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Re: Autism and Birthmarks

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Hmm, I've never heard of that. What kind of birthmark is it? Like a big colorful

one or a little brown one?

<faithmmoore@...> wrote: My son is 8 DX with AS last

year. He is now being refered to a

Neurologist. To comfirm his DX and check for anyother Neurological

disorders based on the fact he has an birth mark above his eye. He has

always had this Bithmark. Durring a routeen eye exam his DR was

concered because she said there is a Neurological disorder linked with

his type of Birthmark and Autism traits. My sons PCP agreed with her

and he is set to see this Neurologist in late Feb. I have never heard

of such a thing in all my reading and the Dr's have been very vage by

saying they just want to rule other ND's out.

I was wonding if anyone else had heard of this? I am quite worried

about dealing with anything worce then AS.

Thanks,

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What type of birthmark is it? My NT so far 1yr old daughter has one on the side

of her nose next to her eye. They call it a cafe o la spot. Just curious. It is

my son (with no birthmark) who has TS, ADHD, OCD, & possibel AS. Thanks

<faithmmoore@...> wrote: My son is 8 DX with AS last

year. He is now being refered to a

Neurologist. To comfirm his DX and check for anyother Neurological

disorders based on the fact he has an birth mark above his eye. He has

always had this Bithmark. Durring a routeen eye exam his DR was

concered because she said there is a Neurological disorder linked with

his type of Birthmark and Autism traits. My sons PCP agreed with her

and he is set to see this Neurologist in late Feb. I have never heard

of such a thing in all my reading and the Dr's have been very vage by

saying they just want to rule other ND's out.

I was wonding if anyone else had heard of this? I am quite worried

about dealing with anything worce then AS.

Thanks,

---------------------------------

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Guest guest

Well, I am not sure if it means anything...but, my Dr. said that

there might be a link between autism and cafe au lait spots (at least

that is what he heard from another doctor). I had never heard of it

before...but my son (who has autism/AS) has the spots...luckily it

turned out to be nothing. If I am not mistaken cafe au lait spots can

be signs of a disease called neurofibromitosis.

Meredith

My son is 8 DX with AS

last year. He is now being refered to a

> Neurologist. To comfirm his DX and check for anyother Neurological

> disorders based on the fact he has an birth mark above his eye. He

has

> always had this Bithmark. Durring a routeen eye exam his DR was

> concered because she said there is a Neurological disorder linked

with

> his type of Birthmark and Autism traits. My sons PCP agreed with her

> and he is set to see this Neurologist in late Feb. I have never

heard

> of such a thing in all my reading and the Dr's have been very vage

by

> saying they just want to rule other ND's out.

>

> I was wonding if anyone else had heard of this? I am quite worried

> about dealing with anything worce then AS.

>

> Thanks,

>

>

>

>

>

>

> ---------------------------------

> 8:00? 8:25? 8:40? Find a flick in no time

> with the Search movie showtime shortcut.

>

>

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We heard about the link to neurofibromitosis. One of my friends brought that up

in the hospital when I had her, and freaked me out. The doctors assured me that

that is not a concern because she only has one. They call it cafe au lait spot

for her just because of the color. They did tell us that we have to keep an eye

on it because when hormones start it could grow or become hairy. I pray that

doesn't happen, but it will be what it will be! Keep us updated in what you

learn, because it makes me very curious of course, since she has one! Thanks!

Many Blessings!

meredithzirkel <meredithzirkel@...> wrote: Well, I am not sure if

it means anything...but, my Dr. said that

there might be a link between autism and cafe au lait spots (at least

that is what he heard from another doctor). I had never heard of it

before...but my son (who has autism/AS) has the spots...luckily it

turned out to be nothing. If I am not mistaken cafe au lait spots can

be signs of a disease called neurofibromitosis.

Meredith

My son is 8 DX with AS

last year. He is now being refered to a

> Neurologist. To comfirm his DX and check for anyother Neurological

> disorders based on the fact he has an birth mark above his eye. He

has

> always had this Bithmark. Durring a routeen eye exam his DR was

> concered because she said there is a Neurological disorder linked

with

> his type of Birthmark and Autism traits. My sons PCP agreed with her

> and he is set to see this Neurologist in late Feb. I have never

heard

> of such a thing in all my reading and the Dr's have been very vage

by

> saying they just want to rule other ND's out.

>

> I was wonding if anyone else had heard of this? I am quite worried

> about dealing with anything worce then AS.

>

> Thanks,

>

>

>

>

>

>

> ---------------------------------

> 8:00? 8:25? 8:40? Find a flick in no time

> with the Search movie showtime shortcut.

>

>

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No one has ever given his Birthmark a name, other then an Angle kiss

or a stork bite. Its about the size of a lima bean above his right

eye on the outside of his eye brow so it grows hair and has to be

trimed but it blends in to his brow so the hair is not noticeable.

Its light pink and fades to light brown in the middle and a little

rased. He is always getting asked what happened to his eye, if he

got hit or something. I know its not a wine stain birthmark sound

more like the cafe au lait spot like , you talked about. I will

update you when we do see the Neurologist. Thanks for the Blessings

we Mothers need all we can get :)

My son is 8 DX with AS

> last year. He is now being refered to a

> > Neurologist. To comfirm his DX and check for anyother Neurological

> > disorders based on the fact he has an birth mark above his eye.

He

> has

> > always had this Bithmark. Durring a routeen eye exam his DR was

> > concered because she said there is a Neurological disorder linked

> with

> > his type of Birthmark and Autism traits. My sons PCP agreed with

her

> > and he is set to see this Neurologist in late Feb. I have never

> heard

> > of such a thing in all my reading and the Dr's have been very

vage

> by

> > saying they just want to rule other ND's out.

> >

> > I was wonding if anyone else had heard of this? I am quite worried

> > about dealing with anything worce then AS.

> >

> > Thanks,

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > 8:00? 8:25? 8:40? Find a flick in no time

> > with the Search movie showtime shortcut.

> >

> >

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Guest guest

My daughter with autism has 2 strawberry birthmarks (one on her scalp

and one on her lip). They were large when she was an infant but are

smaller now. They showed up when she was about 2 weeks old. She was

born at 36 weeks. My son has one on the inside of his eyelid. It

grew enough to cause some vision problems but then started to reduce

in size at 1 year old. His vision is normal again. He has Regulatory

Dysfunction and was also born at 36 weeks.

I had heard that minor birth marks are linked to autism but these were

not obvious at birth but may have already started growing. I had read

that these were blood vessels that normally disappear by birth, but

sometimes do not go away. They do not connect to the heart but do

have small amounts of blood in them.

Jen

My son is 8 DX with AS

> > last year. He is now being refered to a

> > > Neurologist. To comfirm his DX and check for anyother Neurological

> > > disorders based on the fact he has an birth mark above his eye.

> He

> > has

> > > always had this Bithmark. Durring a routeen eye exam his DR was

> > > concered because she said there is a Neurological disorder linked

> > with

> > > his type of Birthmark and Autism traits. My sons PCP agreed with

> her

> > > and he is set to see this Neurologist in late Feb. I have never

> > heard

> > > of such a thing in all my reading and the Dr's have been very

> vage

> > by

> > > saying they just want to rule other ND's out.

> > >

> > > I was wonding if anyone else had heard of this? I am quite worried

> > > about dealing with anything worce then AS.

> > >

> > > Thanks,

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > 8:00? 8:25? 8:40? Find a flick in no time

> > > with the Search movie showtime shortcut.

> > >

> > >

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Guest guest

My son has a large cafe au lait birthmark on his chest. At his very first

Developmental Pediatrician appt she asked if he had any birth marks. She

measured the birthmark and also told me that there is another neurological

disorder that coinsides with those types of birth mark. But there has to be a

lot of them and they have to be of certain size. She did recommend that I keep

an eye on it and let her know if I grows significantly. It has not in 5 years.

All the best,

Jill

" And all things, whatever you ask in prayer, believing, you will receive. " Matt

21:22

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I have never heard of this type of birthmark relating to autism., But, someone

that had a down child told me at a genetic counseling meeting, said: that if you

look at the palm of your hand and have a " straight line " in the palm of your

hand that goes straight across. (from one end to the other, in the middle) that

is the sign for Down syndrome. or carrier??? With that, I wonder if there is

any connection with the birthmark to autism?? however, my AS son had no

birthmarks at birth, my NT daughter had a tiny one on her forehead. Hummm

All this makes me wonder if this is just a " myth. " when you do see a down

syndrome person without the line, and an NT child with the birthmark??? How

would that connect to the DX??? but don't go by my opinion, I'm not a

professional, and I just heard of " the line and birthmark " just makes me wonder

what it means when a person has the mark without a DX or if a person Has the DX

and not the birthmark, what does that mean?....But I do get it when they say

this is all like a puzzle. Just a thought

Steve & Jill Meyers <jmeyers@...> wrote:

My son has a large cafe au lait birthmark on his chest. At his very

first Developmental Pediatrician appt she asked if he had any birth marks. She

measured the birthmark and also told me that there is another neurological

disorder that coinsides with those types of birth mark. But there has to be a

lot of them and they have to be of certain size. She did recommend that I keep

an eye on it and let her know if I grows significantly. It has not in 5 years.

All the best,

Jill

" And all things, whatever you ask in prayer, believing, you will receive. " Matt

21:22

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I was at an ASCEND AS support group meeting and everyone was saying

that a white birth mark is a sign of autism. My son has one on his

side. At the time things were new and I was still hoping an AS

diagnosis was not true. When I heard everyone saying that their child

had this type of birthmark the reality hit me like a ton of bricks and

I was completely grief stricken. That was 2 years ago and my son has

come a long way. I am not so doom and gloom anymore, although I have

my moments when I am sad for what could have been. Its really a battle

but these kids are very special and we just have to love them for who

they are.

Debbie

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I've been following these posts & find the birthmark/autism relationship really

interesting. My AS son had a very light pink " stork bite " on the back of his

neck, which has now grown into his scalp & covered by hair. Does anyone have a

medical article that proves this idea, or is it something that parents of ASD

kids are finding on their own? I know of many NT people who have birthmarks

too. So I'm a little confused.

Liz

Houston

debramelamed <melamedj@...> wrote:

I was at an ASCEND AS support group meeting and everyone was saying

that a white birth mark is a sign of autism. My son has one on his

side. At the time things were new and I was still hoping an AS

diagnosis was not true. When I heard everyone saying that their child

had this type of birthmark the reality hit me like a ton of bricks and

I was completely grief stricken. That was 2 years ago and my son has

come a long way. I am not so doom and gloom anymore, although I have

my moments when I am sad for what could have been. Its really a battle

but these kids are very special and we just have to love them for who

they are.

Debbie

---------------------------------

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My son has three or four of them. Do you have any idea what kind of disorder it

is? Is it related to As?

( ) Re: Autism and Birthmarks

My son has a large cafe au lait birthmark on his chest. At his very first

Developmental Pediatrician appt she asked if he had any birth marks. She

measured the birthmark and also told me that there is another neurological

disorder that coinsides with those types of birth mark. But there has to be a

lot of them and they have to be of certain size. She did recommend that I keep

an eye on it and let her know if I grows significantly. It has not in 5 years.

All the best,

Jill

" And all things, whatever you ask in prayer, believing, you will receive. "

Matt 21:22

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My sister in law has neurofibromitosis, which is awful. Of the 8

grandchildren, 5 of them have cafe au lait spots (including our AS

son). 2 live out of state & are older,so I have never had to see

them in the buff (just a few fewer diaper changes!)

Only 1 has a spectrum issue, and none have (thank god) shown any

sign of the NF. This causes tumors to grow on your nerves. Many of

my sister-in-law's are visible like grape sized bumps all over her

body. Unfortunately she now has them in her brain and on her

spine. In the grand scheme of things, we all have it easy if we are

not living with this illness! Blind in one eye, deaf in one ear,

survived breast and ovarian cancer, and now the brain and spine

cancers. (All NF tumors are not cancerous, but it takes a keen eye

and lots of follow up to KNOW that they are not. It is easy to

ignore them if they are everywhere.) No to mention the abuse that

was heaped on her as a child, and still today by people of all

ages. (She is 50)

We had our kids checked out for it, since her sibs would be

carriers, but if you don't see it by the time they are 3 or 4, you

are really in the clear. She had evident it since birth.

Hope this is a helpful explaination of the disease.

My son is 8 DX with AS

> last year. He is now being refered to a

> > Neurologist. To comfirm his DX and check for anyother

Neurological

> > disorders based on the fact he has an birth mark above his eye.

He

> has

> > always had this Bithmark. Durring a routeen eye exam his DR was

> > concered because she said there is a Neurological disorder

linked

> with

> > his type of Birthmark and Autism traits. My sons PCP agreed with

her

> > and he is set to see this Neurologist in late Feb. I have never

> heard

> > of such a thing in all my reading and the Dr's have been very

vage

> by

> > saying they just want to rule other ND's out.

> >

> > I was wonding if anyone else had heard of this? I am quite

worried

> > about dealing with anything worce then AS.

> >

> > Thanks,

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > 8:00? 8:25? 8:40? Find a flick in no time

> > with the Search movie showtime shortcut.

> >

> >

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