Interferon

[Guest guest]

Well, I shot myself up with 9miu of Interferon last night--at about 7:30 PM.  I

woke up at about 2:00 AM with a temperature of 104, shaking.  I put some sweats

on, no help.  Then I threw up everything I'd eaten yesterday at about 4:00 AM. 

My temp was down to 101.8 this morning.

I HATE INTERFERON!

By the way, the only reason I'm posting my Interferon adventures on the CML

groups (while the Interferon is actually part of a regiment for kidney cancer)

is that so many of my CML buddies have gone thru the Interferon mess.  If you've

survived CML for ten or more years you've probably gone thru Interferon before

Gleevec became available.  I think that the 4 years I was on Interferon in the

late 1990's should exempt me from ever taking it again.

Bob , Granger, IN

PS:  My oncologist just called--I'm off Interferon until we meet on Wednesday. 

I'm going to try to talk him into a lower starting dose.  I know I took some

over the counter stuff before (tylenol and benedryl???) but can't remember what

it was. 

[Guest guest]

Oh, thank you for clearing that up, I thought you were already on it LOL !!

a ( Bobby ) Doyle, dob 12/17/29

Brecksville, Ohio, USA

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.017

11/2009 PCR 0.034

#840 Zavie's Zero Club

From: Bob <bob-stewart@ <mailto:bob- stewart%40sbcglo bal.net>

sbcglobal.net>

Subject: [ ] Interferon

" -The New Group " <groups (DOT) <mailto:% 40groups. com>

com>, " CML-Asian Support " <AsianCMLSupportGro u

<mailto:AsianCMLSup portGroup% 40groups. com> pgroups (DOT) com>

Date: Monday, February 22, 2010, 12:43 PM

Well, I shot myself up with 9miu of Interferon last night--at about 7:30 PM.

I woke up at about 2:00 AM with a temperature of 104, shaking. I put some

sweats on, no help. Then I threw up everything I'd eaten yesterday at about

4:00 AM. My temp was down to 101.8 this morning.

I HATE INTERFERON!

By the way, the only reason I'm posting my Interferon adventures on the CML

groups (while the Interferon is actually part of a regiment for kidney

cancer) is that so many of my CML buddies have gone thru the Interferon

mess. If you've survived CML for ten or more years you've probably gone

thru Interferon before Gleevec became available. I think that the 4 years I

was on Interferon in the late 1990's should exempt me from ever taking it

again.

Bob , Granger, IN

PS: My oncologist just called--I'm off Interferon until we meet on

Wednesday. I'm going to try to talk him into a lower starting dose. I know

I took some over the counter stuff before (tylenol and benedryl???) but

can't remember what it was.

[Guest guest]

Wish I was! Lol

Sent via BlackBerry by AT & T

[ ] Interferon

" -The New Group " <groups (DOT) <mailto:% 40groups. com>

com>, " CML-Asian Support " <AsianCMLSupportGro u

<mailto:AsianCMLSup portGroup% 40groups. com> pgroups (DOT) com>

Date: Monday, February 22, 2010, 12:43 PM

Well, I shot myself up with 9miu of Interferon last night--at about 7:30 PM.

I woke up at about 2:00 AM with a temperature of 104, shaking. I put some

sweats on, no help. Then I threw up everything I'd eaten yesterday at about

4:00 AM. My temp was down to 101.8 this morning.

I HATE INTERFERON!

By the way, the only reason I'm posting my Interferon adventures on the CML

groups (while the Interferon is actually part of a regiment for kidney

cancer) is that so many of my CML buddies have gone thru the Interferon

mess. If you've survived CML for ten or more years you've probably gone

thru Interferon before Gleevec became available. I think that the 4 years I

was on Interferon in the late 1990's should exempt me from ever taking it

again.

Bob , Granger, IN

PS: My oncologist just called--I'm off Interferon until we meet on

Wednesday. I'm going to try to talk him into a lower starting dose. I know

I took some over the counter stuff before (tylenol and benedryl???) but

can't remember what it was.

[Guest guest]

Indiana Bob,

I hate interferon, too -- even though I have never had to take it. I hate what

it did to you! Surely your onc will lower the dose. I vote for some weed, too.

Virginia

[ ] Interferon

Well, I shot myself up with 9miu of Interferon last night--at about 7:30 PM.

I woke up at about 2:00 AM with a temperature of 104, shaking. I put some

sweats on, no help. Then I threw up everything I'd eaten yesterday at about

4:00 AM. My temp was down to 101.8 this morning.

I HATE INTERFERON!

By the way, the only reason I'm posting my Interferon adventures on the CML

groups (while the Interferon is actually part of a regiment for kidney cancer)

is that so many of my CML buddies have gone thru the Interferon mess. If you've

survived CML for ten or more years you've probably gone thru Interferon before

Gleevec became available. I think that the 4 years I was on Interferon in the

late 1990's should exempt me from ever taking it again.

Bob , Granger, IN

PS: My oncologist just called--I'm off Interferon until we meet on Wednesday.

I'm going to try to talk him into a lower starting dose. I know I took some

over the counter stuff before (tylenol and benedryl???) but can't remember what

it was.

[Guest guest]

Hi Bob: Yes I remember those Interferon Days, as I wrote back to you in a

message awhile ago. I can really feel for you with having to use it again.

Hope you start feeling better. I knew a guy who was on Interferon when I worked

for my Oncologist. He loved it, and it did not bother him. When they wanted to

put him on the Gleevec, he said WHY I am doing okay. I wonder how he is now.

A.

>

> Well, I shot myself up with 9miu of Interferon last night--at about 7:30 PM. 

I woke up at about 2:00 AM with a temperature of 104, shaking.  I put some

sweats on, no help.  Then I threw up everything I'd eaten yesterday at about

4:00 AM.  My temp was down to 101.8 this morning.

>

> I HATE INTERFERON!

>

> By the way, the only reason I'm posting my Interferon adventures on the CML

groups (while the Interferon is actually part of a regiment for kidney cancer)

is that so many of my CML buddies have gone thru the Interferon mess.  If you've

survived CML for ten or more years you've probably gone thru Interferon before

Gleevec became available.  I think that the 4 years I was on Interferon in the

late 1990's should exempt me from ever taking it again.

>

> Bob , Granger, IN

>

> PS:  My oncologist just called--I'm off Interferon until we meet on

Wednesday.  I'm going to try to talk him into a lower starting dose.  I know I

took some over the counter stuff before (tylenol and benedryl???) but can't

remember what it was. 

>

>

[Guest guest]

Dear Bobby,

I just had this flash of you and me sitting on the deck, smoking pot, and

drinking beer. Might not be a bad way to go.

Bob , Granger, IN

PS: Pot's not legal in Indiana but it is in Michigan, 1/2 mile north of where I

live.

>

> Is marijuana legal in IN?? It might make the Inf. a better " trip " .

>

> a ( Bobby ) Doyle, dob 12/17/29

> Brecksville, Ohio, USA

> DX 5/1995

> Interferon 9 weeks/Hydroxyurea 5 years

> 02/2000 to 06/2002 Gleevec trial, OHSU

> 06/2002 Gleevec/Trisenox Trial, OHSU

> 06/2003 Gleevec/Zarnestra Trial, OHSU

> 04/2004 Sprycel Trial, MDACC, CCR in 10 months

> 04/2008 XL228 Trial, U of Mich.

> 01/2009 PCR 5.69

> 04/2009 Ariad Trial AP24534

> 09/2009 PCR 0.017

> 11/2009 PCR 0.034

> #840 Zavie's Zero Club

>

>

[Guest guest]

LOL you two are a hoot

Anita

________________________________

From: bob1234stewart <bob-stewart@...>

Sent: Tue, February 23, 2010 9:38:54 AM

Subject: Re: [ ] Interferon

Dear Bobby,

I just had this flash of you and me sitting on the deck, smoking pot, and

drinking beer. Might not be a bad way to go.

Bob , Granger, IN

PS: Pot's not legal in Indiana but it is in Michigan, 1/2 mile north of where I

live.

>

> Is marijuana legal in IN?? It might make the Inf. a better " trip " .

>

> a ( Bobby ) Doyle, dob 12/17/29

> Brecksville, Ohio, USA

> DX 5/1995

> Interferon 9 weeks/Hydroxyurea 5 years

> 02/2000 to 06/2002 Gleevec trial, OHSU

> 06/2002 Gleevec/Trisenox Trial, OHSU

> 06/2003 Gleevec/Zarnestra Trial, OHSU

> 04/2004 Sprycel Trial, MDACC, CCR in 10 months

> 04/2008 XL228 Trial, U of Mich.

> 01/2009 PCR 5.69

> 04/2009 Ariad Trial AP24534

> 09/2009 PCR 0.017

> 11/2009 PCR 0.034

> #840 Zavie's Zero Club

>

>

[Guest guest]

>

> Well, I shot myself up with 9miu of Interferon last night--at about 7:30 PM. 

I woke up at about 2:00 AM with a temperature of 104, shaking.  I put some

sweats on, no help.  Then I threw up everything I'd eaten yesterday at about

4:00 AM.  My temp was down to 101.8 this morning.

>

> I HATE INTERFERON!

>

> By the way, the only reason I'm posting my Interferon adventures on the CML

groups (while the Interferon is actually part of a regiment for kidney cancer)

is that so many of my CML buddies have gone thru the Interferon mess.  If you've

survived CML for ten or more years you've probably gone thru Interferon before

Gleevec became available.  I think that the 4 years I was on Interferon in the

late 1990's should exempt me from ever taking it again.

>

> Bob , Granger, IN

>

> PS:  My oncologist just called--I'm off Interferon until we meet on

Wednesday.  I'm going to try to talk him into a lower starting dose.  I know I

took some over the counter stuff before (tylenol and benedryl???) but can't

remember what it was. 

--------------------------------------

Hi Bob,

I was briefly on interferon (3 months of triple therapy at MDACC) and the dose

was 9miu daily.....my first few doses were horrible (painful back cramps, etc)

but then it got better. I used to wait until Jay Leno was on TV to shoot up, so

that I would have something to laugh about. I think we did take tylenol at the

same time, for some of the symptoms.

MDACC gave it to me in a vial....but when I got home I got something MUCH

better....it was an interferon pen (you dial up a dose and then just push the

pen against the skin....very easy...and the easier the better when you are doing

something you don't particularly want to do). I remember later telling Dr.

Druker that my dose was 9miu right from the start and he did not agree with

doing it that way....he thought that you should build up your dose.....so maybe

you will have that option (I know you are taking it for something other than

cml).

I was pretty 'out to lunch' on interferson but I was not as aware of it as my

friends were!!

I hope things go well for you with this treatment. Sounds like your doctor will

work with you.

Best wishes,

C.

[Guest guest]

Lois,

My wife had melanoma for over ten years, so far confined to the left side of her

face. She underwent X-Ray and twice-yearly surgeries cutting out the recurring

lumps, finally resulting in some paralysis and disfigurement. Two years ago I

ran across the story about a doctor in Brentwood, TN who had a patient who had

been melanoma-free for nine years at that time. We immediately visited Dr.

Cantrell and he put her on Interferon and Lovastatin. She has had no further

recurrence of the melanoma although last fall she became intolerant of the

Interferon and Dr. Cantrell then substituted Tagamet for the Interferon. So far

so good. And it turns out that the " patient " was Dr. Cantrell himself who was

told his Stage IV melanoma was terminal and to go find a desert island and---

(you know what). He treated himself with the Interferon and Lovastatin and is

still melanoma-free. Dr. Cantrell is a very fine, caring person and we highly

recommend him. For info, see www.neoplas.org .

Bill

[ ] Interferon

Hi everyone:

Just spoke to the parent of the 24 year old with melanoma stage II.

They are looking into interferon. I have told him it does not work, but I do

not have any data. Anyone with data please forward.

Thanks,

Lois