Jump to content
RemedySpot.com

Newbie Introduction

Rate this topic


Guest guest

Recommended Posts

>

>

> Hi ya!

> seems to not want me on ...hee hee! ;-) Posting from

Hi Nikki,

Welcome to CI Hear. I'm sorry that we are experiencing problems

again. I knew the difficulties were bound to reoccur. They always

do. I have no response back from yet but that really doesn't

surprise me. I'm glad you know how to read from the web and hope you

keep doing that until we have you showing on the group and able to

read and post normally.

You sure have an interesting story to tell and I'm going to look

forward to reading more from you. It took courage to try the implant

again but you did and it sounds as if it's paying off for you so it

was worth it. I congratulate you on that.

As far as copying snipits from someone's e mail to respond, I don't

have a problem with that at all. Most people don't like to see a full

repeat and especially a full copy over of a digest but I think it

helps to send a portion of the person's message that you are

responding to as I think it makes things clear for everyone.

Alice

Link to comment
Share on other sites

  • 3 years later...

Hello ,

The best type of vitamin C to take is the buffered variety so that

it minimizes stomach problems (Ester C). Unfortunately, it is a lot

more expensive. I noticed that I also got gas when I took too much

vitamin C. To give the stomach a healthy coating of mucus, take lots

of NATURAL vitamin A, such as is found in cod liver/cod liver oil.

To minimize diarrhea, try psyllium husks and either gouda or edam

cheese. The amino acid Taurine is also helpful for this problem.

>

> Hello everyone! I will try to keep this brief. I am a 35 year

old

> female that has been through quite a bit since Jne 2007. In June

2007

> out of nowhere I started getting this rmbling/gurgling in my

> intestines. I would get gas really bad by the end of the day and

would

> be miserable. Living on Gas-X was not much fun. I was taking

Manuka

> Honey for several months, but that got really expensive. As soon

as I

> would quit taking it everything would start up again . . . I went

to

> see 2 different M.D.'s, one gynecologist, and one

gastroenterologist.

> Finally, I went to visit a D.O. that did a microscopy test that

showed

> major toxins along with candida. Since mid-July I have been

following

> the candida diet AND received four treatments of Calcium EDTA

> chelation. I went through some really bad die-off and detox

symptoms

> from both. While going through all this I became sensitive to

cold,

> fatigued (had that from the beginning but it never go better),

heart

> palps, etc. I went back to the D.O. about the heart palps and

they

> could not figure out what was wrong with me, but decided to start

me on

> Armour Thyroid for the cold, fatigue, and hair loss (which has

been

> going on for several years). I started on Armour, but my heart

palps

> got worse and I had to quit. The Dr. prescribed Synthroid which I

> refused to take. In the meantime I posted on curezone about my

heart

> and somebody said it was an iodine deficiency. I began extensive

> research and listened to Dr. Flechas two hour radio interview. In

> between all this time I found out I have a cyst on my right

ovary.

>

> I was ready to start iodine therapy, but really wanted a Dr.'s

> approval. Through the grace of God I had a friend at church that

told

> me her Doctor does iodine therapy. She is also a D.O. and I had

an

> appoinment with her last Wednesday.

>

> Now to where I am to date . . . I started 12.5 mg of Iodoral along

with

> 1,000mg Vitamin C, and 1 B100 complex on Thursday. I have been

having

> issues with diarrhea and tummy cramps since then. The D.O. wanted

me

> to take Magnesium Oxide but I'm afraid to because I already have

> diarrhea. She also wanted me to take Wormwood Combination

(parasite

> Cleanse). I have seen Magnesium Oxide on the iodine therapy

protocols,

> but don't understand what it's for - is it to cleanse? Should I

wait

> to start these other things as my body adjusts to what I'm taking

now?

>

> Well - now I'm on board and looking forward to feeling better.

Sorry

> this was so lenghty!

>

>

>

Link to comment
Share on other sites

>

I would definitely look into gluten intolerance with all the digestive problems

you speak

of. There are other forms of magnesium besides the oxide. The oxide form is

the most

likely to cause diarrhea. Some of the other forms are better. Low magnesium

could be

contributing to the heart palps. Welcome to the group. Lots of info and

support here.

Deb

> Hello everyone! I will try to keep this brief. I am a 35 year old

> female that has been through quite a bit since Jne 2007. In June 2007

> out of nowhere I started getting this rmbling/gurgling in my

> intestines. I would get gas really bad by the end of the day and would

> be miserable. Living on Gas-X was not much fun. I was taking Manuka

> Honey for several months, but that got really expensive. As soon as I

> would quit taking it everything would start up again . . . I went to

> see 2 different M.D.'s, one gynecologist, and one gastroenterologist.

> Finally, I went to visit a D.O. that did a microscopy test that showed

> major toxins along with candida. Since mid-July I have been following

> the candida diet AND received four treatments of Calcium EDTA

> chelation. I went through some really bad die-off and detox symptoms

> from both. While going through all this I became sensitive to cold,

> fatigued (had that from the beginning but it never go better), heart

> palps, etc. I went back to the D.O. about the heart palps and they

> could not figure out what was wrong with me, but decided to start me on

> Armour Thyroid for the cold, fatigue, and hair loss (which has been

> going on for several years). I started on Armour, but my heart palps

> got worse and I had to quit. The Dr. prescribed Synthroid which I

> refused to take. In the meantime I posted on curezone about my heart

> and somebody said it was an iodine deficiency. I began extensive

> research and listened to Dr. Flechas two hour radio interview. In

> between all this time I found out I have a cyst on my right ovary.

>

> I was ready to start iodine therapy, but really wanted a Dr.'s

> approval. Through the grace of God I had a friend at church that told

> me her Doctor does iodine therapy. She is also a D.O. and I had an

> appoinment with her last Wednesday.

>

> Now to where I am to date . . . I started 12.5 mg of Iodoral along with

> 1,000mg Vitamin C, and 1 B100 complex on Thursday. I have been having

> issues with diarrhea and tummy cramps since then. The D.O. wanted me

> to take Magnesium Oxide but I'm afraid to because I already have

> diarrhea. She also wanted me to take Wormwood Combination (parasite

> Cleanse). I have seen Magnesium Oxide on the iodine therapy protocols,

> but don't understand what it's for - is it to cleanse? Should I wait

> to start these other things as my body adjusts to what I'm taking now?

>

> Well - now I'm on board and looking forward to feeling better. Sorry

> this was so lenghty!

>

>

>

Link to comment
Share on other sites

I agree on the gluten. Many, many thyroid people have issues with gluten. I am GF and will be taking my family GF in a few weeks after we get my son (9 yrs and on Armour) tested for Celiac. My husband has Hashi's and his niece was just dx'd with it as well.

Re: Newbie introduction

>I would definitely look into gluten intolerance with all the digestive problems you speak of. There are other forms of magnesium besides the oxide. The oxide form is the most likely to cause diarrhea. Some of the other forms are better. Low magnesium could be contributing to the heart palps. Welcome to the group. Lots of info and support here. Deb> Hello everyone! I will try to keep this brief. I am a 35 year old > female that has been through quite a bit since Jne 2007. In June 2007 > out of nowhere I started getting this rmbling/gurgling in my > intestines. I would get gas really bad by the end of the day and would > be miserable. Living on Gas-X was not much fun. I was taking Manuka > Honey for several months, but that got really expensive. As soon as I > would quit taking it everything would start up again . . . I went to > see 2 different M.D.'s, one gynecologist, and one gastroenterologist. > Finally, I went to visit a D.O. that did a microscopy test that showed > major toxins along with candida. Since mid-July I have been following > the candida diet AND received four treatments of Calcium EDTA > chelation. I went through some really bad die-off and detox symptoms > from both. While going through all this I became sensitive to cold, > fatigued (had that from the beginning but it never go better), heart > palps, etc. I went back to the D.O. about the heart palps and they > could not figure out what was wrong with me, but decided to start me on > Armour Thyroid for the cold, fatigue, and hair loss (which has been > going on for several years). I started on Armour, but my heart palps > got worse and I had to quit. The Dr. prescribed Synthroid which I > refused to take. In the meantime I posted on curezone about my heart > and somebody said it was an iodine deficiency. I began extensive > research and listened to Dr. Flechas two hour radio interview. In > between all this time I found out I have a cyst on my right ovary. > > I was ready to start iodine therapy, but really wanted a Dr.'s > approval. Through the grace of God I had a friend at church that told > me her Doctor does iodine therapy. She is also a D.O. and I had an > appoinment with her last Wednesday. > > Now to where I am to date . . . I started 12.5 mg of Iodoral along with > 1,000mg Vitamin C, and 1 B100 complex on Thursday. I have been having > issues with diarrhea and tummy cramps since then. The D.O. wanted me > to take Magnesium Oxide but I'm afraid to because I already have > diarrhea. She also wanted me to take Wormwood Combination (parasite > Cleanse). I have seen Magnesium Oxide on the iodine therapy protocols, > but don't understand what it's for - is it to cleanse? Should I wait > to start these other things as my body adjusts to what I'm taking now?> > Well - now I'm on board and looking forward to feeling better. Sorry > this was so lenghty! > > >

Link to comment
Share on other sites

> >

> I would definitely look into gluten intolerance with all the digestive

problems you

speak

> of. There are other forms of magnesium besides the oxide. The oxide form is

the most

> likely to cause diarrhea. Some of the other forms are better. Low magnesium

could be

> contributing to the heart palps. Welcome to the group. Lots of info and

support here.

> Deb

> > Hello everyone! I will try to keep this brief. I am a 35 year old

> > female that has been through quite a bit since Jne 2007. In June 2007

> > out of nowhere I started getting this rmbling/gurgling in my

> > intestines. I would get gas really bad by the end of the day and would

> > be miserable. Living on Gas-X was not much fun. I was taking Manuka

> > Honey for several months, but that got really expensive. As soon as I

> > would quit taking it everything would start up again . . . I went to

> > see 2 different M.D.'s, one gynecologist, and one gastroenterologist.

> > Finally, I went to visit a D.O. that did a microscopy test that showed

> > major toxins along with candida. Since mid-July I have been following

> > the candida diet AND received four treatments of Calcium EDTA

> > chelation. I went through some really bad die-off and detox symptoms

> > from both. While going through all this I became sensitive to cold,

> > fatigued (had that from the beginning but it never go better), heart

> > palps, etc. I went back to the D.O. about the heart palps and they

> > could not figure out what was wrong with me, but decided to start me on

> > Armour Thyroid for the cold, fatigue, and hair loss (which has been

> > going on for several years). I started on Armour, but my heart palps

> > got worse and I had to quit. The Dr. prescribed Synthroid which I

> > refused to take. In the meantime I posted on curezone about my heart

> > and somebody said it was an iodine deficiency. I began extensive

> > research and listened to Dr. Flechas two hour radio interview. In

> > between all this time I found out I have a cyst on my right ovary.

> >

> > I was ready to start iodine therapy, but really wanted a Dr.'s

> > approval. Through the grace of God I had a friend at church that told

> > me her Doctor does iodine therapy. She is also a D.O. and I had an

> > appoinment with her last Wednesday.

> >

> > Now to where I am to date . . . I started 12.5 mg of Iodoral along with

> > 1,000mg Vitamin C, and 1 B100 complex on Thursday. I have been having

> > issues with diarrhea and tummy cramps since then. The D.O. wanted me

> > to take Magnesium Oxide but I'm afraid to because I already have

> > diarrhea. She also wanted me to take Wormwood Combination (parasite

> > Cleanse). I have seen Magnesium Oxide on the iodine therapy protocols,

> > but don't understand what it's for - is it to cleanse? Should I wait

> > to start these other things as my body adjusts to what I'm taking now?

> >

> > Well - now I'm on board and looking forward to feeling better. Sorry

> > this was so lenghty!

> >

> >

> >

>

Link to comment
Share on other sites

> >

> I would definitely look into gluten intolerance with all the digestive

problems you

speak

> of. There are other forms of magnesium besides the oxide. The oxide form is

the most

> likely to cause diarrhea. Some of the other forms are better. Low magnesium

could be

> contributing to the heart palps. Welcome to the group. Lots of info and

support here.

> Deb

> > Hello everyone! I will try to keep this brief. I am a 35 year old

> > female that has been through quite a bit since Jne 2007. In June 2007

> > out of nowhere I started getting this rmbling/gurgling in my

> > intestines. I would get gas really bad by the end of the day and would

> > be miserable. Living on Gas-X was not much fun. I was taking Manuka

> > Honey for several months, but that got really expensive. As soon as I

> > would quit taking it everything would start up again . . . I went to

> > see 2 different M.D.'s, one gynecologist, and one gastroenterologist.

> > Finally, I went to visit a D.O. that did a microscopy test that showed

> > major toxins along with candida. Since mid-July I have been following

> > the candida diet AND received four treatments of Calcium EDTA

> > chelation. I went through some really bad die-off and detox symptoms

> > from both. While going through all this I became sensitive to cold,

> > fatigued (had that from the beginning but it never go better), heart

> > palps, etc. I went back to the D.O. about the heart palps and they

> > could not figure out what was wrong with me, but decided to start me on

> > Armour Thyroid for the cold, fatigue, and hair loss (which has been

> > going on for several years). I started on Armour, but my heart palps

> > got worse and I had to quit. The Dr. prescribed Synthroid which I

> > refused to take. In the meantime I posted on curezone about my heart

> > and somebody said it was an iodine deficiency. I began extensive

> > research and listened to Dr. Flechas two hour radio interview. In

> > between all this time I found out I have a cyst on my right ovary.

> >

> > I was ready to start iodine therapy, but really wanted a Dr.'s

> > approval. Through the grace of God I had a friend at church that told

> > me her Doctor does iodine therapy. She is also a D.O. and I had an

> > appoinment with her last Wednesday.

> >

> > Now to where I am to date . . . I started 12.5 mg of Iodoral along with

> > 1,000mg Vitamin C, and 1 B100 complex on Thursday. I have been having

> > issues with diarrhea and tummy cramps since then. The D.O. wanted me

> > to take Magnesium Oxide but I'm afraid to because I already have

> > diarrhea. She also wanted me to take Wormwood Combination (parasite

> > Cleanse). I have seen Magnesium Oxide on the iodine therapy protocols,

> > but don't understand what it's for - is it to cleanse? Should I wait

> > to start these other things as my body adjusts to what I'm taking now?

> >

> > Well - now I'm on board and looking forward to feeling better. Sorry

> > this was so lenghty!

> >

> >

> >

>

Link to comment
Share on other sites

> >

> I would definitely look into gluten intolerance with all the digestive

problems you

speak

> of. There are other forms of magnesium besides the oxide. The oxide form is

the most

> likely to cause diarrhea. Some of the other forms are better. Low magnesium

could be

> contributing to the heart palps. Welcome to the group. Lots of info and

support here.

> Deb

> > Hello everyone! I will try to keep this brief. I am a 35 year old

> > female that has been through quite a bit since Jne 2007. In June 2007

> > out of nowhere I started getting this rmbling/gurgling in my

> > intestines. I would get gas really bad by the end of the day and would

> > be miserable. Living on Gas-X was not much fun. I was taking Manuka

> > Honey for several months, but that got really expensive. As soon as I

> > would quit taking it everything would start up again . . . I went to

> > see 2 different M.D.'s, one gynecologist, and one gastroenterologist.

> > Finally, I went to visit a D.O. that did a microscopy test that showed

> > major toxins along with candida. Since mid-July I have been following

> > the candida diet AND received four treatments of Calcium EDTA

> > chelation. I went through some really bad die-off and detox symptoms

> > from both. While going through all this I became sensitive to cold,

> > fatigued (had that from the beginning but it never go better), heart

> > palps, etc. I went back to the D.O. about the heart palps and they

> > could not figure out what was wrong with me, but decided to start me on

> > Armour Thyroid for the cold, fatigue, and hair loss (which has been

> > going on for several years). I started on Armour, but my heart palps

> > got worse and I had to quit. The Dr. prescribed Synthroid which I

> > refused to take. In the meantime I posted on curezone about my heart

> > and somebody said it was an iodine deficiency. I began extensive

> > research and listened to Dr. Flechas two hour radio interview. In

> > between all this time I found out I have a cyst on my right ovary.

> >

> > I was ready to start iodine therapy, but really wanted a Dr.'s

> > approval. Through the grace of God I had a friend at church that told

> > me her Doctor does iodine therapy. She is also a D.O. and I had an

> > appoinment with her last Wednesday.

> >

> > Now to where I am to date . . . I started 12.5 mg of Iodoral along with

> > 1,000mg Vitamin C, and 1 B100 complex on Thursday. I have been having

> > issues with diarrhea and tummy cramps since then. The D.O. wanted me

> > to take Magnesium Oxide but I'm afraid to because I already have

> > diarrhea. She also wanted me to take Wormwood Combination (parasite

> > Cleanse). I have seen Magnesium Oxide on the iodine therapy protocols,

> > but don't understand what it's for - is it to cleanse? Should I wait

> > to start these other things as my body adjusts to what I'm taking now?

> >

> > Well - now I'm on board and looking forward to feeling better. Sorry

> > this was so lenghty!

> >

> >

> >

>

Link to comment
Share on other sites

Yep we have lots of issues. I am testing my son and will go from there. He is the immediate issue. I had thyroid cancer so it was a no brainer for me. I feel horrible on it. My son is having concentration and hyper like issues. Hopefully this is the answer. I don't want to deal with the dairy because we have a cow share and that gets messy.

Re: Newbie introduction

> >> I would definitely look into gluten intolerance with all the digestive problems you speak > of. There are other forms of magnesium besides the oxide. The oxide form is the most > likely to cause diarrhea. Some of the other forms are better. Low magnesium could be > contributing to the heart palps. Welcome to the group. Lots of info and support here. > Deb> > Hello everyone! I will try to keep this brief. I am a 35 year old > > female that has been through quite a bit since Jne 2007. In June 2007 > > out of nowhere I started getting this rmbling/gurgling in my > > intestines. I would get gas really bad by the end of the day and would > > be miserable. Living on Gas-X was not much fun. I was taking Manuka > > Honey for several months, but that got really expensive. As soon as I > > would quit taking it everything would start up again . . . I went to > > see 2 different M.D.'s, one gynecologist, and one gastroenterologist. > > Finally, I went to visit a D.O. that did a microscopy test that showed > > major toxins along with candida. Since mid-July I have been following > > the candida diet AND received four treatments of Calcium EDTA > > chelation. I went through some really bad die-off and detox symptoms > > from both. While going through all this I became sensitive to cold, > > fatigued (had that from the beginning but it never go better), heart > > palps, etc. I went back to the D.O. about the heart palps and they > > could not figure out what was wrong with me, but decided to start me on > > Armour Thyroid for the cold, fatigue, and hair loss (which has been > > going on for several years). I started on Armour, but my heart palps > > got worse and I had to quit. The Dr. prescribed Synthroid which I > > refused to take. In the meantime I posted on curezone about my heart > > and somebody said it was an iodine deficiency. I began extensive > > research and listened to Dr. Flechas two hour radio interview. In > > between all this time I found out I have a cyst on my right ovary. > > > > I was ready to start iodine therapy, but really wanted a Dr.'s > > approval. Through the grace of God I had a friend at church that told > > me her Doctor does iodine therapy. She is also a D.O. and I had an > > appoinment with her last Wednesday. > > > > Now to where I am to date . . . I started 12.5 mg of Iodoral along with > > 1,000mg Vitamin C, and 1 B100 complex on Thursday. I have been having > > issues with diarrhea and tummy cramps since then. The D.O. wanted me > > to take Magnesium Oxide but I'm afraid to because I already have > > diarrhea. She also wanted me to take Wormwood Combination (parasite > > Cleanse). I have seen Magnesium Oxide on the iodine therapy protocols, > > but don't understand what it's for - is it to cleanse? Should I wait > > to start these other things as my body adjusts to what I'm taking now?> > > > Well - now I'm on board and looking forward to feeling better. Sorry > > this was so lenghty! > > > > > >>

Link to comment
Share on other sites

> > >

> > I would definitely look into gluten intolerance with all the digestive

problems you

> speak

> > of. There are other forms of magnesium besides the oxide. The oxide form

is the

most

> > likely to cause diarrhea. Some of the other forms are better. Low

magnesium could

be

> > contributing to the heart palps. Welcome to the group. Lots of info and

support here.

> > Deb

> > > Hello everyone! I will try to keep this brief. I am a 35 year old

> > > female that has been through quite a bit since Jne 2007. In June 2007

> > > out of nowhere I started getting this rmbling/gurgling in my

> > > intestines. I would get gas really bad by the end of the day and would

> > > be miserable. Living on Gas-X was not much fun. I was taking Manuka

> > > Honey for several months, but that got really expensive. As soon as I

> > > would quit taking it everything would start up again . . . I went to

> > > see 2 different M.D.'s, one gynecologist, and one gastroenterologist.

> > > Finally, I went to visit a D.O. that did a microscopy test that showed

> > > major toxins along with candida. Since mid-July I have been following

> > > the candida diet AND received four treatments of Calcium EDTA

> > > chelation. I went through some really bad die-off and detox symptoms

> > > from both. While going through all this I became sensitive to cold,

> > > fatigued (had that from the beginning but it never go better), heart

> > > palps, etc. I went back to the D.O. about the heart palps and they

> > > could not figure out what was wrong with me, but decided to start me on

> > > Armour Thyroid for the cold, fatigue, and hair loss (which has been

> > > going on for several years). I started on Armour, but my heart palps

> > > got worse and I had to quit. The Dr. prescribed Synthroid which I

> > > refused to take. In the meantime I posted on curezone about my heart

> > > and somebody said it was an iodine deficiency. I began extensive

> > > research and listened to Dr. Flechas two hour radio interview. In

> > > between all this time I found out I have a cyst on my right ovary.

> > >

> > > I was ready to start iodine therapy, but really wanted a Dr.'s

> > > approval. Through the grace of God I had a friend at church that told

> > > me her Doctor does iodine therapy. She is also a D.O. and I had an

> > > appoinment with her last Wednesday.

> > >

> > > Now to where I am to date . . . I started 12.5 mg of Iodoral along with

> > > 1,000mg Vitamin C, and 1 B100 complex on Thursday. I have been having

> > > issues with diarrhea and tummy cramps since then. The D.O. wanted me

> > > to take Magnesium Oxide but I'm afraid to because I already have

> > > diarrhea. She also wanted me to take Wormwood Combination (parasite

> > > Cleanse). I have seen Magnesium Oxide on the iodine therapy protocols,

> > > but don't understand what it's for - is it to cleanse? Should I wait

> > > to start these other things as my body adjusts to what I'm taking now?

> > >

> > > Well - now I'm on board and looking forward to feeling better. Sorry

> > > this was so lenghty!

> > >

> > >

> > >

> >

>

Link to comment
Share on other sites

Jullie..

What form of vitamin c are you taking? I take a timed released

buffered mineral ascorbate form from Vitamin Shoppe. I take 3-4

grams at a time and tolerate it without diarrhea. If you are taking

just ascorbic acid, it will go right through you at high doses.

http://www.vitaminshoppe.com/store/en/browse/sku_detail.jsp?id=VS-1255

Lorie

>

> Now to where I am to date . . . I started 12.5 mg of Iodoral along

with 1,000mg Vitamin C, and 1 B100 complex on Thursday. I have been

having issues with diarrhea and tummy cramps since then. The D.O.

wanted me to take Magnesium Oxide but I'm afraid to because I already

have diarrhea. She also wanted me to take Wormwood Combination

(parasite Cleanse). I have seen Magnesium Oxide on the iodine therapy

protocols, but don't understand what it's for - is it to cleanse?

Should I wait to start these other things as my body adjusts to what

I'm taking now?

>

> Well - now I'm on board and looking forward to feeling better. Sorry

> this was so lenghty!

>

>

>

Link to comment
Share on other sites

Another unpleasant side effect of too much vitamin C too fast is gas!

>

> Jullie..

>

> What form of vitamin c are you taking? I take a timed released

> buffered mineral ascorbate form from Vitamin Shoppe. I take 3-4

> grams at a time and tolerate it without diarrhea. If you are taking

> just ascorbic acid, it will go right through you at high doses.

>

>

> http://www.vitaminshoppe.com/store/en/browse/sku_detail.jsp?id=VS-

1255

>

> Lorie

Link to comment
Share on other sites

  • 3 months later...

Hi Bee and everyone!

This is just a quick introduction for this board. I am truely grateful

for being led to this website and am trying to absorb all of the wisdom

and guidelines. It's fabulous, and I can't thank Bee enough for helping

me start the process of wellness.

My story (in short)

I have been misdiagnosed for over 11 years and not ONE doctor mentioned

the possiblity of candida overgrowth. My symptoms include: (and were

getting progressively worse over the years) IBS-C with constant bloat,

chronic sinusitis, mild rosacea in my eyes which causes dry eye,

unexplained swelling on one side of my upper neck which affects my

tongue as well, chronic fatigue,tooth sensitivity and gum problems,

anxiety, depression, cold areas on my body, toe nail fungus, eczema,

extremely itchy skin arund my ankles...... sadly my list is long.

I basically was told that I had allergies and IBS and that I would just

have to live with it. They handed me some allergy meds, antibiotics,

and Donatol. I knew this was not right, but didn't know what else to

do.

It was not until I had official allergy testing last year, that I

realized my problem was not allergies at all. The tests said NO

allergies and also said my immune system was low. (interesting huh??)

In search for answers I found a women's clinic up in Maine who delt

with symptoms such as mine. They felt from the beginning I had a yeast

overgrowth and had me take additional stool tests. The tests DID

confirm the possibility, so I went on their candida diet plan with

probiotics and Uva Ursi. (Finally I was getting answers and NOT feeling

like a hypochondriac for all of my symptoms I KNEW somehow were all

related.(even though my doctors never put them all together and made me

feel like a hypochondriac!).

However, after MUCH reading on the internet and books that I purchased

on the subject, I realized that the diet the clinic gave me was not

strict enough. So I additionally cut out all grain, and legumes and

fruit. But as Bee has said, too much in " cuts " all at once can cause

bad die off reaction, which is what I have had!!!! I felt like I was

dying, my whole body ached and every symptom I had was on " fire " .

Then I found Bee's website (though and on-line board). I'm have been

reading and reading all the wonderful articles and about diet and

supplements and am confident I have NOW found the right healing path

for my body. I have been easing into Bee's curing candida plan and am

hopeful that I will start to feel better soon. I am crying as I write

this with tears of joy. For the first time in so many years, I can see

light at the end of a very dark tunnel. Thank you, thank you Bee!

In gratitude,

Carolyn

Link to comment
Share on other sites

  • 2 years later...
Guest guest

Hi Sharon,

Welcome to the forum....

This has to be really quick because I'm off to bed, but uncurable depression

and fibromyalgia/CFS/ME all linked to lack of T3. Best thing you could do

would be get a test fro free t3 and free t4.... Either the doctor or you can

get them done privately by going direct to the laboratory yourself.... We

commonly use Genova Diagnostics but there are other labs too. Details in the

files section.

thyroid treatment/files/.

Have a look at www.drlowe.com for links between cfs etc and T3.

The numbness and pins and needles possibly links to low B12, which needs to be 7

or 800 to be optimal.

The breaking into a sweat has happened to me and several others but I can't

remember why.... I've not got it any more... may be adrenal related....

Are you taking Selenium to help with conversion of T4 to t3? Essential really.

How about Vitamin C?

There's a ton of stuff for you to look at in the files, it's all relevant and

you're not imagining that the way you are feeling is linked to badly treated

thyroid..... T4 only suits 87% people, the other 13% have to battle for correct

treatment, and we end up on forums.

Sorry this is rushed...

x

>

> Hello all. Forgive me because I suspect that this message may be a little

longer than you would like as I am not really sure what is relevant and what

isn't.

>

>

Link to comment
Share on other sites

Guest guest

Hello Sharon and welcome to our forum where I hope you get the

help and support you so obviously need.

About 6 years ago I was diagnosed with CFS/ME and lost my job because of it 5

years ago. I have been unable to work since.

Doctors give this 'dustbin' diagnosis when your thyroid function

tests are within the 'normal' reference range, you are taking thyroid hormone

replacement yet you still complain of symptoms, they have not been taught how

to deal with symptoms if you are still complaining so give you a diagnosis of

CFS/ME/FM and told to go away and try to prescribe you antidepressants.

I have suffered with depression all of my adult life and

have been on too many types of antidepressants than I care to remember but am

currently using venlafaxine. It keeps me stable-ish but below par. The

specialist has referred to my depression as being drug resistant.

If your specialist blames your depression on being drug

resistant, does he mean antidepressants or thyroid hormone replacement?

I have a whole host of symptoms; brain fog, exhaustion,

tight and aching muscles, severe headaches for which I can find no trigger,

pins and needles/numbness in my fingers when I grip things (carpel tunnel

syndrome has been ruled out). My 'thermostat' seems shot; coming in from

outdoors may result in me feeling far too hot when other people seem fine. Just

doing the washing up can make me sweat so badly that my hair gets wet.

This sounds as if the cause of your symptoms of hypothyroidism

is Hashimoto's disease. This means you have antibodies to your thyroid that

sometimes attack the thyroid and sometimes do not, so you are up and down,

hyper/hypothyroidism at different times.

Walking at any kind of pace gives me severe cramp pains on

the outside of my ankles. I have been told this is because my calf muscles have

shortened, though been given no explanation as to why. I tried the stretching

exercises prescribed for quite some time but found that the next day I was back

to square one. I believe that some of these

symptoms could be due to untreated hypothyroidism, but the sweating thing

surely isn't. That may be a side effect of the venlafaxine though. What do you

think?

Quite probably this is caused because the thyroxine you are

taking is not the thyroid hormone you should be taking. Thyroxine

(levothyroxine) is a mainly INACTIVE thyroid hormone that MUST convert into the

ACTIVE form of thyroid hormone triiodothyronine (T3) - the synthetic version in

the UK is called Liothyronine, and Cytomel elsewhere. It is T3 that every cell

in your body and brain needs to make them function. Unfortunately, the NHS fail

to recognise that there is a large minority of sufferers (actually,

approximately over quarter a million in the UK alone) who are unable to convert

for many and varied reasons.

I saw my GP last week for new painkillers for the headaches

and tested the water by saying I may be looking into treating myself with NDT.

She seemed willing to at least monitor me. There is also the possibility that

my psychiatrist may be persuaded to consider T3 treatment. But I am so confused

as to what to do next. Ideally I would like to see a recommended doctor who

will look after me properly as my ability to concentrate and assimilate

information is really not what it once was.

Many psychiatrists treat their 'depressed' patients with the

active thyroid hormone T3 because they recognise the necessity for this but it

appears this news has yet to reach the ears of our mainstream NHS

endocrinologists and GP's who are doing their patients a great disservice.

What I would do Sharon in your case is to write a letter to your

GP, sending a copy to the Head of Practice and keeping a copy yourself in case

you need to take this matter further.

First, make it absolutely clear to your GP that you are no

longer willing to take a back seat and leave your health, which is gradually

getting worse, in the hands of the NHS or to be given a dustbin diagnosis of

ME/CFS/FM as you know that all avenues have not been trodden.

List every single one of your symptoms and signs. Check yours

against those in our web site www.tpa-uk.org.uk

and click on 'Hypothyroidism' in the Menu, and then in the drop down menu,

click on 'Symptoms and Signs'.

Next, take your temperature for 4 or 5 mornings before you get

out of bed and list these too. It is likely these will be very low in the range

and is a sign that your metabolism isn't functioning as it should. No.1 reason

for having a low metabolism is hyperthermia, No. 2 reason is untreated or under

treated hypothyroidism.

Next, list all the members of your family who have a thyroid or

autoimmune disease - this is important.

Next, list all the blood tests you need to be done. These are a

full thyroid function test which must include TSH, free T4, free T3 and tests

to see whether or not you have thyroid antibodies. These are TPA and TgAb. The

latter is especially important if you have family members with thyroid or

autoimmune problems.

Ask also to have the following tested to see whether any levels

of these minerals/vitamins are low in the reference range: ferritin, vitamin

B12,m vitamin D3, magnesium, folate, copper and zinc. Mention here that you

would like copies of all these test results to be sent to you together with the

reference range. When you get them, post them here and we can try to help with

their interpretation. Tell the GP here also that you are SPECIFICALLY asking

for these tests to be done because it is a well known fact that should any of

these be low in the range, no amount of thyroid hormone can be fully utilised

at cellular level.

Next, ask for a referral to an endocrinologist of your choice.

You do not have to see the one your GP refers you to as it is very likely your

local one's will not have the required speciality in thyroid disease, but in

diabetes only. We have learned there are very few NHS endocrinologists who are

very knowledgeable about thyroid disease. However, I have collected a list of

doctors recommended by our members here who will treat using either the

synthetic form or natural form of T3 for those patients who do not do well on

T4 only. I will send this list to you privately.

Under Patient's Choices, you can be referred outside of your

area but not to the specialist you want to see, so what you do is to first get

the referral to the hospital your chosen specialist works at and once you hear

from that hospital, you then ask for an appointment when Dr so and so has his

clinic and tell them you want to see nobody else, and that you are prepared to

wait to get an appointment with him. You then ask for this doctors name to be

placed into your medical notes to show that you will not be seen by anybody

else, ONLY him. This is what I did years ago - and it works great.

Last, don't forget to send a copy of your letter of requests to

the Head of Practice and ask for this same letter to be placed into your

medical notes and GOOD LUCK.

There is light at the end of the tunnel.

Please see attached document (if you can't see it because you

get a Daily Digest or read directly from the forum web site, let me know and I will

send a copy to your private address). This is a document giving many possible

reasons why your thyroid hormone replacement might not be working and what you

should do about it.

Luv - Sheila

I would so appreciate your help.

Thanks in advance,

Sharon

1 of 1 File(s)

Why thyroid hormone stops working (2).doc

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...