Re: wrong diagnosis

[Guest guest]

In a message dated 7/4/2008 7:03:59 P.M. GMT Daylight Time, wbruno@...

writes:

trying to do this by myself has been nothing short of a living

> nightmare.

> Thank you

> mick bellis

My Heart goes out to you my friend. Try Nextup.org for info and

Elrctrosensitivity.uk

[Guest guest]

Wow. If it's really over the legal limit you might try to get

a professional to measure the level. In the US the protocol is to

average over a few feet. Maybe try a lawyer?

Microwaves can be shielded with aluminum foil, flyscreen, etc.

Bill

On Fri, Jul 4, 2008 at 3:14 AM, mickbellis <mickbellis@...> wrote:

> Hello There.

>

> This is my first time so i hope i am doing this right.

>

> I have been suffering from severe ES for over 5 years.All the usual

> signs plus a few more.

> My house was/is retaining electricity the microwave readings are 3

> and a half times the leagal limit. I have family and friends who have

> witnessed this on a regular basis.But when i went to my GP he brought

> in the mental health team needless to say i ended in a mental home as

> i was told i was delusional and was,nt able to look after myself.

> Although i was in a state (stressed, fatiguied, and extremly scared)

> They seen me in a different light.

> Its been over 4 years now and because i believe it is ES there,s no

> hope for me when i try to change there minds.

> I have no previous medical history, I have never threatend or hurt

> anyone. All,s i tried to do was get help with my condition and for

> that i got locked up and am now on the mental health register and

> they completly wont hear of any ES or anything to do with it, even

> when i have took them some old reports i managed to dig up. I sent my

> tale to a professor in bristol and he gave me your address. So if

> there,s anything you can do to help i would be over the moon as

> trying to do this by myself has been nothing short of a living

> nightmare.

> Thank you

> mick bellis

>

>

>

[Guest guest]

Their textbooks and medical literature tell them ES is

a psychosomatic response, and the idiots beleive it. Change

your course, drop the ES story for something iike neurotoxicity,

neuropathy.

Eli

>

> Hello There.

>

> This is my first time so i hope i am doing this right.

>

> I have been suffering from severe ES for over 5 years.All the usual

> signs plus a few more.

> My house was/is retaining electricity the microwave readings are 3

> and a half times the leagal limit. I have family and friends who

have

> witnessed this on a regular basis.But when i went to my GP he

brought

> in the mental health team needless to say i ended in a mental home

as

> i was told i was delusional and was,nt able to look after myself.

> Although i was in a state (stressed, fatiguied, and extremly

scared)

> They seen me in a different light.

> Its been over 4 years now and because i believe it is ES there,s no

> hope for me when i try to change there minds.

> I have no previous medical history, I have never threatend or hurt

> anyone. All,s i tried to do was get help with my condition and for

> that i got locked up and am now on the mental health register and

> they completly wont hear of any ES or anything to do with it, even

> when i have took them some old reports i managed to dig up. I sent

my

> tale to a professor in bristol and he gave me your address. So if

> there,s anything you can do to help i would be over the moon as

> trying to do this by myself has been nothing short of a living

> nightmare.

> Thank you

> mick bellis

>

[Guest guest]

Mike - Do you have another option as far as a local (or more local) oncologist who would work through the doctor you saw at Ohio State (Dr. Byrd?) Many people do that.PatOn Thu, Nov 26, 2009 at 10:31 AM, Murray <murray@...> wrote:

 

I was diagnosed with Waldenstroms Macroglobulinemia in August. My dr kept

referring to Mylenoma. I kept saying you mean WM right, and she wouldn't say

anything. Last week she sent me to Ohio State for a second opinion. They

reviewed the pathology report and determined I have CLL. The original bone

marrow biopsy said consistent with CLL. I was given velcade for 3 months

which turns out to be the wrong treatment for CLL. So now instead of being

half done with treatments I have to start over. I don't know what to do now.

I feel like I should go to Ohio State but it is a long way away and

treatments were convenient here. I have lost the trust I once had. Just

can't believe this happened. Has anyone ever had this happen or heard of it

happening to someone you know? Thanks Mike

[Guest guest]

Mike:

I have CLL/SLL and have been evaluated at OSU over the past three years. I have one exam per year. I needed treatment this July and Dr. Byrd suggested Sol Metrol plus R. I had the treatment locally.

Did Dr. B suggest velcade or was that your local Onc? I have the highest respect for the judgement of OSU and

would make very effort to get a final diagnosis from them and a treatment option (s).

Wrong Diagnosis

I was diagnosed with Waldenstroms Macroglobulinemia in August. My dr kept referring to Mylenoma. I kept saying you mean WM right, and she wouldn't say anything. Last week she sent me to Ohio State for a second opinion. They reviewed the pathology report and determined I have CLL. The original bone marrow biopsy said consistent with CLL. I was given velcade for 3 months which turns out to be the wrong treatment for CLL. So now instead of being half done with treatments I have to start over. I don't know what to do now. I feel like I should go to Ohio State but it is a long way away and treatments were convenient here. I have lost the trust I once had. Just can't believe this happened. Has anyone ever had this happen or heard of it happening to someone you know? Thanks Mike

[Guest guest]



I was diagnosed by my local dr The bone marrow biopsy said consistent with CLL. A local infectious disease dr said WM so my dr went with WM because I have high igm. Have you ever heard of high igm with cll before? I guess it is rare but does happen. What has your treatment been over the last 3 years? What did you start with? From what I understand this is something that you can live with a long time if treated right.

Thanks Mike

Wrong Diagnosis

I was diagnosed with Waldenstroms Macroglobulinemia in August. My dr kept referring to Mylenoma. I kept saying you mean WM right, and she wouldn't say anything. Last week she sent me to Ohio State for a second opinion. They reviewed the pathology report and determined I have CLL. The original bone marrow biopsy said consistent with CLL. I was given velcade for 3 months which turns out to be the wrong treatment for CLL. So now instead of being half done with treatments I have to start over. I don't know what to do now. I feel like I should go to Ohio State but it is a long way away and treatments were convenient here. I have lost the trust I once had. Just can't believe this happened. Has anyone ever had this happen or heard of it happening to someone you know? Thanks Mike