Re: Digest Number 277

September 7, 2000

Ahhh the good old days of PMS it is no fun and I am glad those days are over

for me. Keep well Alley

Winne

September 7, 2000

Dee Dee

So glad you are doing well on the treatment - some of the stress you were

under maybe gone like you said having finally started the treatment. Don't

worry your husband will come around. It is hard at first and I know that

first hand because it is my husband who has the Hep C in our family. Stay

positive.

winne

September 7, 2000

Dee Dee

So glad you are doing well on the treatment - some of the stress you were

under maybe gone like you said having finally started the treatment. Don't

worry your husband will come around. It is hard at first and I know that

first hand because it is my husband who has the Hep C in our family. Stay

positive.

winne

September 10, 2000

Hi Everyone,

Just checking-in to let you all know how this first week on treatment has

been going. The first shot was done at the Dr. office around 11:00. So by

6:00 that evening I was having the flu-like symptoms, chills......not bad

though, mild fever and body aches. Next day felt great. Friday, 2nd shot

at 7:00 in the evening. I must have slept through them. I took a couple of

tylenol. Felt good all day yesterday. Now if I were to do the every other

day dosing, tonight would be 3rd shot. I'm using the syringe so I could

just use a little less out of the vial. Does anyone else do that? I've

been drinking lots of water and having to find a bathroom more often than

usual. I'm also still taking vitamins C and E, milk thistle, calcium, and

ERT. So far, this is going very well. Everyones prayers must be working.

Thanks everyone. I have plenty of engery and my spirits are high. I'm

taking 5 of the Riboviron capsules a day. Blood work in schuduled each week

for the next 3 weeks. Last night I took a tylenol pm. Slept all night

through. It's O.K. to take the PM tylenol, I hope. Well, gotta go, Bye for

now...........Dee Dee

>From: " Ken & Pat @home " <alleypat@...>

>Reply-Hepatitis Cegroups

><Hepatitis Cegroups>

>Subject: Re: Digest Number 277

>Date: Tue, 5 Sep 2000 23:32:12 -0500

>

>Dee Dee... won't be long and YOU " LL be the one offering your experiences to

>someone else, giving them hugs and listening to them It's an ongoing

>process of caring and sharing.

>alley/

>ICQ 12631861

>alleypat@...

>http://www.flash.net/~alleypat

>

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September 10, 2000

Thanks Winnie...........he's coming around.......asks me questions and is

concerned. So far though, I'm no different. This can't last! I pray it

does and treatment is successful. Dee Dee

>From: RLWINNE@...

>Reply-Hepatitis Cegroups

>Hepatitis Cegroups

>Subject: Re: Digest Number 277

>Date: Thu, 7 Sep 2000 17:24:16 EDT

>

>Dee Dee

>

>So glad you are doing well on the treatment - some of the stress you were

>under maybe gone like you said having finally started the treatment. Don't

>worry your husband will come around. It is hard at first and I know that

>first hand because it is my husband who has the Hep C in our family. Stay

>positive.

>

>winne

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September 10, 2000

Claudine,

Looking at my vials........which are 3 million IU. I'm suppose to use the

whole vial with one shot. I was given 12 to last for 4 weeks. I don't

think I should run the risk of running out, unless I cut back on the dosage.

What does Doc here suggest? Thanks......Dee Dee

>From: claudine intexas <claudineintexas@...>

>Reply-Hepatitis Cegroups

>Hepatitis Cegroups

>Subject: Re: Digest Number 277

>Date: Sun, 10 Sep 2000 11:48:23 -0700 (PDT)

>

>Dear Dee Dee,

> I am so glad that treatment so far is going well

>for you! It's nice to hear good stories about

>treatment side effects.

> There is plenty of overfill in the vials to do a

>full dose every other instead of 3 X a week. The only

>problem you may run into would be running out of

>syringes down the line, but that is usually an easy

>problem to solve. I told the pharmacy once that I

>didn't like the syringes packed in the kit and they

>just handed me a whole bag of them with smaller

>needles. When you pick up your prescription just tell

>them you need extras.

>Take care,

>Claudine

>_________________________________________________________________________

> > Get Your Private, Free E-mail from MSN Hotmail at

> > http://www.hotmail.com.

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> > public profile at

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> >

>

>=====

>claudinecrews@...

>

>__________________________________________________

>

September 10, 2000

Thanks Lora.....but too soon to expect no sides. Somehow, I'm alot more

easily upset........making a big deal out of nothing and becoming irritated

for no reason. AS far as everyother day dosing.....I havn't checked it out

with my Dr. I'd hate to run out of meds before I can refill. I'm using a

syringe. Suppose I could adjust the dosage. Not sure if that would be

wise. Better stick to 3x a week. Bye for now.......Dee Dee

>From: Lorad8@...

>Reply-Hepatitis Cegroups

>Hepatitis Cegroups

>Subject: Re: Digest Number 277

>Date: Sun, 10 Sep 2000 18:38:10 EDT

>

>That is GREAT Dee... I agree that all the thoughts and prayers we have

>received here are definately a HUGE help!!!! Although your sides sound a

>tad milder, I, too am surviving with minimal upset. ARe you definately

>doing

>every other day?? My doc told me that at the end of treatment, he would

>have

>to re write a perscription. Am using the pen every other day, I think!

>Stay positive! Lora

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September 10, 2000

That is GREAT Dee... I agree that all the thoughts and prayers we have

received here are definately a HUGE help!!!! Although your sides sound a

tad milder, I, too am surviving with minimal upset. ARe you definately doing

every other day?? My doc told me that at the end of treatment, he would have

to re write a perscription. Am using the pen every other day, I think!

Stay positive! Lora

September 10, 2000

Dear Dee Dee,

I am so glad that treatment so far is going well

for you! It's nice to hear good stories about

treatment side effects.

There is plenty of overfill in the vials to do a

full dose every other instead of 3 X a week. The only

problem you may run into would be running out of

syringes down the line, but that is usually an easy

problem to solve. I told the pharmacy once that I

didn't like the syringes packed in the kit and they

just handed me a whole bag of them with smaller

needles. When you pick up your prescription just tell

them you need extras.

Take care,

Claudine

_________________________________________________________________________

> Get Your Private, Free E-mail from MSN Hotmail at

> http://www.hotmail.com.

>

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=====

claudinecrews@...

__________________________________________________

September 10, 2000

Dee Dee

Sounds like you are getting along pretty good on the treatment and we love to

hear news like that. Keep up the good work. We will keep you in our prayers

as we do everyone on this list. Staying positive is what helps us also.

Winne

September 10, 2000

Dee Dee

Glad to hear your husband is coming around I knew he would. You might not

have changed but your situation has remember that. You are dealing with a

chronic disease and the treatment for it that is the part that changed in

your life and the part he is having a hard time excepting. If he is like me

he is wishing it was him that was sick and not you. We have found a way to

deal with it and you guys will to. It has been a real struggle this past

year and as close as we were before this has really made us closer. Keep on

smiling.

Winne

September 10, 2000

Dee Dee great!!!!!!!!!!!! Sounds like a good start

alley/

ICQ 12631861

alleypat@...

http://www.flash.net/~alleypat

September 10, 2000

--- Dee Dee <deetaylor76@...> wrote:

> Claudine,

> Looking at my vials........which are 3 million IU.

> I'm suppose to use the

> whole vial with one shot. I was given 12 to last

> for 4 weeks.

You have different vials than mine. Mine held

enough for 3, 3mu injections plus overfill.

When my doctor changed my dosage to 5 mu instead

of 3 mu the pharmacy just added extra vials and

syringes to the pre-packed Rebetron kit.

Claudine

=====

claudinecrews@...

__________________________________________________

September 14, 2000

Suzy,

Thanks but I think I'll stick to the 3x a week. Only because I hate giving

myself the shot! Last night was #4. Maybe as time goes on I'll play with

it. I'm doing o.k.....feeling tired this morning. Burst out into tears for

no reason yesterday. Kept it to myself and realized it must be the

treatment. Had blood drawn yesterday. Well better get going.........talk

to you later......Dee Dee

>From: " Suzy Balone " <suzybalone@...>

>Reply-Hepatitis Cegroups

>Hepatitis Cegroups

>Subject: Re: Digest Number 277

>Date: Thu, 14 Sep 2000 10:26:44 CDT

>

>Dee Dee,

>

>Even though the vials say 3 mu there is almost always overfill in them

>for

>accidents etc. so you might check the syringe when you draw it up and

>there may be a little extra, I am on the pens which have 6 3 mu doses

>and

>there is enough for at least an extra dose if not two. I started reading

>the list and at first was throwing the pen away the first time or two

>until

>someone said something and then staaarted using it,, there are others that

>can use the left over medicine at the end of your treatment, and as it

>turned out someone visititng put the pen on top of the fridge so I

>actually had enough for a whole pen, although it was very close, but a

>godsend

>

>talk to you later

>

>Suzy

>

>From: claudine intexas <claudineintexas@...>

>Reply-Hepatitis Cegroups

>Hepatitis Cegroups

>Subject: Re: Digest Number 277

>Date: Sun, 10 Sep 2000 17:58:50 -0700 (PDT)

>

>--- Dee Dee <deetaylor76@...> wrote:

> > Claudine,

> > Looking at my vials........which are 3 million IU.

> > I'm suppose to use the

> > whole vial with one shot. I was given 12 to last

> > for 4 weeks.

>

> You have different vials than mine. Mine held

>enough for 3, 3mu injections plus overfill.

> When my doctor changed my dosage to 5 mu instead

>of 3 mu the pharmacy just added extra vials and

>syringes to the pre-packed Rebetron kit.

>Claudine

>

>=====

>claudinecrews@...

>

>__________________________________________________

>

September 14, 2000

Suzy,

Thanks but I think I'll stick to the 3x a week. Only because I hate giving

myself the shot! Last night was #4. Maybe as time goes on I'll play with

it. I'm doing o.k.....feeling tired this morning. Burst out into tears for

no reason yesterday. Kept it to myself and realized it must be the

treatment. Had blood drawn yesterday. Well better get going.........talk

to you later......Dee Dee

>From: " Suzy Balone " <suzybalone@...>

>Reply-Hepatitis Cegroups

>Hepatitis Cegroups

>Subject: Re: Digest Number 277

>Date: Thu, 14 Sep 2000 10:26:44 CDT

>

>Dee Dee,

>

>Even though the vials say 3 mu there is almost always overfill in them

>for

>accidents etc. so you might check the syringe when you draw it up and

>there may be a little extra, I am on the pens which have 6 3 mu doses

>and

>there is enough for at least an extra dose if not two. I started reading

>the list and at first was throwing the pen away the first time or two

>until

>someone said something and then staaarted using it,, there are others that

>can use the left over medicine at the end of your treatment, and as it

>turned out someone visititng put the pen on top of the fridge so I

>actually had enough for a whole pen, although it was very close, but a

>godsend

>

>talk to you later

>

>Suzy

>

>From: claudine intexas <claudineintexas@...>

>Reply-Hepatitis Cegroups

>Hepatitis Cegroups

>Subject: Re: Digest Number 277

>Date: Sun, 10 Sep 2000 17:58:50 -0700 (PDT)

>

>--- Dee Dee <deetaylor76@...> wrote:

> > Claudine,

> > Looking at my vials........which are 3 million IU.

> > I'm suppose to use the

> > whole vial with one shot. I was given 12 to last

> > for 4 weeks.

>

> You have different vials than mine. Mine held

>enough for 3, 3mu injections plus overfill.

> When my doctor changed my dosage to 5 mu instead

>of 3 mu the pharmacy just added extra vials and

>syringes to the pre-packed Rebetron kit.

>Claudine

>

>=====

>claudinecrews@...

>

>__________________________________________________

>

September 14, 2000

Dee Dee,

Glad the first week of treatment went okay just keep marking off those

weeks, they fly by ( at least at times) smiles and hugs,

Suzy

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September 14, 2000

Dee Dee,

Glad the first week of treatment went okay just keep marking off those

weeks, they fly by ( at least at times) smiles and hugs,

Suzy

_________________________________________________________________________

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September 14, 2000

Dee Dee,

Even though the vials say 3 mu there is almost always overfill in them for

accidents etc. so you might check the syringe when you draw it up and

there may be a little extra, I am on the pens which have 6 3 mu doses and

there is enough for at least an extra dose if not two. I started reading

the list and at first was throwing the pen away the first time or two until

someone said something and then staaarted using it,, there are others that

can use the left over medicine at the end of your treatment, and as it

turned out someone visititng put the pen on top of the fridge so I

actually had enough for a whole pen, although it was very close, but a

godsend

talk to you later

Suzy

From: claudine intexas <claudineintexas@...>

Reply-Hepatitis Cegroups

Hepatitis Cegroups

Subject: Re: Digest Number 277

Date: Sun, 10 Sep 2000 17:58:50 -0700 (PDT)

--- Dee Dee <deetaylor76@...> wrote:

> Claudine,

> Looking at my vials........which are 3 million IU.

> I'm suppose to use the

> whole vial with one shot. I was given 12 to last

> for 4 weeks.

You have different vials than mine. Mine held

enough for 3, 3mu injections plus overfill.

When my doctor changed my dosage to 5 mu instead

of 3 mu the pharmacy just added extra vials and

syringes to the pre-packed Rebetron kit.

Claudine

=====

claudinecrews@...

__________________________________________________

September 14, 2000