Guest guest Posted July 9, 2000 Report Share Posted July 9, 2000 I have to let you know that I had this as well. Well, at least chest pains, and have them regularly now. My doctor in the urgent care said they were " casto chondritis " and caused by some virus that settled into the ribs that I MUST have had months ago, but curiously it occurred after the lyme bite and now I suffer from this consistently. I don't even bother worrying about it. I'm not sure this is wise or not, but considering how illiterate the doctors are out here, I'm not even sure what symptoms I should report anymore. I feel like my heart is blocked at times, as well. I'm thoroughly frustrated with the MD's out here... At 06:11 AM 7/10/00 -0400, you wrote: >Hi Pepi, > This is pretty scary, I hope your doctor is Lyme literate and can answer >you about this. I am not familiar with heart block, I read somewhere that >only a small percentage of people with LD get this condition, not sure if >that's right or not as I have learned to trust nothing I read on the >internet or newsgroups or even the newspapers or TV to be carved in stone >correct. Please let us know how you make out. > >Marta >From: Pepi <rod@...> > > > >I actually had a brilliant idea while showering! haha Anyway, after > >having my heart block cleared up a few years ago and only having occasional > >pains, they have returned almost full force since about 1 week after surg. > >Here is my thought, I was given 8 doses of steroids, even after telling > >everybody that I could not have any, steroids have been known to cause > >Cardio Myopathy in Lymies. Just wonder if this is not the pains I have been > >having? I really dunno, going to call my LLMD in the A.M. Pepi > > > >------------------------------------------------------------------------ >Special Offer-Earn 300 Points from MyPoints.com for trying @Backup >Get automatic protection and access to your important computer files. >Install today: >1/6347/11/_/484634/_/963223787/ >------------------------------------------------------------------------ > >Many thanks to our founder and friend, Marta McCoy, for making >what it is today. > > >Easy Reference: >Send a blank email message to: > > -Subscribeegroups - Subscribe to the list through email > -Unsubscribeegroups - Unsubscribe from the list > -Digestegroups - Switch your subscription to a digest format > -Normalegroups - Switch your subscription to normal > >Please send messages not related to Lyme disease to > -Offtopicegroups > >Archives can be accessed at lyme-aid > >Please visit the chat room at chat/lyme-aid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2000 Report Share Posted July 9, 2000 I actually had a brilliant idea while showering! haha Anyway, after having my heart block cleared up a few years ago and only having occasional pains, they have returned almost full force since about 1 week after surg. Here is my thought, I was given 8 doses of steroids, even after telling everybody that I could not have any, steroids have been known to cause Cardio Myopathy in Lymies. Just wonder if this is not the pains I have been having? I really dunno, going to call my LLMD in the A.M. Pepi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2000 Report Share Posted July 10, 2000 Hi Pepi, This is pretty scary, I hope your doctor is Lyme literate and can answer you about this. I am not familiar with heart block, I read somewhere that only a small percentage of people with LD get this condition, not sure if that's right or not as I have learned to trust nothing I read on the internet or newsgroups or even the newspapers or TV to be carved in stone correct. Please let us know how you make out. Marta From: Pepi <rod@...> >I actually had a brilliant idea while showering! haha Anyway, after >having my heart block cleared up a few years ago and only having occasional >pains, they have returned almost full force since about 1 week after surg. >Here is my thought, I was given 8 doses of steroids, even after telling >everybody that I could not have any, steroids have been known to cause >Cardio Myopathy in Lymies. Just wonder if this is not the pains I have been >having? I really dunno, going to call my LLMD in the A.M. Pepi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2000 Report Share Posted July 10, 2000 In a message dated 07/10/2000 7:09:03 AM Eastern Daylight Time, hummer13@... writes: << " casto chondritis " >> Hi Joy, Shudder, ...I just read your experience with the military....UGH, OUCH!! Do you drive a Hummer vehicle? The term you mean is " costochondritis, " costo meaning rib, and chondritis meaning inflammation of the cartilage. Thus: inflammation of the caritlage of the rib(s). ......the medical assistant part of me coming out, lol. Hugs, a Aida, NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2000 Report Share Posted July 10, 2000 Hi Joy, Many of us with LD have suffered from the chostochondritis??? spelling way off, never can remember how to spell this one. It is an inflamation around the tissues in the rib cage. It usually is a come and go situation, like many of our other symptoms. It can last for several months then disappear one day, it is very painful, anti-inflammatory meds are the only help for it as far as I know, and maybe ice or heat. I know what you mean about being afraid to report to a disbelieving doctor some of the oddball symptoms we get, that is why a list like this is so great, you can share symptoms and know you are not alone in your suffering. Hope this helps, Marta From: Joy <hummer13@...> >I have to let you know that I had this as well. Well, at least chest >pains, and have them regularly now. My doctor in the urgent care said they >were " casto chondritis " and caused by some virus that settled into the ribs >that I MUST have had months ago, but curiously it occurred after the lyme >bite and now I suffer from this consistently. I don't even bother worrying >about it. I'm not sure this is wise or not, but considering how illiterate >the doctors are out here, I'm not even sure what symptoms I should report >anymore. I feel like my heart is blocked at times, as well. > >I'm thoroughly frustrated with the MD's out here... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2000 Report Share Posted July 10, 2000 On Mon, 10 Jul 2000, Marta McCoy wrote: > Many of us with LD have suffered from the chostochondritis??? spelling > way off, never can remember how to spell this one. It is an inflamation > around the tissues in the rib cage. It usually is a come and go situation, > like many of our other symptoms. It can last for several months then Hi, I have this, too. My PCP always took it to mean that I had a viral infection and not Lyme, as costochondritis accompanies viral infections. But then the LLMD said this rib/chest pain is common among Lyme patients. He told me not to worry if the chest pains get worse when I take the abx - that it does NOT mean I'm having a heart attack. I'm so reassured that others know what I mean. This chest pain has been among the most consistent symptoms. Have had it for 6 years - gets worse during some herxes - in general it has improved with the abx treatment (which I've only been on since being diagnosed w. Lyme 5 months ago). Best wishes to all, Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2000 Report Share Posted July 10, 2000 Lyme patients. He told me not to worry if the chest pains get worse when > I take the abx - that it does NOT mean I'm having a heart attack Yeah, I had a Dr tell me the same thing, not to worry, 2 years later , heart attack at 28!!!! and heartblock, unless you have had a tilt table, echo's etc to rule out definatlively that this is not heart related, BEWARE!!!! When I herx bad it is my heart, missed beats, major arrythmias big enough to wake me. Just be carefull, btw, we all must be females since women *dont have heart problems* seems like Drs always lean to something else. Pepi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2000 Report Share Posted July 12, 2000 no, I love hummingbirds. ok, I'll accept your spelling, as I was basing it on something a MD wrote. At 11:09 AM 7/10/00 -0400, you wrote: >In a message dated 07/10/2000 7:09:03 AM Eastern Daylight Time, >hummer13@... writes: > ><< " casto chondritis " >> > >Hi Joy, >Shudder, ...I just read your experience with the military....UGH, OUCH!! >Do you drive a Hummer vehicle? > >The term you mean is " costochondritis, " >costo meaning rib, >and chondritis meaning inflammation of the cartilage. >Thus: inflammation of the caritlage of the rib(s). > >.....the medical assistant part of me coming out, lol. > >Hugs, >a Aida, NJ > > >------------------------------------------------------------------------ >Rate your local doctor or dentist for a chance to win $5,000! >Click here NOW to register to win. >1/5598/11/_/484634/_/963241859/ >------------------------------------------------------------------------ > >Many thanks to our founder and friend, Marta McCoy, for making >what it is today. > > >Easy Reference: >Send a blank email message to: > > -Subscribeegroups - Subscribe to the list through email > -Unsubscribeegroups - Unsubscribe from the list > -Digestegroups - Switch your subscription to a digest format > -Normalegroups - Switch your subscription to normal > >Please send messages not related to Lyme disease to > -Offtopicegroups > >Archives can be accessed at lyme-aid > >Please visit the chat room at chat/lyme-aid Quote Link to comment Share on other sites More sharing options...
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