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Hi and all other CLLers,

I have just seen my oncologist about my relapse and he says now that I do not

have CLL or SLL at all, I have lymphoplasmacytic lymphoma, aka Waldenstrom's

macroglobulinemia. Just the sound of it is enough to make a person feel sick.

This is my third diagnosis in the space of a year. I am feeling very down

because the limited research I have done so far (this p.m.) shows a low median

survival rate and horrible complications with this disease. I think I have found

an on-line support group for it, but am waiting for confirmation.

Starting over again, going through the information-gathering process again, it

all seems too much right now. And I'm getting e-mails from two support groups as

it is. I think I have to unsubscribe, much as I have appreciated hearing from

all of you. It was a pleasure to meet some of you in San Francisco and I wish

you all the best, and as merry a Christmas as you can possibly have in the

circumstances!

Sybil Whitman

Fredericton, NB, Canada