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We had our son Zack schedualed for an eval there in October. We started the process 6 months before and despite giving them every test and procedure they asked for as fast as we could they still were not ready to do the eval. in October. This pa

By Guest guest, December 12, 2000
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- Guest
- December 12, 2000
Betsy, we know she doesnt swallow well enough b/c she pushes the food out with her tongue b/c her tongue is pulled back,, she does swallow some but not ebough for any nurtition. we do hear her swallow her saliva, but she also drools some out! also

By Guest guest, December 12, 2000
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- Guest
- December 12, 2000
thats really ineresting. My doctor actually has two kids with CHARGE but it would be really rare Bel >From: NPTQueenie@... >Reply-To: [email]CHARGE (AT) egroups (DOT) com[/email] >To: [email]CHARGE (AT) egroups (DOT) com[/email] >Subject: Fwd: reac

By Guest guest, December 10, 2000
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- December 10, 2000
Michele W I also remember the tears as I watched the programs after and were born. The tears were for who would never be up there and for who they said would not be...and there were a lot of programs, as I am a teacher at an elementary school an

By Guest guest, December 21, 2000
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- December 21, 2000
Hello everyone and Happy Holidays.... I just wanted to let you know that I have joined your group and wanted to tell you why I have joined. I am a special education major (senior - graduation May 2001 @ Murray State University) and have been assigne

By Guest guest, December 14, 2000
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- Guest
- December 14, 2000
Casey, My sister just moved to the states after living in Germany for 6 years. Her German is pretty good if you can't find a native speaker, let me know and I'll forward it to her in Colorado. Sally(, 19)

By Guest guest, December 20, 2000
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- December 20, 2000
Michele, my daughter sounds just like little Aubrie when she was 3yrs...she also still wore about a size 18mos.and was the size of a year old-two years old..she had always grown just under the growth chart line...also her nutrition was poor,she was a

By Guest guest, November 9, 2000
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- November 9, 2000
Jeanne- Thank you for your response. " " does indeed walk, although he requires a walker because his balance is so poor. We have tried crutches and canes, but he ends up falling, and that really sets him off. Communication goals are definately o

By Guest guest, December 8, 2000
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- December 8, 2000
I haven't been there but have heard from others who've been there and it seems to be a behavioural eating centered program so I don't think it would be right for Kennedy, as her problems are physiological first and behavioural second I think. Mom to

By Guest guest, December 11, 2000
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- December 11, 2000
Hi! We agree with the need for a consult with a pediatric orthopedic surgeon. wears DAFO splints and has had scoliosis and kyphosis. Kids with congenital heart disease and/or syndromes have a high risk for scoliosis as young children (well before

By Guest guest, November 20, 2000
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- November 20, 2000
Ken, I am the mother of a 10 yr with charge . To answer your question ,Other children have always been very accepting of zach, in fact they love to be with him, and belive it or not some envy him. He lacks the ability to do alot of " normal kid thin

By Guest guest, November 8, 2000
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- November 8, 2000
& Gwynn, I just wanted to welcome you to CHARGEland as we affectionately call it here and although our little girl is not experiencing the same social differences as is right now I am sure there will be some help from some great folks here on the

By Guest guest, December 17, 2000
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- December 17, 2000
Chip, Glad you did well on your exams! *sigh*, wish I could say the same. Psychology was easy. My astronomy teacher is a prick, and my english exam is in a few hours. Im not too worried about english, just need to get something done... ugh!!! I will

By Guest guest, December 15, 2000
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- Guest
- December 15, 2000
and Gwynn Welcome to the list. I hope you will find it as supportive as I have. Regarding vestibular problems, the only thing that has helped is regular ongoing occupational therapy. I can't name 1 aspect of OT, they do so much. Also, the many

By Guest guest, December 19, 2000
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- 11 views
- Guest
- December 19, 2000
Tim, Thanks. I thought I missed out on some new information. Lydia mom to chrgr Kim, Alia, , Tim Hartshorne wrote: There is no test for CHARGE. That is why we don't know for sure if itis an association or a syndrome. We suspect that it is gene

By Guest guest, November 10, 2000
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- 11 views
- Guest
- November 10, 2000
Trish, That is SO wonderful what Lyric is going to do for you! That would be Kennedy's ultimate I think!!! She is addicted to Barney. My brother's friend bought a Barney suit from some place in L.A. and he does parties, etc so we are having him to

By Guest guest, October 25, 2000
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- October 25, 2000
In a message dated 05/12/00 23:56:48 GMT Standard Time, west@... writes: << The ST is concerned because she hears nasality in Aubrie's voice and wonders if it's attributable to a submucous cleft or something else. >> Michele, Jack's ST thought

By Guest guest, December 8, 2000
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- 11 views
- Guest
- December 8, 2000
, you really having me looking inot this, i will chekc erika out when she gets home from school but that sounds like what her tongue does, If that is the case though wouldnt her ENT have told us this before? CAthie

By Guest guest, December 15, 2000
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- 11 views
- Guest
- December 15, 2000
Lesley and , Thanks you guys I found freetranslation.com right after I sent the note to the list.. turned out my HS german wasn't so bad after all LOL.. On that page I also found a link to a free software program that translates too. The questio

By Guest guest, December 20, 2000
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- 11 views
- Guest
- December 20, 2000
Here we go again. This afternoon is Patty's PPT-Planning and Placement Team meeting to talk about her Individualized Education Program. It's her annual review, do transition goals and to plan for a triennial reevaluation. Things really haven't chan

By Guest guest, November 27, 2000
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- Guest
- November 27, 2000
Thank You! Believe me so are we!!! Hugs Back At You , Steve, , woof woof Nikita From: cmclaren@... Reply-To: [email]CHARGE (AT) egroups (DOT) com[/email] To: [email]CHARGE (AT) egroups (DOT) com[/email] Subject: Re: 5 1/2 Long Weeks! Date: Fri,

By Guest guest, December 15, 2000
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- Guest
- December 15, 2000
Hi Tim, what did you teach at wsu? I have several friend s and famiy that attended during that time. Where are you now? maria

By Guest guest, December 2, 2000
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- Guest
- December 2, 2000
Rose and Michele- Thanks for your feedback. I know it is not my place to make that judgement for anyone else, just myself. To me, its more an issue of responisbility for your children, irregardless of needs. It is very trying on the entire staff h

By Guest guest, November 15, 2000
- 0 replies
- 11 views
- Guest
- November 15, 2000
wrote: " We had a mommy/mommy's girl snuggling day " , If something good is to be seen in being ill, that is it. Enjoy those moments because as they get older, they sometimes get futher apart. Grandmother of Emma(almost 7) and Diane(5) Long

By Guest guest, November 15, 2000
- 0 replies
- 11 views
- Guest
- November 15, 2000
Chantelle, Congratulations on a job well done! You make us all proud girl!Mom to Kennedy 2.5yr old CHARGEr, 11, 9, and wife to GraemeNew Brunswick, CanadaVisit the "Weir homepage" at: [url]http://www.geocities.com/SunsetStrip/Palms/5716ICQ[/url]

By Guest guest, October 25, 2000
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- Guest
- October 25, 2000

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Health, Medicine and Natural Healing 00

567,470 topics in this forum

We had our son Zack schedualed for an eval there in October. We started the process 6 months before and despite giving them every test and procedure they asked for as fast as we could they still were not ready to do the eval. in October. This pa

Betsy, we know she doesnt swallow well enough b/c she pushes the food out with her tongue b/c her tongue is pulled back,, she does swallow some but not ebough for any nurtition. we do hear her swallow her saliva, but she also drools some out! also

thats really ineresting. My doctor actually has two kids with CHARGE but it would be really rare Bel >From: NPTQueenie@... >Reply-To: [email]CHARGE (AT) egroups (DOT) com[/email] >To: [email]CHARGE (AT) egroups (DOT) com[/email] >Subject: Fwd: reac

Michele W I also remember the tears as I watched the programs after and were born. The tears were for who would never be up there and for who they said would not be...and there were a lot of programs, as I am a teacher at an elementary school an

Hello everyone and Happy Holidays.... I just wanted to let you know that I have joined your group and wanted to tell you why I have joined. I am a special education major (senior - graduation May 2001 @ Murray State University) and have been assigne

Casey, My sister just moved to the states after living in Germany for 6 years. Her German is pretty good if you can't find a native speaker, let me know and I'll forward it to her in Colorado. Sally(, 19)

Michele, my daughter sounds just like little Aubrie when she was 3yrs...she also still wore about a size 18mos.and was the size of a year old-two years old..she had always grown just under the growth chart line...also her nutrition was poor,she was a

Jeanne- Thank you for your response. " " does indeed walk, although he requires a walker because his balance is so poor. We have tried crutches and canes, but he ends up falling, and that really sets him off. Communication goals are definately o

I haven't been there but have heard from others who've been there and it seems to be a behavioural eating centered program so I don't think it would be right for Kennedy, as her problems are physiological first and behavioural second I think. Mom to

Hi! We agree with the need for a consult with a pediatric orthopedic surgeon. wears DAFO splints and has had scoliosis and kyphosis. Kids with congenital heart disease and/or syndromes have a high risk for scoliosis as young children (well before

Ken, I am the mother of a 10 yr with charge . To answer your question ,Other children have always been very accepting of zach, in fact they love to be with him, and belive it or not some envy him. He lacks the ability to do alot of " normal kid thin

& Gwynn, I just wanted to welcome you to CHARGEland as we affectionately call it here and although our little girl is not experiencing the same social differences as is right now I am sure there will be some help from some great folks here on the

Chip, Glad you did well on your exams! sigh, wish I could say the same. Psychology was easy. My astronomy teacher is a prick, and my english exam is in a few hours. Im not too worried about english, just need to get something done... ugh!!! I will

and Gwynn Welcome to the list. I hope you will find it as supportive as I have. Regarding vestibular problems, the only thing that has helped is regular ongoing occupational therapy. I can't name 1 aspect of OT, they do so much. Also, the many

Tim, Thanks. I thought I missed out on some new information. Lydia mom to chrgr Kim, Alia, , Tim Hartshorne wrote: There is no test for CHARGE. That is why we don't know for sure if itis an association or a syndrome. We suspect that it is gene

Trish, That is SO wonderful what Lyric is going to do for you! That would be Kennedy's ultimate I think!!! She is addicted to Barney. My brother's friend bought a Barney suit from some place in L.A. and he does parties, etc so we are having him to

In a message dated 05/12/00 23:56:48 GMT Standard Time, west@... writes: << The ST is concerned because she hears nasality in Aubrie's voice and wonders if it's attributable to a submucous cleft or something else. >> Michele, Jack's ST thought

, you really having me looking inot this, i will chekc erika out when she gets home from school but that sounds like what her tongue does, If that is the case though wouldnt her ENT have told us this before? CAthie

Lesley and , Thanks you guys I found freetranslation.com right after I sent the note to the list.. turned out my HS german wasn't so bad after all LOL.. On that page I also found a link to a free software program that translates too. The questio

Here we go again. This afternoon is Patty's PPT-Planning and Placement Team meeting to talk about her Individualized Education Program. It's her annual review, do transition goals and to plan for a triennial reevaluation. Things really haven't chan

Thank You! Believe me so are we!!! Hugs Back At You , Steve, , woof woof Nikita From: cmclaren@... Reply-To: [email]CHARGE (AT) egroups (DOT) com[/email] To: [email]CHARGE (AT) egroups (DOT) com[/email] Subject: Re: 5 1/2 Long Weeks! Date: Fri,

Hi Tim, what did you teach at wsu? I have several friend s and famiy that attended during that time. Where are you now? maria

Rose and Michele- Thanks for your feedback. I know it is not my place to make that judgement for anyone else, just myself. To me, its more an issue of responisbility for your children, irregardless of needs. It is very trying on the entire staff h

wrote: " We had a mommy/mommy's girl snuggling day " , If something good is to be seen in being ill, that is it. Enjoy those moments because as they get older, they sometimes get futher apart. Grandmother of Emma(almost 7) and Diane(5) Long

Chantelle, Congratulations on a job well done! You make us all proud girl!Mom to Kennedy 2.5yr old CHARGEr, 11, 9, and wife to GraemeNew Brunswick, CanadaVisit the "Weir homepage" at: [url]http://www.geocities.com/SunsetStrip/Palms/5716ICQ[/url]

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