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A story for another time

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In my " hello " post I said I was regulating my P and said it was

a " story for another time " - because I was rambling a bit in my

intro....

I've already corresponded with one of you who asked me direct about

it - so rather than type it all again - i've cutnpasted my mail

below....hope it is of interest....sorry for the formatting -

consequence of using ....

> Like you and every other person with P, i've

> scrabbled aronud trying just about anything

> that has been tried or recommended by just

> about anyone.....an expensive and time

> consuming process......you look at one site, it

> talks about helpful stuff and mentions a

> product, so you google that, and find another

> site that talks about other stuff etc etc ad

> infinitum.....

>

> Right now I am on a regime of Kallawalla (kalawalla)

> (www.organichope.com for info and a source -

> and no...I don't work for them!). This is a

> dried extract of a fern from Honduras that

> grows in the rainforest and had been used by

> the locals for years as a cure for skin

> conditions. On a technical level it modulates

> your immune system - doesn't suppress it, just

> turns it down a little I think (some gibberish

> about T2 -> T1 lymphocytes I read somewhere).

> I take 4 a day (as recommended) and have been

> taking it for about 3 months.

>

> Within a week of taking it I noticed two

> unrelated things......first of all the P seemed

> a lot less scaly and red, quite remarkable for

> a few days worth of taking it.

>

> What I also noticed that I seemed to have a

> lot more energy than before, not sure why but

> there is evidence out there that this product

> is beneficial to people with MS and Lupus also

> (not got those - but symptomatically they feel

> tired).. Can't say what this is about - just

> the effect is quite remarkable.

>

> So - I have persevered with this supplement

> and my Psoriasis is improving daily...it gets

> really good, then comes back a little - then

> gets a lot better then comes back but less than

> before......a kind of see-saw action but with a

> steady improvement thrown in.

>

> At that point you would think - hey you found

> something that works - why look elsewhere, but I

> am determined to get rid of P totally....so I

> did another research expedition a few weeks

> ago.

>

> This threw up a homeopathic remedy

> recommended by a clinic in India for treating

> warts, exczema etc.

>

> Now personally I believe that Psoriasis has a

> skin-borne trigger and that this is the same

> virus that causes warts....there is evidence on

> the net that in the scales from psoriasis

> sufferers there is a larger amount of this

> virus present than on normal skin.....the virus

> is just HPV and everyone has it on their skin,

> the theory is that P sufferers are more

> sensitive to the virus than " normal " people.

>

> So - a little lateral thinking tells me to

> try the remedy which is available from the

> local chemist. It is called Thuja 6C (which is

> the potency).

>

> Started taking it about 10 days ago....and as

> much as I think Homeotherapy is a bit cranky

> (logical brain tells me that when you dilute

> something down so far it can't possibly

> help)...it actually seems to be helping. The

> effect of the Kallawalla wave (as I have

> nicknamed it!) is accelerated and my P is

> better further by degrees.

>

> Step 3......

> P sufferers usually cover up their lesions (I

> have a lot of long sleeve shirts!) but recently

> I have decided to go short-sleeved as it is

> really sunny here and we all know UV works well

> (it works really really with with Kallawalla).

> So lately I have had my elbows exposed to the

> world.....and have therefor been

> " experimenting " with my wife's massive array of

> moisturisers and creams to stop them getting

> flaky.

>

> I found one in the cupboard that kept my skin

> nice and moist - but she was a bit mad at me

> because it is a facial moisturiser and costs

> £28 a bottle (thats $50). so I scrabbled

> around a bit more and found a tube of something

> she had bought to help get rid of bruises (she

> is a nurse and is constantly getting clanged by

> beds or carts at the hospital). So...I just

> started using a bit of that.....and

> lo-and-behold...that is helping too! It is

> called " Arnica bruise relief " ....and if you

> read about Arnica - it has evidence on the net

> about it's benefits to P sufferers. (just be careful as

> it can cause contat dermatitis in the sensitive.)

>

> I have cut right down on alcohol intake and

> milk intake over the years..I only drink very

> occasionally and only the odd budweiser or two.

> It helps having a really nice car that I love

> to drive and as I refuse to drink anything if I

> am driving so I always volunteer to drive (kind

> of reverse psychology or something) - it keeps

> me out of the way of alcohol (which is a major

> trigger for everyone with P). On the milk

> front I have the odd cup of coffee but never

> large amounts in one hit.....it all seems to

> help.

>

> My P has gone from being red, vivid and very

> flaky on my elbows to being pink and non-flakey

> and on days it seems to almost disappear

> completely - the mass of the lesion is breaking

> up around the edges and returning to normal

> skin, and there are small areas in the middle

> that are also more or less normal too.

>

> One last thing - as I said I believe that HPV

> is a trigger of some sort for P - sufferers

> immune systems go wild about it for some

> reason. But this does not explain why P

> suddenly starts up......

>

> In my case I think (and I am prepared to be

> shot down over this belief because it goes

> against every P sufferers mantra) that my P

> stems from a time when I was learning the art

> of Chinese KickBoxing. There was another guy

> there who had P on his elbows and I came into a

> lot of close contact with those lesions whenever

> he elbowed me in the head. Now before you say

> " whoah - P is not catching " hear me

> out........I had nothing before I came into

> contact with him...but within months a lesion

> developed on my elbow and from there spread to

> other parts of me. I believe that this may be

> down to the fact that HPV comes in many strains

> and the strain on his body was different to

> mine.....my immume system coped with my own ok,

> but this other strain somehow has triggered a

> reaction. It is not a transfer of disease but

> a transfer of a usually benign trigger that

> everyone has on their skin anyway. If you look

> at how P spreads - it forms colonies on the

> skin...I simply believe that

> this is due to this HPV virus. Unfortunately

> there is no " cure " for HPV (although there have

> been some breakthroughs recently which I am

> keeping an eye on)

Thats about it.....I will soon add milk thistle to the attack as I

have read a fair bit of good press on the net about it.

I found an interesting site the other day....which may be of

interest to some of you....

http://www.remedyfind.com/hc_default.aspx

Regards.

nik.

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On the milk front I have the odd cup of coffee but never large amounts in one

hit.....it all seems to help.

What does milk do for Psoriatic arthritis??? Is it a bad thing to drink with

this??? I never heard this one before... Maybe I was not paying attention...

Love and Peace Always

Shaun and Barb

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