Ferritin

[Guest guest]

That is low a. She does need help and quickly. Go to our FILES on this website and scroll down until you see one called "ferritin". Read everything there. She needs to ask her GP to prescribe some elemental iron such as Ferrous Sulphate 200 mgs. She might need to take this amount twice or three times daily until her iron level has been brought to a better level.

Luv - Sheila

Hi there my daughter has ferritin level of 29. Thats low isnt it?How could I help her levels. She looks extemmely pale at the momentShe is going to see dr Peatfield at the end of may. Any advice would would be most appreciated.a

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[Guest guest]

Hi Jane, yes definately. You can get ferrous suplhate from over-the-

counter (take two or 3 a day, away from calcium, thyroid medication) or

you can ask your GP for help. They may not think it's a prob because

it's in range but it needs to be 70-90. I think there's info in the

files about it. Ruth x

>

> I forgot to mention in my last post that my ferritin seems a bit low.

> It is 16 and the normal range is 9-120 Is there something I should be

> doing about this, too?

>

> thanks

>

> Jane

>

[Guest guest]

How disgraceful that a patient has to ask for this. Just think if you had not been a member here and didn't know about the ferritin.

What is happening with the medical profession when the patients have to tell the doctors how to treat them.

Lilian

Re: Ferritin

Mine is 7 (with a reference range 30-300) and whilst my GP said it was low, didn't suggest treating it. It was only when I discovered here that it should optimally be between 70 and 90 that I went back and asked for iron treatment, which I've now been on for nearly a week.

[Guest guest]

Hi Jo

A ferritin level of only 7 is terrible. How on earth are you keeping going, and it is a fact that any thyroid hormone replacement you are taking will have little chance of being absorbed. What did your GP prescribe and what was the dose. I cannot believe a GP would not know that such a reading needed immediate treatment.

Luv - Sheila

Mine is 7 (with a reference range 30-300) and whilst my GP said it was low, didn't suggest treating it. It was only when I discovered here that it should optimally be between 70 and 90 that I went back and asked for iron treatment, which I've now been on for nearly a week.No virus found in this incoming message.

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[Guest guest]

Hi Sheila,

Surprisingly, even though my ferritin is so low, I'm not actually

anaemic - the full blood count and haemotcrit were in range (although

one was near the bottom), so don't want to be too hard on my GP as

she is very helpful. However, I've been tired for so long that I

can't remember how it feels to be normal, and the iron store probably

has a big role in that. I guess that is not uncommon for people with

even mild hypothyroidism.

For the iron I was prescribed Fersamal (ferrous fumarate) 20ml

(560mg) per day, for at least a month. I am also on 25mcg levo, went

up to 50mcg last week but got adverse " hyper " reactions - which after

reading the files here seemed to indicate that the adrenals will need

some boosting before taking more thyroxine. So I've stopped that,

and will start NAE after my bloods are taken on Wednesday.

I'm so glad I found this site, because without it I would have had no

idea how to manage this properly. With the support here I will know

how to judge the right level, and deal with any T4>T3 conversion

issue that may arise. I just wish I'd found TPA a few years ago, and

I would have pushed my GP/s into prescribing much sooner (I kept

getting the " your TSH is in range, there is no problem " fob-off).

-Jo

>

> Hi Jo

>

> A ferritin level of only 7 is terrible. How on earth are you

keeping going, and it is a fact that any thyroid hormone replacement

you are taking will have little chance of being absorbed. What did

your GP prescribe and what was the dose. I cannot believe a GP would

not know that such a reading needed immediate treatment.

>

> Luv - Sheila

[Guest guest]

Hi Jo, being anaemic does not go hand in hand with having a low ferritin. Ferritin is iron that is stored by your body. Two completely different things, but prolonged low ferritin can cause anaemia because the body will eventually draw on this store and it will become completely depleted.

Luv - Sheila

Hi Sheila,Surprisingly, even though my ferritin is so low, I'm not actually anaemic - the full blood count and haemotcrit were in range (although one was near the bottom), so don't want to be too hard on my GP as she is very helpful. However, I've been tired for so long that I can't remember how it feels to be normal, and the iron store probably has a big role in that. I guess that is not uncommon for people with even mild hypothyroidism.For the iron I was prescribed Fersamal (ferrous fumarate) 20ml (560mg) per day, for at least a month. I am also on 25mcg levo, went up to 50mcg last week but got adverse "hyper" reactions - which after reading the files here seemed to indicate that the adrenals will need some boosting before taking more thyroxine. So I've stopped that, and will start NAE after my bloods are taken on Wednesday. I'm so glad I found this site, because without it I would have had no idea how to manage this properly. With the support here I will know how to judge the right level, and deal with any T4>T3 conversion issue that may arise. I just wish I'd found TPA a few years ago, and I would have pushed my GP/s into prescribing much sooner (I kept getting the "your TSH is in range, there is no problem" fob-off).-Jo---

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[Guest guest]

With a reading as low as that I would have thought your GP would prescribe you something--- On Mon, 1/9/08, wannette7 <wannette7@...>

Hello,I have just had some blood tests back:My ferritin is 10.Wannette

[Guest guest]

Hi Wannette,

I could not tolerate any prescibed iron formula's and at first Spatone

made me really ill.

The secret is to start off with a low dose, i.e. one sachet in juice

after a meal for one week or two if you can tolerate it.

After a week try three, another week - three and a half, then four etc.

Dont underestimate it's strength especially if you dont tolerate iron

well. I spoke to my GP and my chemist who both said I could take safely

6 sachets a day as it is only 5mg and still doesn't come close to

prescribed iron, but its better than nothing.

I read something on the net the other day about another type of iron

that is well tolerated, but extremely expensive to prescibe as it is

much finer than any other. I cant remeber what it was though, sorry but

your GP might know even if reluctant to tell you!!!

After a while, i started with bad pains and aches like flu all over my

body and a severe headache, it turned out to be the spatone/iron and

can''t take any now, so just take care. IV next for me!!! Woo hoo!!

[Guest guest]

Hi Wannette

spaton helps some people enormously, and is what Dr Peatfield recommends. Please check out the Ferritin document in our website http://www.tpa-uk.org.uk/haemochromatosis.pdf. There it tells you the foods you can eat to help you build up your ferritin level as quickly as possible, you need all the help you can get when you need to do this as quickly as possible

Luv - Sheila

Dear Sheila,Well I had my tests done privately, so there is no doctor. Would be pointless anyhow, because when the GP ordered bloods in May, due to my dysmennorhea, fatigue, heavy periods etc., she said everything was normal, in fact my iron was 'good'- eventually I found out that my regular iron was not good, in fact it was right on the bottom of the reference range. So I got my ferritin checked myself. I always like to give people the benefit of the doubt, whatever, but I feel so let down, because it will take so long to raise my ferritin and my iron and this could have been started months ago- assuming I can raise it. The key here will be to find a source I can tolerate without initiating another cycle of DnV.Will Spatone work to raise ferritin too?Wannette

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[Guest guest]

Carol,

The chemist at the compounding pharmacy that makes the iron + vit C that I buy

is known as a " pioneer " of iron and my CFS doctor agrees with him that levels

around the 50 mark are good for me. I also have low ferritin problems and

take iron + vit c daily (27mg iron + 110mg vit C). I find that when my levels

get below 25 I have problems walking and shortness of breath/dizziness when I

climb stairs or walk too fast.

I'm hoping the vitamin C added helps somewhat with the oxidative stress iron can

cause but it's probably not enough.

Nat

[Guest guest]

By all means follow what your own Dr says, that's what you're

paying them for. So much depends also on your age, gender,

meno status, blood loss, etc.

110 mg Vit C is very low, 1000-2000+ mg is more common

in alt med, but not so much that the kidneys are stressed longterm

with too high amounts taken daily.

Carol W.

" natellite " <natellite@...> wrote:

> The chemist at the compounding pharmacy that makes the iron + vit C that I buy

is known as a " pioneer " of iron and my CFS doctor agrees with him that levels

around the 50 mark are good for me. I also have low ferritin problems and

take iron + vit c daily (27mg iron + 110mg vit C). I find that when my levels

get below 25 I have problems walking and shortness of breath/dizziness when I

climb stairs or walk too fast.

>

> I'm hoping the vitamin C added helps somewhat with the oxidative stress iron

can cause but it's probably not enough.

>

> Nat

>

[Guest guest]

No his ferritin is fine. Still in the range. TSH is too high. Free T4 is too low. My guess is FT3 will come back low too.

Steph

ferritin

i know for most with hypothyroid issues low ferritin is a problem..by my brother in law just got his ferritin back...his was 244 ng/ml (22-322 lab range) is this too high?? he does not take added iron....but he does eat red meat...and is a hunter so eats lots of wild deer meat...should he investigate this number..his doctor is not concerned since in "normal"range....waiting on thyroid test Free T3 and vitamin D numbers but his TSH is4.93 so too highFree T4....1.1 (0.9-1.8)..yet he says he feels fine..maybe having this high of a ferritin keeps him energetic in spite of a suboptimal thyroidI should say he had radiation for a cancer in throat area 3years ago...he is now on iodine working up to 50 mg and is at about 15 mg as of now...takes some other supplements....doctor was amazed at how well his thyroid is holding up after radiation and actually gave credit to the iodine he has been taking for last 2 months..that was nice to hear!!

[Guest guest]

interestingly enough his free T3 came back at 3.3 (2-3.5)....and he feels good he said....his Vitamin D came back at 54 (20-52)...so what do you think about these results...From: ladybugsandbees <ladybugsandbees@...>Subject: Re: ferritiniodine Date: Friday, September 4, 2009, 1:30 PM

No his ferritin is fine. Still in the range. TSH is too high. Free T4 is too low. My guess is FT3 will come back low too.

Steph

ferritin

i know for most with hypothyroid issues low ferritin is a problem..by my brother in law just got his ferritin back...his was 244 ng/ml (22-322 lab range) is this too high?? he does not take added iron....but he does eat red meat...and is a hunter so eats lots of wild deer meat...should he investigate this number..his doctor is not concerned since in "normal"range. ...waiting on thyroid test Free T3 and vitamin D numbers but his TSH is4.93 so too highFree T4....1.1 (0.9-1.8)..yet he says he feels fine..maybe having this high of a ferritin keeps him energetic in spite of a suboptimal thyroidI should say he had radiation for a cancer in throat area 3years ago...he is now on iodine working up to 50 mg and is at about 15 mg as of now...takes some other supplements. ...doctor was amazed at how well his thyroid is holding up after radiation and actually gave credit to the iodine he has been taking for last 2 months..that was nice to hear!!

[Guest guest]

Hello,

I don't post here much, but I do read most of the posts everyday.

This is just my opinion, but based on those ranges, his Free T3 looks good and

if he says he feels fine, well, I'd believe him if nothing else seems to be

wrong. I know I'd give anything to feel fine and not worry about what my labs

say I should be feeling. :-)

I think posted once that her husband tests at lowish free t3, but he

says he feels fine, too, so Dr. B " leaves him alone. " That's what I remember in

one of her posts, anyway, so please correct me if I'm wrong on that, Steph!

I *think* taking iodine can make the TSH go higher for a while, so that might be

why his is highish right now.

Also, his Vitamin D is not too high at all. The labs don't have the optimal

ranges. It is now pretty much accepted that 80 to 100 is optimal for Vit D.

Kathleen

>

> From: ladybugsandbees <ladybugsandbees@...>

> Subject: Re: ferritin

> iodine

> Date: Friday, September 4, 2009, 1:30 PM

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

> No his ferritin

> is fine.  Still in the range.  TSH is too high.  Free T4 is too

> low.  My guess is FT3 will come back low too.

>  

> Steph

>  

>  

>

> ferritin

>

>  

>

>

>

>

>

>

> i know for most with hypothyroid issues low ferritin

> is a problem..by my brother in law just got his ferritin back...his

was

> 244 ng/ml (22-322 lab range) is this too high?? he does not take added

> iron....but he does eat red meat...and is a hunter so eats lots of

wild

> deer meat...should he investigate this number..

>

> his doctor is not

> concerned since in " normal " range. ...

>

> waiting on thyroid test

> Free T3 and vitamin D numbers but his

>

> TSH is4.93 so too

> high

>

> Free T4....1.1 (0.9-1.8)

>

> ..yet he says he feels

> fine..maybe having this high of a ferritin keeps him energetic in

spite

> of a suboptimal thyroid

>

> I should say he had radiation for a

> cancer in throat area 3years ago...he is now on iodine working up to

50

> mg and is at about 15 mg as of now...takes some other

> supplements. ...doctor was amazed at how well his thyroid is holding

> up after radiation and actually gave credit to the iodine he has been

> taking for last 2 months..that was nice to hear!!

>

[Guest guest]

Yes we leave him alone but he does need thyroid hormone. He is just pig headed and doesn't want to take medication. He thinks he is fine but I see signs that he isn't.

Steph

ferritin> > > > > > > > > i know for most with hypothyroid issues low ferritin > is a problem..by my brother in law just got his ferritin back...his was > 244 ng/ml (22-322 lab range) is this too high?? he does not take added > iron....but he does eat red meat...and is a hunter so eats lots of wild > deer meat...should he investigate this number..> > his doctor is not > concerned since in "normal"range. ...> > waiting on thyroid test > Free T3 and vitamin D numbers but his > > TSH is4.93 so too > high> > Free T4....1.1 (0.9-1.8)> > ..yet he says he feels > fine..maybe having this high of a ferritin keeps him energetic in spite > of a suboptimal thyroid> > I should say he had radiation for a > cancer in throat area 3years ago...he is now on iodine working up to 50 > mg and is at about 15 mg as of now...takes some other > supplements. ...doctor was amazed at how well his thyroid is holding > up after radiation and actually gave credit to the iodine he has been > taking for last 2 months..that was nice to hear!!>

[Guest guest]

Yes I can vouch for that.

I was a very occasional blood donor and ended up with a score of 11!

Something they never warn you about in the advertisements.

[Guest guest]

Hi Sharon

Is your hubby a blood donor? that might help get his ferritin down.

Bob

>

> Hi Sheila,

>

> My hubby and daughter got their blood results today,but no ref

ranges and no results for their free T3! But what I'm most shocked about is my

hubby's ferritin results.In a reference range of 10-356,his results were

1558!!!!Our GP was so shocked [he's never seen a result that high before] he's

referred him for a scan and kept him on the same dose of T4 as before

[75mcg].The GP was so shocked he looked it up on the internet to see what could

cause it and he said it could be PRIMARY HAEMOCHROMATOSIS.I'm worried and he

seems a bit 'oh well' about it,which makes me want to punch his face

in,especially as he wouldnt even know if it wasnt for me!What are your thoughts

on this result,as I'm worried and think the worst.

>

> Best wishes Sharon

>

[Guest guest]

~This is not as uncommon as some doctors think - the way to

bring the high stored iron down is to take away some blood, but this usually

has to be done quite often. He will feel better once his iron levels are down,

so please don't worry yourself unduly Sharon. I have sent you a link to more

information about this, so you will probably feel better once you have read it.

Luv - Sheila

Hi Sheila,

My hubby and daughter got their blood results today,but no ref ranges and no

results for their free T3! But what I'm most shocked about is my hubby's

ferritin results.In a reference range of 10-356,his results were 1558!!!!Our GP

was so shocked [he's never seen a result that high before] he's referred him

for a scan and kept him on the same dose of T4 as before [75mcg].The GP was so

shocked he looked it up on the internet to see what could cause it and he said

it could be PRIMARY HAEMOCHROMATOSIS.I'm worried and he seems a bit 'oh well'

about it,which makes me want to punch his face in,especially as he wouldnt even

know if it wasnt for me!What are your thoughts on this result,as I'm worried

and think the worst.

Best wishes Sharon

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09:04:00

[Guest guest]

Have

a read here Sharon http://www.3dchem.com/moremolecules.asp?ID=213 & othername=Haemoglobin

Luv

- Sheila

..I dont know what haemaglobin is or what its use in the

body is.I wondered if someone could advice me on this and if it has an effect

on his hypo at all.We thought that my hubby could be a blood donor,but he

cannot as haemachromatosis is such a serious blood disorder,that if they gave

someone his blood,they would also have haemachromotosis.I thought it would be

beneficial for someone with low ferritin,but its actually dangerous!

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16:09:00

[Guest guest]

Hi Sheila,

Thanks for the link.I read it,but dont understand it really,but that might be my ability to absorb nothing in my brain now.I dont seem to beable to make any link to it or anything.But thanks anyway.

Best wishes Sharon

From: Sheila <sheila@...>Subject: RE: ferritinthyroid treatment Date: Saturday, February 13, 2010, 8:44 AM

Have a read here Sharon http://www.3dchem. com/moremolecule s.asp?ID= 213 & othername=Haemoglob in

Luv - Sheila

..I dont know what haemaglobin is or what its use in the body is.I wondered if someone could advice me on this and if it has an effect on his hypo at all.We thought that my hubby could be a blood donor,but he cannot as haemachromatosis is such a serious blood disorder,that if they gave someone his blood,they would also have haemachromotosis. I thought it would be beneficial for someone with low ferritin,but its actually dangerous!

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[Guest guest]

Hi Sharon, If you have never been a blood donor you will be surprised at the size of the needle compared to a syringe- it's not that painful- this is necassary to keep the blood flowing and even so the needles block quite often before the donation is complete. I'm not surprised at the careful after care instructions, no doubt that is due to your OH's condition, but after a normal blood donation it's just a small plaster and don't rush about for the rest of the day or you'll get lightheaded. thyroid treatment From: sprog1967@...Date: Fri, 12 Feb 2010 10:23:45 -0800Subject: ferritin

Hi all,

My hubby had a pint of blood taken today to help lower his ferritin level.He needs to go every 2 weeks,or every week if his level doesnt drop qiuck enough.WHAT A BIG NEEDLE!! The nurse says he needs to keep his dressing and bandage on for a day and not exercise,or he could bleed quite a lot,as the needle leaves such a big hole! She also said that they need to keep an eye on his haemaglobin level,which I think she said is 17 at the moment,which they cannot let go below 10.I dont know what haemaglobin is or what its use in the body is.I wondered if someone could advice me on this and if it has an effect on his hypo at all.We thought that my hubby could be a blood donor,but he cannot as haemachromatosis is such a serious blood disorder,that if they gave someone his blood,they would also have haemachromotosis.I thought it would be beneficial for someone with low ferritin,but its actually dangerous!

Best wishes Sharon

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[Guest guest]

Hi my hubby also has haemachromatosis. He is told his hemaglobin cant go below

13. At the moment its 13.7 so he is ok for giving blood for another two weeks.

You can be anemic if your hb is low even though you have excess ferritin. My

hubby takes B12 vits which are supposed to help with red blood cells. He feels

quite ill about 2 days after giving blood. He nearly passed out this week in

the evening after giving blood. Your hubby needs to drink lots and lots of

water the day he gives blood and also lots afterwards. He should also make sure

he has enough food before he goes to hospital. It is a shame they can't use the

blood they take. We also asked about that and were told it would be too

expensive to " clean " the blood of excess iron.

ne

--- >> blood,they would also have haemachromotosis.I thought it would be

beneficial for someone with low ferritin,but its actually dangerous!

>

> Best wishes Sharon

> >

>

>

> _________________________________________________________________

> We want to hear all your funny, exciting and crazy Hotmail stories. Tell us

now

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>

[Guest guest]

Hi ne,

I was absolutely shocked to think he has to have his blood taken in the same place patients have chemotherapy and we were unprepared for it.It was bad enough when they rung up to confirm my hubbys appointment and when I asked who they were,they said they were from the chemo suite.You can imagine how I felt,as we werent forewarned of any of it! When we got there,we waited over one and a half hours just to be seen and when the nurse came out and told him what they were going to do,we didnt know the correct words for it cos we werent forewarned of that either.He wasnt told he needed to eat before he went there and as it was his first time,we didnt know he would have to wait so long so he didnt drink for ages either.As the medical "proffesion" are so useless and we were so unprepared,my hubbys blood pressure rose to 150 over 90! It was 130 over 91 afterwards,which

is still too high.My hubby was told his HB cant go below 10,which is a lot lower than your hubby was told,which is crazy! We will be better prepared next time,as he has to go every 2 weeks maybe every week,depending on how quick his ferritin drops.How often does your hubby have to go?My hubby takes B12 amongst other things,so I hope that helps.

Best wishes Sharon

From: sjsj2007 <susanne04107@...>Subject: Re: ferritinthyroid treatment Date: Sunday, February 14, 2010, 6:34 PM

Hi my hubby also has haemachromatosis. He is told his hemaglobin cant go below 13. At the moment its 13.7 so he is ok for giving blood for another two weeks. You can be anemic if your hb is low even though you have excess ferritin. My hubby takes B12 vits which are supposed to help with red blood cells. He feels quite ill about 2 days after giving blood. He nearly passed out this week in the evening after giving blood. Your hubby needs to drink lots and lots of water the day he gives blood and also lots afterwards. He should also make sure he has enough food before he goes to hospital. It is a shame they can't use the blood they take. We also asked about that and were told it would be too expensive to "clean" the blood of excess iron. ne--- >> blood,they would also have haemachromotosis. I thought it would be beneficial for someone with low ferritin,but its actually dangerous! > > Best wishes Sharon>

> > > > ____________ _________ _________ _________ _________ _________ _> We want to hear all your funny, exciting and crazy Hotmail stories. Tell us now> http://clk.atdmt. com/UKM/go/ 195013117/ direct/01/>

[Guest guest]

I found a link to information about ferritin written in an easy style to read

and understand.

 

http://www.tpa-uk.org.uk/ferritin1.pdf

 

I hope this helps any one that is a s confused as I was about this.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

[Guest guest]

On Fri, 19 Nov 2010 13:24:28 +0000 (GMT), you wrote:

>

>She also has cortisol insufficiency.

> 

>So what you are saying, correct me if I a wrong here, that if a person is not

hypo then a ferritin level of say 33 (below 70) is normal?

> 

If they have hypo symptoms then a Ferritin of 33 is not good enough.

I don't have the information to say how " normal " it is.

Nick