Ashli Guyton

February 5, 2003

Hi everyone,

Ashli had surgery early this AM to insert a VP shunt for Hydro. I just talked

to Fallon. She said that Ashli is out of surgery, doing pretty good, awake,

and not on any strong pain meds. Fallon was amazed at this: they didn't have

to shave any hair! She also said she only has a tiny scar on her belly

button! I'm sure Ashli will be thrilled with these two parts. The shunt is

programmable and they checked her pressure while they were in there and she

did have high ICP. Please keep the Guyton's in your prayers. I'm sure you

will get a more detailed update from them when they get home. Their e-mail is

Guyton1234@.... Take care! :-)

Joanna/Atlanta (17 years)

You can view my story at:

p/joanna.htm

Chiari 1(17mm), Syrinx C1-T6, Pseudotumor Cerebri syndrome, Ehler-Danlos

Syndrome, Neurocardiogenic Syncope, retroflexed odontoid, cervical

instability, bulging discs, and a bunch of other related anomolies.

Decompression, laminectomy, duraplasty- 7/27/01

Surgical debridement of staph infection- 9/8/01

VP shunt- scheduled for 3/10/03

Decompression, duraplasty, pseudomeningocele repair, cauterization of

cerebellar tonsils, cranioplasty (titanium mesh plate), and fusion- scheduled

for 3/12/03

cmakids/

I can also be reached at Joanna@... or KidsAsk@...

There wouldn't be a heaven full of stars if we were all meant to wish on the

same one. If at times you feel discouraged, look to your star. It was born to

shine brightly, there in the darkness, just as you were born to dream and

never give up. Hold onto your dreams and believe in yourself.

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