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Hi, Kathy!

Sorry you are having problems and hope that you will find some relief soon.

I had Harrington rods and spinal fusion (T4-L1) in 1976 by Dr.

Stelling, who is now deceased. I was told at the time that he was one of the

best in the Southeast, and I really believe it! My daughter was a patient of

Dr. Larry Brown, who took over from Dr. Stelling when he retired. Dr. Brown

retired last summer. So, since I am having problems now, I am headed to

Greenville,SC to see Dr. Klekamp who took over for Dr. Brown.

My problems are left hip and leg pain; crunching, painful knees; low back

pain; and a popping in the mid-back area at times. After reading some of the

posts on this forum, my problems seem minor. I thank God every day for the

health that I have.

Don't know how much experience Dr. Klekamp has with adults, but I felt that

this would be a starting place.

Will let you know how the visit goes.

Janet

South Carolina

----Original Message Follows----

From: " Kathy " <Katrinkajo@...>

Reply-Scoliosis Treatment

Scoliosis Treatment

Subject: Hi I am new to this Group

Date: Wed, 02 Jul 2003 01:05:41 -0000

I had a Harrington Rod placed in Grand Rapids Mi by Cutis Edholm in

1981.

Rod is loose and causes great pain.

I am now 52 ... The rod is almost the full length of my spine.

I have two movable Vert. at the bottom of the spine and they are

about shot!

Can't do much these days or it will cause pain and terrible Head and

neck pain.

Any other old timers here.

I had two 60 degree curves when the opertion was done. Now even with

the rod I am back to two 60 degree curves and I have lost 4 inches in

height. Was tall and thin and now I am short and stubby LOL

Kathy

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Hello,

My name is Sherry and I also had harrington rods put in in the 70's. Had one

rod removed in the 90's. I have been diagnosed with Flatback Syndrome and

severe disc degeneration above and below my fusion. My curve above and below in

ever increasing. I have pain everyday. Your symptoms are all to familiar. I have

been seen by so many doctors and they all say the same thing. It is not going

to get any better and it will get worse. I could have more surgery, but I opt

not to. I have applied for disabililty and have to see a doctor next

wednesday. SSD has made the appointment for me and have said this is the last

step to

my claim so wish me luck. I live day by day take my medication for pain and to

my lumbar stablization exercises which as helped a great deal. Hope I helped.

Sherry

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Dear Sherry, The MD appt. made by Medicare is not the last step. Expect

to be denied again (and maybe again). Get a lawyer when they set up a

Judicial hearing.

Take all your medicine, whether it's for your back or not.

--

Lana

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>RETURN MEMORIAL DAY TO MAY 30TH<

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  • 4 years later...

Don't feel alone. There are many of us living with this every day. It was amazing for me to find this group as I have never known anyone else in person that has Samters. This is an excellent group and it is very helpful to hear what others are doing to improve their health while living with this disease. Glad you're here. Janeemereldas418 <emereldas@...> wrote: Hi,I'm new to the group. I am trying to learn more about Samter's Triad. I have been recently diagnoised

with Samter's. Asthma runs heavily in our family I have been able to trace it back to the 1860's on my dads side of the family. Out of all my sisters 4 of us got it 1 did'nt. I didnt get asthma until I was 19. It was still controllable until I had my last child at 40. The pregnancy blew out my hole system out 10 months after my son was born I stopped breathing and they had to intabate me. Now 10 years later I am allergic to asprin, pennicillin and ALL antibiotics (I have not used antibiotics in 3 years) I have polyps (They were removed 3 years ago and have grown back) Have tubes in ears which have been more trouble then there worth, and severe asthma on top of it I am allergic to everything I was tested for except grass. Most days the mucus is really bad. I am now on all new medicines but still having problems with the breathing. Sometimes Iwonder if this ever will be controllable. The good part is I dont feel alone

anymore I finally have people to talk to who understand whats happening to me. Thanks for listening.

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  • 1 year later...
Guest guest

Hello,

I found out I had higher than normal candida in levels in my body. During a

ionic foot bath. I kind of brushed it off but i have had bad breath for a while

and started to get very fatigued lately. I would sleep long hours and wake and

still feel tired. Anyhow I started to do some research on my bad breath and

found a link to candida and fatigue and other symptoms that matched me. I kind

of all made sense. Specially when I love to workout but somehow I never managed

to lose weight and only gain muscle. I recently started taking apple cider

vinegar unfiltered organic only in the morning and threelac (one pack a day). I

am wondering if this will e sufficient enough to notice any difference. I can

tell you I get better sleep now and feel more energized now. What are you

thoughts? Oh yeah my GF has had serious ance problems and keeps on throwing

money for a kind of skin surface threatments but none of them seem to work can

candida be a factor to her acne. Thank you

Salgado

Age 27 Wieght 180 5'8''

San Diego Ca

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