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  1. - That would have been Aubrie sitting on the blanket! She wasn't very mobile at that point -- especially when surrounded by grass! Michele Aubrie's mom

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  2. BRAVO CHANTELLE! Please let us know the outcome of the court's decision! Graeme & Weir wrote: That is an excellent letter Chantelle, let us know how it goes! Mom to Kennedy 2.5yr old CHARGEr, 11, 9, and wife to Graeme New Brunswick, Canada

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  3. Iris, What were Kriste's indications of CHARGe " after the fact " ? I have a 2 1/2 year old daughter with CHARGE Syndrome and she is my 2nd child with CHARGe. My son died when he was 6 months old. IF my daughter had been born first and my son had ne

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  4. Hi n! Hope you are feeling better soon! Cheryl, , (7), (5, CHaRGE) MI

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  5. Hi Debbie, My name is Chip, I'm 21 years old, and I also have Charge Syndrome. Some of my friends online and I have been experiencing Charge for around 20 years now. (Chantelle, Mellissa, Bel, and I) I have read about her daughther being in the ho

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  6. Way to go Belinda! Hope this means you get into univercity too! Hope you do! Your friend Chantelle

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  7. I know plenty of kids who got there molars first, or canine teeth first. Chantelle

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  8. Cheryl, Jillian can unbuckle any seatbelt, highchair buckle etc... So I have no advice. She seems to stay in the kind of carseat that has the bar that flips down ovewr the head and rests in front of her. Foley Mom to 5, (CHARGEr in heaven) and Ji

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  9. Something to think about This is what The Dali Lama has to say on the millennium, which begins 01/01/2001. All it takes is a few seconds to read and think about. Do not keep this message. The message must leave your hands within 96 hours. You wil

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  10. Cathie, Jillian could not swallow solids because her tongue needed clipping. I, mommy, finally diagnosed her after 2 specialists said she was just developmentally delayed in eating. I didn't buy that so I had her tongue clipped at 15 months old and s

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  11. Cheryl, I'm with you, I remember how mad I was when our insurance denied to pay for zach's cochlear implants, because it was not medically necessary,and it was considered cosmectic (please).On the other hand they did cover prosthetics. A good friend

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  12. what is sxi? Chantelle

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  13. Debbie, That's very interesting. is the same way. How did you know the tear ducts were missing (other than no tears when crying...) How do they put tear ducts in. Do you do anything to help eleviate the redness. The redness is on the skin under the

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  14. I too have to agree with Chantelle, I can't see any of these children being parents,and if they do have affected children how would they know to care for their needs...I've thought about this all while my daughter has been growing up...she mother's h

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  15. Seems as if nothing I post anywere is getting stored on the servers, its realy odd! Chantelle

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  16. Tim.hartshorne@... writes: << Did they do a bone age scan? They did that for sometime this past year, and it turned out his bone age was 7, although he actual age is 11. That means that he may grow normally when his bone age gets to adolescen

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  17. Hello, I really sympathise, we have been ten years with this bloody trachy. We have been through a lot of what you're going through. My friend's son (not charge) had a lot of the electrotherapy and unfortunately his trachy is still in, he doesn't s

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  18. I am also the father of a child adopted from Guatemala. He is wonderful and has had no problems that I can see so far (he's now five, and was about 15 months when adopted). It is important to work with a good agency. Also, it is expensive. His ad

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  19. Chip, It's nice to meet you. I have been on the list quite awhile now but, since the beginning of the year, I have not been able to post. My granddaughters, Emma & Diane have charge. Grandmother of Emma(almost 7) and Diane(5) Long Island, NY

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  20. , Good luck with the auction. It certainly sounds like a worthy cause. Emmma loves Bobby dolls and Diane is mad about anything Madeline. Grandmother of Emma(almost 7) and Diane(5) Long Island, NY _________________________________________________

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  21. Hi Bradley, I'm so glad the rib graft surgery healed well with no further scar tissue build up. I understand your disappointment when " The Dr. Cotton " doesn't have anymore suggestions on what to do about capping the trach. I thought that once

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  22. Hello, I've asked my sister and brother-in-law to respond to this email. They may or may not. However, I am the aunt of their daughter, a baby they adopted. It wasn't easy and , yes it was expensive. Their entire lives were reviewed prior to bein

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  23. Jen, Aari had a bone age done at about 30 months (I think, around then) and it showed 18 months.. He had another one a couple weeks ago in preparation to seeing a new endo next week and he will be 9 on Feb 1 and it showed a month shy of 6 years.. hi

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  24. I'm bursting tonight because Aubrie said with her voice, "I love you, Mom". She's been saying, "I love you" fairly well for about a week or so, but tonight was really special. I think she's really talking a lot but we can't understand it. I asked h

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  25. Hi Aunt Cathy!! I'll write you soon. Barb

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