Re: Digest Number 1905

[Guest guest]

In a message dated 7/2/01 3:31:44 AM Eastern Daylight Time,

writes:

<<

Also, there was an interesting article in today's Canadian Globe and

Mail discussing an alternative treatment for depression involving high

doses of vitamins and minerals. See:

http://www.globeandmail.com/gam/Health/20010630/FCSCIEY.html

>>

This is not new therapy.... the field of ortho-molecular medicine

focuses on using vitamins and minerals to restore the body.

At a recent barn estate sale I found the following book " Mega-Nutrients

for your nerves " by H.J. Newbold, MD, psychiatrist, Wyden, 1975. Very good

reading with cases of severe mental illness he successfully treated with this

nutritional approach.

There is also a book entitled " Food and Mood " , can't remember the author.

I find the supplement, SAM-e, a naturally occuring substance in our

bodies, the single most effective agent in dealing with these issues. I also

do take significant amounts of vitamins and minerals.

[Guest guest]

Hi Kathy,

I have AIH, Lupus and Fibromyalgia and I had breast cancer. I know its been

a full plate for me for some time now. My friends want to be helpful and

they don't know what to say or do, so they say things like, " why don't you

try this herb or bee pollen " or any natural approach. They don't understand,

that what I have has no cure. It can be control with certain drugs. Right

now I have been on Medrol (MethylPrednisolone) for years now. I am on a low

dose, but its the only way I can have a life and be able to function. The

dose is probably not enough to control the AIH, but I have diabetes so my

doctor does not want to raise it right now, unless I have a bad flare of the

AIH or the Lupus. They are considering Imuran, but being I had cancer, its a

tough choice. Right now I am on Actigall and Medrol as well as medication

for the diabetes. I have to be so careful, even what I eat affects me. I

will not take anything unless I check it with the doctor. I know my friends

mean well.

Rose

Freeport, NY

[Guest guest]

Hello everyone---

My name is a and was diagnosed with AIH in Nov. 2000. I am not

sure if this message is being sent the right way, and would appreciate

it if someone could let me know. I would love to be able to share, ask

questions and make new friends. You all seem so kind, tender and

compassionate. Happy Holiday!

[ ] Digest Number 1905

[Guest guest]

Rose. You seem to have very good friends that just want to help. I have the same thing. No one understands that there is no cure, but only are we able to control it with medications. You have a good approach on not doing anything without the consent of your doctor. I'm just on Imuran right now and hopefully will be able to cut that down in January. I have to watch what I eat but sometimes it's hard especially with the holidays and all that good baking everyone is doing. Take care. ann Re: [ ] Digest Number 1905 Hi Kathy,I have AIH, Lupus and Fibromyalgia and I had breast cancer. I know its beena full plate for me for some time now. My friends want to be helpful andthey don't know what to say or do, so they say things like, "why don't youtry this herb or bee pollen" or any natural approach. They don't understand,that what I have has no cure. It can be control with certain drugs. Rightnow I have been on Medrol (MethylPrednisolone) for years now. I am on a lowdose, but its the only way I can have a life and be able to function. Thedose is probably not enough to control the AIH, but I have diabetes so mydoctor does not want to raise it right now, unless I have a bad flare of theAIH or the Lupus. They are considering Imuran, but being I had cancer, its atough choice. Right now I am on Actigall and Medrol as well as medicationfor the diabetes. I have to be so careful, even what I eat affects me. Iwill not take anything unless I check it with the doctor. I know my friendsmean well.RoseFreeport, NY

[Guest guest]

Rose,

I understand what you mean about your friends not understanding that

there is no cure for these things. I heard one friend tonight telling

someone else that a mutual friend couldn't be around people because

he could catch everything ( he is on chemo for cancer). This is the

same friend that exposed to to the flu last week. I wish there was

something written up that I could give to him to nicely explain that

I am in the same situation as the one with the cancer. I guess

because I don't look sick now, he thinks everything is fine and I am

in no danger.

I also have AIH,cirrhosis and Fibromyalgia. I check out everything

the drs prescribe, plus I look them up on the internet for

interactions and to see if they are liver toxic. My sister, who

works for a poison control center, also checks them out for me.

Right now I am having a fibro flare and have been very uncomfortable

for the last few days. The muscle spasms are the worst I have had in

a long time.

Hang in there,

Joanna in Wa state

AIH 8/01

Fibromyalgia 99

> Hi Kathy,

> I have AIH, Lupus and Fibromyalgia and I had breast cancer. I know

its been

> a full plate for me for some time now. My friends want to be

helpful and

> they don't know what to say or do, so they say things like, " why

don't you

> try this herb or bee pollen " or any natural approach. They don't

understand,

> that what I have has no cure. It can be control with certain

drugs. Right

> now I have been on Medrol (MethylPrednisolone) for years now. I am

on a low

> dose, but its the only way I can have a life and be able to

function. The

> dose is probably not enough to control the AIH, but I have diabetes

so my

> doctor does not want to raise it right now, unless I have a bad

flare of the

> AIH or the Lupus. They are considering Imuran, but being I had

cancer, its a

> tough choice. Right now I am on Actigall and Medrol as well as

medication

> for the diabetes. I have to be so careful, even what I eat affects

me. I

> will not take anything unless I check it with the doctor. I know

my friends

> mean well.

>

> Rose

> Freeport, NY

[Guest guest]

Your message made it and your questions and friendship are very welcome. We all need it!! I was just recently diagnosed and they have been tremendous!!!

Bethanne

[Guest guest]

Joanna,

I hope they get your flare up under control. That sounds like it could be pretty miserable. Just wanted you to know your in my thoughts. Take care!!

Bethanne

[Guest guest]

Hi Harper,

I just wanted to thank you for responding & sharing with me about

anemia. I appreciate your wisdom! And not once did I think you were

going on about yourself. It is just nice to share with someone who

truly understands the full effects of the disease. I would have

responded earlier, however, have been out of it. I have a severe ear

infection and have been in bed taking Cipro and Loratab. The doctor

wanted me to be in the hospital on IV antibiotics, but I asked that we

try the oral procedure first. My daughter is getting married this

Friday and there is so much to do. I did make a promise to myself and

the doctor that if I didn't feel as if I am any better by Monday, I will

go back and try his way. He said I basically have NO immune system left

and must take all of this very serious.

Again, I just wanted to say thank you and I look forward to getting to

know you, as well as everyone else. This is a great group!

Happy Holidays to all!

a

[ ] Digest Number 1918

[Guest guest]

I do hope you start feeling better and congratulations on your daughters wedding. Don't overdo it!!! Easier said than done though I know. Good luck with everything and keep us updated.

Bethanne

[Guest guest]

Oh what fun! A wedding! With any luck, I am going to get to have a wedding next year....IF my daughter gets her act together! She and her boyfriend want to date a little longer before getting married. They will have gone together 1 year on Valentine's Day! What romantics the two of them are! Have a wonderful week a...and have a great wedding!!!!!debby

RE: [ ] Digest Number 1905

Hi Harper,I just wanted to thank you for responding & sharing with me aboutanemia. I appreciate your wisdom! And not once did I think you weregoing on about yourself. It is just nice to share with someone whotruly understands the full effects of the disease. I would haveresponded earlier, however, have been out of it. I have a severe earinfection and have been in bed taking Cipro and Loratab. The doctorwanted me to be in the hospital on IV antibiotics, but I asked that wetry the oral procedure first. My daughter is getting married thisFriday and there is so much to do. I did make a promise to myself andthe doctor that if I didn't feel as if I am any better by Monday, I willgo back and try his way. He said I basically have NO immune system leftand must take all of this very serious.Again, I just wanted to say thank you and I look forward to getting toknow you, as well as everyone else. This is a great group!Happy Holidays to all!a-----Original Message-----From: [mailto: ] Sent: Friday, December 14, 2001 10:48 PM Subject: [ ] Digest Number 1918