Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 For all of our benefit would you please describe what dysautonomia is. Hey Bee, Dysautonomia, also related to Mitral Valve Prolapse SYNDROME, is a condition where the autonomic nervous system is defective and does not work optimally. The autonomic nervous system controls heartbeat, breathing, digestion, blood pressure, and many other processes that are not in our conscience. There are many theories as to what causes it, stress, bracing (tensing the body unconsciously), some kind of malfunction during the early part of gestation in the womb that harms the autonomic nervous system, etc. Mitral valve prolapse is just one part of the body that can not develop appropriately during the early stages of fetal dvlpt. You can read about dysautonomia by doing a search on Mitral Valve Prolapse Syndrome, the syndrome part involves dysautonomia. Most people have racing heartbeats, skipped heartbeats, panic attacks, anxiety, low blood pressure, irritable bowel, and on and on. From what I have researched, I believe it to be a chronic stored stress problem, many of us that had very stressful/abusive childhoods stored all that stress with no outlet and this impacts the autonomic nervous system. Anyways, you can heal it, I have for the most part, I just have to really watch my stress level, exercise daily and do the Weston PRice diet. Bee, I would love to get off the Ambrotose, as it costs a lot of money, but I have tried and failed before. As I have said, I have also tried to go without grains, only to have horrible blood sugar crashes. One morning I ate 3 eggs fried in 2 tablespoons of coconut oil, within 2 hours, I felt crashy. Can you help me with this Bee? I would be willing to get off grains if my blood sugar could stay stable. Would having a quinoa muffin be considered eating grains? The only grains I have had this week are soaked millet and soaked quinoa. Do you consider Buckwheat a grain? Thanks, Juli __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2009 Report Share Posted March 15, 2009 I have chronic fatigue syndrome which is similar. Yes ems is one of the symptoms & can be variable from day to day. blessings, Paresh http://home.earthlink.net/~sunmoonyoga/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 Hi, , Sorry my reply has been so long in coming! I was not online for awhile due to other things I needed to catch up on. I, too, have been dxed with dysautonomia. And I feel certain that emfs do indeed interfere with the autonomic nervous system and cause worsening of the symptoms. I was found to have orthostatic hypotension and mitral valve prolapse and these, I was told, were signs of " dysautonomia " . That was 15 to 20 years ago and I never have thought to go back and read up on new findings about this problem until you mentioned it! (Thanks). Many here at this forum do appear to be affected in the same way, . Since I saw so few responding to your posts, I am guessing that others here have either not been dxed with dysautonomia or else the symptoms of it are sometimes solely activated by emfs. (Therefore might not show on a regular test???) I am guessing here. The symptoms that I see most frequently here (and most often in women who join this forum) are very much related to dysautonomia. That might be because many of these women also have CFS/ME, of which dysautonomia was considered (back when I was dxed, at least), a subset. Blood pressure plummeting (or soaring), temperature changes-chills and sweats, heart rate changes and fibrillations, electrolytes going out of balance, dizziness, inability to breathe or breathe deeply, exhaustion.... these are the symptoms I am talking about. Just asking.... are you like me, do you respond when you are in the middle of dysautonomic symptoms to calcium AEP and pantethine? You may have never tried these. They really help me get back in balance and I'd be in a great deal more misery if it were not for them (and possibly might not even be here at all.) What treatments do you take for dysautonomia, btw? Back when I was dxed, I was told to increase my salt and that was it! lol About 6 years ago, a nutritionist told me to take cal AEP and pantethine to control my fatigue and bp crashes. I have found this combo does help also when I have es symptoms which are autonomic related. Thanks for jogging my memory to look into more recent findings dealing with dysautonomia! Diane From: Kurlantzick <jkurlant1@...> Subject: dysautonomia Date: Saturday, March 14, 2009, 11:26 PM I know there have been one or two posts about this before, but they were a long time ago. I have a medical condition called dysautonomia, which basically mean blood does not return effectively from my legs/hands back to my head. I take treatments for it, but I seem to find that EMF makes the dysautonomia worse - or maybe EMF caused it in the first place. I'll never know that. Does anyone else have dysautonomia, or found it linked in any way to the EMF sensitivity? Josh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2009 Report Share Posted July 26, 2009 Hi, I am the one who recently mentioned dysautonomia on this board in connection with temperature sensitivity. You can have an ANSAR test done to show the relative functioning (or dysfunctioning) of your sympathetic and parasympathetic nervous systems. Sometimes insurance will pay (they did when it was ordered by my cardiologist in 2007, but I'm not sure if they will pay the follow-up ordered by my wholistic LLMD): Here's info about the test: http://www.ans-hrv.com/faq.htm wishing you healing, arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2009 Report Share Posted July 27, 2009 Hi Arlene, So do you actually take anything specifically targeted for this or is it a matter of keeping an eye on how your treatment for Lyme & Co. is improving it or not? Carol Quote Link to comment Share on other sites More sharing options...
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