Re: IVIG and benedryl

[Guest guest]

itsallaboutkreed@... wrote:

>

>

> How necessary is it to give benedryl before a IVIG infusion? my son has

> had the most awful reactions to the benedryl, and we want to stop giving

> it before hand. Is this a bad idea in terms of warding off a reaction,

> or if he has not had a reaction in the past am I safe? Thanks for any

> info, my infusion is tomorrow morning.

from dale, Mom to Katy CVID, age 22

Katy had reactions to Benadryl, so we didn't give anything. If it turns

out that he needs something -- I would think they could find something

besides Benadryl! Benadryl reactions are terrible and I wouldn't put a

kid through it (or the parents!)! There's no reason to believe that he

HAS to have Benadryl -- it's usually just used as a precaution and some

people find that it eases some of the aches and pains that can accompany

IVIG - either by reducing histamine reactions or maybe just the sedative

effect. For Katy, it just wasn't worth it - and it wasn't sedating!!!

Hope that helps and tomorrow goes well.

In His service,

dale

[Guest guest]

Its to prevent reactions. How is he getting it? We had to switch from oral

to IV benedryl due to reactions.

[Guest guest]

we give dye free capsules, we have never used the IV kind

---- <glutenfree@...> wrote:

> Its to prevent reactions. How is he getting it? We had to switch from oral

> to IV benedryl due to reactions.

>

>

>

>

[Guest guest]

Thank you your response did help reassure me!

---- Dale Weatherford <dale@...> wrote:

> itsallaboutkreed@... wrote:

> >

> >

> > How necessary is it to give benedryl before a IVIG infusion? my son has

> > had the most awful reactions to the benedryl, and we want to stop giving

> > it before hand. Is this a bad idea in terms of warding off a reaction,

> > or if he has not had a reaction in the past am I safe? Thanks for any

> > info, my infusion is tomorrow morning.

>

>

> from dale, Mom to Katy CVID, age 22

>

> Katy had reactions to Benadryl, so we didn't give anything. If it turns

> out that he needs something -- I would think they could find something

> besides Benadryl! Benadryl reactions are terrible and I wouldn't put a

> kid through it (or the parents!)! There's no reason to believe that he

> HAS to have Benadryl -- it's usually just used as a precaution and some

> people find that it eases some of the aches and pains that can accompany

> IVIG - either by reducing histamine reactions or maybe just the sedative

> effect. For Katy, it just wasn't worth it - and it wasn't sedating!!!

>

> Hope that helps and tomorrow goes well.

> In His service,

> dale

[Guest guest]

We do not give benedryl before the

infusion...her first one was when she was hospitalized

for her FOD and the doctor never ordered it. If the

benadryl is making him sick I would suggest to the

doctor that they not give it to him. You don't want

him to get sick and throw up with having a FOD. Good

luck with the infusion.

Take care,

Candise Ott

mom to (LCHAD, IgG def. and more)20 months

(carrier) 20 months

Kadian(carrier) 3 years

Norfolk,VA

--- itsallaboutkreed@... wrote:

> How necessary is it to give benedryl before a IVIG

> infusion? my son has had the most awful reactions

> to the benedryl, and we want to stop giving it

> before hand. Is this a bad idea in terms of warding

> off a reaction, or if he has not had a reaction in

> the past am I safe? Thanks for any info, my

> infusion is tomorrow morning.

>

__________________________________________________

[Guest guest]

We also have negative side effects, but found that Atarax works great.

Kathleen

>

> How necessary is it to give benedryl before a IVIG infusion? my son

has had the most awful reactions to the benedryl, and we want to stop

giving it before hand. Is this a bad idea in terms of warding off a

reaction, or if he has not had a reaction in the past am I safe?

Thanks for any info, my infusion is tomorrow morning.

>