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  1. , That is wonderful. Jillian sure is growing up quickly!! Jack also knows all his colours and I guess this was one of the first things he learned at Nursery. He can also count up to 20 although he does sometimes leave numbers out. These kids are amaz

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  2. It was recently mentioned to me that my little guy, 28 months old, could possibly benefit from OT to help increase his attention span / ability to focus on tasks for longer periods of time. I admit that he does seem to have little interest in most t

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  3. Hi and welcome to penny...I was really interested in your message..as your near me...I'm a parent with a charge/velocardiofacial syndrome daughter(13)...we live in Benton ky..not far from you...she use to take speech theraphy at murray state,up till

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  4. - Thanks for those Chicago names! Michele W mom to Aubrie (3 yr.) CHaRgE and (9 yr.), wife to DJ, in IL west@...

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  5. cathie, What exciting news re: ericka. I know that the thrill of hearing that the trach can come out is exciting to you as parents. I have seen patients who have had this occur and it was a very hi time of their lives. Keep all of us in touch. Ir

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  6. Got to do this emidiatly, somone managed to get into my yahoo and used my email addy to send realy gross stuff. I am informing yahoo that I am not responsible for some realy bad emails. I know the person who is doing this too. (they are in my current

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  7. Niamh, You can go to our web site and print out the membership form. Go to: [url]www.chargesyndrome.org[/url] Or just send a note with your check in US funds for $15.00 to: CHARGE Syndrome Foundation 2004 Parkade Blvd Columbia MO 65202 Yo

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  8. Hi Casey, that web page is great, thanks for telling us about it. Debbie, mom to Susie, 3 years old.

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  9. In a message dated 11/17/2000 3:17:25 PM Central Standard Time, swenson@... writes: << We were told that more $ and services would then be available, but are not sure that we believe that >> Can they tell you specifically what other services would b

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  10. We have received about 30 pictures, I think. I haven't talked to Jen Bader for a little while to see what she has received via email, but I think we will have about 30. , I know that Jen did get the picture of Chip. Thank you! Debbie, if you are on t

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  11. HI Everyone! I have been reading for about a month now. I am a physical therapist in a special education school (yes, it is a " segregated " school) and I have a student with CHARGE. Before coming to work at this school, I felt that people with di

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  12. erika had lithotripsy done 2 times and still never got rid of her kidney stone, she had 3, one remians and they are going to just watch it, it sits down in a pocket of the kidbey, they say it is to big to pass and she may just live with it. Now th

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  13. Good luck Bonnie. Tim. Tim Hartshorne Turk22082@... wrote: > Here we go again. This afternoon is Patty's PPT-Planning and Placement > Team meeting to talk about her Individualized Education Program. It's her > annual review, do transition g

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  14. Sheryl, thanks for sharing jessica's days with us. I am so glad she is finally happy!! I had a thought when you were describing her waiting in the car at 3 am. This is what we do with diane,but do it in short time intervals as it can backfire. I have

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  15. Oh yah? well my othodontist has had 3 charge patients... lol, just kidding! :) it is kinda unusual. Chantelle > > thats really ineresting. My doctor actually has two kids with CHARGE but it > would be really rare > Bel > >From: NPTQueenie@a... > >R

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  16. , Patty is in high school. She is in 10th grade. She is in regular ed and right now has a One-on-One and a class called Resource. OT, PT and APE are all on consult basis, though for years she had received these services. She also receives Speech

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  17. Ok guys, I've got a question for you. Sometimes some of you send things to be downloaded. I hit the button to download and it does. Then sometimes the thing I downloaded pops right up on the screen. Other times it says download is complete. I ha

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  18. Hmmm..... 's bone age was well behind his actual age and that was one of the reasons that pointed toward more extensive growth hormone testing and he was growth hormone deficient. I think that we were told that it meant that he had potential (given

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  19. Hi Jacque! Was this question for me? Our has been eating like a champ for years now. We cut things into small pieces, but he does chew and he does eat most anyting-steak, corn on the cob, carrots, even mixed textures in hotdishes or crackers in so

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  20. Jen,that's great about diane's upgrading reading,and the knowing directions..I know how hard you work with both girls,and it does pay off....great going diane!!!! Ralston --- jandmkat@... wrote: > Just one more quick post to brag a little. I went >

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  21. About teeth grinding--it is very bad for not only the teeth, but the jaw joint (tempromandibular, or TMJ) as well. Years of grinding puts lots of stress on the joint, and will lead to a multitude of problems in the future, including headaches,tinnit

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  22. WHERE DO U AND YOUR GRANDDAUGHTERS LIVE... Katapodis wrote: > > , > > No need to apologize. Yes, both my granddaughters have charge. Emma was > born first and she was not diagnosed until after Diane was born. They are > 17 months apart. > > > G

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  23. - I did not realize you could be tested to see if you carry the charge gene. I would really like to know more and where to get information on the testing. Thanks Lydia mom to chrgr Kim, Alia, and Ralston wrote: Lesley- for the concern of

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  24. Lydia Here at Children's Hosp of Pgh, the docs are known for withholding info on dev delays and EI because " they don't want to upset the parents " . They assume the parents will learn about EI from some other doc or org, and don't want to be the

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  25. , the charge pics are for a " CHARGE tree " that is being put together for out Festival of Trees here in Salt Lake City, UT. I printed up you grandchildren's pic and Ruth will work it into the tree. Eventually the tree will be auctioned off and t

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