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First off welcome to the group.

Flat back syndrome is caused primarily but Harrington rod procedures.

When the original surgery was done they did not put the normal front

to back curve in as part of the procedure. They fused it straight.

Over time that causes mechanical stresses on the upper and lower ends

of the fusion. This usually translates into a painful situation and a

marked leaning forward when erect. It affects people in different

ways. The situation is being corrected by surgery. However it does

not work all the time and is not suitable in all cases.

I have flat back myself and I lead a very painful life. Although I am

coping with it nonetheless. Surgery does not seem an option in my

case as I have had two previous surgeries that did not improve the

situation.

Hope this help. Hopefully some of the others can help you out with

the other terms.

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Hi Beth...

You'll find some good drawings at http://www.srs.org that show what

lordosis and kyphosis are. There's also a good glossary there.

Flatback syndrome is a problem that was created by the use of metal

spinal implants, like Harrington rods, that were not bent to match the

normal front to back curves of one's spine. Kyphosis is the normal top

curve and lordosis is the normal bottom curve. Loss of lordosis is what

causes flatback syndrome. Sagittal imbalance refers to an imbalance of

one's spine due to abnormal kyphosis or lordosis.

The cracked vertebrae in your lower back probably has nothing to do with

your scoliosis, but you should trust the word of your doctor on that

issue.

Regards,

Beth Slater wrote:

>

> i came across some terms when finding this support list. what is the

folllowing: " flatback syndrome " , " loss of lordosis, " " lumbar kyphosis, " or

" sagittal imbalance " ?

>

> in my intro post, i sd i had a cracked vertebrae in my lower back. could this

be connected to my scoliosis? (the cracked vertebrae is in my lower back, & the

scoliosis is in my upper back)

>

> TBTG!

> ~beth, mum to shane & grace

> angelus@...

> " all children have gifts, some just open them later than others. "

>

>

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  • 4 years later...

Hi Michele,

Are you the Michele that called me yesterday about Excel and the

assessment? Was the early version of Excel the problem?

Ideally you and your mother would attend workshops, I'm sorry you missed

the ones in Virginia. There will no doubt be another set in a couple of

months. And perhaps in New England as well.

We agree with you that brain training has exciting potential for school

systems. Pete has done staff trainings for two Community Services Boards

in Virginia, and we are planning to expand this aspect of our work.

Would you, or someone we could contact in your school system, be

interested in exploring this?

A comment on your questions:

1. We would always do an assessment before deciding what to train. The

inhibit/reward percentages refer to the percent of feedback. 80% means

you set the threshold so that the client is scoring about 80% of the

time (if you are uptraining, then they are over the threshold 80% of the

time, if you are downtraining they are over the threshold 20% of the

time). As their scoring percentage goes up, you then adjust the

threshold to get back to 80%,so that you are coaxing them to go farther

in the desired direction.

2. Both the reward percentages and the session length depend on what you

are training and the type of client. Some kinds of training work best

with several short sessions, some with one longer session. Some people

do best with a high reward percentage, some people with a lower one.

Foxx

Questions from Newbie

I am very new to the field of neurofeedback, and am trying to learn

as much as I can. I am a high school special education teacher, and

can see a use for neurofeedback in the school I work in. To get

started, I attended a 4-day Neurofeedback workshop with Stens, and I

bought a BrainMaster. I have also bought several books about

neurofeedback, and have been reading them, as well as the various

. However, I still have a few questions that I have been

a bit embarrassed to ask because they seem so basic:

1. Most of what I have read has indicated that one common type

of training is to reward SMR, and inhibit theta and hibeta. I have

read that many children with ADD exhibit high theta. I have read

that you should set your inhibits at about 20% and rewards at 80%.

My question is this: If you want to bring the theta down, how do

often do you bring the theta threshold down? Do you set the inhibit

at 30% and then wait for the amplitude to go down to 20%? I don't

understand how to go about bringing an amplitude down, or raising one

up.

2. I have also read that you should pause frequently - anywhere

from every 3 minutes to every 5 minutes. Why is this, and what would

happen if you don't?

I am also looking for someone in the NJ or eastern PA area who would

be willing to let me observe neurofeedback sessions, or just sit and

talk with me about how to do neurofeedback. My mother is a

neuropsychologist, and she and I would like to work together doing

neurofeedback, but still have so much to learn. If you can answer my

questions, or if you are willing to work with me, please leave me a

message.

Thanks!

Michele

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Yes, I am the one who called you. I think I have a virus. I think I

am using Excel 2000. If not, it is at least '98.

I would love to get a neurofeedback program going in my school.

However, I think that it would be best for me to learn as much as I

can about it before I propose it to the Board of Education.

-Michele

> Hi Michele,

>

> Are you the Michele that called me yesterday about Excel and the

> assessment? Was the early version of Excel the problem?

>

> Ideally you and your mother would attend workshops, I'm sorry you

missed

> the ones in Virginia. There will no doubt be another set in a

couple of

> months. And perhaps in New England as well.

>

> We agree with you that brain training has exciting potential for

school

> systems. Pete has done staff trainings for two Community Services

Boards

> in Virginia, and we are planning to expand this aspect of our work.

> Would you, or someone we could contact in your school system, be

> interested in exploring this?

>

> A comment on your questions:

>

> 1. We would always do an assessment before deciding what to train.

The

> inhibit/reward percentages refer to the percent of feedback. 80%

means

> you set the threshold so that the client is scoring about 80% of the

> time (if you are uptraining, then they are over the threshold 80%

of the

> time, if you are downtraining they are over the threshold 20% of the

> time). As their scoring percentage goes up, you then adjust the

> threshold to get back to 80%,so that you are coaxing them to go

farther

> in the desired direction.

>

> 2. Both the reward percentages and the session length depend on

what you

> are training and the type of client. Some kinds of training work

best

> with several short sessions, some with one longer session. Some

people

> do best with a high reward percentage, some people with a lower one.

>

> Foxx

>

> Questions from Newbie

>

>

> I am very new to the field of neurofeedback, and am trying to learn

> as much as I can. I am a high school special education teacher,

and

> can see a use for neurofeedback in the school I work in. To get

> started, I attended a 4-day Neurofeedback workshop with Stens, and

I

> bought a BrainMaster. I have also bought several books about

> neurofeedback, and have been reading them, as well as the various

> . However, I still have a few questions that I have

been

> a bit embarrassed to ask because they seem so basic:

>

> 1. Most of what I have read has indicated that one common type

> of training is to reward SMR, and inhibit theta and hibeta. I have

> read that many children with ADD exhibit high theta. I have read

> that you should set your inhibits at about 20% and rewards at 80%.

> My question is this: If you want to bring the theta down, how do

> often do you bring the theta threshold down? Do you set the

inhibit

> at 30% and then wait for the amplitude to go down to 20%? I don't

> understand how to go about bringing an amplitude down, or raising

one

> up.

>

> 2. I have also read that you should pause frequently - anywhere

> from every 3 minutes to every 5 minutes. Why is this, and what

would

> happen if you don't?

>

> I am also looking for someone in the NJ or eastern PA area who

would

> be willing to let me observe neurofeedback sessions, or just sit

and

> talk with me about how to do neurofeedback. My mother is a

> neuropsychologist, and she and I would like to work together doing

> neurofeedback, but still have so much to learn. If you can answer

my

> questions, or if you are willing to work with me, please leave me a

> message.

>

> Thanks!

> Michele

>

>

>

>

>

>

>

>

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Michele,

Welcome to the field. There is a huge amount to learn, and I personally believe

that the very best way to start is with your own brain (though many NF trainers

have nothing wrong with theirs and tend to skip this step). Running an

assessment on your own brain (and maybe practicing on your Mom's as well) would

give you experience finding sites, affixing leads and running the software. And

it would give you a good starting place for your own training.

If you are using BrainMaster software, then you could set the thresholds as you

defined them, since that software sets targets based on time OVER threshold, not

time in the target range. As for HOW you train, here again working with your

own head is a good experience. You'll see that, just as you wouldn't add new

weights onto a barbell each time someone managed to lift it, so you don't need

to make targets harder to move the brain. Most of us have brains that are

overly active and tend to spike very high levels of slow (or fast) activity from

time to time. By setting the targets as you suggest, you are trying to cut off

the " outliers " . I believe that starting perhaps a little harder, like the 30%

level you suggested, and letting the client score more as he/she/you improve

during the session is a good way to train. This implies that you would not have

the targets shifting all the time. Using the BMer software, set it to reset

once at the end of a baseline.

SMR training is a good starting point for many clients, and it's an easy

starting point for many trainers, because it doesn't often do much harm and most

people like it. However, if you work with kids with learning problems or

inattentive type ADHD, it won't make much of a dent in them. That's why several

responders on the list suggested the idea of the assessment. Just as you

wouldn't want someone working on your car without evaluating what was wrong with

it, so it's a good idea to do the same with your brain--or the brain of someone

else. At very least it can save time by pointing you in the right direction; in

some cases it can save you from an unpleasant training result.

If you think of brain training in terms of physical training, it makes sense to

train a bit then take a break. Usually the more activated you are trying to

make the brain, the shorter training segment. The more you are trying to relax

or release it, the longer the segment.

Pete

>

> From: " hancai1997 " <hancai1997@...>

> Date: 2005/09/29 Thu PM 02:36:14 EDT

>

> Subject: Questions from Newbie

>

> I am very new to the field of neurofeedback, and am trying to learn

as much as I can. I am a high school special education teacher, and

can see a use for neurofeedback in the school I work in. To get

started, I attended a 4-day Neurofeedback workshop with Stens, and I

bought a BrainMaster. I have also bought several books about

neurofeedback, and have been reading them, as well as the various

. However, I still have a few questions that I have been

a bit embarrassed to ask because they seem so basic:

1. Most of what I have read has indicated that one common type

of training is to reward SMR, and inhibit theta and hibeta. I have

read that many children with ADD exhibit high theta. I have read

that you should set your inhibits at about 20% and rewards at 80%.

My question is this: If you want to bring the theta down, how do

often do you bring the theta threshold down? Do you set the inhibit

at 30% and then wait for the amplitude to go down to 20%? I don't

understand how to go about bringing an amplitude down, or raising one

up.

2. I have also read that you should pause frequently – anywhere

from every 3 minutes to every 5 minutes. Why is this, and what would

happen if you don't?

Thanks!

Michele

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  • 1 month later...

, I just want to let you know I know what you're going

through. Just fully enjoy the well times.

As far as I know there is no test for . I'm anxious to hear

what the others say about tonsillectomy. I've always been against it

but did get PA (Physician's Assistant) opinion that minor surgery

would be better than long term use of prednisone.

Best Wishes,

, Mom

, Pop

& Sky, 21 months

On Nov 8, 2005, at 6:13 AM, merlydahlof5 wrote:

> how does everyones dr. test for ? my ped. say no way to the

> tonsilectomy? has any one els has this done? does it help?

>

> melissa dahl

>

>

>

>

>

>

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My daughter had the surgery last year. Worked great for her.

Like I've said in the past even if it wouldn't have worked we would

have been glad we tried it.

On Tuesday, November 8, 2005, at 11:05 AM, Bastian wrote:

> , I just want to let you know I know what you're going

> through. Just fully enjoy the well times.

> As far as I know there is no test for . I'm anxious to hear

> what the others say about tonsillectomy. I've always been against it

> but did get PA (Physician's Assistant) opinion that minor surgery

> would be better than long term use of prednisone.

>

> Best Wishes,

> , Mom

> , Pop

> & Sky, 21 months

>

> On Nov 8, 2005, at 6:13 AM, merlydahlof5 wrote:

>

>> how does everyones dr. test for ? my ped. say no way to the

>> tonsilectomy? has any one els has this done? does it help?

>>

>> melissa dahl

>>

>>

>>

>>

>>

>>

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  • 3 years later...
Guest guest

I'm not sure what heart spasms are, but when my potassium dipped below 3.0 my

heart took off like a race horse. Scared the heck out of me and took me to

emergency. Personally, I'd request a CAT scan of your adrenal glands. That's how

they located mine. CAT scans of kidneys, urine tests and ultrasounds proved

nothing. The starting point was the CAT scan of the adrenal glands.

From: dash <dash4@...>

Subject: questions from newbie

hyperaldosteronism

Date: Monday, April 13, 2009, 10:05 PM

I have low potassium, and I also have heart spasms, and high blood pressure..

Swelling at times and also other signs of kidneys not working right (edema) but

no kidney disease.

What would be any other physical symptoms of hyperalderonsim? I am also pre

osteoporosis and low vitamin d. I took calcium religiously since age 28 and I am

now 66. Does this sound like it? I would like to know what to ask my doctor that

I will be seeing on Friday this week. Any thoughts? dash

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Guest guest

First, you need aldosterone, renin and potassium levels (with the normals for

that lab). Bring them here and let us know what they are.

What meds are you on? Where does you blood pressure range? How often do you

take it? What kind of device do you use?

Read Dr. Grim's article on the " Evolution of … " Its in the files of this

group. You can also find stores people hwve written, and you can find pages and

pages of symptoms people have written.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of dash

I have low potassium, and I also have heart spasms, and high blood pressure.

Swelling at times and also other signs of kidneys not working right (edema) but

no kidney disease.

What would be any other physical symptoms of hyperalderonsim? I am also pre

osteoporosis and low vitamin d. I took calcium religiously since age 28 and I am

now 66. Does this sound like it? I would like to know what to ask my doctor that

I will be seeing on Friday this week. Any thoughts? dash

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Guest guest

Symptoms are those of many chronic diseases and may include paralysis,

excessive trust in My Doctor, failure to seek out a senior

endocrinologist at an academic medical center, lack of desire to Get to

the Bottom of This, wishful thinking about how it may all go away when

I wake up tomorrow morning.

========================================================================

================

On Apr 13, 2009, at 10:05 PM, dash wrote:

>

>

>

> I have low potassium, and I also have heart spasms, and high blood

> pressure. Swelling at times and also other signs of kidneys not

> working right (edema) but no kidney disease.

>

> What would be any other physical symptoms of hyperalderonsim? I am

> also pre osteoporosis and low vitamin d. I took calcium religiously

> since age 28 and I am now 66. Does this sound like it? I would like to

> know what to ask my doctor that I will be seeing on Friday this week.

> Any thoughts? dash

>

>

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Guest guest

Thank you. Heart spasms are cramps in the heart. Ihave had one heart attack

from it. Arteries are clear. Cause is unknown but potassium is my guess and

sulfur allergy. I will talk to new doctor about the potassium problem and the

possibility of this disease. Hope he listens. I am so tired of this fighting

this witout help for years. dash

---- Debartolo <pdebartolo@...> wrote:

=============

I'm not sure what heart spasms are, but when my potassium dipped below 3.0 my

heart took off like a race horse. Scared the heck out of me and took me to

emergency. Personally, I'd request a CAT scan of your adrenal glands. That's how

they located mine. CAT scans of kidneys, urine tests and ultrasounds proved

nothing. The starting point was the CAT scan of the adrenal glands.

From: dash <dash4@...>

Subject: questions from newbie

hyperaldosteronism

Date: Monday, April 13, 2009, 10:05 PM

I have low potassium, and I also have heart spasms, and high blood pressure..

Swelling at times and also other signs of kidneys not working right (edema) but

no kidney disease.

What would be any other physical symptoms of hyperalderonsim? I am also pre

osteoporosis and low vitamin d. I took calcium religiously since age 28 and I am

now 66. Does this sound like it? I would like to know what to ask my doctor that

I will be seeing on Friday this week. Any thoughts? dash

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Guest guest

I don't trust doctors much, but the rest all fits. lol. endorinology won't see

me........as only I think Imight need one. I tried awhile ago, girl was

hideous to me.........said I had no symptoms that warranted it. so basically the

receptionist diagnosed me as well. dash

---- arthur springer <as99@...> wrote:

=============

Symptoms are those of many chronic diseases and may include paralysis,

excessive trust in My Doctor, failure to seek out a senior

endocrinologist at an academic medical center, lack of desire to Get to

the Bottom of This, wishful thinking about how it may all go away when

I wake up tomorrow morning.

========================================================================

================

On Apr 13, 2009, at 10:05 PM, dash wrote:

>

>

>

> I have low potassium, and I also have heart spasms, and high blood

> pressure. Swelling at times and also other signs of kidneys not

> working right (edema) but no kidney disease.

>

> What would be any other physical symptoms of hyperalderonsim? I am

> also pre osteoporosis and low vitamin d. I took calcium religiously

> since age 28 and I am now 66. Does this sound like it? I would like to

> know what to ask my doctor that I will be seeing on Friday this week.

> Any thoughts? dash

>

>

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Guest guest

I am only on one med. I have refused to take more because blood pressure pills

all are either tried and fail or when researched by me, cause swelling. I don't

have bad arteries, have just had good cardiac work up including cat scan of

heart were they can see arteries.

I take only 25 mg of Cozaar and that is a potassum saving med. My BP has been

170/102 but came down to 128/75 after taking vitamin d, but now is going up to

about 150/92. I just know that the heart spasms and the potassium has

something to do with all of this. Have been trying to piece things togeher but

have not been able to. Former doctor only throws scripts at me.

Device? Don't comprehend. dash

---- Valarie <val@...> wrote:

=============

First, you need aldosterone, renin and potassium levels (with the normals for

that lab). Bring them here and let us know what they are.

What meds are you on? Where does you blood pressure range? How often do you

take it? What kind of device do you use?

Read Dr. Grim's article on the " Evolution of … " Its in the files of this

group. You can also find stores people hwve written, and you can find pages and

pages of symptoms people have written.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of dash

I have low potassium, and I also have heart spasms, and high blood pressure.

Swelling at times and also other signs of kidneys not working right (edema) but

no kidney disease.

What would be any other physical symptoms of hyperalderonsim? I am also pre

osteoporosis and low vitamin d. I took calcium religiously since age 28 and I am

now 66. Does this sound like it? I would like to know what to ask my doctor that

I will be seeing on Friday this week. Any thoughts? dash

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Guest guest

I forgot to mention that I am allergic to most BP meds, plus diuretics. dash

---- dash <dash4@...> wrote:

=============

I am only on one med. I have refused to take more because blood pressure pills

all are either tried and fail or when researched by me, cause swelling. I don't

have bad arteries, have just had good cardiac work up including cat scan of

heart were they can see arteries.

I take only 25 mg of Cozaar and that is a potassum saving med. My BP has been

170/102 but came down to 128/75 after taking vitamin d, but now is going up to

about 150/92. I just know that the heart spasms and the potassium has

something to do with all of this. Have been trying to piece things togeher but

have not been able to. Former doctor only throws scripts at me.

Device? Don't comprehend. dash

---- Valarie <val@...> wrote:

=============

First, you need aldosterone, renin and potassium levels (with the normals for

that lab). Bring them here and let us know what they are.

What meds are you on? Where does you blood pressure range? How often do you

take it? What kind of device do you use?

Read Dr. Grim's article on the " Evolution of … " Its in the files of this

group. You can also find stores people hwve written, and you can find pages and

pages of symptoms people have written.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of dash

I have low potassium, and I also have heart spasms, and high blood pressure.

Swelling at times and also other signs of kidneys not working right (edema) but

no kidney disease.

What would be any other physical symptoms of hyperalderonsim? I am also pre

osteoporosis and low vitamin d. I took calcium religiously since age 28 and I am

now 66. Does this sound like it? I would like to know what to ask my doctor that

I will be seeing on Friday this week. Any thoughts? dash

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Guest guest

CT scans will miss most PA problems. Need to do aldo and renin first.

I prefer HTN MRI which looks at renal arteries and adrenals.

On Apr 13, 2009, at 11:46 PM, Debartolo wrote:

>

>

> I'm not sure what heart spasms are, but when my potassium dipped

> below 3.0 my heart took off like a race horse. Scared the heck out

> of me and took me to emergency. Personally, I'd request a CAT scan

> of your adrenal glands. That's how they located mine. CAT scans of

> kidneys, urine tests and ultrasounds proved nothing. The starting

> point was the CAT scan of the adrenal glands.

>

>

>

> From: dash <dash4@...>

> Subject: questions from newbie

> hyperaldosteronism

> Date: Monday, April 13, 2009, 10:05 PM

>

> I have low potassium, and I also have heart spasms, and high blood

> pressure.. Swelling at times and also other signs of kidneys not

> working right (edema) but no kidney disease.

>

> What would be any other physical symptoms of hyperalderonsim? I am

> also pre osteoporosis and low vitamin d. I took calcium religiously

> since age 28 and I am now 66. Does this sound like it? I would like

> to know what to ask my doctor that I will be seeing on Friday this

> week. Any thoughts? dash

>

>

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Guest guest

A heaert attack with clear arteries is not likely a heart attack.

Very low K will causes increase release of kinases used to test for

" heart damage " .

Can you give us more details on how the Dx of heart attack was made?

CE Grim MD

On Apr 14, 2009, at 3:23 AM, dash wrote:

>

>

> Thank you. Heart spasms are cramps in the heart. Ihave had one

> heart attack from it. Arteries are clear. Cause is unknown but

> potassium is my guess and sulfur allergy. I will talk to new doctor

> about the potassium problem and the possibility of this disease.

> Hope he listens. I am so tired of this fighting this witout help

> for years. dash

> ---- Debartolo <pdebartolo@...> wrote:

>

> =============

> I'm not sure what heart spasms are, but when my potassium dipped

> below 3.0 my heart took off like a race horse. Scared the heck out

> of me and took me to emergency. Personally, I'd request a CAT scan

> of your adrenal glands. That's how they located mine. CAT scans of

> kidneys, urine tests and ultrasounds proved nothing. The starting

> point was the CAT scan of the adrenal glands.

>

>

>

> From: dash <dash4@...>

> Subject: questions from newbie

> hyperaldosteronism

> Date: Monday, April 13, 2009, 10:05 PM

>

> I have low potassium, and I also have heart spasms, and high blood

> pressure.. Swelling at times and also other signs of kidneys not

> working right (edema) but no kidney disease.

>

> What would be any other physical symptoms of hyperalderonsim? I am

> also pre osteoporosis and low vitamin d. I took calcium religiously

> since age 28 and I am now 66. Does this sound like it? I would like

> to know what to ask my doctor that I will be seeing on Friday this

> week. Any thoughts? dash

>

>

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Guest guest

Drs, believe it or not, are people. Some are more trustworthy than

others.

CE Grim MD

On Apr 14, 2009, at 3:25 AM, dash wrote:

>

>

> I don't trust doctors much, but the rest all fits. lol.

> endorinology won't see me........as only I think Imight need one. I

> tried awhile ago, girl was hideous to me.........said I had no

> symptoms that warranted it. so basically the receptionist diagnosed

> me as well. dash

> ---- arthur springer <as99@...> wrote:

>

> =============

> Symptoms are those of many chronic diseases and may include paralysis,

> excessive trust in My Doctor, failure to seek out a senior

> endocrinologist at an academic medical center, lack of desire to

> Get to

> the Bottom of This, wishful thinking about how it may all go away when

> I wake up tomorrow morning.

> ======================================================================

> ==

> ================

> On Apr 13, 2009, at 10:05 PM, dash wrote:

>

> >

> >

> >

> > I have low potassium, and I also have heart spasms, and high blood

> > pressure. Swelling at times and also other signs of kidneys not

> > working right (edema) but no kidney disease.

> >

> > What would be any other physical symptoms of hyperalderonsim? I am

> > also pre osteoporosis and low vitamin d. I took calcium religiously

> > since age 28 and I am now 66. Does this sound like it? I would

> like to

> > know what to ask my doctor that I will be seeing on Friday this

> week.

> > Any thoughts? dash

> >

> >

>

>

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Guest guest

If you read my article you will note that Cozaar will not work well

if at all in PA.

DASH.

Take the article to your Dr.

If he wont read go somewhere else.

I am happy to email with him.

On Apr 14, 2009, at 3:31 AM, dash wrote:

>

>

> I am only on one med. I have refused to take more because blood

> pressure pills all are either tried and fail or when researched by

> me, cause swelling. I don't have bad arteries, have just had good

> cardiac work up including cat scan of heart were they can see

> arteries.

>

> I take only 25 mg of Cozaar and that is a potassum saving med. My

> BP has been 170/102 but came down to 128/75 after taking vitamin d,

> but now is going up to about 150/92. I just know that the heart

> spasms and the potassium has something to do with all of this. Have

> been trying to piece things togeher but have not been able to.

> Former doctor only throws scripts at me.

>

> Device? Don't comprehend. dash

> ---- Valarie <val@...> wrote:

>

> =============

> First, you need aldosterone, renin and potassium levels (with the

> normals for that lab). Bring them here and let us know what they are.

>

> What meds are you on? Where does you blood pressure range? How

> often do you take it? What kind of device do you use?

>

> Read Dr. Grim's article on the " Evolution of … " Its in the files of

> this group. You can also find stores people hwve written, and you

> can find pages and pages of symptoms people have written.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of dash

>

> I have low potassium, and I also have heart spasms, and high blood

> pressure. Swelling at times and also other signs of kidneys not

> working right (edema) but no kidney disease.

>

> What would be any other physical symptoms of hyperalderonsim? I am

> also pre osteoporosis and low vitamin d. I took calcium religiously

> since age 28 and I am now 66. Does this sound like it? I would like

> to know what to ask my doctor that I will be seeing on Friday this

> week. Any thoughts? dash

>

>

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Not likely allergic just have not found ones that work.

and are appropriate for PA.

On Apr 14, 2009, at 4:14 AM, dash wrote:

>

>

> I forgot to mention that I am allergic to most BP meds, plus

> diuretics. dash

> ---- dash <dash4@...> wrote:

>

> =============

> I am only on one med. I have refused to take more because blood

> pressure pills all are either tried and fail or when researched by

> me, cause swelling. I don't have bad arteries, have just had good

> cardiac work up including cat scan of heart were they can see

> arteries.

>

> I take only 25 mg of Cozaar and that is a potassum saving med. My

> BP has been 170/102 but came down to 128/75 after taking vitamin d,

> but now is going up to about 150/92. I just know that the heart

> spasms and the potassium has something to do with all of this. Have

> been trying to piece things togeher but have not been able to.

> Former doctor only throws scripts at me.

>

> Device? Don't comprehend. dash

> ---- Valarie <val@...> wrote:

>

> =============

> First, you need aldosterone, renin and potassium levels (with the

> normals for that lab). Bring them here and let us know what they are.

>

> What meds are you on? Where does you blood pressure range? How

> often do you take it? What kind of device do you use?

>

> Read Dr. Grim's article on the " Evolution of … " Its in the files of

> this group. You can also find stores people hwve written, and you

> can find pages and pages of symptoms people have written.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of dash

>

> I have low potassium, and I also have heart spasms, and high blood

> pressure. Swelling at times and also other signs of kidneys not

> working right (edema) but no kidney disease.

>

> What would be any other physical symptoms of hyperalderonsim? I am

> also pre osteoporosis and low vitamin d. I took calcium religiously

> since age 28 and I am now 66. Does this sound like it? I would like

> to know what to ask my doctor that I will be seeing on Friday this

> week. Any thoughts? dash

>

>

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Agreed. I think that they are pushed here just too too much. 10 -15 minutes

allowed per visit is not right. Some doctors are really good, but pushed too

hard. Then there are the jokers that graduated bottom of class. Then there are

the great doctors and we have met our share of them, saved many lives in our

families.

I didn't mean to blanket them with badness. I re-read what I said. The fact

of the matter is that it is imperative that we become our own advocates, but

then we have to learn and I am trying but have no chemistry or medical

background and it is maddening. dash

---- Clarence Grim <lowerbp2@...> wrote:

=============

Drs, believe it or not, are people. Some are more trustworthy than

others.

CE Grim MD

On Apr 14, 2009, at 3:25 AM, dash wrote:

>

>

> I don't trust doctors much, but the rest all fits. lol.

> endorinology won't see me........as only I think Imight need one. I

> tried awhile ago, girl was hideous to me.........said I had no

> symptoms that warranted it. so basically the receptionist diagnosed

> me as well. dash

> ---- arthur springer <as99@...> wrote:

>

> =============

> Symptoms are those of many chronic diseases and may include paralysis,

> excessive trust in My Doctor, failure to seek out a senior

> endocrinologist at an academic medical center, lack of desire to

> Get to

> the Bottom of This, wishful thinking about how it may all go away when

> I wake up tomorrow morning.

> ======================================================================

> ==

> ================

> On Apr 13, 2009, at 10:05 PM, dash wrote:

>

> >

> >

> >

> > I have low potassium, and I also have heart spasms, and high blood

> > pressure. Swelling at times and also other signs of kidneys not

> > working right (edema) but no kidney disease.

> >

> > What would be any other physical symptoms of hyperalderonsim? I am

> > also pre osteoporosis and low vitamin d. I took calcium religiously

> > since age 28 and I am now 66. Does this sound like it? I would

> like to

> > know what to ask my doctor that I will be seeing on Friday this

> week.

> > Any thoughts? dash

> >

> >

>

>

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Guest guest

Agreed. I think that they are pushed here just too too much. 10 -15 minutes

allowed per visit is not right. Some doctors are really good, but pushed too

hard. Then there are the jokers that graduated bottom of class. Then there are

the great doctors and we have met our share of them, saved many lives in our

families.

I didn't mean to blanket them with badness. I re-read what I said. The fact

of the matter is that it is imperative that we become our own advocates, but

then we have to learn and I am trying but have no chemistry or medical

background and it is maddening. dash

---- Clarence Grim <lowerbp2@...> wrote:

=============

Drs, believe it or not, are people. Some are more trustworthy than

others.

CE Grim MD

On Apr 14, 2009, at 3:25 AM, dash wrote:

>

>

> I don't trust doctors much, but the rest all fits. lol.

> endorinology won't see me........as only I think Imight need one. I

> tried awhile ago, girl was hideous to me.........said I had no

> symptoms that warranted it. so basically the receptionist diagnosed

> me as well. dash

> ---- arthur springer <as99@...> wrote:

>

> =============

> Symptoms are those of many chronic diseases and may include paralysis,

> excessive trust in My Doctor, failure to seek out a senior

> endocrinologist at an academic medical center, lack of desire to

> Get to

> the Bottom of This, wishful thinking about how it may all go away when

> I wake up tomorrow morning.

> ======================================================================

> ==

> ================

> On Apr 13, 2009, at 10:05 PM, dash wrote:

>

> >

> >

> >

> > I have low potassium, and I also have heart spasms, and high blood

> > pressure. Swelling at times and also other signs of kidneys not

> > working right (edema) but no kidney disease.

> >

> > What would be any other physical symptoms of hyperalderonsim? I am

> > also pre osteoporosis and low vitamin d. I took calcium religiously

> > since age 28 and I am now 66. Does this sound like it? I would

> like to

> > know what to ask my doctor that I will be seeing on Friday this

> week.

> > Any thoughts? dash

> >

> >

>

>

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Pre-and post

EKG. I was home and was misdiagnosed with esophagael spasms and had nitro for

them. Horrible pain down left arm for an hour or more. Then my heart jjumped

in my body. I lost control of bowels and bladder, threw up and pain was gone.

I cleaned myself up and went to bed, went to work the next day, continued to

have 25-50 " stomach " spasms a day.

3 months later convinced my GP doc to send meto cardiologist, who read my EKG

and told me and I had some heart damage. Had an angio-gram and clear as a bell.

Doc was perplexed and turned me loose. dash

---- Clarence Grim <lowerbp2@...> wrote:

=============

A heaert attack with clear arteries is not likely a heart attack.

Very low K will causes increase release of kinases used to test for

" heart damage " .

Can you give us more details on how the Dx of heart attack was made?

CE Grim MD

On Apr 14, 2009, at 3:23 AM, dash wrote:

>

>

> Thank you. Heart spasms are cramps in the heart. Ihave had one

> heart attack from it. Arteries are clear. Cause is unknown but

> potassium is my guess and sulfur allergy. I will talk to new doctor

> about the potassium problem and the possibility of this disease.

> Hope he listens. I am so tired of this fighting this witout help

> for years. dash

> ---- Debartolo <pdebartolo@...> wrote:

>

> =============

> I'm not sure what heart spasms are, but when my potassium dipped

> below 3.0 my heart took off like a race horse. Scared the heck out

> of me and took me to emergency. Personally, I'd request a CAT scan

> of your adrenal glands. That's how they located mine. CAT scans of

> kidneys, urine tests and ultrasounds proved nothing. The starting

> point was the CAT scan of the adrenal glands.

>

>

>

> From: dash <dash4@...>

> Subject: questions from newbie

> hyperaldosteronism

> Date: Monday, April 13, 2009, 10:05 PM

>

> I have low potassium, and I also have heart spasms, and high blood

> pressure.. Swelling at times and also other signs of kidneys not

> working right (edema) but no kidney disease.

>

> What would be any other physical symptoms of hyperalderonsim? I am

> also pre osteoporosis and low vitamin d. I took calcium religiously

> since age 28 and I am now 66. Does this sound like it? I would like

> to know what to ask my doctor that I will be seeing on Friday this

> week. Any thoughts? dash

>

>

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Guest guest

my guess is that you were having hypokalemia muscle spasms.

Can you get report from EKG.

Also the normal angio is good news. It is very unlikely that you will get sick

from or die from CAD due to atherosclerosis.

Clarence E. Grim, BS, MS, MD

On Tuesday, April 14, 2009, at 07:57AM, " dash " <dash4@...> wrote:

>Pre-and post

>EKG. I was home and was misdiagnosed with esophagael spasms and had nitro for

them. Horrible pain down left arm for an hour or more. Then my heart jjumped

in my body. I lost control of bowels and bladder, threw up and pain was gone.

I cleaned myself up and went to bed, went to work the next day, continued to

have 25-50 " stomach " spasms a day.

>

>3 months later convinced my GP doc to send meto cardiologist, who read my EKG

and told me and I had some heart damage. Had an angio-gram and clear as a bell.

Doc was perplexed and turned me loose. dash

>---- Clarence Grim <lowerbp2@...> wrote:

>

>=============

>A heaert attack with clear arteries is not likely a heart attack.

>Very low K will causes increase release of kinases used to test for

> " heart damage " .

>

>Can you give us more details on how the Dx of heart attack was made?

>

>CE Grim MD

>On Apr 14, 2009, at 3:23 AM, dash wrote:

>

>>

>>

>> Thank you. Heart spasms are cramps in the heart. Ihave had one

>> heart attack from it. Arteries are clear. Cause is unknown but

>> potassium is my guess and sulfur allergy. I will talk to new doctor

>> about the potassium problem and the possibility of this disease.

>> Hope he listens. I am so tired of this fighting this witout help

>> for years. dash

>> ---- Debartolo <pdebartolo@...> wrote:

>>

>> =============

>> I'm not sure what heart spasms are, but when my potassium dipped

>> below 3.0 my heart took off like a race horse. Scared the heck out

>> of me and took me to emergency. Personally, I'd request a CAT scan

>> of your adrenal glands. That's how they located mine. CAT scans of

>> kidneys, urine tests and ultrasounds proved nothing. The starting

>> point was the CAT scan of the adrenal glands.

>>

>>

>>

>> From: dash <dash4@...>

>> Subject: questions from newbie

>> hyperaldosteronism

>> Date: Monday, April 13, 2009, 10:05 PM

>>

>> I have low potassium, and I also have heart spasms, and high blood

>> pressure.. Swelling at times and also other signs of kidneys not

>> working right (edema) but no kidney disease.

>>

>> What would be any other physical symptoms of hyperalderonsim? I am

>> also pre osteoporosis and low vitamin d. I took calcium religiously

>> since age 28 and I am now 66. Does this sound like it? I would like

>> to know what to ask my doctor that I will be seeing on Friday this

>> week. Any thoughts? dash

>>

>>

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Guest guest

hypokalemia muscle spasms. Ok, I will look them up.

I have written up a kind of history for you..... can I just send pages in text

to group or should I mail off list? I am hoping you might recognize clues

that I don't. dash

questions from newbie

>> hyperaldosteronism

>> Date: Monday, April 13, 2009, 10:05 PM

>>

>> I have low potassium, and I also have heart spasms, and high blood

>> pressure.. Swelling at times and also other signs of kidneys not

>> working right (edema) but no kidney disease.

>>

>> What would be any other physical symptoms of hyperalderonsim? I am

>> also pre osteoporosis and low vitamin d. I took calcium religiously

>> since age 28 and I am now 66. Does this sound like it? I would like

>> to know what to ask my doctor that I will be seeing on Friday this

>> week. Any thoughts? dash

>>

>>

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How to put your story in the files:

1. Write your story in any manner you choose. If it is easier for you,

just copy your messages you have already sent to the list, add Dr.

Grim's comments (if any) and paste them all to a Word file and save.

Remember where you saved your story on your computer.

2. On the Hyperaldosteronism main page, click on " Files " on the left

3. Find the folder called " PA Stories. "

4. Click on " Add File " at the bottom right.

5. Click " Browse " to find it on your computer.

6. Type in a short description like " Joe's story. "

7. Click on the box to send a message to the group to notify them of

the addition.

8. Click on " Upload File. "

If you want to update your information, do the additions/corrections in the

file on your computer. Then delete the file you previously uploaded to

and re-upload per the instructions above. Only the original author or

group moderator can delete your story. If you try to upload your story with

the same file name, won't allow a duplicate.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of dash

hypokalemia muscle spasms. Ok, I will look them up.

I have written up a kind of history for you..... can I just send pages in

text to group or should I mail off list? I am hoping you might recognize

clues that I don't. dash

Re: questions from newbie

my guess is that you were having hypokalemia muscle spasms.

Can you get report from EKG.

Also the normal angio is good news. It is very unlikely that you will get

sick from or die from CAD due to atherosclerosis.

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