Re: Getting better (denial)

[Guest guest]

<scorpionallure@...> wrote:

Has anyone felt totally elated and almost in denial when starting to

feel better? I feel like this will end & I will feel really horrible

again. I understand where you're coming from, but remember, Lyme can be

contributing to your mental state. I remember, before I knew I had Lyme,

feeling pretty depressed and hopeless. That's gone now.

Now that I'm getting better, yes, I feel totally elated. I haven't felt this

well in many years. I keep saying, " I feel fantastic! " Then, a few days or a

week later, I feel even better. I have days when I hurt more, and feel more

exhausted, but nothing like a few months ago. I didn't realize just how crappy

I felt until I started getting better.

But I'm not afraid it will end. I'm just assuming I'll keep getting better.

If something happens to slow my recovery, I know we'll figure it out and plow

forward. Having Lyme doesn't scare me.

I figure, if I feel well enough to dance, then I'll dance. If I feel well

enough to sing, then I'll sing. If I find myself smiling for the first time in

years, I'll enjoy the smile.

None of us will be here forever, even the " healthy " ones. We have just so

many days to spend laughing, singing and dancing. I'm having more and more good

days, and I intend to put each and every one of them to good use.

That's my story and I'm sticking to it.

---------------------------------

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[Guest guest]

Well said!! To add to my mix, I also have Bipolar which has been

very stable. I think feeling better and doing more things, is making

me slightly hypomanic. I will keep a watch on it.

I always try to enjoy every day no matter what.

In , DeMarco <ponyrubs@...> wrote:

>

> <scorpionallure@...> wrote:

> Has anyone felt totally elated and almost in denial when

starting to

> feel better? I feel like this will end & I will feel really

horrible

> again. I understand where you're coming from, but remember, Lyme

can be contributing to your mental state. I remember, before I knew

I had Lyme, feeling pretty depressed and hopeless. That's gone now.

>

> Now that I'm getting better, yes, I feel totally elated. I

haven't felt this well in many years. I keep saying, " I feel

fantastic! " Then, a few days or a week later, I feel even better.

I have days when I hurt more, and feel more exhausted, but nothing

like a few months ago. I didn't realize just how crappy I felt

until I started getting better.

>

> But I'm not afraid it will end. I'm just assuming I'll keep

getting better. If something happens to slow my recovery, I know

we'll figure it out and plow forward. Having Lyme doesn't scare me.

>

> I figure, if I feel well enough to dance, then I'll dance. If I

feel well enough to sing, then I'll sing. If I find myself smiling

for the first time in years, I'll enjoy the smile.

>

> None of us will be here forever, even the " healthy " ones. We

have just so many days to spend laughing, singing and dancing. I'm

having more and more good days, and I intend to put each and every

one of them to good use.

>

> That's my story and I'm sticking to it.

>

>

>

>

> ---------------------------------

> Autos. Looking for a sweet ride? Get pricing, reviews, &

more on new and used cars.

>

>

[Guest guest]

I'm so very happy for you!! Keep with the program tho as he

hopefully will try and get rid of lyme that's in different forms and

there will be days that aren't so great- BUT you know you're on the

right track, so don't loose sight of that even if you're not feeling

as well as you do right now.

That said- yes I'm very leary of starting something that wouuld be a

long term expenditure of energy/time as I don't know if I'll be able

to finish or not- am waiting for the other foot to drop so to speak.

I'm taking baby steps, but not committing myself at least this year

to my reg " big projects " - what I get done I get dne- right now I

can't handle having too many commitments like it used to be.

Take care and enjoy!!!

Rose Marie

>

> Has anyone felt totally elated and almost in denial when starting

to

> feel better? I feel like this will end & I will feel really

horrible

> again.

>

> I have been sick for so long and just drudging around and only

> working for close to 5 yrs. I have been on amoxy 3000 mg for over

a

> month. My energy has increased to 70% and my pain level is going

> down. My muscles are much less achy and feel " normal " .

>

> The burning feet and calves subsided last week, not sure if it was

> from the trigger point work or back shots or neither. Dr. P said

the

> feet may be Lyme since my EMG was negative.

>

> Dr. P said that he expects to see more improvement and to stay

> focused on being well. He listened to my diary and progress at my

> 2nd appt. I am very pleased with him so far. He also did trigger

> point work on my back (butt) which really helped.

>

> I am still in denial that I have had Lyme for 6 yrs and was never

> treated appropriately the 1st time.

>

> --Regards,

>

>

[Guest guest]

,

I say, it's OK to stay in denial! The important thing is that you're

improving. The elation at feeling better is normal -- embrace it!

You're feeling better! This is a good thing!

It sounds like your LLMD is doing a very good job for you. Don't

fear getting well. In fact, remember what it was like to be well. I

visualize that often because that's my goal.

You might get sick again. You might break your leg. Or win the

lottery. Or fall in love and sail to Tahiti. In the meantime, revel

in the fact that you're feeling better and have a good LLMD.

Jessie

>

> Has anyone felt totally elated and almost in denial when starting

to

> feel better? I feel like this will end & I will feel really

horrible

> again.

>

> I have been sick for so long and just drudging around and only

> working for close to 5 yrs. I have been on amoxy 3000 mg for over

a

> month. My energy has increased to 70% and my pain level is going

> down. My muscles are much less achy and feel " normal " .

>

> The burning feet and calves subsided last week, not sure if it was

> from the trigger point work or back shots or neither. Dr. P said

the

> feet may be Lyme since my EMG was negative.

>

> Dr. P said that he expects to see more improvement and to stay

> focused on being well. He listened to my diary and progress at my

> 2nd appt. I am very pleased with him so far. He also did trigger

> point work on my back (butt) which really helped.

>

> I am still in denial that I have had Lyme for 6 yrs and was never

> treated appropriately the 1st time.

>

> --Regards,

>

>

[Guest guest]

Thanks everyone for the nice responses.

Exhausted tonite so I can't write much.

In , " Jessie MacMillan "

<jessiemacmillan@...> wrote:

>

> ,

>

> I say, it's OK to stay in denial! The important thing is that

you're

> improving. The elation at feeling better is normal -- embrace it!

> You're feeling better! This is a good thing!

>

> It sounds like your LLMD is doing a very good job for you. Don't

> fear getting well. In fact, remember what it was like to be well.

I

> visualize that often because that's my goal.

>

> You might get sick again. You might break your leg. Or win the

> lottery. Or fall in love and sail to Tahiti. In the meantime,

revel

> in the fact that you're feeling better and have a good LLMD.

>

> Jessie

>

>

> >

> > Has anyone felt totally elated and almost in denial when

starting

> to

> > feel better? I feel like this will end & I will feel really

> horrible

> > again.

> >

> > I have been sick for so long and just drudging around and only

> > working for close to 5 yrs. I have been on amoxy 3000 mg for

over

> a

> > month. My energy has increased to 70% and my pain level is going

> > down. My muscles are much less achy and feel " normal " .

> >

> > The burning feet and calves subsided last week, not sure if it

was

> > from the trigger point work or back shots or neither. Dr. P said

> the

> > feet may be Lyme since my EMG was negative.

> >

> > Dr. P said that he expects to see more improvement and to stay

> > focused on being well. He listened to my diary and progress at

my

> > 2nd appt. I am very pleased with him so far. He also did trigger

> > point work on my back (butt) which really helped.

> >

> > I am still in denial that I have had Lyme for 6 yrs and was

never

> > treated appropriately the 1st time.

> >

> > --Regards,

> >

> >

>

[Guest guest]

> Re: Getting better (denial)

>

> Hi ,

I know what you mean. I've had Lyme for close to 6 years now, and

even though I'm doing MUCH better than I was, I'm still not well, and

not able to do what I would like to be doing. I enjoy the good days,

but I do always have the feeling that I'm waiting for the other shoe

to drop. I really think that's the nature of this disease---you're

good one day, in bed the next---it's hard not to wonder how long the

good days will last. I try very hard to be positive, as I think that

is helpful, but I think it's just a difficult disease to deal with.

Best wishes for your healing--

Vicki

>

>

>

>>

>> Has anyone felt totally elated and almost in denial when starting

>>

> to

>

>> feel better? I feel like this will end & I will feel really

>>

> horrible

>

>> again.

>>

>

[Guest guest]

I'm wondering how common it is to get that totally elated feeling, and I wonder

whether it is just part of the CNS recovery process. It isn't normal to be

elated all the time, so I don't expect it to last. But I found myself

completely totally on top of the world for about 5 days soon after starting

doxycycline, and again a couple months later, shortly after doubling my daily

doxy dose.

Maybe it's just the brain adjusting to a die-off. Maybe it's actually a herx

of sorts, just not an unpleasant one. I dunno. I'm back to feeling sorta

mellow - not depressed, not elated, not anxious, just a tad tired (normal, I

think, after 3 days without power, shivering by the fireplace, sleeping 30

minutes at a time in order to keep the fire roaring, trying unsuccessfully to

keep the pipes from exploding - unfortunately didn't know enough to drain the

heating system - Oh well).

I spent today learning Plumbing 101 from a kind neighbor. And it was easy.

It's been a while since I've been clear-headed enough to easily learn a new

skill.

Just one more pipe to fix - appears to be behind a built-in bookcase. So I'll

be learning a bit of carpentry, if I want heat upstairs.

Take care, All,

---------------------------------

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[Guest guest]

I don't know. I have a mood disorder so I also get hypomania but my

feeling better from the treatment just caused me to feel great.

In , DeMarco <ponyrubs@...> wrote:

>

> I'm wondering how common it is to get that totally elated feeling,

and I wonder whether it is just part of the CNS recovery process.

It isn't normal to be elated all the time, so I don't expect it to

last. But I found myself completely totally on top of the world for

about 5 days soon after starting doxycycline, and again a couple

months later, shortly after doubling my daily doxy dose.

>

> Maybe it's just the brain adjusting to a die-off. Maybe it's

actually a herx of sorts, just not an unpleasant one. I dunno. I'm

back to feeling sorta mellow - not depressed, not elated, not

anxious, just a tad tired (normal, I think, after 3 days without

power, shivering by the fireplace, sleeping 30 minutes at a time in

order to keep the fire roaring, trying unsuccessfully to keep the

pipes from exploding - unfortunately didn't know enough to drain the

heating system - Oh well).

>

> I spent today learning Plumbing 101 from a kind neighbor. And

it was easy. It's been a while since I've been clear-headed

enough to easily learn a new skill.

>

> Just one more pipe to fix - appears to be behind a built-in

bookcase. So I'll be learning a bit of carpentry, if I want heat

upstairs.

>

> Take care, All,

>

>

>

>

> ---------------------------------

>

> Use Photomail to share photos without annoying attachments.

>

>

[Guest guest]

,

It's natural to feel elated. But becareful not to over do it when you

start feeling well. The battle against Lyme is a marathon.

When you feel good, be sure not to push yourself for at least a year

after your recovery.

Be well,

>

> I'm wondering how common it is to get that totally elated feeling,

and I wonder whether it is just part of the CNS recovery process. It

isn't normal to be elated all the time, so I don't expect it to last.

But I found myself completely totally on top of the world for about 5

days soon after starting doxycycline, and again a couple months later,

shortly after doubling my daily doxy dose.

>

> Maybe it's just the brain adjusting to a die-off. Maybe it's

actually a herx of sorts, just not an unpleasant one. I dunno. I'm

back to feeling sorta mellow - not depressed, not elated, not anxious,

just a tad tired (normal, I think, after 3 days without power,

shivering by the fireplace, sleeping 30 minutes at a time in order to

keep the fire roaring, trying unsuccessfully to keep the pipes from

exploding - unfortunately didn't know enough to drain the heating

system - Oh well).

>

> I spent today learning Plumbing 101 from a kind neighbor. And it

was easy. It's been a while since I've been clear-headed enough to

easily learn a new skill.

>

> Just one more pipe to fix - appears to be behind a built-in

bookcase. So I'll be learning a bit of carpentry, if I want heat

upstairs.

>

> Take care, All,

>

>

>

>

> ---------------------------------

>

> Use Photomail to share photos without annoying attachments.

>

>

[Guest guest]

Hi ,

I know how you feel. When I started getting better I started having

feelings where I so was elated I thought I was going to burst. My

doctor told me this is normal. Just don't push yourself too hard-the

tendency is to want to do everything you missed out on. Hang in

there, you will get there!

> >

> > I'm wondering how common it is to get that totally elated feeling,

> and I wonder whether it is just part of the CNS recovery process.

It

> isn't normal to be elated all the time, so I don't expect it to

last.

> But I found myself completely totally on top of the world for

about 5

> days soon after starting doxycycline, and again a couple months

later,

> shortly after doubling my daily doxy dose.

> >

> > Maybe it's just the brain adjusting to a die-off. Maybe it's

> actually a herx of sorts, just not an unpleasant one. I dunno. I'm

> back to feeling sorta mellow - not depressed, not elated, not

anxious,

> just a tad tired (normal, I think, after 3 days without power,

> shivering by the fireplace, sleeping 30 minutes at a time in order

to

> keep the fire roaring, trying unsuccessfully to keep the pipes from

> exploding - unfortunately didn't know enough to drain the heating

> system - Oh well).

> >

> > I spent today learning Plumbing 101 from a kind neighbor. And

it

> was easy. It's been a while since I've been clear-headed enough

to

> easily learn a new skill.

> >

> > Just one more pipe to fix - appears to be behind a built-in

> bookcase. So I'll be learning a bit of carpentry, if I want heat

> upstairs.

> >

> > Take care, All,

> >

> >

> >

> >

> > ---------------------------------

> >

> > Use Photomail to share photos without annoying attachments.

> >

> >