Symptoms

[Guest guest]

Does anybody in this group have frequent urination as one of their symptoms.

I have been ill now for about 8 years with fatigue, muscle aches, migrains,

recurring respiratory infections, chronic hives, and sinusitus but about a year

ago I also began experiencing frequent urination. It has been as bad as

having to go every 15 minutes and now it is somewhat better but no where

near normal. Any input will help.

[Guest guest]

Jenn:

The urination varies with me - but (probably because I am better

but not completely better) I DO have times of VERY frequent urination - I

note that it is especially when I am in a time of de-toxing. Then I go

almost immediately after I eat ANYTHING at all - or take even a small drink

- then there are time when it lets up. Hope that help a little. - GLEN

At 04:53 PM 12/16/2005 +0000, you wrote:

>Does anybody in this group have frequent urination as one of their symptoms.

>I have been ill now for about 8 years with fatigue, muscle aches, migrains,

>recurring respiratory infections, chronic hives, and sinusitus but about a

>year

>ago I also began experiencing frequent urination. It has been as bad as

>having to go every 15 minutes and now it is somewhat better but no where

>near normal. Any input will help.

>

>

>

>

>

>

[Guest guest]

yep But I am a male, and it was cause by several things such as bacterial

infection, swallen prostate with cancer, in which the lyme in spinal coloumn did

not help. Since, your a female I recmonnd you contack you physician or a

urologist. There are many other cause to frequent uraination. Best of luck

Bud+

Does anybody in this group have frequent urination as one of their symptoms.

I have been ill now for about 8 years with fatigue, muscle aches, migrains,

recurring respiratory infections, chronic hives, and sinusitus but about a year

ago I also began experiencing frequent urination. It has been as bad as

having to go every 15 minutes and now it is somewhat better but no where

near normal. Any input will help.

[Guest guest]

,

I would have the frequency, it would come & go. Although my Lyme was

diagnosed at the time, we didn't realize that it was from the Lyme/Mycoplasma,

so I saw a Urologist who tried all kinds of meds, tests, etc. Of course there

was no real infection, but there is an Rx called Pyridium, you can also buy it

over the counter but I forget the name. Anyway, it numbs the bladder. When I

finally tried that it would only take 1 pill/dose to calm things .

The irony of it all was that while trying to treat the urgency, I was put on

Cipro, then Levaquin & there was a noticeable improvement overall! Since I have

been on the abx, the urgency has stayed pretty calm. When my symptoms flare,

often the urgency will flare but I just take the pill. But let me warn you, you

will " go " bright orange when you take the pill! My Dad had open heart surgery

last year & had terrible problems post the catheter insertion & that was what

finally helped him too. May be worth a try. I used the drug store brand since

it was pricey. Good Luck!

<amigo1@...> wrote:Does anybody in this group have frequent

urination as one of their symptoms.

__________________________________________________

[Guest guest]

>

> Does anybody in this group have frequent urination as one of their

symptoms.

> I have been ill now for about 8 years with fatigue, muscle aches,

migrains,

> recurring respiratory infections, chronic hives, and sinusitus but

about a year

> ago I also began experiencing frequent urination. It has been as

bad as

> having to go every 15 minutes and now it is somewhat better but no

where

> near normal. Any input will help.

>

>

>

Hi Jen and everyone !

I stopped getting all the emails sent to me ...now I am all backed up!

I haven't spoken to anyone except Lizzie for a week and miss you

all .. Jenn in answer to your question ...I have EXACTLY the

opposite. Because of neuro damage and loss of lots of different

feelings in my limbs and lower torso ...I have a very difficult time

STARTING to pee ! I have to run water, do a rain dance, sit down,

stand up ...you name it , I try it. I have such difficulty at times ,

I KNOW I have to go , I may not have gone all day so I KNOW I have to

go ...but I just cannot get started. Once I do , I'm fine. Frequent

urination CAN be a sign of diabetes. Especially if it goes along with

more than usual thirst , sweats , jitters , etc. If you

haven't ..mention this to your LLMD ...might want to do some blood

sugar testing ! Hope everyone is well ...I've missed you all so

much ! KAT

[Guest guest]

Just wondering if anybody experiences chronic hives with have lyme disease?

[Guest guest]

Ohh ME ME MEEEE!!!!!!! I am shy by nature, so if I get embarrassed I will

hive up head to to. Also will hive up rather badly if I get mad, kinda like

a red Hulk instead of green LOL Also that anger is absolutely overblown,

thanks Lyme, but since I know it is, I will back down immediately. Just

have to deal with the lovely splotches. When I got married we didnt

think about the hives and I got an open front gown, so I had to take

benedryl . Fun huh? LOL

> Just wondering if anybody experiences chronic hives with have lyme

disease?

>

>

>

>

>

>

>

>

>

>

> For up to date information about Lyme disease and the known co-infections

> delivered to your email address see:

> Robynns_Lyme_List/

>

>

[Guest guest]

>hi jennifer,

well that was definitly one of my major symptoms when i was first

infected....i would break out so bad all over my arms and legs and in

my arm pits that i freaked out.i went to the ER and they told me to

take some antihistimine. hope this helps

chad

> Just wondering if anybody experiences chronic hives with have lyme

disease?

>

>

>

[Guest guest]

> asked: Just wondering if anybody experiences >chronic hives with

>have lyme disease?

My daughter (who is being treated for late neuro LD) had severe hives for 6

weeks, but we were told hives aren't chronic unless they last longer than 6

weeks. We didn't know until later they were from lyme...could have saved

lots on allergy testing.

Sue

[Guest guest]

I had terrible time with hives earlyin my sickness.thats one of my earliest

symptom that caused the doctars to think i had rhuematic fever

--- Ellis-Schuetz <amigo1@...> wrote:

From: Ellis-Schuetz <amigo1@...>

Date: Thu, 29 Dec 2005 09:33:34 -0800

" " < >

Subject: [ ] re: symptoms

Just wondering if anybody experiences chronic hives with have

lyme disease?

[Guest guest]

Phyl,

You have " no " symptoms? None? Are you sure that your just not

dismissing something that is going on as something else or un-related

to lyme?

I ask this because I have a host of things going on that were not

explained by lyme traditionally but a host of others that is

explained by lyme.

I have been told that once I have been " successfully " treated, these

other things that dont seem related to lyme will get better

hopefully. I dont want to think that I wont get better some day.

Dona

> Hi Pam,

> I thought I had trouble with antibiotics

> because of the GI problems they cause.

> This doctor went out of his way to get me

> on IV antibiotics. They still set off my

> tremor so now I know that I will never

> take antibiotics again. The doctor's

> assistant and the nursing service that did

> the iv's for me told me I was to act as a

> transplant patient. Nobody told me what

> I need to do but that's okay. I see the

> neurologist tomorrow so maybe all the

> tremor stuff from the antibiotics will be

> taken care of. My doctor is a great guy.

> He honestly wants what is best for his

> patients and worked hard to do what he

> felt was right. He asks me whenever I

> talk to him for whatever reason how I'm

> doing with the Lyme. Problem is, I have

> NO symptoms just antibodies. I think the

> doctor doesn't believe me. I feel bad

> watching the list and seeing the problems

> you all go through. I just don't know

> what to think. Other than the shakes

> from the antibiotics over the past six

> months, which include the 3+ with Lyme

> it's been years since I've felt this well. I

> just don't know what to think about this

> whole lyme thing. I've said I never saw a

> tick but I know now that they can be very

> small and I'm totally without symptoms

> so I'm just at a loss.

>

> Phyl

>

[Guest guest]

The tremors are from the Lyme due to being attacked by the antibiotics...

You have symptoms...

[ ] Re: symptoms

Phyl,

You have " no " symptoms? None? Are you sure that your just not

dismissing something that is going on as something else or un-related

to lyme?

I ask this because I have a host of things going on that were not

explained by lyme traditionally but a host of others that is

explained by lyme.

I have been told that once I have been " successfully " treated, these

other things that dont seem related to lyme will get better

hopefully. I dont want to think that I wont get better some day.

Dona

> Hi Pam,

> I thought I had trouble with antibiotics

> because of the GI problems they cause.

> This doctor went out of his way to get me

> on IV antibiotics. They still set off my

> tremor so now I know that I will never

> take antibiotics again. The doctor's

> assistant and the nursing service that did

> the iv's for me told me I was to act as a

> transplant patient. Nobody told me what

> I need to do but that's okay. I see the

> neurologist tomorrow so maybe all the

> tremor stuff from the antibiotics will be

> taken care of. My doctor is a great guy.

> He honestly wants what is best for his

> patients and worked hard to do what he

> felt was right. He asks me whenever I

> talk to him for whatever reason how I'm

> doing with the Lyme. Problem is, I have

> NO symptoms just antibodies. I think the

> doctor doesn't believe me. I feel bad

> watching the list and seeing the problems

> you all go through. I just don't know

> what to think. Other than the shakes

> from the antibiotics over the past six

> months, which include the 3+ with Lyme

> it's been years since I've felt this well. I

> just don't know what to think about this

> whole lyme thing. I've said I never saw a

> tick but I know now that they can be very

> small and I'm totally without symptoms

> so I'm just at a loss.

>

> Phyl

>

[Guest guest]

Hi Dona,

I have other things wrong with me. I

have Stickler Syndrome which is a genetic

disorder so I've had that from birth, I also

have Essential Tremor also genetic which

worsens with antibiotics, I have Lupus

which was diagnosed 20+ years ago and I

now have the Lyme Disease which

occurred in July. That is when my arm

got red and they did the antibody test. I

have symptoms with the other 3 things

that I have but none from Lyme, nothing

new at all other than the shakes from the

antibiotics which happened before I had

Lyme. The group has gone over the size

of ticks, the fact that antibiotics make

things worse for awhile etc. For me, all I

had was a red arm that was called

cellulitis but changed to Lyme after the

antibody test. Everything else that I have

is the same stuff I've had for 20 years and

longer. To be honest, I feel better now

than I have in years because 3 months

before the Lyme upset I was put on

Gabafentin which helped the discomfort I

have from Lupus. Yes I do have Lupus it

showed up in a blood test and I have the

mask, yes I do have Stickler Syndrome as

do most of my family on my mom's side

starting with my grandpa and at this

point ending with my grandchildren and

yes I have Essential tremor which my

mom also has as do my children and

grandchildren. So, even though I feel

awful saying this to so many who are

really suffering with Lyme, I have NO

symptoms at all, never have and if I'd not

gone into the doctor's office for my

regular appointment while my arm was

still a bit red nobody would ever have

known that I have Lyme and to take that

a step further, I wouldn't be in the mess I

am now with my seizure medication which

doesn't mix with antibiotics.

Phyl

[Guest guest]

Phyl,

Wow. I looked up Stickler Syndrome and Essential tremor...I am very

intereseted in rare genetic diseases etc. Stickler doesnt seem very

rare yet I had never heard of it. I assume you have had the genetic

testing for both and since autosomal dominant others in your family

also live with these conditions? I am sorry. I certainly hope that ayou

never get any lyme symptoms. My initial symptoms were flu like and then

allergies(but not true allergies) and then the long list of multi

system problems. Stickler and Tremors are enough.

My mother is believing that we had dormant lyme and that I have been

working too hard (72 hrs a week and 18 college credit hours) and then I

was bitten again...which cause the initial symptoms above. I had other

symptoms my whole life that came in cycles that surrounded my menstral

cycle (which was never regular). I have seen many specialists who never

have come up with anything concrete and are all speculations. The most

devastating to me was the psyche diagnosis'.

Thank you for your detailed reply.

Dona

I

> have Stickler Syndrome which is a genetic

> disorder so I've had that from birth, I also

> have Essential Tremor also genetic which

> worsens with antibiotics, I have Lupus

> which was diagnosed 20+ years ago and I

> now have the Lyme Disease which

> occurred in July.

[Guest guest]

I want to know if anyone had the same symptoms I have. I have a growth at the

back of my neck that could be causing symptoms that might be mimicking Lyme

disease. I going for another MRI, but for the last two weeks I've been taking IV

antibiotics to treat what the neurologist says is probably Lyme.

I have not tested positive for Lyme so far and if I do have it, it is probably

chronic.

I have double vision in one eye. I'm unstable when I walk and have to look down

at the floor or I tend to lose my balance. Sometimes I wake up with a strange

kind of popping in my right ear (same side as the affected eye). I'm an

insomniac and get about three hours sleep in a 24 hour period. The doctor says I

have Bell's Palsy, but I don't notice it. Sometimes I get kind of foggy in the

brain (can't do tasks I've done a million times). I have broken out in small

patches of rash that don't last long and don't itch. I have hair loss.

Does this sound like Lyme to you people that have tested positive?

[Guest guest]

I believe 23 is lyme specific.

>

>

> & nbsp;

>

>

>

>

>

>

>

>

>

>

> Thank you in advance for a recommendation for a friend. Please email me at

yogagirld@...

>

>

>

>

[Guest guest]

Who is " they " ?

An LLMD would most likely say that you have a positive Western Blot test

with typcial chronic Lyme symptoms.

A traditional doctor would most likely say that you have a negative test and

your symptoms are due to something else other than chronic Lyme disease.

On Wed, Jun 23, 2010 at 1:43 PM, darabeth2003 <dara.alewine@...>wrote:

>

>

> I believe 23 is lyme specific.

>

>

> >

> >

> > & nbsp;

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > Thank you in advance for a recommendation for a friend. Please email me

> at yogagirld@...

> >

> >

> >

> >

[Guest guest]

So today I was told this is related to sleep issues.

Why is everyone avoiding the positive ELISA and & nbsp;WESTERN BLOT?

-- Sent from my Palm Pre

On Jun 23, 2010 13:43, darabeth2003 & lt;dara.alewine@... & gt; wrote:

& nbsp;

I believe 23 is lyme specific.

& gt;

& gt;

& gt; & amp;nbsp;

& gt;

& gt;

& gt;

& gt;

& gt;

& gt;

& gt;

& gt;

& gt;

& gt;

& gt; Thank you in advance for a recommendation for a friend. Please email me at

yogagirld@...

& gt;

& gt;

& gt;

& gt;

[Guest guest]

These are all symptoms of Lyme. Lyme diagnosis is based on symptoms, not test

results. Sleep issues are also common with Lyme. Be persistent with your

doctors and find one who treats the symptoms. Having negative test results does

not mean you do not have Lyme. Test results are only one variable.

Molly

________________________________

From: Robyn Iuliano <hamptonroadsaspergers@...>

" " <lyme-aid >

Sent: Wed, June 23, 2010 9:38:02 PM

Subject: Re: [ ] Re: Symptoms

So today I was told this is related to sleep issues.

Why is everyone avoiding the positive ELISA and & nbsp;WESTERN BLOT?

-- Sent from my Palm Pre

On Jun 23, 2010 13:43, darabeth2003 & lt;dara.alewine@... & gt; wrote:

& nbsp;

I believe 23 is lyme specific.

[Guest guest]

I understand now. & nbsp;Thank u

-- Sent from my Palm Pre

On Jun 25, 2010 13:46, Molly MacBean & lt;molly.macbean@... & gt; wrote:

& nbsp;

These are all symptoms of Lyme. Lyme diagnosis is based on symptoms, not test

results. Sleep issues are also common with Lyme. Be persistent with your

doctors and find one who treats the symptoms. Having negative test results does

not mean you do not have Lyme. Test results are only one variable.

Molly

________________________________

From: Robyn Iuliano & lt;hamptonroadsaspergers@... & gt;

" " & lt;lyme-aid & gt;

Sent: Wed, June 23, 2010 9:38:02 PM

Subject: Re: [ ] Re: Symptoms

So today I was told this is related to sleep issues.

Why is everyone avoiding the positive ELISA and & amp;nbsp;WESTERN BLOT?

-- Sent from my Palm Pre

On Jun 23, 2010 13:43, darabeth2003 & amp;lt;dara.alewine@... & amp;gt;

wrote:

& amp;nbsp;

I believe 23 is lyme specific.

[Guest guest]

I understand now. & nbsp;Thank u

-- Sent from my Palm Pre

On Jun 25, 2010 13:46, Molly MacBean & lt;molly.macbean@... & gt; wrote:

& nbsp;

These are all symptoms of Lyme. Lyme diagnosis is based on symptoms, not test

results. Sleep issues are also common with Lyme. Be persistent with your

doctors and find one who treats the symptoms. Having negative test results does

not mean you do not have Lyme. Test results are only one variable.

Molly

________________________________

From: Robyn Iuliano & lt;hamptonroadsaspergers@... & gt;

" " & lt;lyme-aid & gt;

Sent: Wed, June 23, 2010 9:38:02 PM

Subject: Re: [ ] Re: Symptoms

So today I was told this is related to sleep issues.

Why is everyone avoiding the positive ELISA and & amp;nbsp;WESTERN BLOT?

-- Sent from my Palm Pre

On Jun 23, 2010 13:43, darabeth2003 & amp;lt;dara.alewine@... & amp;gt;

wrote:

& amp;nbsp;

I believe 23 is lyme specific.