Guest guest Posted April 13, 2001 Report Share Posted April 13, 2001 To everyone I placed a picture of my son in the files directory under . He is wearing the Star Band. The picture of by himself is the first helmet. It pushed down on his left eye and it caused his left ear to be pushed forward. He got this starband on March 7th 2001. I was concerned from the beginning. I kept tell the orthotist that it was warped. He tried to adjust it for a couple of weeks and it did not improve. I told him I wanted a new helmet. He called someone a orthoamerica and the did a level test. They said it could have been shipped while it was still warm (which concerns me about orthoamerica). I am placing these pictures just so anyone who is considering a Starband to be aware of what could happen. We got a second starband on April 6, 2001. I am still a little leery of this one, but it fits much better. And the back of his head is rounding out nicely. He was off by 18mm and has improved by 5 mm in a month. I am keeping a close eye on it. Any more problems though and we will be commuting to Dallas, for the DOC band. The picture with the Easter bunny is his second helmet. The email I posted also went out to the local new here in Tulsa, I have heard back from 2 of the 3 stations. They are going to run a story on this. Hopefully I will have helped new mothers to be aware. Since the peds don't think it is necessary. Cherie - 's mom. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2001 Report Share Posted April 14, 2001 Hi Debbie, was 8 wks when we noticed the flat spot. He just turned 5 months when we got the Starband. I repositioned him for 3 and 1/2 months and no change. It did not get worse, but it did not get better. The neurosurgeon, wanted him in a helmet, not so much for the flat spot, but because his ears were so off. I don't think that an infant any younger that 5 months could get a starband, because of the weight. He just started to hold his head up good when he got the band. And you can tell he still struggles to keep his head up. Yes, the two girls in the picture are his sisters. They are my two little helpers. Cherie - 's Mom -----Original Message----- From: dj2kirby@... [mailto:dj2kirby@...] Sent: Friday, April 13, 2001 4:00 PM Plagiocephaly Subject: Re: StarBand Hi Cherie: You are obviously a very alert mom, as you noticed this problem promtly and have hopefully resolved the problem. I'm sure you will keep a close eye on it from here on out. I wish I would've been as alert as you & stopped my daughter's treatment in her STARband or demanded a new one much sooner than I did. I am happy to report that we have since rec'd the DOC band & are seeing wonderful success, in just 8 wks thus far! The ear smoosh on 's 1st band was terrible, and the eye was as well. The 2nd band looks much much better. I hope it works for you and cutie - he looks young, you are lucky to be starting at a younger age! Wishing you nothing but the best success for your son. Are the other 2 with the easter bunny his sisters? Debbie Abby's mom 3/1/00 STARband 11/4/00 DOC 2/16/01 > > To everyone > > I placed a picture of my son in the files directory under . He is > wearing the Star Band. The picture of by himself is the first helmet. > It pushed down on his left eye and it caused his left ear to be pushed > forward. He got this starband on March 7th 2001. I was concerned from the > beginning. I kept tell the orthotist that it was warped. He tried to > adjust it for a couple of weeks and it did not improve. I told him I wanted > a new helmet. He called someone a orthoamerica and the did a level test. > They said it could have been shipped while it was still warm (which concerns > me about orthoamerica). I am placing these pictures just so anyone who is > considering a Starband to be aware of what could happen. We got a second > starband on April 6, 2001. I am still a little leery of this one, but it > fits much better. And the back of his head is rounding out nicely. He was > off by 18mm and has improved by 5 mm in a month. I am keeping a close eye on > it. Any more problems though and we will be commuting to Dallas, for the > DOC band. The picture with the Easter bunny is his second helmet. > The email I posted also went out to the local new here in Tulsa, I have > heard back from 2 of the 3 stations. They are going to run a story on this. > Hopefully I will have helped new mothers to be aware. Since the peds don't > think it is necessary. > > Cherie - 's mom. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2001 Report Share Posted April 14, 2001 Hi Stasia, It is good to hear someone say good things about the Starband. We saw great improvement in the back of s head in just two weeks and even more in 4 wks. I think the success of the Starband will be determined from the orthotists. We are lucky to have a very concerned orthotist and a neurosurgeon. Our orthotist could not fix it with minor changes so he called the company. He is at Orthoamerica this week for some more training. I am sure there is a lot of quacks out there trying to jump on the helmet band wagon and I just want new parents to be aware. I think that is why the Doc Band has been so successful, because from what I hear they are very well trained and experienced. But so is my orthotist and he would not do anything to hurt , just for the money. Aitan's Starband was obviously not right and the orthotist was an idiot for trying to make it fit and put that family through all that. The decorations were put on by orthoamerica, they have several designs. Your ortho should know this go to www.orthomerica.com click on the baby with the starband and then click on transfers. They got some real cute ones. We got the Martians. Anyone who wants to use that email can. I didn't know I was such a good writer. I took some of it from documents I had on the bands. Thanks for the encouraging words. Cherie - 's Mom -----Original Message----- From: [mailto:SGIB2001@...] Sent: Friday, April 13, 2001 11:00 PM Plagiocephaly Subject: Re: StarBand Hello Cherie My son was 4 mo when he was casted for his STARband. He had just turned 5 mo when we got it. He hasn't had any problems with the weight of it and thankfully his fits very well. I was concerned about the smooshing of his eyes when he moved his head to look up so they cut more off of the back so he could move his head more freely. I am feeling very lucky that we haven't had a problem since I have been seeing a lot of people having problems with STARband. He has been in the band for two weeks now and although I don't really see any improvements yet, I don't see anything getting worse. I love the pictures of and the decorations on his helmet. How did you do that? The tech at Lawall told me not to paint 's helmet and for me to just use stickers. I love the look of that helmet. Also, would you mind if I copied your letter to the news and submitted it to our local news here in Pennsylvania? It was very well written and I would like as many people to hear about this so they can either avoid the problem or correct it before it is too late. Thanks! Stasia > > > > To everyone > > > > I placed a picture of my son in the files directory under . > He is > > wearing the Star Band. The picture of by himself is the > first helmet. > > It pushed down on his left eye and it caused his left ear to be > pushed > > forward. He got this starband on March 7th 2001. I was concerned > from the > > beginning. I kept tell the orthotist that it was warped. He tried > to > > adjust it for a couple of weeks and it did not improve. I told him > I wanted > > a new helmet. He called someone a orthoamerica and the did a level > test. > > They said it could have been shipped while it was still warm (which > concerns > > me about orthoamerica). I am placing these pictures just so anyone > who is > > considering a Starband to be aware of what could happen. We got a > second > > starband on April 6, 2001. I am still a little leery of this one, > but it > > fits much better. And the back of his head is rounding out nicely. > He was > > off by 18mm and has improved by 5 mm in a month. I am keeping a > close eye on > > it. Any more problems though and we will be commuting to Dallas, > for the > > DOC band. The picture with the Easter bunny is his second helmet. > > The email I posted also went out to the local new here in Tulsa, I > have > > heard back from 2 of the 3 stations. They are going to run a story > on this. > > Hopefully I will have helped new mothers to be aware. Since the > peds don't > > think it is necessary. > > > > Cherie - 's mom. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2001 Report Share Posted April 14, 2001 Stasia/Abby, The broken link was a picture of in his Starband. The same one posted. Cherie -----Original Message----- From: dj2kirby@... [mailto:dj2kirby@...] Sent: Saturday, April 14, 2001 8:46 AM Plagiocephaly Subject: Re: StarBand Stasia/Cherie: I asked Cherie the same question about copying her letter!! It was SO well written - Cherie.....have you ever considered switching from the food industry to journalism??? Hehe - I bet the hours would be better! Hehe. Debbie Abby's mom 3/1/00 STAR 11/4/00 DOC 2/16/01 :-) > > > > > > To everyone > > > > > > I placed a picture of my son in the files directory under . > > He is > > > wearing the Star Band. The picture of by himself is the > > first helmet. > > > It pushed down on his left eye and it caused his left ear to be > > pushed > > > forward. He got this starband on March 7th 2001. I was concerned > > from the > > > beginning. I kept tell the orthotist that it was warped. He > tried > > to > > > adjust it for a couple of weeks and it did not improve. I told > him > > I wanted > > > a new helmet. He called someone a orthoamerica and the did a > level > > test. > > > They said it could have been shipped while it was still warm > (which > > concerns > > > me about orthoamerica). I am placing these pictures just so anyone > > who is > > > considering a Starband to be aware of what could happen. We got a > > second > > > starband on April 6, 2001. I am still a little leery of this one, > > but it > > > fits much better. And the back of his head is rounding out nicely. > > He was > > > off by 18mm and has improved by 5 mm in a month. I am keeping a > > close eye on > > > it. Any more problems though and we will be commuting to Dallas, > > for the > > > DOC band. The picture with the Easter bunny is his second helmet. > > > The email I posted also went out to the local new here in Tulsa, > I > > have > > > heard back from 2 of the 3 stations. They are going to run a > story > > on this. > > > Hopefully I will have helped new mothers to be aware. Since the > > peds don't > > > think it is necessary. > > > > > > Cherie - 's mom. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 Angie, You should not feel bad. No doubt we have had a couple of really horrible STARband situations as of late, but remember that there are probably thousands of SUCCESSFUL STARband stories out there as well. The horrible ones are the ones we hear more about because the sitautions are so very unfortunate. The happy people we don't hear as much from because everything is going along smoothly for them. You should never hesitate to post your great results and recommend your STARband ortho. The STARband has been an excellent product and a Godsend to so many people who simply could not afford the DOCband or the travel involved to get a DOCband. Marci (Mom to ) Oklahoma > I am feeling so bad for the Starband horror stories. We seem to be > having good luck with ours. I have seen improvement in Jenna in the > 2 months she has had it. The improvement seems to have slowed but I > think that is because she has improved so much at the beginning. > > I hope she hits some growth spurts soon. I have a very experienced > orthosist who has been doing helmets for many years. > > I guess my problem is when I hear of the bad stories it makes me > worry. I start wondering if she would have had better and quicker > improvement with the Docband. I am happy with Jennas improvements > but she still has a spot I am concerned about. It is on the top, > right of the back of her head. I was told it is one of the last > spots to round out. I also feel her ears are still missaligned. > > She is probably suppose to be done at the end of January. I just > wonder why they think she will be done then if we still have these > issues. > > I guess it is parents nature to question things. We all want the > same thing. We want the best for our kids and they deserve the best! > > Angie and Jenna (Starbanded at 9 months 10/21) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2002 Report Share Posted December 17, 2002 Angie, I understand how you would be concerned but I there are " success " stories out there for the STARband. We had great results with our STARband. had severe flattening, was banded at 5 months and was done in 2.5 months. Just hang in there and try not to worry. This is such an emotional issue for all of us parents who just want the best for our lil ones. & , STARband Grad > I am feeling so bad for the Starband horror stories. We seem to be > having good luck with ours. I have seen improvement in Jenna in the > 2 months she has had it. The improvement seems to have slowed but I > think that is because she has improved so much at the beginning. > > I hope she hits some growth spurts soon. I have a very experienced > orthosist who has been doing helmets for many years. > > I guess my problem is when I hear of the bad stories it makes me > worry. I start wondering if she would have had better and quicker > improvement with the Docband. I am happy with Jennas improvements > but she still has a spot I am concerned about. It is on the top, > right of the back of her head. I was told it is one of the last > spots to round out. I also feel her ears are still missaligned. > > She is probably suppose to be done at the end of January. I just > wonder why they think she will be done then if we still have these > issues. > > I guess it is parents nature to question things. We all want the > same thing. We want the best for our kids and they deserve the best! > > Angie and Jenna (Starbanded at 9 months 10/21) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 In a message dated 1/8/2003 7:40:09 AM Eastern Standard Time, meggarner@... writes: 3)Does the helmet get real hot? We live in So. FL and are getting ready to have some hot summer days. What do you think? I also live in So. Florida. Just curious to know what part of Fl you are in- I only knew of the DOC band being an option in the Kendall area, just south of Miami where we went. My son wore his band from July-September, very hot months here, and we kept him indoors as much as possible, lightly dressed and as cool as we could keep him just to maintain his comfort level- looked for parking garages and cooled the car before going in if possible. Good luck! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Meg: MY daughter is also 9 months. She is in STARband for two months now. I can already tell the difference. About your questions: 1. Rembember the more the better. Keep the helmet on during the night and nap time. If she is up playing, it's ok to take the helmet off for a hour or two. 2. The hair still grows. 3. She will sweat a lot at begining. Take off the helmet and wipe her head more often. Her body will adjust to the heat. Good luck with the helmet and welcome to the group > I have a 9 month old daughter who was diagnosed w/ Plagiocephaly. > The STARband was recommended. > I have a few questions: > 1)How many hours a day does your child wear the abnd? I was told 23 > hours. I am wondering if she can wear it 18 hours and still have > some result? > 2)Did you child have successful hair growth? > 3)Does the helmet get real hot? We live in So. FL and are getting > ready to have some hot summer days. What do you think? Quote Link to comment Share on other sites More sharing options...
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