Guest guest Posted July 13, 1999 Report Share Posted July 13, 1999 I dont think you need to worry to much Arlene, this could be a sign of infection. like a virus..lol not HepC. coming on, my son gets it when he has a sore throat or if he is getting sick.... ine ================================ > A few days ago I happened to feel my neck and noticed apparent > swelling just below the jaw bone on both sides, not painful. I have > never come across this phenomenon associated with HCV and am worried > about something even more serious now. Have an appointment with > internist on Thurs. Arlene > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 1999 Report Share Posted July 13, 1999 hi, about your swollen glands. recently, i was eating dinner and i felt as though there was a tug on the inside of my jaw and by the time i got from the dining room table to the bathroom mirror, i had a lump the size of a small egg on my left jawline. i took antibiotics for a general infection and it went away in a few days. our bodies are trying to fight so many things it has to use every resevoir it has at it's disposal. one of those places is the lymph nodes. the body pulls all of the infection to the lymph nodes so that it can battle it in one place, so to speak. it is your body giving the immune system a little less area to cover. the same as a fever. if you are run down, or get an infection, your immune system gets knocked down and the fever gives it a signal that it need to do battle, so unless they are really high, (102 for a sustained period or 103 for any length), they are not a bad thing. having said all that it's still a reason to see your doc, if for no other reason, to get some antibiotics. hope you feel better soon, in peace talyne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 1999 Report Share Posted July 13, 1999 In a message dated 99-07-13 07:37:53 EDT, you write: << A few days ago I happened to feel my neck and noticed apparent swelling just below the jaw bone on both sides, not painful. I have never come across this phenomenon associated with HCV and am worried about something even more serious now. Have an appointment with internist on Thurs. >> Hi all, I've read with great interest the recent posts on swollen glands. I discovered a swollen gland just behind my jaw bone and underneath my earlobe. It was totally painfree and caused no problems. Nevertheless, I talked to my gastroenterologist about it and he pretty much dismissed it. About six months later, I pointed it out to my regular GP doc. She immediately sent me to an ENT who diagnosed it as a perotid (sp?) tumor and took a fine needle aspiration biopsy of it. He also sent me to have a MRI to determine the exact location and size. I ended up having a perotidectomy to have the tumor removed, and it was benign. However, it was extremely risky surgery in terms of facial nerve damage and the surgery took six hours and the recovery was long. At that time, I asked the ENT if it could be interferon related. He said no. I have been on interferon for about 14 months now with the goal of completing 18 months of the treatment. I've been one of the lucky ones so far, with a good response to the drug and fairly mild side effects, mostly fatigue. However, a friend of mine who just finished a year of the combo therapy, told me she had a lump in the same location as well as one on her back. Since then, I've heard this a number of times, including now on this list. I have decided to quit the interferon, mostly because I'm tired of being tired. Also, although the drug is prescribed often, the results are poor and they are still discovering side effects. In light of these " swollen glands, " I've decided I'm just not willing to keep using my body as an experiment. I would recommend that anyone who is experiencing painless (or painful, for that matter) swollen glands or other lumps see a doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 1999 Report Share Posted July 13, 1999 , I have not taken interferon, and the swelling is in the front toward the sides of my neck on both sides. Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 1999 Report Share Posted July 14, 1999 These Arlene , are you lymph nodes, that swell when your body is fighting an infection...or virus of some sort..... don't worry to much, but see the doctor, you may need some antibiotics but chances are I think the doctor will tell you wait and see if they gone down, more so if you have no other symtoms... never hurts to find out though... ine...aka. ( 'Tinkerbell'... ) ============================================= > > , I have not taken interferon, and the swelling is in the > front toward the sides of my neck on both sides. Arlene > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 1999 Report Share Posted July 14, 1999 What about teeth? Re: swollen glands > From: arbrus@... > > , I have not taken interferon, and the swelling is in the > front toward the sides of my neck on both sides. Arlene > > --------------------------- ONElist Sponsor ---------------------------- > > Attention ONElist list owners! > /info/news.html > Check out the new " DEFAULT MODERATED STATUS " option. > > -------------------------------------------------------------------- ---- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 1999 Report Share Posted July 15, 1999 , I saw the dentist a month ago and no apparent problem then. Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 Heidi, I do think that Stills can cause swollen lymph nodes (anyone please correct me if I'm wrong). Also, a friend of mine who has health problems (lots of bizarre symptoms but no diagnosis yet) had this happen. Her docs thought she had swollen lymph nodes in her neck an sent her for a biopsy. Turned out not to be lymph nodes but inflamed salivary glands... never heard of that before. Hope everything turns out ok.....be sure to let us know! Trish in PA swollen glands A question-has anyone had unexplained swollen glands in the neck-ie) no cold symptoms, but glands swell in various parts of the neck-painless. I have had some prominent bumps, not only at the sides of my neck, which may be reactive glands, like when you are fighting an infection, but I had a fairly large one under my jaw and in the front of my neck. They are subsiding, but have been there since late November. I am going to a head/neck surgeon to get it checked out (GP is following me up), but I am wondering of Stills can produce swollen glands because of inflammation in the immune system. Any feed back would be appreciated. From frosty Ontario, Canada, -19 degrees Celcius today...... Thanks Heidi Goertz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 Hello Heidi. Welcome to the group. Yes, swollen lymph nodes is very common. My glands on my neck, under my arms and in the groin area were all swollen. The doctor's at the Mayo Clinic said this is common in Stills patients. Take care and FEEL GOOD!! XO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2004 Report Share Posted January 11, 2004 Hi Heidi, My name is Dave. I'm a fellow Stilligan. I've been with this wonderful support group now for 2 and a half years. These people are like my second family. We are here for anything at all. I've met so many great friends with this group. I couldn't do it with out them. But also my parents are the best to. With out there support I don't know where I would be I'm 21 yrs old. But I want to welcome you to this group. We are here for you morning, noon, night 24/7 to vent or just talk. If you want to ever talk or have any questions about anything at all don't hesitate to contact me direct. My Address is: wave678@... Any time you need to vent or just need a talk please don't hesite to contact me I'm always on and if I'm not I will get back to you ASAP. I'm basically on several times through out the day and night. Well, I gotta go now. Again welcome to this great group. Take care I hope you feel better soon. I wish you a PAIN FREE day and night and upcoming week.I also experience swollen glands also I have them in neck and under neith my armpits too. Take care. Buy for now. Sincerely, Dave "One day we will slaughter this horrible dragon and we will win it will happen one day" p.s. Don't hesitate to contact me if you need someone to talk to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 Hi Heidi,, My name is Judy I am also a lurker. I have had swollen glads since my onset. Sometimes my neck feels so big that I feel it doesn't belong on my body. Never any pain with it. Thank goodness. Judy, PA > A question-has anyone had unexplained swollen glands in the neck- ie) no cold symptoms, but glands swell in various parts of the neck- painless. > > > Thanks > > Heidi Goertz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Hello Not sure if I am covering all the fever disorders you are asking about... but here are the usual symptoms... HOWEVER you need to remember that symptoms are individualized in many of these disorders... so take it for what it is worth. You can get ALL of this information at our website by following the links or go to the file section. The information is there in MUCH more depth. Pharyngitis is usually associated with . None of the other fever disorders. Adenitis (swollen glands) is associated with however is seen in cancers and infections... But is NOT common in the other fever disorders EXCEPT, it is common in HIDs as well as . TRAPs: Traps presents with these symptoms usually: The disorder usually presents in childhood, and is characterized by fevers that last from a few days to several weeks; abdominal symptoms (pain, diarrhea/constipation, occasionally peritonitis), pleuritic involvement, arthralgia, myalgia, conjunctivitis/periorbital edema, and tender migratory erythematous skin lesions. FMF: The features taken into consideration when a diagnosis of FMF is suspected: Recurrent febrile episodes accompanied by peritonitis, synovitis, or pleuritis. Recurrent erysipelas-like erythema Familial Mediterranean fever is the commonest periodic fever disorder, occurring mainly in people originating from the Mediterranean basin. In Israel alone over 5000 people are estimated to suffer from this disorder. Attacks start before the age of 20 and are characterised by short (1-4 days) attacks of fever and serositis. Most patients have recurrent peritonitis, but pleuritis also occurs. Asymmetric monoarthritis of the large joints is common, while an erysipelas-like rash develops less often. Familial Mediterranean fever can be complicated by nephropathic amyloidosis of the AA type, but in most patients colchicine up to 1-2 mg/day prevents both the acute attacks and the development of amyloidosis. Diagnosis is based on clinical manifestations, ethnicity, family history, and response to colchicine. HIDs HIDS symptoms DO include adenitis.... (swollen glands) The hyperIgD and periodic fever syndrome is characterized by febrile attacks every 4-8 weeks associated with an intense inflammatory reaction, accompanied by adenopathies, abdominal pain, diarrhea, joint pain, hepatosplenomegaly and cutaneous signs. The first attack usually occurs during infancy. HIDS is a rare disorder, which has only been appreciated for the last few years. Many doctors will therefore hardly know about this syndrome, if at all. At the department of General Internal Medicine of the University Medical Center St. Radboud, Nijmegen, in the Netherlands, there is a research interest in HIDS and other periodic fever syndromes. Physician-scientists involved in this research are drs. A. Simon, J.P.H. Drenth and prof.dr. J.W.M. van der Meer. This research group has also initiated a website with information on HIDS (hids.net). Bechets: Behcet's disease is a rare, chronic, lifelong disorder that involves inflammation of blood vessels throughout the body. Symptoms of Behcet's disease include recurrent oral ulcers (resembling canker sores), recurrent genital ulcers, and eye inflammation. The disorder may also cause various types of skin lesions, arthritis, bowel inflammation, and meningitis (inflammation of the membranes of the brain and spinal cord). Behcet's disease generally begins when patients are in their 20s or 30s, although all age groups may be affected. Behcet's is a multisystem disease; it may involve all organs and affect the central nervous system, causing memory loss and impaired speech, balance, and movement. The effects of the disease may include blindness, stroke, swelling of the spinal cord, and intestinal complications. Behcet's disease is a disorder which proceeds over a long period of time in a series of remissions (lack of disease activity) and exacerbations (periods of active disease). Muckle-Wells: The first manifestations of Muckle-Wells syndrome consist of non-pruritic urticaria, starting during infancy, and sometimes debilitating because they are almost permanent, accompanied by a low-grade fever. The other inflammatory signs are mainly joint (arthralgias or arthritides) and/or ocular (conjunctivitis) involvement. These inflammatory signs are associated with neurosensory deafness that starts during adolescence. The severity of the disease resides in the inconstant occurrence of generalized amyloidosis type AA. The autosomal dominant inheritance has variable intra- and interfamilial expression. Fran A Bulone Mom to ph 5 yrs old Waxhaw, NC Owner & Moderator Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Hello Not sure if I am covering all the fever disorders you are asking about... but here are the usual symptoms... HOWEVER you need to remember that symptoms are individualized in many of these disorders... so take it for what it is worth. You can get ALL of this information at our website by following the links or go to the file section. The information is there in MUCH more depth. Pharyngitis is usually associated with . None of the other fever disorders. Adenitis (swollen glands) is associated with however is seen in cancers and infections... But is NOT common in the other fever disorders EXCEPT, it is common in HIDs as well as . TRAPs: Traps presents with these symptoms usually: The disorder usually presents in childhood, and is characterized by fevers that last from a few days to several weeks; abdominal symptoms (pain, diarrhea/constipation, occasionally peritonitis), pleuritic involvement, arthralgia, myalgia, conjunctivitis/periorbital edema, and tender migratory erythematous skin lesions. FMF: The features taken into consideration when a diagnosis of FMF is suspected: Recurrent febrile episodes accompanied by peritonitis, synovitis, or pleuritis. Recurrent erysipelas-like erythema Familial Mediterranean fever is the commonest periodic fever disorder, occurring mainly in people originating from the Mediterranean basin. In Israel alone over 5000 people are estimated to suffer from this disorder. Attacks start before the age of 20 and are characterised by short (1-4 days) attacks of fever and serositis. Most patients have recurrent peritonitis, but pleuritis also occurs. Asymmetric monoarthritis of the large joints is common, while an erysipelas-like rash develops less often. Familial Mediterranean fever can be complicated by nephropathic amyloidosis of the AA type, but in most patients colchicine up to 1-2 mg/day prevents both the acute attacks and the development of amyloidosis. Diagnosis is based on clinical manifestations, ethnicity, family history, and response to colchicine. HIDs HIDS symptoms DO include adenitis.... (swollen glands) The hyperIgD and periodic fever syndrome is characterized by febrile attacks every 4-8 weeks associated with an intense inflammatory reaction, accompanied by adenopathies, abdominal pain, diarrhea, joint pain, hepatosplenomegaly and cutaneous signs. The first attack usually occurs during infancy. HIDS is a rare disorder, which has only been appreciated for the last few years. Many doctors will therefore hardly know about this syndrome, if at all. At the department of General Internal Medicine of the University Medical Center St. Radboud, Nijmegen, in the Netherlands, there is a research interest in HIDS and other periodic fever syndromes. Physician-scientists involved in this research are drs. A. Simon, J.P.H. Drenth and prof.dr. J.W.M. van der Meer. This research group has also initiated a website with information on HIDS (hids.net). Bechets: Behcet's disease is a rare, chronic, lifelong disorder that involves inflammation of blood vessels throughout the body. Symptoms of Behcet's disease include recurrent oral ulcers (resembling canker sores), recurrent genital ulcers, and eye inflammation. The disorder may also cause various types of skin lesions, arthritis, bowel inflammation, and meningitis (inflammation of the membranes of the brain and spinal cord). Behcet's disease generally begins when patients are in their 20s or 30s, although all age groups may be affected. Behcet's is a multisystem disease; it may involve all organs and affect the central nervous system, causing memory loss and impaired speech, balance, and movement. The effects of the disease may include blindness, stroke, swelling of the spinal cord, and intestinal complications. Behcet's disease is a disorder which proceeds over a long period of time in a series of remissions (lack of disease activity) and exacerbations (periods of active disease). Muckle-Wells: The first manifestations of Muckle-Wells syndrome consist of non-pruritic urticaria, starting during infancy, and sometimes debilitating because they are almost permanent, accompanied by a low-grade fever. The other inflammatory signs are mainly joint (arthralgias or arthritides) and/or ocular (conjunctivitis) involvement. These inflammatory signs are associated with neurosensory deafness that starts during adolescence. The severity of the disease resides in the inconstant occurrence of generalized amyloidosis type AA. The autosomal dominant inheritance has variable intra- and interfamilial expression. Fran A Bulone Mom to ph 5 yrs old Waxhaw, NC Owner & Moderator Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Thanks for your response. I have looked at the other info. but I wasn't sure what all the technical names were. I'm in the process of looking up all that. Thanks for your help. Tracey mom to Maddie, age 5 yrs old & Brent, age 9 League city, TX On Thursday, July 15, 2004, at 03:55 PM, Fran Bulone wrote: > Hello > Not sure if I am covering all the fever disorders you are asking > about... > but here are the usual symptoms... > > HOWEVER you need to remember that symptoms are individualized in many > of > these disorders... so take it for what it is worth. > > You can get ALL of this information at our website by following the > links or > go to the file section. The information is there in MUCH more depth. > > Pharyngitis is usually associated with . None of the other fever > disorders. > Adenitis (swollen glands) is associated with however is seen in > cancers and infections... But is NOT common in the other fever > disorders > EXCEPT, it is common in HIDs as well as . > > TRAPs: > Traps presents with these symptoms usually: > The disorder usually presents in childhood, and is characterized by > fevers > that last from a few days to several weeks; abdominal symptoms (pain, > diarrhea/constipation, occasionally peritonitis), pleuritic > involvement, > arthralgia, myalgia, conjunctivitis/periorbital edema, and tender > migratory > erythematous skin lesions. > > FMF: > The features taken into consideration when a diagnosis of FMF is > suspected: > Recurrent febrile episodes accompanied by peritonitis, synovitis, or > pleuritis. > Recurrent erysipelas-like erythema > Familial Mediterranean fever is the commonest periodic fever disorder, > occurring mainly in people originating from the Mediterranean basin. In > Israel alone over 5000 people are estimated to suffer from this > disorder. > Attacks start before the age of 20 and are characterised by short (1-4 > days) > attacks of fever and serositis. Most patients have recurrent > peritonitis, > but pleuritis also occurs. Asymmetric monoarthritis of the large > joints is > common, while an erysipelas-like rash develops less often. Familial > Mediterranean fever can be complicated by nephropathic amyloidosis of > the AA > type, but in most patients colchicine up to 1-2 mg/day prevents both > the > acute attacks and the development of amyloidosis. Diagnosis is based on > clinical manifestations, ethnicity, family history, and response to > colchicine. > > HIDs > HIDS symptoms DO include adenitis.... (swollen glands) > The hyperIgD and periodic fever syndrome is characterized by febrile > attacks > every 4-8 weeks associated with an intense inflammatory reaction, > accompanied by adenopathies, abdominal pain, diarrhea, joint pain, > hepatosplenomegaly and cutaneous signs. The first attack usually > occurs > during infancy. > HIDS is a rare disorder, which has only been appreciated for the last > few > years. Many doctors will therefore hardly know about this syndrome, if > at > all. At the department of General Internal Medicine of the University > Medical Center St. Radboud, Nijmegen, in the Netherlands, there is a > research interest in HIDS and other periodic fever syndromes. > Physician-scientists involved in this research are drs. A. Simon, > J.P.H. > Drenth and prof.dr. J.W.M. van der Meer. This research group has also > initiated a website with information on HIDS (hids.net). > > Bechets: > Behcet's disease is a rare, chronic, lifelong disorder that involves > inflammation of blood vessels throughout the body. Symptoms of Behcet's > disease include recurrent oral ulcers (resembling canker sores), > recurrent > genital ulcers, and eye inflammation. The disorder may also cause > various > types of skin lesions, arthritis, bowel inflammation, and meningitis > (inflammation of the membranes of the brain and spinal cord). Behcet's > disease generally begins when patients are in their 20s or 30s, > although all > age groups may be affected. Behcet's is a multisystem disease; it may > involve all organs and affect the central nervous system, causing > memory > loss and impaired speech, balance, and movement. The effects of the > disease > may include blindness, stroke, swelling of the spinal cord, and > intestinal > complications. > > Behcet's disease is a disorder which proceeds over a long period of > time in > a series of remissions (lack of disease activity) and exacerbations > (periods > of active disease). > > Muckle-Wells: > > The first manifestations of Muckle-Wells syndrome consist of > non-pruritic > urticaria, starting during infancy, and sometimes debilitating because > they > are almost permanent, accompanied by a low-grade fever. The other > inflammatory signs are mainly joint (arthralgias or arthritides) and/or > ocular (conjunctivitis) involvement. > These inflammatory signs are associated with neurosensory deafness that > starts during adolescence. The severity of the disease resides in the > inconstant occurrence of generalized amyloidosis type AA. > The autosomal dominant inheritance has variable intra- and > interfamilial > expression. > > Fran A Bulone > Mom to ph 5 yrs old > Waxhaw, NC > > Owner & Moderator Group > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Thanks for your response. I have looked at the other info. but I wasn't sure what all the technical names were. I'm in the process of looking up all that. Thanks for your help. Tracey mom to Maddie, age 5 yrs old & Brent, age 9 League city, TX On Thursday, July 15, 2004, at 03:55 PM, Fran Bulone wrote: > Hello > Not sure if I am covering all the fever disorders you are asking > about... > but here are the usual symptoms... > > HOWEVER you need to remember that symptoms are individualized in many > of > these disorders... so take it for what it is worth. > > You can get ALL of this information at our website by following the > links or > go to the file section. The information is there in MUCH more depth. > > Pharyngitis is usually associated with . None of the other fever > disorders. > Adenitis (swollen glands) is associated with however is seen in > cancers and infections... But is NOT common in the other fever > disorders > EXCEPT, it is common in HIDs as well as . > > TRAPs: > Traps presents with these symptoms usually: > The disorder usually presents in childhood, and is characterized by > fevers > that last from a few days to several weeks; abdominal symptoms (pain, > diarrhea/constipation, occasionally peritonitis), pleuritic > involvement, > arthralgia, myalgia, conjunctivitis/periorbital edema, and tender > migratory > erythematous skin lesions. > > FMF: > The features taken into consideration when a diagnosis of FMF is > suspected: > Recurrent febrile episodes accompanied by peritonitis, synovitis, or > pleuritis. > Recurrent erysipelas-like erythema > Familial Mediterranean fever is the commonest periodic fever disorder, > occurring mainly in people originating from the Mediterranean basin. In > Israel alone over 5000 people are estimated to suffer from this > disorder. > Attacks start before the age of 20 and are characterised by short (1-4 > days) > attacks of fever and serositis. Most patients have recurrent > peritonitis, > but pleuritis also occurs. Asymmetric monoarthritis of the large > joints is > common, while an erysipelas-like rash develops less often. Familial > Mediterranean fever can be complicated by nephropathic amyloidosis of > the AA > type, but in most patients colchicine up to 1-2 mg/day prevents both > the > acute attacks and the development of amyloidosis. Diagnosis is based on > clinical manifestations, ethnicity, family history, and response to > colchicine. > > HIDs > HIDS symptoms DO include adenitis.... (swollen glands) > The hyperIgD and periodic fever syndrome is characterized by febrile > attacks > every 4-8 weeks associated with an intense inflammatory reaction, > accompanied by adenopathies, abdominal pain, diarrhea, joint pain, > hepatosplenomegaly and cutaneous signs. The first attack usually > occurs > during infancy. > HIDS is a rare disorder, which has only been appreciated for the last > few > years. Many doctors will therefore hardly know about this syndrome, if > at > all. At the department of General Internal Medicine of the University > Medical Center St. Radboud, Nijmegen, in the Netherlands, there is a > research interest in HIDS and other periodic fever syndromes. > Physician-scientists involved in this research are drs. A. Simon, > J.P.H. > Drenth and prof.dr. J.W.M. van der Meer. This research group has also > initiated a website with information on HIDS (hids.net). > > Bechets: > Behcet's disease is a rare, chronic, lifelong disorder that involves > inflammation of blood vessels throughout the body. Symptoms of Behcet's > disease include recurrent oral ulcers (resembling canker sores), > recurrent > genital ulcers, and eye inflammation. The disorder may also cause > various > types of skin lesions, arthritis, bowel inflammation, and meningitis > (inflammation of the membranes of the brain and spinal cord). Behcet's > disease generally begins when patients are in their 20s or 30s, > although all > age groups may be affected. Behcet's is a multisystem disease; it may > involve all organs and affect the central nervous system, causing > memory > loss and impaired speech, balance, and movement. The effects of the > disease > may include blindness, stroke, swelling of the spinal cord, and > intestinal > complications. > > Behcet's disease is a disorder which proceeds over a long period of > time in > a series of remissions (lack of disease activity) and exacerbations > (periods > of active disease). > > Muckle-Wells: > > The first manifestations of Muckle-Wells syndrome consist of > non-pruritic > urticaria, starting during infancy, and sometimes debilitating because > they > are almost permanent, accompanied by a low-grade fever. The other > inflammatory signs are mainly joint (arthralgias or arthritides) and/or > ocular (conjunctivitis) involvement. > These inflammatory signs are associated with neurosensory deafness that > starts during adolescence. The severity of the disease resides in the > inconstant occurrence of generalized amyloidosis type AA. > The autosomal dominant inheritance has variable intra- and > interfamilial > expression. > > Fran A Bulone > Mom to ph 5 yrs old > Waxhaw, NC > > Owner & Moderator Group > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Ok in case anyone else needs this info. Here you go. I found some of the definitions. Pleurisy- chest pains Myalgia- pain in muscles Arthralgia- pain in joints serositis- inflammation of the serous membrane. There are still some I can't find but I hope that helps alittle. By the way, thank you Fran for this site. It's been a great support as well as a invaluable source of information. Tracey mom to Maddie, age 5 & Brent, age 9 League City, TX On Thursday, July 15, 2004, at 04:35 PM, Tracey wrote: > Thanks for your response. I have looked at the other info. but I wasn't > sure what all the technical names were. > I'm in the process of looking up all that. > Thanks for your help. > Tracey > mom to Maddie, age 5 yrs old > & Brent, age 9 > League city, TX > > On Thursday, July 15, 2004, at 03:55 PM, Fran Bulone wrote: > >> Hello >> Not sure if I am covering all the fever disorders you are asking >> about... >> but here are the usual symptoms... >> >> HOWEVER you need to remember that symptoms are individualized in many >> of >> these disorders... so take it for what it is worth. >> >> You can get ALL of this information at our website by following the >> links or >> go to the file section. The information is there in MUCH more depth. >> >> Pharyngitis is usually associated with . None of the other fever >> disorders. >> Adenitis (swollen glands) is associated with however is seen in >> cancers and infections... But is NOT common in the other fever >> disorders >> EXCEPT, it is common in HIDs as well as . >> >> TRAPs: >> Traps presents with these symptoms usually: >> The disorder usually presents in childhood, and is characterized by >> fevers >> that last from a few days to several weeks; abdominal symptoms (pain, >> diarrhea/constipation, occasionally peritonitis), pleuritic >> involvement, >> arthralgia, myalgia, conjunctivitis/periorbital edema, and tender >> migratory >> erythematous skin lesions. >> >> FMF: >> The features taken into consideration when a diagnosis of FMF is >> suspected: >> Recurrent febrile episodes accompanied by peritonitis, synovitis, or >> pleuritis. >> Recurrent erysipelas-like erythema >> Familial Mediterranean fever is the commonest periodic fever disorder, >> occurring mainly in people originating from the Mediterranean basin. >> In >> Israel alone over 5000 people are estimated to suffer from this >> disorder. >> Attacks start before the age of 20 and are characterised by short (1-4 >> days) >> attacks of fever and serositis. Most patients have recurrent >> peritonitis, >> but pleuritis also occurs. Asymmetric monoarthritis of the large >> joints is >> common, while an erysipelas-like rash develops less often. Familial >> Mediterranean fever can be complicated by nephropathic amyloidosis of >> the AA >> type, but in most patients colchicine up to 1-2 mg/day prevents both >> the >> acute attacks and the development of amyloidosis. Diagnosis is based >> on >> clinical manifestations, ethnicity, family history, and response to >> colchicine. >> >> HIDs >> HIDS symptoms DO include adenitis.... (swollen glands) >> The hyperIgD and periodic fever syndrome is characterized by febrile >> attacks >> every 4-8 weeks associated with an intense inflammatory reaction, >> accompanied by adenopathies, abdominal pain, diarrhea, joint pain, >> hepatosplenomegaly and cutaneous signs. The first attack usually >> occurs >> during infancy. >> HIDS is a rare disorder, which has only been appreciated for the last >> few >> years. Many doctors will therefore hardly know about this syndrome, if >> at >> all. At the department of General Internal Medicine of the University >> Medical Center St. Radboud, Nijmegen, in the Netherlands, there is a >> research interest in HIDS and other periodic fever syndromes. >> Physician-scientists involved in this research are drs. A. Simon, >> J.P.H. >> Drenth and prof.dr. J.W.M. van der Meer. This research group has also >> initiated a website with information on HIDS (hids.net). >> >> Bechets: >> Behcet's disease is a rare, chronic, lifelong disorder that involves >> inflammation of blood vessels throughout the body. Symptoms of >> Behcet's >> disease include recurrent oral ulcers (resembling canker sores), >> recurrent >> genital ulcers, and eye inflammation. The disorder may also cause >> various >> types of skin lesions, arthritis, bowel inflammation, and meningitis >> (inflammation of the membranes of the brain and spinal cord). Behcet's >> disease generally begins when patients are in their 20s or 30s, >> although all >> age groups may be affected. Behcet's is a multisystem disease; it may >> involve all organs and affect the central nervous system, causing >> memory >> loss and impaired speech, balance, and movement. The effects of the >> disease >> may include blindness, stroke, swelling of the spinal cord, and >> intestinal >> complications. >> >> Behcet's disease is a disorder which proceeds over a long period of >> time in >> a series of remissions (lack of disease activity) and exacerbations >> (periods >> of active disease). >> >> Muckle-Wells: >> >> The first manifestations of Muckle-Wells syndrome consist of >> non-pruritic >> urticaria, starting during infancy, and sometimes debilitating because >> they >> are almost permanent, accompanied by a low-grade fever. The other >> inflammatory signs are mainly joint (arthralgias or arthritides) >> and/or >> ocular (conjunctivitis) involvement. >> These inflammatory signs are associated with neurosensory deafness >> that >> starts during adolescence. The severity of the disease resides in the >> inconstant occurrence of generalized amyloidosis type AA. >> The autosomal dominant inheritance has variable intra- and >> interfamilial >> expression. >> >> Fran A Bulone >> Mom to ph 5 yrs old >> Waxhaw, NC >> >> Owner & Moderator Group >> >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Ok in case anyone else needs this info. Here you go. I found some of the definitions. Pleurisy- chest pains Myalgia- pain in muscles Arthralgia- pain in joints serositis- inflammation of the serous membrane. There are still some I can't find but I hope that helps alittle. By the way, thank you Fran for this site. It's been a great support as well as a invaluable source of information. Tracey mom to Maddie, age 5 & Brent, age 9 League City, TX On Thursday, July 15, 2004, at 04:35 PM, Tracey wrote: > Thanks for your response. I have looked at the other info. but I wasn't > sure what all the technical names were. > I'm in the process of looking up all that. > Thanks for your help. > Tracey > mom to Maddie, age 5 yrs old > & Brent, age 9 > League city, TX > > On Thursday, July 15, 2004, at 03:55 PM, Fran Bulone wrote: > >> Hello >> Not sure if I am covering all the fever disorders you are asking >> about... >> but here are the usual symptoms... >> >> HOWEVER you need to remember that symptoms are individualized in many >> of >> these disorders... so take it for what it is worth. >> >> You can get ALL of this information at our website by following the >> links or >> go to the file section. The information is there in MUCH more depth. >> >> Pharyngitis is usually associated with . None of the other fever >> disorders. >> Adenitis (swollen glands) is associated with however is seen in >> cancers and infections... But is NOT common in the other fever >> disorders >> EXCEPT, it is common in HIDs as well as . >> >> TRAPs: >> Traps presents with these symptoms usually: >> The disorder usually presents in childhood, and is characterized by >> fevers >> that last from a few days to several weeks; abdominal symptoms (pain, >> diarrhea/constipation, occasionally peritonitis), pleuritic >> involvement, >> arthralgia, myalgia, conjunctivitis/periorbital edema, and tender >> migratory >> erythematous skin lesions. >> >> FMF: >> The features taken into consideration when a diagnosis of FMF is >> suspected: >> Recurrent febrile episodes accompanied by peritonitis, synovitis, or >> pleuritis. >> Recurrent erysipelas-like erythema >> Familial Mediterranean fever is the commonest periodic fever disorder, >> occurring mainly in people originating from the Mediterranean basin. >> In >> Israel alone over 5000 people are estimated to suffer from this >> disorder. >> Attacks start before the age of 20 and are characterised by short (1-4 >> days) >> attacks of fever and serositis. Most patients have recurrent >> peritonitis, >> but pleuritis also occurs. Asymmetric monoarthritis of the large >> joints is >> common, while an erysipelas-like rash develops less often. Familial >> Mediterranean fever can be complicated by nephropathic amyloidosis of >> the AA >> type, but in most patients colchicine up to 1-2 mg/day prevents both >> the >> acute attacks and the development of amyloidosis. Diagnosis is based >> on >> clinical manifestations, ethnicity, family history, and response to >> colchicine. >> >> HIDs >> HIDS symptoms DO include adenitis.... (swollen glands) >> The hyperIgD and periodic fever syndrome is characterized by febrile >> attacks >> every 4-8 weeks associated with an intense inflammatory reaction, >> accompanied by adenopathies, abdominal pain, diarrhea, joint pain, >> hepatosplenomegaly and cutaneous signs. The first attack usually >> occurs >> during infancy. >> HIDS is a rare disorder, which has only been appreciated for the last >> few >> years. Many doctors will therefore hardly know about this syndrome, if >> at >> all. At the department of General Internal Medicine of the University >> Medical Center St. Radboud, Nijmegen, in the Netherlands, there is a >> research interest in HIDS and other periodic fever syndromes. >> Physician-scientists involved in this research are drs. A. Simon, >> J.P.H. >> Drenth and prof.dr. J.W.M. van der Meer. This research group has also >> initiated a website with information on HIDS (hids.net). >> >> Bechets: >> Behcet's disease is a rare, chronic, lifelong disorder that involves >> inflammation of blood vessels throughout the body. Symptoms of >> Behcet's >> disease include recurrent oral ulcers (resembling canker sores), >> recurrent >> genital ulcers, and eye inflammation. The disorder may also cause >> various >> types of skin lesions, arthritis, bowel inflammation, and meningitis >> (inflammation of the membranes of the brain and spinal cord). Behcet's >> disease generally begins when patients are in their 20s or 30s, >> although all >> age groups may be affected. Behcet's is a multisystem disease; it may >> involve all organs and affect the central nervous system, causing >> memory >> loss and impaired speech, balance, and movement. The effects of the >> disease >> may include blindness, stroke, swelling of the spinal cord, and >> intestinal >> complications. >> >> Behcet's disease is a disorder which proceeds over a long period of >> time in >> a series of remissions (lack of disease activity) and exacerbations >> (periods >> of active disease). >> >> Muckle-Wells: >> >> The first manifestations of Muckle-Wells syndrome consist of >> non-pruritic >> urticaria, starting during infancy, and sometimes debilitating because >> they >> are almost permanent, accompanied by a low-grade fever. The other >> inflammatory signs are mainly joint (arthralgias or arthritides) >> and/or >> ocular (conjunctivitis) involvement. >> These inflammatory signs are associated with neurosensory deafness >> that >> starts during adolescence. The severity of the disease resides in the >> inconstant occurrence of generalized amyloidosis type AA. >> The autosomal dominant inheritance has variable intra- and >> interfamilial >> expression. >> >> Fran A Bulone >> Mom to ph 5 yrs old >> Waxhaw, NC >> >> Owner & Moderator Group >> >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Hi Fran, thanks so much. I am so worried ENT doc said it's not necessary to do any genetic test on Gal since it's so clear he has PFAFA. I'm now trying to get to Dr. Padeh, he is a pediatrician and a rehumatologits, he did research on PFAFA 1999. Here is a link ENT doc gave me yesterday: http://www.orpha.net/data/patho/GB/uk-.pdf Thanks Fran Ilana mom to Gal 5 Israel Fran Bulone <fbulone@...> wrote: Hello Not sure if I am covering all the fever disorders you are asking about... but here are the usual symptoms... HOWEVER you need to remember that symptoms are individualized in many of these disorders... so take it for what it is worth. You can get ALL of this information at our website by following the links or go to the file section. The information is there in MUCH more depth. Pharyngitis is usually associated with . None of the other fever disorders. Adenitis (swollen glands) is associated with however is seen in cancers and infections... But is NOT common in the other fever disorders EXCEPT, it is common in HIDs as well as . TRAPs: Traps presents with these symptoms usually: The disorder usually presents in childhood, and is characterized by fevers that last from a few days to several weeks; abdominal symptoms (pain, diarrhea/constipation, occasionally peritonitis), pleuritic involvement, arthralgia, myalgia, conjunctivitis/periorbital edema, and tender migratory erythematous skin lesions. FMF: The features taken into consideration when a diagnosis of FMF is suspected: Recurrent febrile episodes accompanied by peritonitis, synovitis, or pleuritis. Recurrent erysipelas-like erythema Familial Mediterranean fever is the commonest periodic fever disorder, occurring mainly in people originating from the Mediterranean basin. In Israel alone over 5000 people are estimated to suffer from this disorder. Attacks start before the age of 20 and are characterised by short (1-4 days) attacks of fever and serositis. Most patients have recurrent peritonitis, but pleuritis also occurs. Asymmetric monoarthritis of the large joints is common, while an erysipelas-like rash develops less often. Familial Mediterranean fever can be complicated by nephropathic amyloidosis of the AA type, but in most patients colchicine up to 1-2 mg/day prevents both the acute attacks and the development of amyloidosis. Diagnosis is based on clinical manifestations, ethnicity, family history, and response to colchicine. HIDs HIDS symptoms DO include adenitis.... (swollen glands) The hyperIgD and periodic fever syndrome is characterized by febrile attacks every 4-8 weeks associated with an intense inflammatory reaction, accompanied by adenopathies, abdominal pain, diarrhea, joint pain, hepatosplenomegaly and cutaneous signs. The first attack usually occurs during infancy. HIDS is a rare disorder, which has only been appreciated for the last few years. Many doctors will therefore hardly know about this syndrome, if at all. At the department of General Internal Medicine of the University Medical Center St. Radboud, Nijmegen, in the Netherlands, there is a research interest in HIDS and other periodic fever syndromes. Physician-scientists involved in this research are drs. A. Simon, J.P.H. Drenth and prof.dr. J.W.M. van der Meer. This research group has also initiated a website with information on HIDS (hids.net). Bechets: Behcet's disease is a rare, chronic, lifelong disorder that involves inflammation of blood vessels throughout the body. Symptoms of Behcet's disease include recurrent oral ulcers (resembling canker sores), recurrent genital ulcers, and eye inflammation. The disorder may also cause various types of skin lesions, arthritis, bowel inflammation, and meningitis (inflammation of the membranes of the brain and spinal cord). Behcet's disease generally begins when patients are in their 20s or 30s, although all age groups may be affected. Behcet's is a multisystem disease; it may involve all organs and affect the central nervous system, causing memory loss and impaired speech, balance, and movement. The effects of the disease may include blindness, stroke, swelling of the spinal cord, and intestinal complications. Behcet's disease is a disorder which proceeds over a long period of time in a series of remissions (lack of disease activity) and exacerbations (periods of active disease). Muckle-Wells: The first manifestations of Muckle-Wells syndrome consist of non-pruritic urticaria, starting during infancy, and sometimes debilitating because they are almost permanent, accompanied by a low-grade fever. The other inflammatory signs are mainly joint (arthralgias or arthritides) and/or ocular (conjunctivitis) involvement. These inflammatory signs are associated with neurosensory deafness that starts during adolescence. The severity of the disease resides in the inconstant occurrence of generalized amyloidosis type AA. The autosomal dominant inheritance has variable intra- and interfamilial expression. Fran A Bulone Mom to ph 5 yrs old Waxhaw, NC Owner & Moderator Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Hi Fran, thanks so much. I am so worried ENT doc said it's not necessary to do any genetic test on Gal since it's so clear he has PFAFA. I'm now trying to get to Dr. Padeh, he is a pediatrician and a rehumatologits, he did research on PFAFA 1999. Here is a link ENT doc gave me yesterday: http://www.orpha.net/data/patho/GB/uk-.pdf Thanks Fran Ilana mom to Gal 5 Israel Fran Bulone <fbulone@...> wrote: Hello Not sure if I am covering all the fever disorders you are asking about... but here are the usual symptoms... HOWEVER you need to remember that symptoms are individualized in many of these disorders... so take it for what it is worth. You can get ALL of this information at our website by following the links or go to the file section. The information is there in MUCH more depth. Pharyngitis is usually associated with . None of the other fever disorders. Adenitis (swollen glands) is associated with however is seen in cancers and infections... But is NOT common in the other fever disorders EXCEPT, it is common in HIDs as well as . TRAPs: Traps presents with these symptoms usually: The disorder usually presents in childhood, and is characterized by fevers that last from a few days to several weeks; abdominal symptoms (pain, diarrhea/constipation, occasionally peritonitis), pleuritic involvement, arthralgia, myalgia, conjunctivitis/periorbital edema, and tender migratory erythematous skin lesions. FMF: The features taken into consideration when a diagnosis of FMF is suspected: Recurrent febrile episodes accompanied by peritonitis, synovitis, or pleuritis. Recurrent erysipelas-like erythema Familial Mediterranean fever is the commonest periodic fever disorder, occurring mainly in people originating from the Mediterranean basin. In Israel alone over 5000 people are estimated to suffer from this disorder. Attacks start before the age of 20 and are characterised by short (1-4 days) attacks of fever and serositis. Most patients have recurrent peritonitis, but pleuritis also occurs. Asymmetric monoarthritis of the large joints is common, while an erysipelas-like rash develops less often. Familial Mediterranean fever can be complicated by nephropathic amyloidosis of the AA type, but in most patients colchicine up to 1-2 mg/day prevents both the acute attacks and the development of amyloidosis. Diagnosis is based on clinical manifestations, ethnicity, family history, and response to colchicine. HIDs HIDS symptoms DO include adenitis.... (swollen glands) The hyperIgD and periodic fever syndrome is characterized by febrile attacks every 4-8 weeks associated with an intense inflammatory reaction, accompanied by adenopathies, abdominal pain, diarrhea, joint pain, hepatosplenomegaly and cutaneous signs. The first attack usually occurs during infancy. HIDS is a rare disorder, which has only been appreciated for the last few years. Many doctors will therefore hardly know about this syndrome, if at all. At the department of General Internal Medicine of the University Medical Center St. Radboud, Nijmegen, in the Netherlands, there is a research interest in HIDS and other periodic fever syndromes. Physician-scientists involved in this research are drs. A. Simon, J.P.H. Drenth and prof.dr. J.W.M. van der Meer. This research group has also initiated a website with information on HIDS (hids.net). Bechets: Behcet's disease is a rare, chronic, lifelong disorder that involves inflammation of blood vessels throughout the body. Symptoms of Behcet's disease include recurrent oral ulcers (resembling canker sores), recurrent genital ulcers, and eye inflammation. The disorder may also cause various types of skin lesions, arthritis, bowel inflammation, and meningitis (inflammation of the membranes of the brain and spinal cord). Behcet's disease generally begins when patients are in their 20s or 30s, although all age groups may be affected. Behcet's is a multisystem disease; it may involve all organs and affect the central nervous system, causing memory loss and impaired speech, balance, and movement. The effects of the disease may include blindness, stroke, swelling of the spinal cord, and intestinal complications. Behcet's disease is a disorder which proceeds over a long period of time in a series of remissions (lack of disease activity) and exacerbations (periods of active disease). Muckle-Wells: The first manifestations of Muckle-Wells syndrome consist of non-pruritic urticaria, starting during infancy, and sometimes debilitating because they are almost permanent, accompanied by a low-grade fever. The other inflammatory signs are mainly joint (arthralgias or arthritides) and/or ocular (conjunctivitis) involvement. These inflammatory signs are associated with neurosensory deafness that starts during adolescence. The severity of the disease resides in the inconstant occurrence of generalized amyloidosis type AA. The autosomal dominant inheritance has variable intra- and interfamilial expression. Fran A Bulone Mom to ph 5 yrs old Waxhaw, NC Owner & Moderator Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Ilana, There is an article from Padeh, posted at our site under the files... thought you might like to reference!! God Bless, Fran Fran A Bulone Mom to ph 5 yrs old Waxhaw, NC Owner & Moderator Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Ilana, There is an article from Padeh, posted at our site under the files... thought you might like to reference!! God Bless, Fran Fran A Bulone Mom to ph 5 yrs old Waxhaw, NC Owner & Moderator Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Hi Fran and all! I've been reading this swollen gland discussion for a couple of days and just had to put my 2 cents in! My son PJ who was a periodic fever child from the age of 6 months was diagnosed as having FMF at the age of 9 years. He has always had the swollen neck glands, one ENT even did an excisional biopsy in his efforts to diagnose him, at about the age of 8, he was sure they would find some sort of cancer. They didn't but still were unable to diagnose him. He also had chest x-rays done a couple of times to see if his lymph nodes in his chest were swollen, they were not nor were they anywhere else. These periodic fevers are so weird, the way the symptoms can show up in one child but not another. While there may be a list of general symptoms for a disorder, not all kids will have those symptoms and some will even have symptoms not on the list! I'm really glad though that so much research is being done on these inflammatory disorders right now, hopefully our kids don't have to suffer too much longer. To 's mom who wrote about how her mom wouldn't keep her daughter when she's ill...my mother-in-law does a weekly rotation durring the summer of the grandkids, having them stay with her for a whole week by themselves, being spoiled and having a good time, won't keep PJ for a rotation. Even if he is healthy, she's afraid of his disorder, afraid he'll get sick while she has him. She's half an hour away! I've tried explaining things to her, it's not like I would even leave him there if he did start an episode, she even knows that he seldom has them anymore. Oh, well!! Pat Bombardier, mom to PJ, 11yo, Familial Mediterranean Fever > Hello > Not sure if I am covering all the fever disorders you are asking about... > but here are the usual symptoms... > > HOWEVER you need to remember that symptoms are individualized in many of > these disorders... so take it for what it is worth. > > You can get ALL of this information at our website by following the links or > go to the file section. The information is there in MUCH more depth. > > Pharyngitis is usually associated with . None of the other fever > disorders. > Adenitis (swollen glands) is associated with however is seen in > cancers and infections... But is NOT common in the other fever disorders > EXCEPT, it is common in HIDs as well as . > > TRAPs: > Traps presents with these symptoms usually: > The disorder usually presents in childhood, and is characterized by fevers > that last from a few days to several weeks; abdominal symptoms (pain, > diarrhea/constipation, occasionally peritonitis), pleuritic involvement, > arthralgia, myalgia, conjunctivitis/periorbital edema, and tender migratory > erythematous skin lesions. > > FMF: > The features taken into consideration when a diagnosis of FMF is suspected: > Recurrent febrile episodes accompanied by peritonitis, synovitis, or > pleuritis. > Recurrent erysipelas-like erythema > Familial Mediterranean fever is the commonest periodic fever disorder, > occurring mainly in people originating from the Mediterranean basin. In > Israel alone over 5000 people are estimated to suffer from this disorder. > Attacks start before the age of 20 and are characterised by short (1-4 days) > attacks of fever and serositis. Most patients have recurrent peritonitis, > but pleuritis also occurs. Asymmetric monoarthritis of the large joints is > common, while an erysipelas-like rash develops less often. Familial > Mediterranean fever can be complicated by nephropathic amyloidosis of the AA > type, but in most patients colchicine up to 1-2 mg/day prevents both the > acute attacks and the development of amyloidosis. Diagnosis is based on > clinical manifestations, ethnicity, family history, and response to > colchicine. > > HIDs > HIDS symptoms DO include adenitis.... (swollen glands) > The hyperIgD and periodic fever syndrome is characterized by febrile attacks > every 4-8 weeks associated with an intense inflammatory reaction, > accompanied by adenopathies, abdominal pain, diarrhea, joint pain, > hepatosplenomegaly and cutaneous signs. The first attack usually occurs > during infancy. > HIDS is a rare disorder, which has only been appreciated for the last few > years. Many doctors will therefore hardly know about this syndrome, if at > all. At the department of General Internal Medicine of the University > Medical Center St. Radboud, Nijmegen, in the Netherlands, there is a > research interest in HIDS and other periodic fever syndromes. > Physician-scientists involved in this research are drs. A. Simon, J.P.H. > Drenth and prof.dr. J.W.M. van der Meer. This research group has also > initiated a website with information on HIDS (hids.net). > > Bechets: > Behcet's disease is a rare, chronic, lifelong disorder that involves > inflammation of blood vessels throughout the body. Symptoms of Behcet's > disease include recurrent oral ulcers (resembling canker sores), recurrent > genital ulcers, and eye inflammation. The disorder may also cause various > types of skin lesions, arthritis, bowel inflammation, and meningitis > (inflammation of the membranes of the brain and spinal cord). Behcet's > disease generally begins when patients are in their 20s or 30s, although all > age groups may be affected. Behcet's is a multisystem disease; it may > involve all organs and affect the central nervous system, causing memory > loss and impaired speech, balance, and movement. The effects of the disease > may include blindness, stroke, swelling of the spinal cord, and intestinal > complications. > > Behcet's disease is a disorder which proceeds over a long period of time in > a series of remissions (lack of disease activity) and exacerbations (periods > of active disease). > > Muckle-Wells: > > The first manifestations of Muckle-Wells syndrome consist of non- pruritic > urticaria, starting during infancy, and sometimes debilitating because they > are almost permanent, accompanied by a low-grade fever. The other > inflammatory signs are mainly joint (arthralgias or arthritides) and/or > ocular (conjunctivitis) involvement. > These inflammatory signs are associated with neurosensory deafness that > starts during adolescence. The severity of the disease resides in the > inconstant occurrence of generalized amyloidosis type AA. > The autosomal dominant inheritance has variable intra- and interfamilial > expression. > > Fran A Bulone > Mom to ph 5 yrs old > Waxhaw, NC > > Owner & Moderator Group > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Hi Fran and all! I've been reading this swollen gland discussion for a couple of days and just had to put my 2 cents in! My son PJ who was a periodic fever child from the age of 6 months was diagnosed as having FMF at the age of 9 years. He has always had the swollen neck glands, one ENT even did an excisional biopsy in his efforts to diagnose him, at about the age of 8, he was sure they would find some sort of cancer. They didn't but still were unable to diagnose him. He also had chest x-rays done a couple of times to see if his lymph nodes in his chest were swollen, they were not nor were they anywhere else. These periodic fevers are so weird, the way the symptoms can show up in one child but not another. While there may be a list of general symptoms for a disorder, not all kids will have those symptoms and some will even have symptoms not on the list! I'm really glad though that so much research is being done on these inflammatory disorders right now, hopefully our kids don't have to suffer too much longer. To 's mom who wrote about how her mom wouldn't keep her daughter when she's ill...my mother-in-law does a weekly rotation durring the summer of the grandkids, having them stay with her for a whole week by themselves, being spoiled and having a good time, won't keep PJ for a rotation. Even if he is healthy, she's afraid of his disorder, afraid he'll get sick while she has him. She's half an hour away! I've tried explaining things to her, it's not like I would even leave him there if he did start an episode, she even knows that he seldom has them anymore. Oh, well!! Pat Bombardier, mom to PJ, 11yo, Familial Mediterranean Fever > Hello > Not sure if I am covering all the fever disorders you are asking about... > but here are the usual symptoms... > > HOWEVER you need to remember that symptoms are individualized in many of > these disorders... so take it for what it is worth. > > You can get ALL of this information at our website by following the links or > go to the file section. The information is there in MUCH more depth. > > Pharyngitis is usually associated with . None of the other fever > disorders. > Adenitis (swollen glands) is associated with however is seen in > cancers and infections... But is NOT common in the other fever disorders > EXCEPT, it is common in HIDs as well as . > > TRAPs: > Traps presents with these symptoms usually: > The disorder usually presents in childhood, and is characterized by fevers > that last from a few days to several weeks; abdominal symptoms (pain, > diarrhea/constipation, occasionally peritonitis), pleuritic involvement, > arthralgia, myalgia, conjunctivitis/periorbital edema, and tender migratory > erythematous skin lesions. > > FMF: > The features taken into consideration when a diagnosis of FMF is suspected: > Recurrent febrile episodes accompanied by peritonitis, synovitis, or > pleuritis. > Recurrent erysipelas-like erythema > Familial Mediterranean fever is the commonest periodic fever disorder, > occurring mainly in people originating from the Mediterranean basin. In > Israel alone over 5000 people are estimated to suffer from this disorder. > Attacks start before the age of 20 and are characterised by short (1-4 days) > attacks of fever and serositis. Most patients have recurrent peritonitis, > but pleuritis also occurs. Asymmetric monoarthritis of the large joints is > common, while an erysipelas-like rash develops less often. Familial > Mediterranean fever can be complicated by nephropathic amyloidosis of the AA > type, but in most patients colchicine up to 1-2 mg/day prevents both the > acute attacks and the development of amyloidosis. Diagnosis is based on > clinical manifestations, ethnicity, family history, and response to > colchicine. > > HIDs > HIDS symptoms DO include adenitis.... (swollen glands) > The hyperIgD and periodic fever syndrome is characterized by febrile attacks > every 4-8 weeks associated with an intense inflammatory reaction, > accompanied by adenopathies, abdominal pain, diarrhea, joint pain, > hepatosplenomegaly and cutaneous signs. The first attack usually occurs > during infancy. > HIDS is a rare disorder, which has only been appreciated for the last few > years. Many doctors will therefore hardly know about this syndrome, if at > all. At the department of General Internal Medicine of the University > Medical Center St. Radboud, Nijmegen, in the Netherlands, there is a > research interest in HIDS and other periodic fever syndromes. > Physician-scientists involved in this research are drs. A. Simon, J.P.H. > Drenth and prof.dr. J.W.M. van der Meer. This research group has also > initiated a website with information on HIDS (hids.net). > > Bechets: > Behcet's disease is a rare, chronic, lifelong disorder that involves > inflammation of blood vessels throughout the body. Symptoms of Behcet's > disease include recurrent oral ulcers (resembling canker sores), recurrent > genital ulcers, and eye inflammation. The disorder may also cause various > types of skin lesions, arthritis, bowel inflammation, and meningitis > (inflammation of the membranes of the brain and spinal cord). Behcet's > disease generally begins when patients are in their 20s or 30s, although all > age groups may be affected. Behcet's is a multisystem disease; it may > involve all organs and affect the central nervous system, causing memory > loss and impaired speech, balance, and movement. The effects of the disease > may include blindness, stroke, swelling of the spinal cord, and intestinal > complications. > > Behcet's disease is a disorder which proceeds over a long period of time in > a series of remissions (lack of disease activity) and exacerbations (periods > of active disease). > > Muckle-Wells: > > The first manifestations of Muckle-Wells syndrome consist of non- pruritic > urticaria, starting during infancy, and sometimes debilitating because they > are almost permanent, accompanied by a low-grade fever. The other > inflammatory signs are mainly joint (arthralgias or arthritides) and/or > ocular (conjunctivitis) involvement. > These inflammatory signs are associated with neurosensory deafness that > starts during adolescence. The severity of the disease resides in the > inconstant occurrence of generalized amyloidosis type AA. > The autosomal dominant inheritance has variable intra- and interfamilial > expression. > > Fran A Bulone > Mom to ph 5 yrs old > Waxhaw, NC > > Owner & Moderator Group > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Hi Fran Yes, I saw Padeh's article on the files, that is the reason I mentioned him. I keep my fingers crossed it won't take me a century to get to him. Tx a lot. Ilana mom to Gal 5 Israel Fran Bulone <fbulone@...> wrote: Ilana, There is an article from Padeh, posted at our site under the files... thought you might like to reference!! God Bless, Fran Fran A Bulone Mom to ph 5 yrs old Waxhaw, NC Owner & Moderator Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Hi Fran Yes, I saw Padeh's article on the files, that is the reason I mentioned him. I keep my fingers crossed it won't take me a century to get to him. Tx a lot. Ilana mom to Gal 5 Israel Fran Bulone <fbulone@...> wrote: Ilana, There is an article from Padeh, posted at our site under the files... thought you might like to reference!! God Bless, Fran Fran A Bulone Mom to ph 5 yrs old Waxhaw, NC Owner & Moderator Group Quote Link to comment Share on other sites More sharing options...
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