Epilepsy

January 10, 2005

thanks I will check out the sites.

Thanks

-epilepsy approach

> > > ,

> > >

> > > Yes, there is an excellent book on coconut oil.

> > It's called The Coconut

> > > Oil

> > > Miracle. It is available at your local bookstore

> > and on Amazon.com.

> > >

> > > Bruce

> > >

> > > Hi New to the

> > group

> > >

> > >>

> > >> Hi I was just wondering if there is a good book

> > about organic virgin

> > >> coconut oil that I can read. I use it everyday. I

> > just want to share

> > >> the info with family members.

> > >>

> > >> ALso a good cream for the face for coconut oil. I

> > know it is very

> > >> good. I also have epilepsy so I am sure it helps

> > that too. But I would

> > >> like more info on that also.

> > >> Thanks

> > >>

January 10, 2005

I can not get into that site at all. It is block out. Is this spelled

correctly?

> > > ,

> > >

> > > Yes, there is an excellent book on coconut oil.

> > It's called The Coconut

> > > Oil

> > > Miracle. It is available at your local bookstore

> > and on Amazon.com.

> > >

> > > Bruce

> > >

> > > Hi New to the

> > group

> > >

> > >>

> > >> Hi I was just wondering if there is a good book

> > about organic virgin

> > >> coconut oil that I can read. I use it everyday. I

> > just want to share

> > >> the info with family members.

> > >>

> > >> ALso a good cream for the face for coconut oil. I

> > know it is very

> > >> good. I also have epilepsy so I am sure it helps

> > that too. But I would

> > >> like more info on that also.

> > >> Thanks

> > >>

January 10, 2005

I just tried it on google and got in.

had to do it twice. www.agbangakarite.com or

1-866-pur-shea Try it again.

--- angel_lts@... wrote:

>

> I can not get into that site at all. It is block

> out. Is this spelled

> correctly?

>

> > > > ,

> > > >

> > > > Yes, there is an excellent book on coconut

> oil.

> > > It's called The Coconut

> > > > Oil

> > > > Miracle. It is available at your local

> bookstore

> > > and on Amazon.com.

> > > >

> > > > Bruce

> > > >

> > > > Hi New to

> the

> > > group

> > > >

> > > >>

> > > >> Hi I was just wondering if there is a good

> book

> > > about organic virgin

> > > >> coconut oil that I can read. I use it

> everyday. I

> > > just want to share

> > > >> the info with family members.

> > > >>

> > > >> ALso a good cream for the face for coconut

> oil. I

> > > know it is very

> > > >> good. I also have epilepsy so I am sure it

> helps

> > > that too. But I would

> > > >> like more info on that also.

> > > >> Thanks

> > > >>

January 10, 2005

I tried google and it does the same. It must have something to do with

my computer. It just says. blocked net filter.

Thanks anyway.

lisa

> > > > > ,

> > > > >

> > > > > Yes, there is an excellent book on coconut

> > oil.

> > > > It's called The Coconut

> > > > > Oil

> > > > > Miracle. It is available at your local

> > bookstore

> > > > and on Amazon.com.

> > > > >

> > > > > Bruce

> > > > >

> > > > > Hi New to

> > the

> > > > group

> > > > >

> > > > >>

> > > > >> Hi I was just wondering if there is a good

> > book

> > > > about organic virgin

> > > > >> coconut oil that I can read. I use it

> > everyday. I

> > > > just want to share

> > > > >> the info with family members.

> > > > >>

> > > > >> ALso a good cream for the face for coconut

> > oil. I

> > > > know it is very

> > > > >> good. I also have epilepsy so I am sure it

> > helps

> > > > that too. But I would

> > > > >> like more info on that also.

> > > > >> Thanks

> > > > >>

January 11, 2005

I am in the site now. My husband unblocked it.

thanks

> > > > > ,

> > > > >

> > > > > Yes, there is an excellent book on coconut

> > oil.

> > > > It's called The Coconut

> > > > > Oil

> > > > > Miracle. It is available at your local

> > bookstore

> > > > and on Amazon.com.

> > > > >

> > > > > Bruce

> > > > >

> > > > > Hi New to

> > the

> > > > group

> > > > >

> > > > >>

> > > > >> Hi I was just wondering if there is a good

> > book

> > > > about organic virgin

> > > > >> coconut oil that I can read. I use it

> > everyday. I

> > > > just want to share

> > > > >> the info with family members.

> > > > >>

> > > > >> ALso a good cream for the face for coconut

> > oil. I

> > > > know it is very

> > > > >> good. I also have epilepsy so I am sure it

> > helps

> > > > that too. But I would

> > > > >> like more info on that also.

> > > > >> Thanks

> > > > >>

April 13, 2006

> I had recently been in the hosp. 2xs since Dec. I had a 4 1/2 hr+

> gran mal seizure. Once i was stabilized there from my epilepsy, i

> noticed i was experiencing alot of pain an discomfort on my left

> side. I also noticed a tingling sensation in my left arm down to my

> toes.

I had two seizures in Sept 2004 after being seizure free for 20ish

years. After that things went downhill fast and I was DXd with RA

early this year. I think that the seizures were definitely related to

the RA but I tend to think that the inflammation from the RA probably

triggered the seizures. Although, since they don't know what triggers

RA it could be the other way around.

No matter what, it sure sounds like you should be seen ASAP by

a neurologist or epileptologist ASAP because of the numbness and

tingling stuff.

I agree, Skelaxin was great at first and then...nothing

I hope you'll be able to get some relief soon...

June 30, 2006

I thought some of you might be interested to read this little blurb I found

on the s-Hopkins website... it is put out by the lab group (Drs. Pardo

and Varga) that did THE s-Hopkins study on autism showing immune

activation in the brain. It is exciting to see that they are not only

finding immune differences in autism but also in epilepsy... good to see

someone finally starting to connect the dots.

Caroline

s-Hopkins

Epilepsy as a neuroimmunological problem

Epilepsy is one of the most frequent and devastating neurological disorders,

estimated to afflict 7 to 20 per 1000 population in the world. More than

100,000 patients are diagnosed with epilepsy every year in the U.S. Epilepsy

is a disorder that may be the result of injury to the brain produced by

different factors or it may be associated with genetic predisposition.

Despite the variability of etiological factors, common neuronal and

neuroglia cell responses appear to be involved in processes associated with

epileptogenicity. Extensive investigation of neuronal mechanisms involved in

epilepsy have been done but little attention have been given to the role of

neuroglial and neuroimmune reactions in the pathogenesis of epilepsy.

Neuroglia and neuroimmune mechanisms in epilepsy

Neuroimmune responses are comprised by cellular and molecular mechanisms

that protect neurons and modulate inflammatory reactions during normal and

dysfunctional stages of the CNS. The main mechanisms of modulation of immune

responses within the CNS are facilitated by neuroglial-neuronal interactions

and the blood brain barrier (BBB). The neuroglia, mostly astrocytes and

microglia, have crucial roles in the regulation of the CNS immune response

as they participate in the detoxification of excess excitatory amino acids,

are fundamental to the integrity of the BBB, contribute to the functional

stability of synapses, and produce a number of cytokines and chemokines

necessary for maintaining CNS homeostasis.

In epilepsy, it is clear that a number of neuronal-neuroglial interactions

are disrupted and an increase in the magnitude of activated astroglia and

microglia occur in areas involved in epileptogenesis. Recent studies in our

laboratory have focused in the role of neuroglial dysfunction and

neuroimmune reactions in pediatric epilepsy. We have collected an extensive

repository of brain tissues obtained from surgical resections and

hemispherectomies performed as treatment of pharmacologically resistant

epilepsies in children. Three major groups of disorders have been

identified: Rasmussen's syndrome (RS), an inflammatory disorder thought to

be of autoimmune etiology, cortical dysgenesis, and post-stroke epilepsy. We

have demonstrated that in all three groups of disorders, activation of

neuroglia and inflammatory pathways occurs in areas of the brain involved in

epileptogenesis. Our lab also collaborate with researchers at the

Sturge-Weber Syndrome Center in the characterization of the pathological

mechanisms associated with this disorder.

June 30, 2006

Caroline:

I tried finding this on the site and I am missing it, do you have a link

to the article, I want to take it to my son's neurologist who

specializes in epilepsy.

Re: Re: epilepsy

I thought some of you might be interested to read this little blurb I

found

on the s-Hopkins website... it is put out by the lab group (Drs.

Pardo

and Varga) that did THE s-Hopkins study on autism showing immune

activation in the brain. It is exciting to see that they are not only

finding immune differences in autism but also in epilepsy... good to see

someone finally starting to connect the dots.

Caroline

s-Hopkins

Epilepsy as a neuroimmunological problem

Epilepsy is one of the most frequent and devastating neurological

disorders,

estimated to afflict 7 to 20 per 1000 population in the world. More than

100,000 patients are diagnosed with epilepsy every year in the U.S.

Epilepsy

is a disorder that may be the result of injury to the brain produced by

different factors or it may be associated with genetic predisposition.

Despite the variability of etiological factors, common neuronal and

neuroglia cell responses appear to be involved in processes associated

with

epileptogenicity. Extensive investigation of neuronal mechanisms

involved in

epilepsy have been done but little attention have been given to the role

of

neuroglial and neuroimmune reactions in the pathogenesis of epilepsy.

Neuroglia and neuroimmune mechanisms in epilepsy

Neuroimmune responses are comprised by cellular and molecular mechanisms

that protect neurons and modulate inflammatory reactions during normal

and

dysfunctional stages of the CNS. The main mechanisms of modulation of

immune

responses within the CNS are facilitated by neuroglial-neuronal

interactions

and the blood brain barrier (BBB). The neuroglia, mostly astrocytes and

microglia, have crucial roles in the regulation of the CNS immune

response

as they participate in the detoxification of excess excitatory amino

acids,

are fundamental to the integrity of the BBB, contribute to the

functional

stability of synapses, and produce a number of cytokines and chemokines

necessary for maintaining CNS homeostasis.

In epilepsy, it is clear that a number of neuronal-neuroglial

interactions

are disrupted and an increase in the magnitude of activated astroglia

and

microglia occur in areas involved in epileptogenesis. Recent studies in

our

laboratory have focused in the role of neuroglial dysfunction and

neuroimmune reactions in pediatric epilepsy. We have collected an

extensive

repository of brain tissues obtained from surgical resections and

hemispherectomies performed as treatment of pharmacologically resistant

epilepsies in children. Three major groups of disorders have been

identified: Rasmussen's syndrome (RS), an inflammatory disorder thought

to

be of autoimmune etiology, cortical dysgenesis, and post-stroke

epilepsy. We

have demonstrated that in all three groups of disorders, activation of

neuroglia and inflammatory pathways occurs in areas of the brain

involved in

epileptogenesis. Our lab also collaborate with researchers at the

Sturge-Weber Syndrome Center in the characterization of the pathological

mechanisms associated with this disorder.

June 30, 2006

and Gayle,

, sorry I didn't mean to ignore you in my post to Gayle... I saw yours

after I had responded to hers!

I hope the link will work. Please let me know if you find out who did the

studies.

I may try to do a little digging later to see what I can find but I can't

today.

Caroline

December 4, 2006

,

Seizures began for our 21 year old when she was 9. We began

chelation in 2002 at age 16+. Although many say that chelation may

worsen the seizures for a time, I've seen NO increase in seizure

activity that I can relate to chelation. Gluten, casein and soy send

her to seizure land but not chelation. We've gone the low and slow

route that Cutler suggests. I was scared to death to begin also.

Reading through some of the followup info on Minamata made me

realize that she would only get worse with time if I did nothing.

I'm thankful that I took the plunge - also thankful for the

wonderful support of this list!

> > Hi Everyone,

> >

> > I am new to this site and have a 12yr old son - Norman with dx

> autism

> > as well as severe epilepsy. Norman is also on the ketogenic diet

> since

> > July 05 and a miniscule amount of Dilantin (25mg a day) which we

> have

> > been weaning gradually.

> >

> > We had Norman's hair mineral analysis done for the first time

on

> > 22/11/05 through DDI and I have looked at it and tried applying

> the

> > counting rules, but I'm still not very clear what the results

are

> > telling me. My interpretation is that there is no definite

> indication

> > of mercury toxicity as far as the minerals are indicating. Would

> this

> > be correct?

> >

> > What about the minerals, I am not too sure I understand what the

> meaning

> > of ref ranges is - in the results below e.g. Calcium is in

yellow

> > (above 50%), with a result of 1150 ug/g against a range of 200-

700

> -

> > does this mean he has got excessive calcium?

> >

> > Any help whatsoever from the experts here would be much

> appreciated.

> >

> > Age: 12yrs

> >

> > POTENTIALLY TOXIC ELEMENTS

> > element result ref range color

> > ug/g

> >

=============================================

> > aluminum 8.9 < 8.0 yellow

> > antimony 0.10 < 0.066 yellow

> > arsenic 0.029 < 0.080 green

> > beryllium <0.01 < 0.020 -

> > bismuth 0.018 < 0.060 green

> > cadmium 0.021 < 0.15 green

> > lead 0.49 < 1.5 green

> > mercury 0.69 <0.40 yellow

> > platinum <0.003 <0.005 -

> > thallium 0.001 <0.010 green

> > thorium <0.001 <0.005 -

> > uranium 0.008 <0.060 green

> > nickel 0.23 <0.40 green

> > silver 0.50 <0.13 yellow

> > tin 0.15 <0.30 green

> > titanium 1.1 <1.0 yellow

> >

> > ESSENTIAL AND OTHER ELEMENTS

> > element result ref range color under/over 50%

> > ug/g

> >

>

================================================<

wbr\

> >============

> > Calcium 1150 200-700 yellow over 50%

> > Magnesium 54 18-70 green over 50%

> > Sodium 16 12-90

> > green under 50%

> > Potassium 12 10-40

> > green under 50%

> > Copper 13 10-30

> > green under 50%

> > Zinc 200 130-200

> > yellow over 50%

> > Manganese 0.10 0.15-0.65 yellow

> > under 50%

> > Chromium 0.69 0.20-0.40 red

> > 0ver 50%

> > Vanadium 0.020 0.020-0.075 green

> > under 50%

> > Molybdenum 0.078 0.031-0.062 yellow

> > over 50%

> > Boron 0.94 0.34-3.0

> > green under 50%

> > Iodine 0.34 0.25-1.3 green

> > under 50%

> > Lithium <0.004 0.007-0.023 red

> > under 50%

> > Phosphorus 208 160-250 green

> > over 50%

> > Selenium 0.65 0.95-1.7 yellow

> > under 50%

> > Strontium 2.5 0.30-3.2 green

> > over 50%

> > Sulfur 50500 44000-52000 green

> > over 50%

> > Barium 0.31 0.17-1.5 green

> > under 50%

> > Cobalt 0.013 0.013-0.035 green

> > under 50%

> > Iron 11 5.8-13

> > green over 50%

> > Germanium 0.029 0.045-0.065 yellow

> > under 50%

> > Rubidium 0.010 0.009-0.090 green

> > under 50%

> > Zirconium 0.83 0.047-0.70 yellow

> > over 50%

> >

> > Ratios

> >

> > Elements Ratios Expected Range

> >

> > Ca/Mg 21.3 4 - 30

> >

> > Ca/P 5.53 0.8 - 8

> >

> > Na/K 1.33 0.5 - 10

> >

> > Zn/Cu 15.4 4 - 20

> >

> > Zn/Cd >999 > 800

> >

> > TIA

> >

> > emily (Norman's mum - in UK )

> >

> > _______________________________________________

> > Join Excite! - http://www.excite.com

> > The most personalized portal on the Web!

> >

>

December 7, 2006

Hi ,

Thanks for sharing this. How is your daughter doing? I presume you are

still chelating, is she on any AED's for the epilepsy.

You've said " Reading through some of the followup info on Minamata made

me

realize that she would only get worse with time if I did nothing. " -

sorry what is Minamata?

I am going to have to go down this route of chelating but I'm trying to

manipulate his Vit B6, to see if this will have an effect on his

seizures and at least reduce them further before chelating.

thanks,

emily

> > > Hi Everyone,

> > >

> > > I am new to this site and have a 12yr old son - Norman with dx

> > autism

> > > as well as severe epilepsy. Norman is also on the ketogenic diet

> > since

> > > July 05 and a miniscule amount of Dilantin (25mg a day) which we

> > have

> > > been weaning gradually.

> > >

> > > We had Norman's hair mineral analysis done for the first time

> on

> > > 22/11/05 through DDI and I have looked at it and tried applying

> > the

> > > counting rules, but I'm still not very clear what the results

> are

> > > telling me. My interpretation is that there is no definite

> > indication

> > > of mercury toxicity as far as the minerals are indicating. Would

> > this

> > > be correct?

> > >

> > > What about the minerals, I am not too sure I understand what the

> > meaning

> > > of ref ranges is - in the results below e.g. Calcium is in

> yellow

> > > (above 50%), with a result of 1150 ug/g against a range of 200-

> 700

> > -

> > > does this mean he has got excessive calcium?

> > >

> > > Any help whatsoever from the experts here would be much

> > appreciated.

> > >

> > > Age: 12yrs

> > >

> > > POTENTIALLY TOXIC ELEMENTS

> > > element result ref range color

> > > ug/g

> > >

> =============================================

> > > aluminum 8.9 < 8.0 yellow

> > > antimony 0.10 < 0.066 yellow

> > > arsenic 0.029 < 0.080 green

> > > beryllium <0.01 < 0.020 -

> > > bismuth 0.018 < 0.060 green

> > > cadmium 0.021 < 0.15 green

> > > lead 0.49 < 1.5 green

> > > mercury 0.69 <0.40 yellow

> > > platinum <0.003 <0.005 -

> > > thallium 0.001 <0.010 green

> > > thorium <0.001 <0.005 -

> > > uranium 0.008 <0.060 green

> > > nickel 0.23 <0.40 green

> > > silver 0.50 <0.13 yellow

> > > tin 0.15 <0.30 green

> > > titanium 1.1 <1.0 yellow

> > >

> > > ESSENTIAL AND OTHER ELEMENTS

> > > element result ref range color under/over 50%

> > > ug/g

> > >

> >

> ================================================<

> wbr\

> > >============

> > > Calcium 1150 200-700 yellow over 50%

> > > Magnesium 54 18-70 green over 50%

> > > Sodium 16 12-90

> > > green under 50%

> > > Potassium 12 10-40

> > > green under 50%

> > > Copper 13 10-30

> > > green under 50%

> > > Zinc 200 130-200

> > > yellow over 50%

> > > Manganese 0.10 0.15-0.65 yellow

> > > under 50%

> > > Chromium 0.69 0.20-0.40 red

> > > 0ver 50%

> > > Vanadium 0.020 0.020-0.075 green

> > > under 50%

> > > Molybdenum 0.078 0.031-0.062 yellow

> > > over 50%

> > > Boron 0.94 0.34-3.0

> > > green under 50%

> > > Iodine 0.34 0.25-1.3 green

> > > under 50%

> > > Lithium <0.004 0.007-0.023 red

> > > under 50%

> > > Phosphorus 208 160-250 green

> > > over 50%

> > > Selenium 0.65 0.95-1.7 yellow

> > > under 50%

> > > Strontium 2.5 0.30-3.2 green

> > > over 50%

> > > Sulfur 50500 44000-52000 green

> > > over 50%

> > > Barium 0.31 0.17-1.5 green

> > > under 50%

> > > Cobalt 0.013 0.013-0.035 green

> > > under 50%

> > > Iron 11 5.8-13

> > > green over 50%

> > > Germanium 0.029 0.045-0.065 yellow

> > > under 50%

> > > Rubidium 0.010 0.009-0.090 green

> > > under 50%

> > > Zirconium 0.83 0.047-0.70 yellow

> > > over 50%

> > >

> > > Ratios

> > >

> > > Elements Ratios Expected Range

> > >

> > > Ca/Mg 21.3 4 - 30

> > >

> > > Ca/P 5.53 0.8 - 8

> > >

> > > Na/K 1.33 0.5 - 10

> > >

> > > Zn/Cu 15.4 4 - 20

> > >

> > > Zn/Cd >999 > 800

> > >

> > > TIA

> > >

> > > emily (Norman's mum - in UK )

> > >

> > > _______________________________________________

> > > Join Excite! - http://www.excite.com

> > > The most personalized portal on the Web!

> > >

> >

>

December 7, 2006

Minamata is a town in Japan where many people (and animals) were mercury

poisoned because a company dumped mercury into Minamata Bay and people ate fish

from the bay. Women who ate the fish had kids with mercury poisoning. The cats

there became suicidal. There's an article in National Geographic from the early

70s. If you want to know which one, let me know and I'll find it.

S S

You've said " Reading through some of the followup info on Minamata made

me

realize that she would only get worse with time if I did nothing. " -

sorry what is Minamata?

thanks,

emily

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

May 19, 2008

Hi Mike,

This site presents information about Edgar Cayce's approach to treating

epilepsy:

http://www.webspawner.com/users/ecsepilepsytx/index.html

Best regards,

Dudley Delany

dudley_delany

Epilepsy

Is there anything in the writings about dealing with epilepsy?

Thanks.

Mike

--

It's amazing, really, how much people think you must know if you know about

something nobody else much cares about. -Tommy Whittaker

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