. We just have to stay persistant which is not easy when you

don't feel good anyway. Good luck!!

Winne

February 11, 2001

Connie.....

That's wonderful news about being approved for the combo...I'm so happy

for you.

What about your local or closest county hospital of free clinic? The

CBC/platlette test is pretty inexpensive and they might be willing to do

that much for you. And maybe Commitment to Care can offer some

suggestions for the thyroid and RNA tests since they aren't as frequent.

But I'd certainly be contacting your city/county/state health services

to see about getting your labs.

Tatezi

Constance Dickson wrote:

> Hi All,

> I just thought I would let everyone know that I

> have been approved from Commitment to Care to receive

> the Combo from them for free. The scenario is when

> the Ribavarin is approved for unbundling I will be

> switched to the Peg Interferon. I still am having a

> problem though, I need to find somewhere to help with

> the blood work. I am going to go to Emory in Atlanta

> and Mercer in Macon to see if there is something

> there. I am afraid to do the Meds without the blood

> work.....Wish me luck..........Take Care, Connie

>

> __________________________________________________

>

February 11, 2001

That is great news Connie. It seems like there would

be SOMETHING in a big city like Atlanta! Good luck.

Claudine

<constance_clearwater_florida@...> wrote:

I need to find somewhere to help

> with

> the blood work. I am going to go to Emory in

> Atlanta

> and Mercer in Macon to see if there is something

> there.

__________________________________________________

February 11, 2001

That is great news Connie. It seems like there would

be SOMETHING in a big city like Atlanta! Good luck.

Claudine

<constance_clearwater_florida@...> wrote:

I need to find somewhere to help

> with

> the blood work. I am going to go to Emory in

> Atlanta

> and Mercer in Macon to see if there is something

> there.

__________________________________________________

February 11, 2001

That is great news Connie. It seems like there would

be SOMETHING in a big city like Atlanta! Good luck.

Claudine

<constance_clearwater_florida@...> wrote:

I need to find somewhere to help

> with

> the blood work. I am going to go to Emory in

> Atlanta

> and Mercer in Macon to see if there is something

> there.

__________________________________________________

February 11, 2001

That is great news Connie. It seems like there would

be SOMETHING in a big city like Atlanta! Good luck.

Claudine

<constance_clearwater_florida@...> wrote:

I need to find somewhere to help

> with

> the blood work. I am going to go to Emory in

> Atlanta

> and Mercer in Macon to see if there is something

> there.

__________________________________________________

February 19, 2001

connie

Wonderful news about Commitment to Care paying for your meds, hang in

theree and hope that it works

Suzy

From: Tatezi <tatezi@...>

Reply-Hepatitis C

Hepatitis C

Subject: Re: News

Date: Sun, 11 Feb 2001 07:17:51 -0600

Connie.....

That's wonderful news about being approved for the combo...I'm so happy

for you.

What about your local or closest county hospital of free clinic? The

CBC/platlette test is pretty inexpensive and they might be willing to do

that much for you. And maybe Commitment to Care can offer some

suggestions for the thyroid and RNA tests since they aren't as frequent.

But I'd certainly be contacting your city/county/state health services

to see about getting your labs.

Tatezi

Constance Dickson wrote:

> Hi All,

> I just thought I would let everyone know that I

> have been approved from Commitment to Care to receive

> the Combo from them for free. The scenario is when

> the Ribavarin is approved for unbundling I will be

> switched to the Peg Interferon. I still am having a

> problem though, I need to find somewhere to help with

> the blood work. I am going to go to Emory in Atlanta

> and Mercer in Macon to see if there is something

> there. I am afraid to do the Meds without the blood

> work.....Wish me luck..........Take Care, Connie

>

> __________________________________________________

>

March 1, 2001

In a message dated 2/11/01 8:29:30 AM !!!First Boot!!!,

constance_clearwater_florida@... writes:

> the blood work. I am going to go to Emory in Atlanta

> and Mercer in Macon to see if there is something

> there. I am afraid to do the Meds without the blood

> work.....Wish me luck..........Take Care, Connie

>

Dear Connie>>>>>>>>>>>>DON:T DO THE MEDS WITHOUT THE BLOOD WORK!!!!!One of

the side effects of ribavirin is anemia. You HAVE TO HAVE regular lab

tests.........Congrats on the free drugs.....LOL< Anne

March 1, 2001

In a message dated 2/11/01 8:29:30 AM !!!First Boot!!!,

constance_clearwater_florida@... writes:

> the blood work. I am going to go to Emory in Atlanta

> and Mercer in Macon to see if there is something

> there. I am afraid to do the Meds without the blood

> work.....Wish me luck..........Take Care, Connie

>

Dear Connie>>>>>>>>>>>>DON:T DO THE MEDS WITHOUT THE BLOOD WORK!!!!!One of

the side effects of ribavirin is anemia. You HAVE TO HAVE regular lab

tests.........Congrats on the free drugs.....LOL< Anne

March 2, 2001

I doubly agree!

Most people I've talked to on treatment get labs done before treatment, the

first week, the 2nd week and the 4th week then monthly, if everything goes

ok.

Those labs are ESSENTIAL to monitoring your health. Combo is serious stuff.

/ Alley

alleypat@...

-----------------------------

My ICQ#:12631861<br>

http://members.icq.com/12631861

12631861@...

-------------------------------------------------------

March 2, 2001

I doubly agree!

Most people I've talked to on treatment get labs done before treatment, the

first week, the 2nd week and the 4th week then monthly, if everything goes

ok.

Those labs are ESSENTIAL to monitoring your health. Combo is serious stuff.

/ Alley

alleypat@...

-----------------------------

My ICQ#:12631861<br>

http://members.icq.com/12631861

12631861@...

-------------------------------------------------------

May 18, 2001

In a message dated 5/18/01 10:34:41 AM Eastern Daylight Time, info@... writes:

I will just contribute on s BB where I am always welcome no matter how incorrect my posts are.

Hi ,

Please don't leave this list. I for one appreciate your opinions. Posts on this lists are just everyone's opinions and people can take them or leave them. People are free to say what they want as long as they are not hurting someone else.

As a long time member of this list I would like you to continue to post here. I don't have time to go to 's BB very often.

Sharon (Ontario) Canada

May 19, 2001

I think you meant to post this to the Live-Right list as

this is where I have seenthis discussion going on.

LnL,

Steve - Cheltenham, UK

18/05/01 15:32:13, info@... wrote:

>

> has been " attacking " me directly and indirectly on many

lists

> for months. I would have been wise never to have allowed him

on this

> list. Many people on those lists are very aware of what is going

on.

> I am sorry you are not.

> ***********************************************************

****

> Dear !

> The above statement is news to me, as I am on these lists to

help

> spread the the greatest breakthrough in nutrition. Also I make

my

> living selling blood type specific products so the more people

see my

> name the more business I will generate (hopefully, as I am

working on

> new products that will actually may make us healthier - that

costs a

> lot of $$$). Why would I even think of doing such a thing?

Honestly,

> I have no idea who you are, so why the " attacking "

accusations?

> asked me not to give out any lists and explained why not. All I

> wanted to do is to prevent someone from unwanted hassle while

the

> reason for the lists are to help others. Like in my case. I did

not

> tell anyone to eat 300gr of protein. I eat 300 grams or at

least use

> to. I am too busy with work to eat enough in these days. So

please do

> yourself a favor and take me off " your " list. I will just

contribute

> on s BB where I am always welcome no matter how

incorrect my

> posts are. I really wish you the best and hoping that I am just

> dreaming all this.

> love

> PS: I read this in a book called 2150AD that I try to

remember as

> often as I can:

> THE MEASURE OF A MIND'S EVOLUTION IS ITS

ACCEPTANCE OF THE

> UNACCEPTABLE

>

May 19, 2001

> THE MEASURE OF A MIND'S EVOLUTION IS ITS ACCEPTANCE OF THE

> UNACCEPTABLE

Hello !

If by mistake you are in this group, please stay and share with us

your knowledge. You'll enjoy the people here and our moderator is

wonderful!

Austin, TX

February 4, 2002

Thanks for posting this valuable information.

Were you aware LPA is a volunteer organization? From

chapter president, all the way up to the Executive Board,

all positions are filled by persons willing to volunteer

their time and effort for the organization. I realize some

things, like traveling expenses, are compensated for some,

but as far as I know, there is only one paid position in LPA

(I believe database coordinator).

Since you did such a good job on this post, are you willing

to " volunteer " to become the online correspondent for LPA

politics? Will you report on the business of the

organization to keep the membership informed?

-Bill Bradford

morph wrote:

> ü Matt Roloff is a possible candidate for President,

> possibly running

> unapposed.

> ü Hagen is stepping down as treasurer

> ü The most recent issue of the newsletter was mailed out 3

> weeks ago.

> ü A " walk through " was done at the Salt Lake City

> conference hotel this

> past weekend

> ü A mid year execs and BOD meeting is planned end of

> February in Orlando,

> FL, did you know members may attend?

> ü New bylaw amendments are due 90 days before the

> conference

> ü Some feel the internet is not used to the advantage of

> the membership to

> communicate the business of the organization, hence the

> membership is

> uninformed.

> ü Some people don't care one way or another

>

February 5, 2002

Thanks morph.... we need these types of updates more often...

I thought I would elaborate on a few of your 'headlines'.

news

ü Matt Roloff is a possible candidate for President, possibly running

unapposed.

**** Matt is definitly, and aggressivly, running for President 2002-2004.

Matt has been flying around the country meeting with District Directors and

others, seeking input into the 'New Future of LPA' If you have any

constructive input for Matt, regarding LPA... Please email him directly at

mroloff@.... Matt's primary focus during his term will be

fund-raising. Matt is activly seeking 'movers and shakers' to help with

several open positions to manage the 7 new fund-raising tracks. If you are

interested in helping, please let Matt know. ALSO... If anybody else is

interested in running for President (or any other office) I encourage them

to to so.. The health and wellfare of LPA depends on our democratic system.

Simply announce your candidacy/interest to Leroy Bankowski. ****

ü Hagen is stepping down as treasurer

*** has lined up a capable sucessor to run for the 2002-2004 term..

***

ü The most recent issue of the newsletter was mailed out 3 weeks ago.

ü A " walk through " was done at the Salt Lake City conference hotel this

past weekend

*** Yes. I (Matt) stopped in on that walk through last Friday.... I want

to say that the hotel is fantastic! and the planning commitee is very well

organized.. The Hotel lobby is perfect for Lp's sitting all over the place

visiting late into the night. Many big comfy chairs and sofas in front of a

huge lodge style fireplace. Directly connected to the hotel (30yrds from

the lobby) is a mall.. Norstrom, food court etc.. The hotel rooms are very

nice and the conference rooms are centraly located.. If you have ever flown

in/out of SLC you know how easy that airport is to navigate. And the hotel

is just a 8 miles away. This is going to be one killer conference!

Registration packets are still being finalized. ***

ü A mid year execs and BOD meeting is planned end of February in Orlando,

FL, did you know members may attend?

ü New bylaw amendments are due 90 days before the conference

ü Some feel the internet is not used to the advantage of the membership to

communicate the business of the organization, hence the membership is

uninformed.

*** I have received a lot of input on this subject.. Please send

additional Constructive input regarding LPA and it's use of the internet

to mroloff@... ***

ü Some people don't care one way or another

*** I'm interested in knowing why some people don't care one way or

another??

Again, please email these thoughts unders the subject line : I Don't

care! to mroloff@... ***

February 5, 2002

Thanks morph.... we need these types of updates more often...

I thought I would elaborate on a few of your 'headlines'.

news

ü Matt Roloff is a possible candidate for President, possibly running

unopposed.

**** Matt is definitely, and aggressively, running for President

2002-2004.

Matt has been flying around the country meeting with District Directors and

others, seeking input into the 'New Future of LPA' If you have any

constructive input for Matt, regarding LPA... Please email him directly at

mroloff@.... Matt's primary focus during his term will be

fund-raising. Matt is actively seeking 'movers and shakers' to help with

several open positions to manage the 7 new fund-raising tracks. If you are

interested in helping, please let Matt know. ALSO... If anybody else is

interested in running for President (or any other office) I encourage them

to so.. The health and welfare of LPA depends on our democratic system.

Simply announce your candidacy/interest to Leroy Bankowski. ****

ü Hagen is stepping down as treasurer

*** has lined up a capable successor to run for the 2002-2004

term..

***

ü The most recent issue of the newsletter was mailed out 3 weeks ago.

ü A " walk through " was done at the Salt Lake City conference hotel this

past weekend

*** Yes. I (Matt) stopped in on that walk through last Friday.... I want

to say that the hotel is fantastic! and the planning committee is very well

organized.. The Hotel lobby is perfect for Lp's sitting all over the place

visiting late into the night. Many big comfy chairs and sofas in front of a

huge lodge style fireplace. Directly connected to the hotel (30yrds from

the lobby) is a mall.. Nordstrom, food court etc.. The hotel rooms are

very

nice and the conference rooms are centrally located.. If you have ever

flown

in/out of SLC you know how easy that airport is to navigate. And the hotel

is just a 8 miles away. This is going to be one killer conference!

Registration packets are still being finalized. ***

ü A mid year execs and BOD meeting is planned end of February in Orlando,

FL, did you know members may attend?

ü New bylaw amendments are due 90 days before the conference

ü Some feel the internet is not used to the advantage of the membership to

communicate the business of the organization, hence the membership is

uninformed.

*** I have received a lot of input on this subject.. Please send

additional Constructive input regarding LPA and it's use of the internet

to mroloff@... ***

ü Some people don't care one way or another

*** I'm interested in knowing why some people don't care one way or

another??

Again, please email these thoughts under the subject line : I Don't

care! to mroloff@... ***

July 14, 2002

My sister-in-law has reunited with her biological parents also within the

last 5 years and she is now 38 with 2 children of her own. She would tell me

how difficult it was for her adoptive mother to handle things and it was so

painful for her to deal with her adoptive mother through this period of

discovery only because her adoptive mother was soooooooooo against her

spending time with her biological parents (who are divorced).

Please try to follow 's advice, because it is really sound advice based

on the frustration I hear in my sister-in-laws stories of how this situation

works for her. will figure things out in her own time and in her own

way and being the conscientious parent you are, Elaine, you will allow her

this space to explore all her feelings and all things will work out in a

positive way without you being the " bad guy " .

Jackie, Mom to 14ds, 11, and Bradley 8

July 14, 2002

Elaine,

will be on a wild emotional roller coaster ride for the next several

months. Her feelings right now probably can only be described as " weird " . Her

reunion will be very personal, so don't be surprised if she pushes you away

(kids her age do that anyway..but you may feel it stronger). She may not give

you all the details, either. This is very common for all reunited adoptees. I

honestly think if the adoptive parents are strong and supportive during this

process, their relationship with their kids can only become stronger and more

mature.

I had one set of adoptive parents that put together a photo album of the " lost

years " and gave it to the birth parents.

Encourage to take her time for this reunion. I have yet to see a real

life reunion that is like TV. Those TV shows exploit the triad members.

also will have a fantasy mother..one that she has dreamed about.

Reality will set in....I would also encourage to have counseling with

some sessions with her fiance and also with you and . This reunion can be

a good thing....it takes time, understanding, love and support.

If you want my home phone number, let me know. Hang in there--I know this is

not easy for you and .

News

just got off the phone with her birth mother. She has been trying to

find her since her 18th birthday. She has really straightened her life out. I

am having such ambivalent feelings about this. I am happy for and

little sad for me. Just needed to talk to someone.

Elaine

July 14, 2002

In a message dated 7/14/2002 3:40:49 PM Central Standard Time,

dbonorato4@... writes:

> just got off the phone with her birth mother. She has been trying

> to find her since her 18th birthday. She has really straightened her life

> out. I am having such ambivalent feelings about this. I am happy for

> and little sad for me. Just needed to talk to someone.

> Elaine

HI Elaine

is a very wise woman, who knows her stuff I haven't been through

this but I did have to deal with an ex-hubby who wouldn't co-parent with me

concerning my two older kids and it seemed like I was always the bad guy.

Believe me when I tell you I had to develop a tough skin and quickly They

even moved in with him for a couple months and I was devastated (they came

running back lol), parenting at that time was my only job and doing it part

time was tough. You will experience a wide variety of emotions, talk to

someone I had my sister here back then and she was the best help and

too

Kathy mom to Sara 10

July 14, 2002