RE: Re: drenching sweats

[Guest guest]

INTERESTING THE SWEATS,ME BEING A MALE 65 NEVER HAD A PROBLEM LIKE THAT.hOW

ABOUT IT MALES ANY OF YOUALL HAD SWEATS.

ps I WILL BE A YEAR 23 DEC 06 FISH TEST WAS 3% FROM 0 LAST WAS IN NOV. HANG IN

THERE PAUL TN.

[ ] Re: drenching sweats

Hi Vicki,

I know exactly how annoying those drenching sweats can be. Before I

was diagnosed I would have them at night. It got so bad that I

actually had to sleep with a bath towel and in the mornings it would

be soaked to the point where it wouldn't even dry for the next

night.

I still get night sweats even now, although they're not as bad as

they were. It's still annoying though and scary too since it

sometimes makes me question if I'm losing my response. I've often

said that I'm more than ready for menopause since I've had so much

practice with the sweats already

It takes some time to get used to life with CML but it does get

easier. I hope you get a BMB soon so you can see how you're doing.

When you know that you're doing well, you'll see how fast your

depression turns to elation.

Take care,

Tracey

> > > >

> > > > Hi there,

> > > >

> > > > Today my primary oncologist told me that my FIST test on Dec

15

> > is

> > > > ZERO. I am very happy about the news. I was 96% at

diagnoised

> > in

> > > Aug

> > > > 12, 06. I started Gleevec on Sept 4, 06. So I am on Gleevec

> 3.5

> > > > months (some period was 400mg and some 300mg because of low

> white

> > > > count). He referred me to see a leukemia specialist when the

> > FISH

> > > was

> > > > done. The specialist doctor said I need to stay 400mg and

just

> > > make

> > > > sure the ANC not below 500. So I see both doctors

> alternatively.

> > > >

> > > > Is it normal to have a quick response to Gleevec? Or I am

the

> > > lucky

> > > > one.

> > > >

> > > > Thanks for reading.

> > > > Siu

> > >

> >

>

__________________________________________________

[Guest guest]

My husband had sweats so bad b/f diagnosed with CML and after with

Gleevec...at first he thought the kids had wet our bed (we co-sleep -

family bed -haha - basically a friendly way of saying our kids boot us

out of bed!) The bed was soaked night after night and even over the

last few months he still has bad sweats but realizes it is pretty

normal with CML and also with being on Gleevec...I just make sure he

drinks tons of water to replenish fluids ..

-shalyn

> INTERESTING THE SWEATS,ME BEING A MALE 65 NEVER HAD A PROBLEM LIKE

> THAT.hOW ABOUT IT MALES ANY OF YOUALL HAD SWEATS.

>

> ps I WILL BE A YEAR 23 DEC 06 FISH TEST WAS 3% FROM

> 0 LAST WAS IN NOV. HANG IN THERE

> PAUL TN.

>

[Guest guest]

O!!! YIPPEEE!!!

Number 1032 in the Zero Club

Zavie

Zavie (age 68)

67 Shoreham Avenue

Ottawa, Canada, dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

PCRU 5/02 at RVH

2.8 log reduction Sep/05

3.0 log reduction Jan/06

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

Re: [ ] Re: drenching sweats

INTERESTING THE SWEATS,ME BEING A MALE 65 NEVER HAD A PROBLEM LIKE THAT.hOW

ABOUT IT MALES ANY OF YOUALL HAD SWEATS.

ps I WILL BE A YEAR 23 DEC 06 FISH TEST WAS 3% FROM 0 LAST WAS IN NOV. HANG

IN THERE PAUL TN.

[Guest guest]

Dear friends,

My name is Iris and I live in Vancouver, Canada. My twin sister Ilana lives

in South Africa and was diagnosed with CML last month.

Since then, I have been reading and investigating every bit of information I

could find on CML and while corresponding with a CML patient in the US, I

had an idea that I would like to run by the group.

The activity in this support group serves to prove how important it is for

CML patients and their families to interact with each other. There is so

much that we keep learning from one another and besides, we draw strength

and courage from hearing each others' stories.

What do you think about the idea of holding an annual or bi-annual CML

convention, each time in a different venue?

The convention would comprise lectures by top experts in the field who would

share the latest research and where it is leading, provide us with

statistics and latest treatment options. In addition, supporting natural

treatments could be demonstrated and pharmaceutical companies could

advertise (after getting the green light from experts) some drugs that help,

say, with side effects.

I am thinking that we could all use our connections and come up with a way

to finance such a convention-be it through sponsored airfare, minimal (if

any) hotel costs or accommodation by local families, free outings (there has

to be an element of fun too!) and meals etc.

In return for sponsoring the event, participants could provide information

to researchers, universities, pharmaceutical companies etc. The information

they can gather from participants could prove invaluable to their research

and subsequent new treatment.

I would love to hear your thoughts.

Wishing everyone a wonderful weekend and looking forward to hearing your

comments and ideas,

Iris