Re: Thanks to those trying to get the word out about plagio

[Guest guest]

Hear hear (apart from the 'wise' bit ;-) )

Kimberley

> > > I am mom to a son with Plagio. He has been in a DOC band for 9

> > weeks.

> > > We started treatment at 7 months only because we persisted not

> > > because of information or support by our pediatrician. Like

many

> of

> > > the stories I have read on this board, our ped stated his

> abnormal

> > > head shape was only cosmetic and would round out in time. Also,

> she

> > > stated at 2 months old that it was the worst it would get. She

> > never

> > > told us that there was a name for positional head deformity or

> the

> > > importance of early treatment. She also never mentioned the

> > > possibility of misalignment. In fact, the shape of his head did

> > > worsen and a bulge started to appear over his ear.

> > >

> > > After doing research on my own I found statements that plagio

is

> > not

> > > just cosmetic and believed to cause Migraines, TMJ, eyesight

> > problems

> > > and psychological consequences. After considering the

> possibilities

> > > of what could happen we decided that we were not willing to

take

> > that

> > > chance. It was only after our insistence that we were referred

to

> a

> > > specialist, an x-ray was done to rule out Craniosyntosis, and

he

> > was

> > > casted for a band.

> > >

> > > I do understand that in some cases repositioning and time do

help

> > the

> > > problem but what upsets me is that our pediatrician assumed

that

> > > would be case. As a result, I am left feeling mislead by our

ped

> > and

> > > frustrated (as many of us are) that there is not enough

education

> > on

> > > the complexities of plagiocephaly.

> > >

> > > Yesterday was the first time we had met with our ped since our

> son

> > > got his band. I shared my concerns about not being fully

informed

> > by

> > > her about plagio during our initial visits and what head

> > > abnormalities are believed to cause. I brought copies of the

> > articles

> > > and studies I found in CAPS & plagiocephaly.org as well as the

> AAP

> > > petition. Her reaction was very defensive and she expressed

that

> in

> > > her 20 years of practicing she has never seen these problems.

She

> > > also questioned that since the high occurrence of plagio has

only

> > > recently become a problem, how can it be proved what it causes.

> > > Additionally she felt that information on the internet is not

> > > necessarily accurate.

> > >

> > > Needless to say I am feeling depressed and emotional. I

actually

> > > cried in her office. I only wanted to share my experience with

> her

> > in

> > > hopes that she educates her patients on the complexities of

> plagio.

> > > Why are so many of us having to educate educate ourselves? I

> > > appreciate all of you who are doing something to get the word

> out.

> > >

> > > Regards,

> > >

> >

> >

> >

> >