Re: ILADS treatment

January 3, 2006

I am on Zithromax 600 and I am supposed to add Doxie plus I use Fluconazol

(Diflucan). I have added the Doxie a few times and I get a bad stomach ache.

But it also seems to do something good to my bronchial tubes. Like possibly

there is infection there that the Zithromax is not reaching. However I believe

the Doxie was prescribed for Babesia for which lab work has come back as

negative. However, absence of proof is not proof of absence. This is why I

have not added or felt compelled to add the Doxie. I guess at this point the

response is call your Doctor. Right.

This is the highest dose of Zithro I have ever taken. It has always been Rx'd

for when I wanted to do a lab test and mega dose on Abx to get the Lyme

aggravated.

Tomorrow.

First thing.

Millie

<scorpionallure@...> wrote:

Here is what ILADs says-I know it is just a guide but it looks like

this dr. is on course.

Dosage

Increasingly, clinicians recommend that certain drugs used for Lyme

disease be given at higher daily doses: for example, 3,000–6,000 mg

of amoxicillin, 300–400 mg doxycycline, and 500–600 mg of

azithromycin. Some clinicians prescribe antibiotics using blood

levels to guide higher doses. Close monitoring of complete blood

counts and chemistries are also required with this approach.

With higher doses, there may be an increase in adverse events in

general and gastrointestinal problems in particular. Acidophilus has

reportedly reduced the incidence of Clostridium difficile colitis and

non-C. difficile antibiotic-related diarrhea.

January 3, 2006

>

> I am on Zithromax 600 and I am supposed to add Doxie plus I use

Fluconazol (Diflucan). I have added the Doxie a few times and I get

a bad stomach ache.

Millie,

Doxy is not for Babesia. Doxy treats some strains of Lyme and is

also prescribed for Rocky Mtn Spotted Fever and Erhlichia.

Curious about you Zithromax dosing. Are you taking it every day or

every other day? I want to ask my new dr to put me back on it, but I

want to know what dosage other drs are giving Lymies. My old LLMD

had me on 500 mgs every other day. I assume that is because Zithro

has a long half-life.

> But it also seems to do something good to my bronchial tubes.

Like possibly there is infection there that the Zithromax is not

reaching. However I believe the Doxie was prescribed for Babesia

for which lab work has come back as negative. However, absence of

proof is not proof of absence. This is why I have not added or felt

compelled to add the Doxie. I guess at this point the response is

call your Doctor. Right.

>

> This is the highest dose of Zithro I have ever taken. It has

always been Rx'd for when I wanted to do a lab test and mega dose on

Abx to get the Lyme aggravated.

>

> Tomorrow.

>

> First thing.

>

> Millie

>

January 3, 2006

DOXY IS NOT PRESCRIBED FOR BABS, IN LYME IT IS PRESCRIBED FOR Bb And

EHRLICHIA

> Here is what ILADs says-I know it is just a guide but it looks like

> this dr. is on course.

>

> Dosage

>

> Increasingly, clinicians recommend that certain drugs used for Lyme

> disease be given at higher daily doses: for example, 3,000–6,000 mg

> of amoxicillin, 300–400 mg doxycycline, and 500–600 mg of

> azithromycin. Some clinicians prescribe antibiotics using blood

> levels to guide higher doses. Close monitoring of complete blood

> counts and chemistries are also required with this approach.

>

> With higher doses, there may be an increase in adverse events in

> general and gastrointestinal problems in particular. Acidophilus has

> reportedly reduced the incidence of Clostridium difficile colitis and

> non-C. difficile antibiotic-related diarrhea.

>

January 4, 2006

It is daily. I had to go look at the bottle. He could have told me to take

while standing on my head everyother day. I have been so stressed out.

I've asked about that before because it has that long life I was wondering if

I could be herxing just about all the time which is how I have felt ever since

I've been on this dose. Three months now.

It is miserable having my LLMD so far away.

I added the full 300mg Doxie. Although I hear about some of the meds some

folks are on and I feel like a whimp.

Millie

wtptoo <wtptoo@...> wrote:

>

> I am on Zithromax 600 and I am supposed to add Doxie plus I use

Fluconazol (Diflucan). I have added the Doxie a few times and I get

a bad stomach ache.

Millie,

Doxy is not for Babesia. Doxy treats some strains of Lyme and is

also prescribed for Rocky Mtn Spotted Fever and Erhlichia.

Curious about you Zithromax dosing. Are you taking it every day or

every other day? I want to ask my new dr to put me back on it, but I

want to know what dosage other drs are giving Lymies. My old LLMD

had me on 500 mgs every other day. I assume that is because Zithro

has a long half-life.

January 4, 2006

millie

the spect scan is very useful in lyme disease in that it shows brain

metabolism and function...I have had three and also pet and I am fine.....it

will also put the diagnosis to bed...

eric

Millie <millie_miller@...> wrote:

OK. I am taking it now anyway. I have a Rx to have a Spec Scan but I had an

MRI and the two Dr's local both could not get to their phone fast enough to tell

me You don't have Lyme disease. It was on my cell phone a message from each

one. You don't have Lyme Disease. You Don't have Lyme Disease. I felt like the

school bullies were calling me names. That could not be Lyme paranoia. I

didn't think so.

I know from the E-mails on this site MRI's don't mean much for diagnoses of

Lyme. My LLMD told me to do it just because he said it would be fun.

It did show I have a clot in a area where it would not mean anything unless I

had Migraine headaches and Panic Attacks.

Bingo nail right on the head.

Migraines and Panic attacks.

Needless to say I haven't been in a hurry to get the Specter Scan. Am I

wrong.

Learning more everyday.

Millie

January 4, 2006

Millie

Don't feel like a wimp- each of us are different with different

genetics, different spiro loads, different co infections and loads

and different stressors and above all different places where the

lyme and company has decided to call home.

We all learn from each other and have to support each other, most

folks don't have a clue and even if they're open to it many don't

even realize supplements and etc are good things either. I know

until last year I didn't have a clue. It's an eye opener, but I know

it exists. I know supplements/meds etc are helping, so I have to

just keep putting one foot in front of the other and keep learning.

Take care

Rose Marie

>

> It is daily. I had to go look at the bottle. He could have told

me to take while standing on my head everyother day. I have been so

stressed out.

>

> I've asked about that before because it has that long life I was

wondering if I could be herxing just about all the time which is how

I have felt ever since I've been on this dose. Three months now.

>

> It is miserable having my LLMD so far away.

>

> I added the full 300mg Doxie. Although I hear about some of the

meds some folks are on and I feel like a whimp.

>

> Millie

>

January 6, 2006

I am sorry but I Am a major linguist and the words put it to bed just shook

me. So What do you mean you took the test and you are fine. I am not afraid

of the test. I just don't need to be proving anything especially to Dr. H. he

doesn't doubt my Illness at all.

The thing that troubled me about the magazine is, if I got it, they, the

magazine article claimed Lyme caused mental illness. The very thing I and Dr

and Dr H. are all fighting, the fact that it is not just in our heads.

Sorry for the confusion.

Millie

eric schulman <eric_s11050@...> wrote:

millie

the spect scan is very useful in lyme disease in that it shows brain

metabolism and function...I have had three and also pet and I am fine.....it

will also put the diagnosis to bed...

eric

January 6, 2006

millie

I meant that the spect would show neurological involvment and also the

degree...the pet would show if it had damaged the cells of the brain...from what

I understand alot of the pets that were done were clear and that meant that is

was reversable ....the cells were just sick....now my spect was the worst you

could get as per dr b but the pet shows perfect in it uptake...the cells are ok

I did not mean to make it look like you needed to prove that you had lyme as

we all know that you have it and I just wanted you to know that it is a very

accurate test...that is what the guys at columbia told me...

eric

Millie <millie_miller@...> wrote:

I am sorry but I Am a major linguist and the words put it to bed just

shook me. So What do you mean you took the test and you are fine. I am not

afraid of the test. I just don't need to be proving anything especially to Dr.

H. he doesn't doubt my Illness at all.

The thing that troubled me about the magazine is, if I got it, they, the

magazine article claimed Lyme caused mental illness. The very thing I and Dr

and Dr H. are all fighting, the fact that it is not just in our heads.

Sorry for the confusion.

Millie

January 7, 2006

Columbia, were you Involved in that study Fallon did using Rocephin? I

might have gone except I was not able to go that far West Coast to East Coast

and too sick.

Reversible is a word I like. Because I truly know that I have reversed the

damage done to my brain. It is just a gut feeling. I just don't have the

severe symptoms.

You know how that is. Right now I am using a whole lot of Abx and I always

get very hopeful I have been cured. It hasn't happened yet but I keep the

faith.

I forgot to watch the Today show yesterday.