Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Andy, I'm sorry to hear that you were injured by the vaccine. I do hope you'll be able to find others. Jessie > > hi everyone, > > i may have been injured as a result of the lyme vaccine and may have > developed a form of autoimmune arthritis. i'm trying to find others > like me (there are not many) that have been able to get successful > treatment. i've scoured the internet with no luck so far. any help? > > andy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Hi Andy, What state are you in? My LLMD in PA has treated victims of the Lyme vaccine. That was the first question he asks new patients is were you given the vaccine. I didn't take the vaccine, so did not talk to him much about it. But I remember he did comment what terrible arthritis most of them ended up with. Don't get overwhelmed with an autoimmune diagnosis of any kind if you think you have Lyme. Lyme can masquerade as an autoimmune illness and even cause high ANA antibodies. Get rid of the Lyme and autoimmunity will often go away. I originally was diagnosed with CREST Syndrome which is very rare autoimmune illness. I at least test positive, but do not have the symptoms other than Raynauds which many Lymies have anyway. Have you been tested for Lyme by Bowen or Igenex? > > hi everyone, > > i may have been injured as a result of the lyme vaccine and may have > developed a form of autoimmune arthritis. i'm trying to find others > like me (there are not many) that have been able to get successful > treatment. i've scoured the internet with no luck so far. any help? > > andy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 Noone yet. This thing is wierd. I looked at my Western Blot from two years ago and it shows negative for Lyme with the exception of the vaccine bands. This injury has caused almost every symptom of Lyme without actually getting Lyme. How do you treat something like this? There is no bug to eradicate but my body thinks there is. > > > > hi everyone, > > > > i may have been injured as a result of the lyme vaccine and may have > > developed a form of autoimmune arthritis. i'm trying to find others > > like me (there are not many) that have been able to get successful > > treatment. i've scoured the internet with no luck so far. any help? > > > > andy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 Andy, I don't think western medicine offers any good treatment for an autoimmune disease. Is it possible for you to try alternatives, like seeing a Naturopathic doctor? Naturopathy can often help get your immune system to function normally instead of being hyper alert. The initial problem you need to investigate is whether or not you do have a Lyme infection. I assume you got the Lyme vaccine because you were concerned with the potential to contract Lyme disease. One thing that came out of the vaccine clinical trials is that if a person was misdiagnosed as being Lyme free, and then received the vaccine, the symptoms of the disease would be severely intensified. Because the testing, even the Western Blot done by the best labs, can have false negatives you shouldn't be quick to dismiss this possibility. Not only did the vaccine cause auto-immune problems, it was also never 100% effective. I don't know what the odds are, but it is -possible- you contracted Lyme disease after receiving the vaccine. If you do have an active infection you will probably want to use antibiotics before focusing on the auto-immune issue. (Natural medicine while effective at many things, will often shun antibiotics.) Please find a doctor who treats Lyme disease patients who has a positive reputation within the Lyme disease community to evaluate your condition. From there you can decide what treatment methods you want to try with an informed opinion. Also - have you contacted any of the lawyers who successfully sued the Lyme disease vaccine makers? I think all suits were settled, so there were no court cases. But the lawyers may have an idea of what their clients have tried for help. Try searching http://www.google.com/ for the law firms who filed suits. Good luck to you! I hope you find something to help! =) Robynn PS A great way to see a Naturopath for low cost is go to one of the Naturopathic Colleges. Though you may be seen by a student, your care would ALWAYS be overseen or reviewed by a trained ND. (Just like low cost MD and DO clinics.) Having your care managed by a trained professional is always better than taking supplements based upon someone's recommendation. Each of us is very different and our physical needs are different. A trained ND is capable of determining which supplements could help and which ones may be a detriment. Maybe one of the following colleges could help! =) Robynn Robynns_Lyme_List/ Bastyr University - WA Look under " Healthcare " http://www.bastyr.edu/ National College of Naturopathic Medicine - OR Look under " Clinics " http://www.ncnm.edu The Canadian College of Naturopathic Medicine - Canada Look under " The Clinic " http://www.ccnm.edu/ Southwest College of Naturopathic Medicine - AZ Look under " Medical Center " http://www.scnm.edu/naturopathic_school.html University of Bridgeport College of Naturopathic Medicine - CT Look under " Clinic " http://www.bridgeport.edu/pages/3240.asp [ ] Re: Potential Lyme Vaccine Victim Noone yet. This thing is wierd. I looked at my Western Blot from two years ago and it shows negative for Lyme with the exception of the vaccine bands. This injury has caused almost every symptom of Lyme without actually getting Lyme. How do you treat something like this? There is no bug to eradicate but my body thinks there is. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 What are the Western Blot bands that are for the vaccine? > Noone yet. This thing is wierd. I looked at my Western Blot from > two years ago and it shows negative for Lyme with the exception of > the vaccine bands. This injury has caused almost every symptom of > Lyme without actually getting Lyme. How do you treat something like > this? There is no bug to eradicate but my body thinks there is. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 These would be bands for Outer Surface Protein A (OspA). The vaccine was designed to cause the immune system to make antibodies against OspA in hopes that the bacteria would be recognized and attacked immediately upon OspA's introduction into the body. Unfortunately OspA looks a lot like a protein many of us naturally have in our bodies. When the immune system attacks OspA, it will often attack this natural protein as well, not being able to determine the difference between the two. =) Robynn Re: [ ] Potential Lyme Vaccine Victim What are the Western Blot bands that are for the vaccine? > Noone yet. This thing is wierd. I looked at my Western Blot from > two years ago and it shows negative for Lyme with the exception of > the vaccine bands. This injury has caused almost every symptom of > Lyme without actually getting Lyme. How do you treat something like > this? There is no bug to eradicate but my body thinks there is. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 So its not a vaccine specific band, but a band that the vaccine and active infection have in common? > These would be bands for Outer Surface Protein A (OspA). > > The vaccine was designed to cause the immune system to make antibodies > against OspA in hopes that the bacteria would be recognized and attacked > immediately upon OspA's introduction into the body. Unfortunately OspA > looks a lot like a protein many of us naturally have in our bodies. When > the immune system attacks OspA, it will often attack this natural protein as > well, not being able to determine the difference between the two. > > =) > Robynn > > > Re: [ ] Potential Lyme Vaccine Victim > > > What are the Western Blot bands that are for the vaccine? > > > > > Noone yet. This thing is wierd. I looked at my Western Blot from > > two years ago and it shows negative for Lyme with the exception of > > the vaccine bands. This injury has caused almost every symptom of > > Lyme without actually getting Lyme. How do you treat something like > > this? There is no bug to eradicate but my body thinks there is. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 Robynn Would this be 31kDa on the Western Blot PCR thru Igenex? Or are there other bands? THanks much Rose Marie > > These would be bands for Outer Surface Protein A (OspA). > > The vaccine was designed to cause the immune system to make antibodies > against OspA in hopes that the bacteria would be recognized and attacked > immediately upon OspA's introduction into the body. Unfortunately OspA > looks a lot like a protein many of us naturally have in our bodies. When > the immune system attacks OspA, it will often attack this natural protein as > well, not being able to determine the difference between the two. > > =) > Robynn > > > Re: [ ] Potential Lyme Vaccine Victim > > > What are the Western Blot bands that are for the vaccine? > > > > > Noone yet. This thing is wierd. I looked at my Western Blot from > > two years ago and it shows negative for Lyme with the exception of > > the vaccine bands. This injury has caused almost every symptom of > > Lyme without actually getting Lyme. How do you treat something like > > this? There is no bug to eradicate but my body thinks there is. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 Yes. According to Everything You Need to Know about Lyme Disease by Vanderhoof-Forschner first edition 1997, that is the only band specific to OspA. Other labs can also test for 31kD but you usually have to specifically ask them to tell you the results for this band. Because my book is a little older 's updated book may have more recent information in it. For example in the first edition writes that the band " 30kD = unknown, probably an outer surface protein " . It's possible we now know what 30kD is. I personally prefer to get my information from published books and medical journal articles. Both of these go through rigorous vetting procedures and almost always include citations to the original research. Even books and articles that contain a different viewpoint from my own have to say WHERE they got their information from. At least then I can trace how they have made their own conclusions that I either concur or disagree with. =) Robynn Re: [ ] Potential Lyme Vaccine Victim > > > What are the Western Blot bands that are for the vaccine? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 Yes. If a test - consistently - shows positive for OspA only, then more than likely it is reacting to the Lyme vaccine and not to a whole Bb spirochete. =) Robynn Re: [ ] Potential Lyme Vaccine Victim > > > What are the Western Blot bands that are for the vaccine? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 Thanks Robin Rose Marie > > Yes. Quote Link to comment Share on other sites More sharing options...
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