20 Years Lyme and still going!! Rich what treatments have you done

[Guest guest]

--Rich,

I have also been sick since 1987.

I didn't know it was lyme until dec 04 and I started antibiotics in

May of 05.

I don't feel great but I do feel better. The flu like weakness and

achy has gotten better.

Can you explain a little about how long you had lyme before you were

diagnosed?

What treatments have you done?

It seems there are more than one option for treating this nasty

illness and some people seem to respond to these treatments in

different ways.

Maybe there are some things you have not tried and that might be the

one..

If you have done the antibiotics then there is still the salt and

Vit c, rife machine, and I am hearing good things about

Bruhner's treatments mentioned in his book.

So I know how if feels to think it will not get better and often I

am on here whinning about feeling so bad, but this group has been my

best friend.

We are here for you also and just think you are going to be well.

You may need to tell me this next week because of the ups and downs

of this cruel illness.

But you are going to get better.

Please keep me posted and let me know what you have done for your

illness.

Blessings,

sandy

- In , " Rich " <richard@...> wrote:

>

> Hi,

> I thought I would write a note about my problems with lyme and

what

> I've been going through. Just a bunch of rambling I guess but here

> goes...

> I have had this disease for 20 years now. It has not only effected

> me buy also my family.

> I am very fortunate to have the greatest wife, son and parents

that

> stand with me in my

> battle with this horrible illness. I am disabled and can no longer

> work. I have many symptoms

> and these are just a few. I have memory and comprehension deficits

> along with vision, speech,

> motor skills, tremors in my right hand, light sensitive, severe

> muscle and joint pain, weakness,

> have had several mini stroke type episodes, word finding skills,

> depression, having trouble

> walking due to severe pain and swelling in my hips and knees,

using

> my hands, balance,

> bladder control and many more problems that I can go on and on

> about. This has made

> my life a living hell to put it mildly. I am on very heavy pain

meds

> just to be able to move

> and they hardly even help at all. I can't go anywhere or do

anything

> most of the time.

> The simple things that folks take for granted have become a major

> struggle for me.

> My wife is an angel who not only works, but she takes care of me

and

> is my voice to

> the doctors and handles everything along with daily life with our

16

> year old son, 2 dogs

> and a cat and balances this with work that has her busy 7 days a

> week. It has become

> a disease-by proxy for her and she suffers and I feel helpless to

do

> anything. I am getting

> worse all of the time and have have IV antibiotics through a

> cathider that was in my chest.

> I have lost my career, hobbies, doing things with my family and am

> mostly usless.

> I am a prisoner inside my own body with my windows being my eyes.

> The doctors that

> I have now are doing the best they can but having been ill this

long

> and with all of the damage

> done to my brain and body, they can only try to make me as

> comfortable as possible which

> really is not very good at all, but they are trying. It's been a

> very hard road but I am still

> here. Maybe reading this will help others see that they are not

> alone. Being a Lyme

> sufferer is like being a small fish in a tank of all sharks.

There's

> not a lot of hope.

> But you can never lose hope. I tell myself this and I go day to

day,

> love my wife

> and son, and keep going. It beats the alternative. Well that's it

> for now.

> Thanks,

> Rich

>