Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Hi Mark, Can you share the secret of success? Was it TLC and follow the path? Cheers, Jan Muscular Dystrophy > > >> Dear Colleagues, >> >> >> Anyone have experience treating Muscular Dystrophy with NF, or other >> types >> of neurotherapies? >> >> Main sxs are: difficult swallowing which is the scariest, weakness in >> hands >> and forearms and body aches. >> >> Thank you >> Mark Berman, Psy.D. BCIA-EEG >> Clinical Psychologist >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 G'day Jan, No ... this was five years ago. I used the Othmer's structured interview and based my protocol on his symptom cluster. I think some people are just ripe for brain training and what a blessing it is for both parties when they come your way. Mark Muscular Dystrophy >> >> >>> Dear Colleagues, >>> >>> >>> Anyone have experience treating Muscular Dystrophy with NF, or other >>> types >>> of neurotherapies? >>> >>> Main sxs are: difficult swallowing which is the scariest, weakness in >>> hands >>> and forearms and body aches. >>> >>> Thank you >>> Mark Berman, Psy.D. BCIA-EEG >>> Clinical Psychologist >>> >>> >>> >>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 We are considering a mentally handicapped patient for the bypass (at the mother's requesd) because her obesity is threatening to jeopardize her seizure status (can't give her any more meds). Has anybody had experience with a patient who can't give true consent? June Zaragoza Vista Health Waukegan, IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 I will be out of the office May 12-29 and return on the 30th. For a matter needing immediate assistance, please contact Dotti Foulon, Clinical Manager at 23358. Thank you, Eve M. Dansereau, MS, LDN, RD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2008 Report Share Posted November 20, 2008 MUSCULAR DISTROPHY - MYASTHENIA GRAVIS " The influence of vitamin E on muscular distrophy in animals has been reported by a number of observers. This is a report of successful therapy of myasthenia gravis and muscular distrophy in the human with wheat germ oil and vitamin E in combination with other therapy. " " In early myasthenia gravis ranging in duration from one to five years, I have had consistent success in cases that have failed to respond to other forms of treatment with a therapy consisting of balanced dosage of ephedrine and suprarenal cortex hormone, glycocoll, gelatine, high sodium chloride and a diet rich in in vitamins A, B, C and G. Complete relief of the pareses of muscles of the eyes, face and body was obtained with prostigmine. " " In more advanced cases that show marked muscle changes, no success followed this therapy until wheat germ oil, vitamin E or a-tocopherol were added. It was then learned that materially greater improvement could be obtained also in early cases by the addition of those substances. " " A study of the creatine output in the urine revealed that these cases show a relatively high loss, which rises with the administration of glycocoll. I was able to confirm observations previously made on the effect of a-tocopherol in raising the renal threshold of creatine and reducing its loss from the body urine. " " The influence of various forms of vitamin E on the muscles is readily explainable on the basis of the importance of creatine and its compounds in muscle activity. The response of early cases of mysthenia gravis to the therapy without vitamin E is due to the fact that the threshold is not sufficiently lowered to deplete the muscles of the creatine provided by the glycocoll in the diet. When the threshold drops to a point so low that insufficient creatine is retained for muscular activity extreme forms of the disease develop. " " The response of both myasthenia gravis and muscular distrophy to the therapy indicates that they are different stages of the same condition. It also appears probable that the role of the vitamin in preserving fertility may depend on its influence on the muscular factors involved in the procreative function. The vitamin also plays an important role in the function of the heart muscle and in the prevention of myocardial disease. An increase of the diseases due to vitamin E deficiency in the diet is a natural consequence of this deficiency. " " Serious consideration should be given to restoring to universal use in the diet sources rich in vitamin E, such as freshly ground and unprocessed grains, in the interest in preserving both vigor and fertility of the race. " " On further study of myasthenia gravis I found that vitamin E is effective in treating the disease up to the most advanced stage. In the final stage of the disease, the mineral, manganese must be administered in combination with the vitamin E. The tumor of the thymus gland, thymoma, which frequently develops in the advanced stage of the disease and may be fatal in its consequences, clears up completely under the action of the manganese, as does the rest of the disease process. When manganese treatment is stopped, the thymoma and the other signs and symptoms of myasthenia gravis, return and the patient suffers a relapse which again clears up when the manganese treatment is resumed. " " The influence of the dietary treatment with manganese on the tumor of the thymus gland led me to study the influence of manganese in other enlargements of the thymus gland, such as those which occur in certin infants and children, and in status lymphatics that threatens life. These enlargements respond to the administration of manganese and clear up completely so long as as the patients get enough manganese. When the amount of manganese which they get becomes insufficient, the enlargement returns. " " These studies have opened up a fundamental and important new chapter in medicine. They reveal that the thymus has much the same relation to the utilization of manganese as the thyroid has to iodine. " E.M. phson, M.D. pgs 63-64, 65 'Your Life Is Their Toy' - 1948 > > Has anyone had any experience working with a client with Muscular > Dystrophy? I have someone who may be interested in coming to see me, > but she was wondering if any practitioners out there had been > successful in helping a client with stress reduction for this > condition. If so, I was curious as to what areas of the program would > be most helpful. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 I do not see it on the list of auto immune diseases but it is worth a trial of LDN at any rate. Not to give anyone false hope, but what if the diagnosis is incorrect and it is a disorder that might have an auto immune component that would respond to LDN? Garnet Julius or Perla Fox wrote: > > > I have a friend who has just been diagnosed with muscular dystrophy. I > understand this is a catch all diagnoses for people with weak muscles > but my friend can hardly walk now and his decline has been very rapid in > this regard over the past 6 months. Has anyone with this disease taken > LDN and if so, what were your results? Many thanks. > > P. Fox > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 I agree Garnet. Many months ago, before my friend was diagnosed with Muscular Dystrophy, I suggested LDN. Unfortunately he is a difficult person and as far as I know he never tried it. I asked if anyone with this disease was using LDN because I wanted more information that I could pass on. Anyone out there that can add anything? P. Fox Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2009 Report Share Posted September 5, 2009 Thanks Tommy for your response. I don't know any more about my friends condition than that he said he was diagnosed with Muscular Dystrophy. From what you wrote, it sounds like LDN would not help him. I hesitate to bring up the subject with him again as he is very resistant to suggestions from anyone so I'll just let it pass. If I learned that there was real promise I might broach the subject again but under the circumstances I don't see any point in doing so. Thanks again for your input. Perla Quote Link to comment Share on other sites More sharing options...
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