Re: Meagan's trials

[Guest guest]

Hi Meagan:

After reading your first post, I am amazed at what you went through. My

first thought was that you have what my doctor called " silent asthma, " where the

lungs clamp down and you don't notice wheezing. The other thought I had was

that you should have been given your nebulizer treatments with CPAP while in

hospital since your lower lobes were clamped down. Matt can tell you more about

this, but the little bit of pressure helps open the airways so the medicine gets

all the way into your lungs. My third thought was that you shouldn't have been

sent home from the ED. If you don't feel well enough, you can insist that you

don't feel well enough to go home and they will usually admit you or at least

treat further.

Glad you're doing better. What is your major in college?

Carol

Meagan wrote:

Good news! -- I just got back from my pulmonologist and my PFT's today

were as my doctor described " almost near normal " which is a big deal

for me, he said that my increased cough and chest pressure is due to

my airways finally 'popping open' and its just a feeling I'm not used

to. Its generally not a good thing to be coughing as much as I am, and

the pressure isn't a good thing either he said, but relatively

speaking... its an improvement. He said to remember how it feels

because, unfortunately, it probably won't last all that long... but

that he's thrilled and he said I get a 'standing ovation' today. Of

course, we're keeping all my meds the same for the time being

because... why mess with success at this stage? And I'll continue to

see him or at least speak with him on a weekly basis for the next few

months at least but, as he put it... " sometimes you just need to take

2 steps back in order to take 3 steps forward... as long as the net

movement is in the right direction -- i'm happy " So, for now at least,

I'm ok -- yay! Anyway, just thought I'd share... its funny -- I hadn't

posted in months and today i've posted 3 times . Anyway, thank you

everyone for reading and for your kind words... they are much

appreciated.

[Guest guest]

Carol,

Thanks for your suggestions, I wasn't send home from the ER,

they admitted me for 3 days (not fun, but apparently I needed it) -

sorry if that wasn't clear in my first post. My major in college is

biology/pre-med -- my primary doctor says they should just let me

into med school now lol - who needs organic chemistry anyway?? And,

yes, my pulmonologist believes that I do have silent asthma -- which

he also calls brittle asthma -- my lungs are one extreme or the

other, and usually a combination thereof -- either i'm completely

open or clamped down -- usually i'm completely open in my upper

lobes and completely clamped down in at least part of my lower

lobes.... as my doctor says -- I keep things interesting . I have

never heard of using CPAP for neb treatments -- I know that my uncle

uses CPAP for sleep apnea -- but I have never heard of using it for

any purpose other than that... interesting idea -- I'll ask my pulmo

about it when I see him again next week. Again, thanks for your

input, its appreciated.

Have a nice day!

<3 Meagan

> Good news! -- I just got back from my pulmonologist and my PFT's

today

> were as my doctor described " almost near normal " which is a big

deal

> for me, he said that my increased cough and chest pressure is

due to

> my airways finally 'popping open' and its just a feeling I'm not

used

> to. Its generally not a good thing to be coughing as much as I

am, and

> the pressure isn't a good thing either he said, but relatively

> speaking... its an improvement. He said to remember how it feels

> because, unfortunately, it probably won't last all that long...

but

> that he's thrilled and he said I get a 'standing ovation'

today. Of

> course, we're keeping all my meds the same for the time being

> because... why mess with success at this stage? And I'll

continue to

> see him or at least speak with him on a weekly basis for the

next few

> months at least but, as he put it... " sometimes you just need to

take

> 2 steps back in order to take 3 steps forward... as long as the

net

> movement is in the right direction -- i'm happy " So, for now at

least,

> I'm ok -- yay! Anyway, just thought I'd share... its funny -- I

hadn't

> posted in months and today i've posted 3 times . Anyway, thank

you

> everyone for reading and for your kind words... they are much

> appreciated.

>

>

>

>