Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 hi robin, have you tried lymestrategies, a great group with a simple protocol. kurt. listenswithcare <listenswithcare@...> wrote: Hi all - I haven't been on this list in a while. Long story short, I have Bb, bartonella and babesia. Was treated since last November on 3 different antibiotic combinations until September when I had persistent fever, stomach upset and dropping weight. So, stopped the ABX. I had great progress on the ABX. But, some symptoms seem to be reappearing. Tooth pain, TMJ, buzzing all over feeling, and now, yesterday afternoon I started with a low fever again. I'm still cycling, but they are much milder, but now I am getting concerned. I am also doing the buhner herbal protocol... Now, this week, I have had several hot epsom salt baths, worked out at the gym and took a steam sauna afterwards, had a deep tissue massage yesterday. Last night I decided to have another hot epsom salt/baking soda bath when I realized I had a bit of fever. Well, that sent me into chills afterwards. I had to put on about 5 layers and get in bed to get warm again. Then I had to sleep in my ski clothes! I know people talk about heat being good to kill the buggers, but can it make your symptoms worse? Last night I buzzed all night and it was very sleep disruptive. I'm grinding teeth at night more too. I'm just scared, that's all. I made alot of progress on ABX. I don't want to loose it and I'm trying not to panic. I have all kinds of ABX in the house. My LLMD seems to think that ABX will not help me anymore. That my body said " enough " . So, I am doing the herbs and have been since July. Yes - I have been on the Buhner list, too. So, any words of wisdom? I am not going to let this disease get me! I refuse and I hope you refuse also. Hugs! Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 Robin, I've had lyme going now into my 10th yr and whenever I get warm or too warm my symptoms return or are enhanced a lot. Especially my head pressure and fog. Sorry I can't give any help regarding this. All I know is I' m glad I live in Michigan and its cooling off as I feel much better when I'm outside and seem to get more energy too. Couldn't survive in Florida for sure. Humidity does the same to me. Blessings, Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 very good group. Makayla Kurt Milkowski <kurt.milkowski@...> wrote: hi robin, have you tried lymestrategies, a great group with a simple protocol. kurt. listenswithcare <listenswithcare@...> wrote: Hi all - I haven't been on this list in a while. Long story short, I have Bb, bartonella and babesia. Was treated since last November on 3 different antibiotic combinations until September when I had persistent fever, stomach upset and dropping weight. So, stopped the ABX. I had great progress on the ABX. But, some symptoms seem to be reappearing. Tooth pain, TMJ, buzzing all over feeling, and now, yesterday afternoon I started with a low fever again. I'm still cycling, but they are much milder, but now I am getting concerned. I am also doing the buhner herbal protocol... Now, this week, I have had several hot epsom salt baths, worked out at the gym and took a steam sauna afterwards, had a deep tissue massage yesterday. Last night I decided to have another hot epsom salt/baking soda bath when I realized I had a bit of fever. Well, that sent me into chills afterwards. I had to put on about 5 layers and get in bed to get warm again. Then I had to sleep in my ski clothes! I know people talk about heat being good to kill the buggers, but can it make your symptoms worse? Last night I buzzed all night and it was very sleep disruptive. I'm grinding teeth at night more too. I'm just scared, that's all. I made alot of progress on ABX. I don't want to loose it and I'm trying not to panic. I have all kinds of ABX in the house. My LLMD seems to think that ABX will not help me anymore. That my body said " enough " . So, I am doing the herbs and have been since July. Yes - I have been on the Buhner list, too. So, any words of wisdom? I am not going to let this disease get me! I refuse and I hope you refuse also. Hugs! Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 hello robin, yes, it's my understanding that bringing body heat up can trigger herx. that's why some folks use sauna or exercise or other protocols to raise body temp and kill spirochettes. just remember that killing the keets also releases toxins, which can mean herx. so you need to be careful, go slowly, pace yourself so as not to overwhelm your ability to clear the toxins as you heal. i'm also on buhner herbs and list--great group and protocol. may every breath nourish you with peace and joy. kendra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 amen to that bev. thank you for confirming something i have been trying to explain for years. any thing warmer than 70 or 72 degrees and what ever doesn't hurt -my body, or fog up - my brain, even worse - shuts down completely. my energy levels drop even lower, the air hunger gets worse, the numbness and buzzing feeling gets worse. thanks for letting me know that this isn't my own little mind/body trick. deb > >I've had lyme going now into my 10th yr and whenever I get warm or too warm >my symptoms return or are enhanced a lot. Especially my head pressure and >fog. Sorry I can't give any help regarding this. All I know is I' m glad I >live in Michigan and its cooling off as I feel much better when I'm outside and >seem to get more energy too. Couldn't survive in Florida for sure. >Humidity does the same to me. > >Blessings, Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 For the past several years, I've gotten terrible headaches after exercise. I've been very careful to drink lots of water, so I've been pretty sure it's not dehydration. Hmm...I think now I know. Thanks, Bree > > amen to that bev. > > thank you for confirming something i have been trying to explain for years. any thing warmer than 70 or 72 degrees and what ever doesn't hurt -my body, or fog up - my brain, even worse - shuts down completely. my energy levels drop even lower, the air hunger gets worse, the numbness and buzzing feeling gets worse. > thanks for letting me know that this isn't my own little mind/body trick. > deb > > > >I've had lyme going now into my 10th yr and whenever I get warm or too warm > >my symptoms return or are enhanced a lot. Especially my head pressure and > >fog. Sorry I can't give any help regarding this. All I know is I' m glad I > >live in Michigan and its cooling off as I feel much better when I'm outside and > >seem to get more energy too. Couldn't survive in Florida for sure. > >Humidity does the same to me. > > > >Blessings, Bev > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 Thanks everyone for your replies about Heat and herxes. I passed through my herx by the next day. My body tends to crave heat and then suddenly it gets enough or too much and I have to back off some. Some days in the summer, it was too much to be outside in it, but not always. For a long time I had a far infrared heat mattress. This was before I knew I had Lyme. I slept on heat everynight and I could take " sweats " in it by taking a hot bath and then bundling up in my bed and sweating for a while. My body loved the heat and craved it. As I started to get better on the antibiotics, I didn't crave the heat as much, but used it as a tool. The mattress broke. It is from a Korean company and it seems it does not work well for long on our AC currents here in the US. I could have gotten another, but this was the third one that broke on me. So, now I will use hot baths at home and steam saunas at the gym. Robin > > amen to that bev. > > thank you for confirming something i have been trying to explain for years. any thing warmer than 70 or 72 degrees and what ever doesn't hurt -my body, or fog up - my brain, even worse - shuts down completely. my energy levels drop even lower, the air hunger gets worse, the numbness and buzzing feeling gets worse. > thanks for letting me know that this isn't my own little mind/body trick. > deb > > > >I've had lyme going now into my 10th yr and whenever I get warm or too warm > >my symptoms return or are enhanced a lot. Especially my head pressure and > >fog. Sorry I can't give any help regarding this. All I know is I' m glad I > >live in Michigan and its cooling off as I feel much better when I'm outside and > >seem to get more energy too. Couldn't survive in Florida for sure. > >Humidity does the same to me. > > > >Blessings, Bev > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 HI Robin, There is an article on lymesite.com from DR Kinderlehrer about chronic lyme. In it he states that raising the body temp to 102 can increase antibiotic activity fourfold and increasing to 104 can kill the Bb spirochete. I started sauna therapy last October and at first I had some intense herxes. Like you, I also had miserable chills after a treatment along with increase pain and fatigue. I am a firm believer that heat does kill bacteria and cause herxes! I sure hope it helps you as much as it has helped me..Lizzie > > Hi all - I haven't been on this list in a while. Long story short, > I have Bb, bartonella and babesia. Was treated since last November > on 3 different antibiotic combinations until September when I had > persistent fever, stomach upset and dropping weight. So, stopped > the ABX. > > I had great progress on the ABX. But, some symptoms seem to be > reappearing. Tooth pain, TMJ, buzzing all over feeling, and now, > yesterday afternoon I started with a low fever again. I'm still > cycling, but they are much milder, but now I am getting concerned. > > I am also doing the buhner herbal protocol... > > Now, this week, I have had several hot epsom salt baths, worked out > at the gym and took a steam sauna afterwards, had a deep tissue > massage yesterday. Last night I decided to have another hot epsom > salt/baking soda bath when I realized I had a bit of fever. Well, > that sent me into chills afterwards. I had to put on about 5 layers > and get in bed to get warm again. Then I had to sleep in my ski > clothes! > > I know people talk about heat being good to kill the buggers, but > can it make your symptoms worse? Last night I buzzed all night and > it was very sleep disruptive. I'm grinding teeth at night more too. > > I'm just scared, that's all. I made alot of progress on ABX. I > don't want to loose it and I'm trying not to panic. I have all > kinds of ABX in the house. My LLMD seems to think that ABX will not > help me anymore. That my body said " enough " . So, I am doing the > herbs and have been since July. Yes - I have been on the Buhner > list, too. > > So, any words of wisdom? I am not going to let this disease get > me! I refuse and I hope you refuse also. > > Hugs! > > Robin > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 HI, What did they put you on for Babesia? I am on Doxicycline...orally...they pulled my piccline about a week ago. I have been on abx for over 3 years! I have Erlichia and Babesia with the Lyme...please fill me in on what combos had worked for you! Jackie [ ] Heat cause herxes? Hi all - I haven't been on this list in a while. Long story short, I have Bb, bartonella and babesia. Was treated since last November on 3 different antibiotic combinations until September when I had persistent fever, stomach upset and dropping weight. So, stopped the ABX. I had great progress on the ABX. But, some symptoms seem to be reappearing. Tooth pain, TMJ, buzzing all over feeling, and now, yesterday afternoon I started with a low fever again. I'm still cycling, but they are much milder, but now I am getting concerned. I am also doing the buhner herbal protocol... Now, this week, I have had several hot epsom salt baths, worked out at the gym and took a steam sauna afterwards, had a deep tissue massage yesterday. Last night I decided to have another hot epsom salt/baking soda bath when I realized I had a bit of fever. Well, that sent me into chills afterwards. I had to put on about 5 layers and get in bed to get warm again. Then I had to sleep in my ski clothes! I know people talk about heat being good to kill the buggers, but can it make your symptoms worse? Last night I buzzed all night and it was very sleep disruptive. I'm grinding teeth at night more too. I'm just scared, that's all. I made alot of progress on ABX. I don't want to loose it and I'm trying not to panic. I have all kinds of ABX in the house. My LLMD seems to think that ABX will not help me anymore. That my body said " enough " . So, I am doing the herbs and have been since July. Yes - I have been on the Buhner list, too. So, any words of wisdom? I am not going to let this disease get me! I refuse and I hope you refuse also. Hugs! Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 Hi Jackie - in the long run, I don't think we targeted Babesia specifically. My LLMD only suspected it some in me. Recently, I went to an ART therapist and she found babesia, bartonella, and borrelia in me, but she said they were not overwhelming my system. I have another doctor who suspects the babesia also (testing was negative). With the LLMD, we targeted Bartonella first with Levaquin (250mg at first for 1 month, then 500mg for an additional 2 months). Took prilosec while I was on levaquin. Then we switched to Biaxin 500mg(in AM) and Rifampin 600mg(in PM) for 2 months. This is when I started to be able to horseback ride again. He did this to continue to hit bartonella and start to hit Lyme. But, as I understand, Biaxin is also good for Babesia. Then we went to Bicillin LA 1.2 shots 3X per week, Zithromax 600 mg 3 X per week, Flagyl 250 mg 3 tabs 2 times per week (away from Zithromax). I ended up going to Zithromax 5 times per week for some lingering Bartonella symptoms. Did this for about 4.5 months. About 2 months into the Bicillin regime, I started taking herbs for Buhners protocol. I think my body just started to reject the antibiotics. I was dropping weight (10 lbs in 1 month without trying), my stomach was constantly upset, I have persistent fever, so we just stopped. One of the keys for me, though, is exercise. It is a priority for me. To build up my strength, raise body temperature and general well being feeling. I started in physical therapy in August 2005. Because any exercise I did made my muscles ball up and threw me into pain, I needed guidance on how to go about it. The therapist found some bones in my ribs and pelvis out of place (and I was seeing a chiropractor). He found my nerves needed stretching. We did some things wrong in there, like electrical stim, but he helped me to slowly, slowly start to do exercises and have the support of their services (even some massage), so that I could get to the point of being able to go to a gym. I worked with a trainer at the gym to create some exercises for me to slowly build up. Then I had enough strength that I thought I could ride horses again (just barely enough for short rides). At that time, the Biaxin/Rifampin kicked in for me and I had the energy to ride too, so I starting riding again. Once per week. And I went to the gym once per week. Now, recently, I have added a Pilates class. So, I am trying to do something 3 times per week. If I am cycling and not feeling great, I just ride. Riding makes me feel alive and I love it, so I do it even if I'm not feeling great because it makes my spirit feel great. Having physical support (now I am using the chiropractor and massage therapy) has been very important. Unfortunately (because of neuro Lyme?), if any bones are just a bit out of place, I feel it and then my nerves start to get jacked up and then the muscles clamp over the nerves to " protect " them and it's a vicious cycle. So, then there is massage therapy, too. Have been doing that for about every 2 weeks for many years now. I don't have all that horrible neck/shoulder/upper back pain anymore. I have some, but it is nothing like it used to be and I think it is for physical reasons (like working at computer all day, things I do at the gym wrong, etc), not Lyme reasons. This was a bit long, but I just wanted to share the physical aspect of my recovery. I am much stronger now in my body and I think that helps my body to fight the Lyme. > > HI, > What did they put you on for Babesia? I am on Doxicycline...orally...they pulled my piccline about a week ago. I have been on abx for over 3 years! I have Erlichia and Babesia with the Lyme...please fill me in on what combos had worked for you! > Jackie Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.