little update

[Guest guest]

Dear Friends,

The last view months we're very busy for my.

Every single week I went to the academic hospital in the south of the

Netherlands (150 miles up and 150 miles down...)

But now we have the results.

I still have neurosarcoidosis, the granulomas meningitis in 2001 were

the first symptoms of the sarcmonster and now I 'm diagnosed with

small fiber neuropathy too.

I will never work as a cardiac nurse again... I can not write anymore

and my memories are worse.

The doctors told my finally that I can not working anymore. The

complications of my neurosarcoidosis are bad. On this moment they try

to find good medication but now I only use pain medication.

In December I will get the answers of my skin biopt, the doctors will

count the nerves in this biopt,

if they are still there...LOL...because I don't feel my feet and

fingers anymore...

Have a good holiday season. Here in the Netherlands we celebrate on

the 5th of December Sinterklaas, with a lot of presents for the

children. My lovely boy (1 year old now) and my daughter (7 years) are

enthusiastic for it.

A big hug from the Netherlands,

Yvonne

[Guest guest]

Dear Yvonne,You will be in my prayers. Blessings,Beckyytvv342002 wrote: Dear Friends, The last view months we're very busy for my. Every single week I went to the academic hospital in the south of the Netherlands (150 miles up and 150 miles down...) But now we have the results. I still have neurosarcoidosis, the granulomas meningitis in 2001 were the first symptoms of the sarcmonster and now I 'm diagnosed with small fiber neuropathy too. I will never work

as a cardiac nurse again... I can not write anymore and my memories are worse. The doctors told my finally that I can not working anymore. The complications of my neurosarcoidosis are bad. On this moment they try to find good medication but now I only use pain medication. In December I will get the answers of my skin biopt, the doctors will count the nerves in this biopt, if they are still there...LOL...because I don't feel my feet and fingers anymore... Have a good holiday season. Here in the Netherlands we celebrate on the 5th of December Sinterklaas, with a lot of presents for the children. My lovely boy (1 year old now) and my daughter (7 years) are enthusiastic for it. A big hug from the Netherlands, Yvonne

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