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Re: Re: Hello, I am new!

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Hi...

Since surgery usually involves fusion of a significant number of

vertebrae, waiting until skeletal maturity would allow your son to

continue growing in that area of his torso. Fusion, if done correctly,

would halt growth. Also, if children who are not done growing are

fused, they need to be fused either from the front/anterior (which is

more difficult than a back (posterior) approach, or the front and back

(anterior/posterior), as fusion strictly from the back can cause a

condition called crankshaft phenomenon.

Hope that isn't too confusing.

Regards,

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Terri...

Hopefully, the surgeon will at least try a brace. You'll know quickly

if the brace will hold the curves while he matures. If not, than

surgery will probably be the only option.

Good luck. Please keep us posted.

Regards,

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Hi Terri,

I'm in the middle of dinner prep, but I have to check my e-mail every once

in a while anyway, so if I don't get all of this answered, I will get back

to it and answer the rest.

OK. My daughter is 16, will be 17 on the 29th of this month. At the

moment she is in a Providence (night-time wear only) brace, but that may be

weaned tomorrow. I said day after tomorrow we went to Shriners, but my

brain was in a temporary(?!) glitch, it's tomorrow. So far her curves have

remained stable since she started bracing.

Oops!! Gotta run. I will continue more later on.

Blessings!!

Cecile

> [Original Message]

> From: Terri Lawrenz <dougnter@...>

> <Scoliosis Treatmentegroups>

> Date: 10/25/00 4:55:50 PM

> Subject: Re: Hello, I am new!

>

> Cecile, thank you so much for all of your words of encouragement. It

> is comforting talking to others who have " been there " . I would love

> for you to email me with your info and links. My email is

> dougnter@... How old is your daughter? Is she in a brace now,

> and is it working? What type of brace is best, or is that very

> controversial?

>

> I will tell you a little bit more about Josh. He has not complained

> about anything, and we never noticed anything strange about his back

> until in August when we were on vacation. He was at the pool and

> diving in, when we noticed one shoulder blade sat different than the

> other. Now, back in 4th grade, he took a fall from a high tower in

> school and landed on that same shoulder, so we thought that perhaps

> the abnormal shoulder was a result of his fall. After his fall, he

> did have xrays done and his shoulder was fine, nothing broken. Just

> bad bruising. He has not complained of any pain. A couple weeks ago,

> I start to notice him slouching a lot and that his shoulder blade

> seemed to be sticking out even worse. So I took his to the chiro. The

> chiro referred him a regular physician to have xrays taken. The

> doctor could tell just from looking at him without even seeing the

> xrays that his curve would definately require bracing. After viewing

> the xrays, he felt that it was neccessary to not mess around, but to

> send him directly to " the best " , a pediatric othopedic at Gillette.

> That is the appt we are waiting for on Nov 22nd. His radiology report

> came back showing the curves at 54 and 46, much worse than my husband

> and I expected. I feel so bad that I didn't notice it sooner. I feel

> like I, as a parent, should have caught it before it got this bad. It

> seems to be getting worse by the day.(maybe it is my phobia and my

> imagination!) Now we have to play the waiting game. So for now, we

> are gathering as much advice and info as possible to prepare

> ourselves for whats ahead for poor Josh. He is very scared, but he

> knows that surgery is probably a lot better choice for him, than

> having to spend the next several years of his life in a brace.(jr

> high and high school are hard enough!)

>

> I appreciate you taking the time for such a detailed response. It is

> good to know that there are good people out there such as yourself

> that are willing to loan some support and encouragement. We will need

> much of it in the months ahead.

>

> Terri

>

>

>

>

>

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  • 8 years later...

On Feb 16, 2009, at 1:09 PM, hjacksic wrote:

> Hello again

I am concerned, I was taking 5k vit c per day and some b vits( for my

adrenals). From my reading they can feed or stimulate yeast growth.

Have you heard this?

correy

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