Guest guest Posted September 17, 1999 Report Share Posted September 17, 1999 I just got back from the Dr. and she said that I have " bile " in my urine. I know right now I'm having liver problems, could the arthrotec be causing this? Any information would be greatly appreciated. Thanks le Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 1999 Report Share Posted September 17, 1999 > It is interesting that I have not heard anyone else mention a problem with > waterbeds. Hi, My husband and I always had a waterbed from the time we met ( it was his and he brought it along!). I was diagnosed in 1993. I won't go into any great detail but it was classified as severe. The water bed never made me feel any better, but I never thought about it. I was a free flow and the problem for me was getting out of it. It had those wooden sideboards, so I use to have to rock myself to get out. I finally had enough in 1997 and we took out the water mattress and got a king size hard matress. WELL! What a difference. I love it. The waterbed WAS making me feel worse and I will never have a waterbed again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2000 Report Share Posted July 21, 2000 In a message dated 7/21/00 5:19:07 AM Eastern Daylight Time, egroups writes: << Hi Gail! It's great that Seth will have an aide that you can trust. Maybe the school can video tape the other aide on the sly doing her " aiding " and then fire her. She certainly doesn't sound as though she has any training of any kind and she sounds like she may even resent taking care of children that require more help. Judy >> Thanks Judy. They say the girl works well with older, advanced Autistic kids. Big difference in helping a kid read and helping Seth push a ball in a can! Hope they put her back where she wants to be and where she works well. It's not fair to Seth, the teacher, the aide or the entire program to have things like this happen. Gail, Mom to; Seth-4, jo-7, Becky-9, -23, Jen-24, Grandma to Errick-4 and wife to -my hero Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2000 Report Share Posted July 21, 2000 I never received digests 275 and 276. Just FYI. Talk to you all later. MB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2000 Report Share Posted September 5, 2000 Just remember, do whatever you can, and plans for the " spurts " of energy you have, and rest the other times. It is going to be slow, frustrating, and " depressing " , but, if all goes well, it is only 1 year out of your life, and then you get to find all the stuff that you never appreciated before, and can do after therapy. It may stink, but, uncertainty and doing nothing is worse. This is when you do what you can and try to remain as positive as possible. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2000 Report Share Posted September 5, 2000 Just remember, do whatever you can, and plans for the " spurts " of energy you have, and rest the other times. It is going to be slow, frustrating, and " depressing " , but, if all goes well, it is only 1 year out of your life, and then you get to find all the stuff that you never appreciated before, and can do after therapy. It may stink, but, uncertainty and doing nothing is worse. This is when you do what you can and try to remain as positive as possible. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2000 Report Share Posted September 5, 2000 Dear AlleyPat: That is hot for Texas, and I've noticed that you are getting more than your share of heat this year. It has been hot in Florida, but, it has been steady, so you learn to deal with it. You could always sit in the Mall where the A/C is free. Also, one thing that most people on treatment go through, is that their bodies have problems with the regulation of sugars. This will cause weakness, dizziness, lightheadedness, muscle cramps, and many other problems. In some ways it is similar to a diabetic, except that, their problem is not usually the how the sugar is used, but how much sugar versus insulin is floating around. The " hepper's " problem comes from not enough sugar to be broken down that your body wants, or stores. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2000 Report Share Posted September 5, 2000 Dear AlleyPat: That is hot for Texas, and I've noticed that you are getting more than your share of heat this year. It has been hot in Florida, but, it has been steady, so you learn to deal with it. You could always sit in the Mall where the A/C is free. Also, one thing that most people on treatment go through, is that their bodies have problems with the regulation of sugars. This will cause weakness, dizziness, lightheadedness, muscle cramps, and many other problems. In some ways it is similar to a diabetic, except that, their problem is not usually the how the sugar is used, but how much sugar versus insulin is floating around. The " hepper's " problem comes from not enough sugar to be broken down that your body wants, or stores. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2000 Report Share Posted September 5, 2000 Dear Lora: Thanks for the compliment. I have taught and lectured, in High School and College levels, but, one of the nice aspects of being a Nurse Practitioner is that you sort of move towards that field because you enjoy the teaching aspect. When I see any patient, to me, a very important aspect is that I want them to understand what is being looked at, why, and the importance. I always tell anyone new that we need to do this as a " team " , and that includes patients, other staff, etc. Patient's think I am joking when I say I want them to be as knowledgeable as possible about their problem and care, because it helps them and keeps me honest. I also never hesitate to take a cue, or ask or answer questions from other staff members, no matter what their " title " is, because experience is underrated, and many of these same people have been around for some time. That is one of the nice things about this group, everyone is sharing and learning from everyone else, and that is an important part of any therapy. What it says in a text book is usually not what is true for the real world. But, when everything is put together, that is to everyone's advantage. I also remember sitting in many classes, and the teacher would be talking at the " 20+ foot level " , and I would be lower than the chairs in understanding. I had an Organic Chemistry teacher once, who was lecturing to over 500 students. He was the youngest person in the World, in his subspecialty of some aspect of chemistry that it was impossible for him to come to a neutral level for anyone who was not as bright as him. But, as I have learned over the years, and many degrees later, if something can be explained to another, without putting them down as being stupid, or, too high that they can not understand it, everyone comes out better. Also, if people would question, (as they should), and their provider would answer, even if it means " I don't have an exact answer let me look that one up " , there would be less malpractice suits, and better care for all concerned. But, that is just the way I approach it, and I am flattered that you took the time to respond, as well as glad that it could be of some help. There is one more important thing that I hope others will read. When this list serve was first started, the majority of people were either just diagnosed, beginning, or somewhere in their therapy. Everyone quickly hears about the problems, and the majority of people here have come either because of previous failure, or how they are doing with therapy. At the beginning, this site, to what I can recall, never picked up the successes, because they were not drawn to this site. Also, if someone is in remission, why do they need to discuss or read other's problems. They are done, and we may hear from those that have been successful, but usually they drop off. So, when someone new comes, it is usually during periods when people are either in therapy and talking about their experiences, or, have not done well, and may have a more bitter attitude. The most important thing that we all must remember is that, by the design alone, you will hear about the problems and not the successes as quickly. I believe the saying is " if it is good, you might tell one person, but if it is bad, you will tell 8-9 people " . So we tend to hear more of the bad, even though there have been some very good outcomes from people who were on this list. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2000 Report Share Posted September 5, 2000 Dear Dee Dee: You probably won't change your husband, and certainly not by yourself. Many you could find a support group that you both can share, or one that helps the spouse/significant other understand what the patient may be going through. I am sure he also has his own fears, frustrations, and uncertainties, but, somehow he has to understand what you are going through, or you both may explode. There are too many cases of separations, or divorce, during any chronic illness and treatment, and HCV is no different. Also speaking from the spouse side, and not the patient, it is still hard not to worry, watch someone who is ill go through pain and everything else, but, that's what any of us signed on for. It is easy when everything is going great, but, if the " shoe were reversed " would he expect and do the same? As a spouse I have found great sources for my wife, but not as many that deal with her and me, or just me. So, kick him in the rear, and try to get him to understand and share, because it will prove very helpful for everyone. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2000 Report Share Posted September 5, 2000 Dear Dee Dee: You probably won't change your husband, and certainly not by yourself. Many you could find a support group that you both can share, or one that helps the spouse/significant other understand what the patient may be going through. I am sure he also has his own fears, frustrations, and uncertainties, but, somehow he has to understand what you are going through, or you both may explode. There are too many cases of separations, or divorce, during any chronic illness and treatment, and HCV is no different. Also speaking from the spouse side, and not the patient, it is still hard not to worry, watch someone who is ill go through pain and everything else, but, that's what any of us signed on for. It is easy when everything is going great, but, if the " shoe were reversed " would he expect and do the same? As a spouse I have found great sources for my wife, but not as many that deal with her and me, or just me. So, kick him in the rear, and try to get him to understand and share, because it will prove very helpful for everyone. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2000 Report Share Posted September 5, 2000 Marty said <<You could always sit in the Mall where the A/C is free>> And walk in 111 degree heat from the car to the mall? No thanks lol. Good info about the sugar. It took only one interferon shot to get rid of my muscle aches, cramps and joint pain. Course that doesn't mean it won't come back. But man, only then did I realize for how long and how much pain I put up with. Today is the first day I've had " flu - like " symptoms from the treatment. Feverish but skin is cool, woozy in the head, queasy tummy, drowsy like when your tired from being sick. Hey, maybe it's the flu! haha. Made it thru work, but the ibuprofen didn't help. The fioricet did help some. So far, so good! alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2000 Report Share Posted September 5, 2000 Marty said <<You could always sit in the Mall where the A/C is free>> And walk in 111 degree heat from the car to the mall? No thanks lol. Good info about the sugar. It took only one interferon shot to get rid of my muscle aches, cramps and joint pain. Course that doesn't mean it won't come back. But man, only then did I realize for how long and how much pain I put up with. Today is the first day I've had " flu - like " symptoms from the treatment. Feverish but skin is cool, woozy in the head, queasy tummy, drowsy like when your tired from being sick. Hey, maybe it's the flu! haha. Made it thru work, but the ibuprofen didn't help. The fioricet did help some. So far, so good! alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2000 Report Share Posted September 5, 2000 Dee Dee... won't be long and YOU " LL be the one offering your experiences to someone else, giving them hugs and listening to them It's an ongoing process of caring and sharing. alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2000 Report Share Posted September 6, 2000 Marty, I always seem to come away calmer after i read your postings. This one is especially important to me because, as you say, we mostly hear the negative, but there are plenty of people out there who are doing OK and not suffering tooooo horribly on the combo. I hope to be in this group, and if I am, I will be sure and let you all know. If not, and the sides are horrible, I hope to be able to focus on the positive and not dwell on the negative. However, it is indeed nice to know that we are not alone, or crazy. I had begun to think that I was crazy because I was soooo tired all the time. I could hardly keep my eyes open. With two teenagers and two preschoolers, it, of course, was no wonder that I was tired! LOL! So, with one day to go, (my appointment is Thursday at 11:00) I read, I relax and I prepare mentally. I am very anxious, nervous and tense, so am trying hard to relax. I just want you to know that you have been a tremendous help to me personally and I am sure to lots of others. Thank you so much for your words of wisdom and encouragement. Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2000 Report Share Posted September 6, 2000 Marty, I always seem to come away calmer after i read your postings. This one is especially important to me because, as you say, we mostly hear the negative, but there are plenty of people out there who are doing OK and not suffering tooooo horribly on the combo. I hope to be in this group, and if I am, I will be sure and let you all know. If not, and the sides are horrible, I hope to be able to focus on the positive and not dwell on the negative. However, it is indeed nice to know that we are not alone, or crazy. I had begun to think that I was crazy because I was soooo tired all the time. I could hardly keep my eyes open. With two teenagers and two preschoolers, it, of course, was no wonder that I was tired! LOL! So, with one day to go, (my appointment is Thursday at 11:00) I read, I relax and I prepare mentally. I am very anxious, nervous and tense, so am trying hard to relax. I just want you to know that you have been a tremendous help to me personally and I am sure to lots of others. Thank you so much for your words of wisdom and encouragement. Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2000 Report Share Posted September 6, 2000 Alley Sorry you ar not feeling well. Lets hope it is the flu - it would be the best of the two evils. I know my husband would rather have the flu for a few days then for a year like he has. So I will continue to think positive that it is the flu and you well feel better in a few days. Get well!!!! Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2000 Report Share Posted September 6, 2000 Alley Sorry you ar not feeling well. Lets hope it is the flu - it would be the best of the two evils. I know my husband would rather have the flu for a few days then for a year like he has. So I will continue to think positive that it is the flu and you well feel better in a few days. Get well!!!! Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 Thanks Marty for the support! After 21 years together I think my husband knows me pretty well. He surprised me and took me out to dinner the night before I started treatment and I opened up with alot of my fears and he was great! He didn't go with me to Portland and I was fine with that because I knew it would take all morning. He had to work. Hopefully we will get through this together. So far .....so good.....flu-like symptoms.....cold chills, mild fever, body aches.....nothing to severe. This morning I feel great! Maybe it's because I'm relieved to actually be on treatment. It has taken a long time from the day I was diagnoised till now. I would like to thank everybody here for their thoughts and prayers and great advise. Gotta Love you Guys! Bye for now.......Dee Dee >From: 2byteme@... >Reply-Hepatitis Cegroups >Hepatitis Cegroups >Subject: Re: Digest Number 277 >Date: Tue, 05 Sep 2000 17:06:25 -0400 > >Dear Dee Dee: > You probably won't change your husband, and certainly not by >yourself. Many you could find a support group that you both can share, >or one that helps the spouse/significant other understand what the >patient may be going through. I am sure he also has his own fears, >frustrations, and uncertainties, but, somehow he has to understand what >you are going through, or you both may explode. There are too many cases >of separations, or divorce, during any chronic illness and treatment, >and HCV is no different. > Also speaking from the spouse side, and not the patient, it is still >hard not to worry, watch someone who is ill go through pain and >everything else, but, that's what any of us signed on for. It is easy >when everything is going great, but, if the " shoe were reversed " would >he expect and do the same? As a spouse I have found great sources for my >wife, but not as many that deal with her and me, or just me. So, kick >him in the rear, and try to get him to understand and share, because it >will prove very helpful for everyone. Marty > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 Thanks Marty for the support! After 21 years together I think my husband knows me pretty well. He surprised me and took me out to dinner the night before I started treatment and I opened up with alot of my fears and he was great! He didn't go with me to Portland and I was fine with that because I knew it would take all morning. He had to work. Hopefully we will get through this together. So far .....so good.....flu-like symptoms.....cold chills, mild fever, body aches.....nothing to severe. This morning I feel great! Maybe it's because I'm relieved to actually be on treatment. It has taken a long time from the day I was diagnoised till now. I would like to thank everybody here for their thoughts and prayers and great advise. Gotta Love you Guys! Bye for now.......Dee Dee >From: 2byteme@... >Reply-Hepatitis Cegroups >Hepatitis Cegroups >Subject: Re: Digest Number 277 >Date: Tue, 05 Sep 2000 17:06:25 -0400 > >Dear Dee Dee: > You probably won't change your husband, and certainly not by >yourself. Many you could find a support group that you both can share, >or one that helps the spouse/significant other understand what the >patient may be going through. I am sure he also has his own fears, >frustrations, and uncertainties, but, somehow he has to understand what >you are going through, or you both may explode. There are too many cases >of separations, or divorce, during any chronic illness and treatment, >and HCV is no different. > Also speaking from the spouse side, and not the patient, it is still >hard not to worry, watch someone who is ill go through pain and >everything else, but, that's what any of us signed on for. It is easy >when everything is going great, but, if the " shoe were reversed " would >he expect and do the same? As a spouse I have found great sources for my >wife, but not as many that deal with her and me, or just me. So, kick >him in the rear, and try to get him to understand and share, because it >will prove very helpful for everyone. Marty > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 Pat, How wonderful to havw gone this long and just now geting sides Suzy From: " Ken & Pat @home " <alleypat@...> Reply-Hepatitis Cegroups <Hepatitis Cegroups> Subject: Re: Digest Number 277 Date: Tue, 5 Sep 2000 23:27:38 -0500 Marty said <<You could always sit in the Mall where the A/C is free>> And walk in 111 degree heat from the car to the mall? No thanks lol. Good info about the sugar. It took only one interferon shot to get rid of my muscle aches, cramps and joint pain. Course that doesn't mean it won't come back. But man, only then did I realize for how long and how much pain I put up with. Today is the first day I've had " flu - like " symptoms from the treatment. Feverish but skin is cool, woozy in the head, queasy tummy, drowsy like when your tired from being sick. Hey, maybe it's the flu! haha. Made it thru work, but the ibuprofen didn't help. The fioricet did help some. So far, so good! alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 Pat, How wonderful to havw gone this long and just now geting sides Suzy From: " Ken & Pat @home " <alleypat@...> Reply-Hepatitis Cegroups <Hepatitis Cegroups> Subject: Re: Digest Number 277 Date: Tue, 5 Sep 2000 23:27:38 -0500 Marty said <<You could always sit in the Mall where the A/C is free>> And walk in 111 degree heat from the car to the mall? No thanks lol. Good info about the sugar. It took only one interferon shot to get rid of my muscle aches, cramps and joint pain. Course that doesn't mean it won't come back. But man, only then did I realize for how long and how much pain I put up with. Today is the first day I've had " flu - like " symptoms from the treatment. Feverish but skin is cool, woozy in the head, queasy tummy, drowsy like when your tired from being sick. Hey, maybe it's the flu! haha. Made it thru work, but the ibuprofen didn't help. The fioricet did help some. So far, so good! alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 I wish it was the flu too esp since I've never had it that I know of. I've discovered it's PMS and treatment doing a number on me alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 I wish it was the flu too esp since I've never had it that I know of. I've discovered it's PMS and treatment doing a number on me alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2000 Report Share Posted September 7, 2000 Ahhh the good old days of PMS it is no fun and I am glad those days are over for me. Keep well Alley Winne Quote Link to comment Share on other sites More sharing options...
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