Re: steroids and hot flashes

[Guest guest]

Pyle--I am planning on looking into that book. I have been on steroids for a

majority of the past year and a half and I feel as if I am fighting an internal

war. A war that most of us have faced--I am exhausted with moderately high

blood pressure, asthma that worsems coming down off of them, blood sugar which

is akin to a roller coaster plus the xolair makes me feel worse inside of

buildings but better outside! A nurse told me my body is fighting things like

old cat reactions (to which my rast result was 16,500--yes sixteen thousand) and

does not have as much to fight out of doors which makes a lot of sense. I am

going with the flow here and like all of you, it is my intention to win this

internal battle. May each of you have a blessed holiday!!! Leigh

pyle456 <coachmac@...> wrote: I get steroid-triggered hot

flashes. They are terrible. When Xolair

first started kicking in three years ago and I was coming off steroids

after months of monthly or twice-monthly tapers, I had such a hard

time that I went to my GP about it, fearing that I had early onset

menopause. She did some blood work and urinalysis (for a number of

things) and was able to determine that I did not have early onset

menopause. Check with your GP. There's also a great book called

" Coping with Prednisone " that was written by a doctor and her sister,

who needed large quantities of pred for a chronic illness. Gives good

suggestions for dealing with the evil candy and its side effects.

Addy

Group Co-owner

Make sure to discuss all changes to your treatment plan with your own

physician.

>

> I have Hashimoto's Hypothyroidism and wonder if others also have an

> auto-immune issue. I have seen a few of you mention diabetes. Does

anyone

> know if Xolair will have an impact on that part of our immune system.

> Basically my body attacked my thyroid and has partially destroyed it.

>

> Also has anyone seen an impact on something like Hashimoto's and

bouncing on

> and off steroids - including the inhaled and oral? My menstrual

cycles are

> all messed up too and I think it is all connected to the increased

steroid

> intake. Problem is that thyroid hormone replacement is checked

monthly or

> every 3 months while the steroid bursts have been 5-15-25 days in

length at

> times? My inhaled use increased from 100/50 once a day to a year later

> 500/50 twice a day of Advair and I did seem to need more supplement.

But we

> haven't checked since the prednisone bursts. I feel like a yo-yo at

times

> with the steroids.

>

> Does anyone have a good resource for women/asthma/pre-menopausal?

What side

> effects belong to what? Right now I am assuming I am having steroid

> triggered hot flashes, but I would love to talk to other women in

the same

> boat. Is there a good loop or board for those kind of questions?

>

> Thanks,

>

> B.

>

>

>

>

[Guest guest]

Oh can I relate to this one! My thyroid bit the dust aout 7 years

ago.The steroids send my thyroid levels soaring.(the highest was

52;normal is less than 4) Unlike diabetes, correcting a TSH isn't

immediate, it takes about 6 wks. There is a website called the

steroid warning network; everyone there has dealt with the side

effects of the evil candy. They were a BIG help to me. I was in the

hospital with half a lung looking like swiss cheese,(aspergillis

destroyed it) and my O2 sats never dropped below 95%. I even had

some RN's think I was faking the severity of my attacks;until they

listened to my lungs! Xolair is worth every cent just to keep me off

the evil candy.

becki

> >

> > I have Hashimoto's Hypothyroidism and wonder if others also have

an

> > auto-immune issue. I have seen a few of you mention diabetes.

Does

> anyone

> > know if Xolair will have an impact on that part of our immune

system.

> > Basically my body attacked my thyroid and has partially

destroyed it.

> >

> > Also has anyone seen an impact on something like Hashimoto's and

> bouncing on

> > and off steroids - including the inhaled and oral? My menstrual

> cycles are

> > all messed up too and I think it is all connected to the

increased

> steroid

> > intake. Problem is that thyroid hormone replacement is checked

> monthly or

> > every 3 months while the steroid bursts have been 5-15-25 days in

> length at

> > times? My inhaled use increased from 100/50 once a day to a year

later

> > 500/50 twice a day of Advair and I did seem to need more

supplement.

> But we

> > haven't checked since the prednisone bursts. I feel like a yo-yo

at

> times

> > with the steroids.

> >

> > Does anyone have a good resource for women/asthma/pre-menopausal?

> What side

> > effects belong to what? Right now I am assuming I am having

steroid

> > triggered hot flashes, but I would love to talk to other women in

> the same

> > boat. Is there a good loop or board for those kind of questions?

> >

> > Thanks,

> >

> > B.

> >

> >

> >

> >