Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Hi Kate I have had IBS symptoms off and on since the late 70s, not so bad to require heavy drugs, but bad enough. Surprisingly what seemed to help was a wee bit of Metamucil - didn't need much, 1 teaspon / tablespoon ( depending on the doseage on the container ) twice a day did the trick. I've tried going without and sooner rather than later I start having symptoms again. When it's acting up I also seem to be sensitive to fat in my diet - if I eat more than 10 grams or so in a meal I will pay for it for a day. When my guts have been happy for a while I can tolerate fat much better. Anyway for me the Metamucil seemed to be the trick. Don't know if this will help, hope so.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 In a message dated 2/13/2006 12:37:49 P.M. Eastern Standard Time, kathrinaryan@... writes: But I just didn't get a good feeling re the IBS from any of the health professionals I met at the weekend. Kate, have you been tested for celiac disease? It correlates with PA and is often mis or not diagnosed at all. Manifests with symptoms like IBS. Might be worth the test... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Hi Kate, glad they are doing a scope. they may need to rule out a type of colitis which is seen with pa sometimes. If you have that treatment would be different...ask them to biopsy seemingly normal tissue and check for inflammation. I've had 3 different docs on the ibs and 3 different diets recommended. I found I need to experiment myself and stay away from certain foods. honestly,(crosses fingers)a lot of my pain subsided with remicade....that could be that i had the colitis and not true ibs... i also notice if my lower spine is flared i get more of the colon pain and probs...they seem to fit together for me. good luck, marti > > Hi folks, > > I joined the group almost four years ago but only made one or two > posts in the early days. I was diagnosed with PA four years ago, > after at least a year of chronic fatigue and initial joint > involvement. Four years on, I'm on Enbrel,Methotrexate and Difene > and the PA has spread through hands, feet, neck, lower back, knees > etc. and I have also developed osteoarthritis in one knee. > Generally though I am managing the PA. I have good days and bad but > tend to get on with it. However, this weekend was something > different. > > I had been diagnosed with IBS about 15 years ago (no scope was done > at the time) but the symptoms had been generally mild; cramping, > mild constipation/diarrhea etc. Nothing serious that I couldn't > cope with but in the last couple of months the IBS has returned with > a vengence, usually causing quite severe spasms at night. I thought > I was coping but over the weekend I ended up in casualty the pain > from the spasms was so severe. I couldn't sit, stand or lie with the > pain. My GP is sending me for a scope but the doctor I met at the > weekend did not inspire confidence as to how the future management > of the IBS would progress - " the tablets you are currently taking > are about the best that are out there, the next step is anti- > depressants " .... I tell you, I will bloody need anti-depressants if > I'm going to have those spasms constantly. > > Maybe I have been lucky so far with the PA in the fact that I got a > quick diagnosis and am lucky enough to have the support of a > fantastic Rheumatology Nurse through my clinic(I don't contact her a > lot but knowing she is there to answer any questions makes it a > whole lot better). My GP is also very tuned into Arthritis which > helps. But I just didn't get a good feeling re the IBS from any of > the health professionals I met at the weekend. I felt like I was > fussing and that they felt this was an illness you just have to get > on with! > > Has anyone else had severe spasms in the bowel, if so, did they find > anything that worked?? Does anyone know how these illnesses link > together? > > Thanks for you help. > > Kate > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2006 Report Share Posted February 14, 2006 Thanks for that, will look into Metamucil and try to cut down the fat in the diet although don't know if I'll have the patience to measure / weigh / calculate the grams! > > Hi Kate > I have had IBS symptoms off and on since the late 70s, not so bad to > require heavy drugs, but bad enough. Surprisingly what seemed to help > was a wee bit of Metamucil - didn't need much, 1 teaspon / tablespoon > ( depending on the doseage on the container ) twice a day did the > trick. I've tried going without and sooner rather than later I start > having symptoms again. > > When it's acting up I also seem to be sensitive to fat in my diet - if > I eat more than 10 grams or so in a meal I will pay for it for a day. > When my guts have been happy for a while I can tolerate fat much better. > > Anyway for me the Metamucil seemed to be the trick. Don't know if this > will help, hope so.... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2006 Report Share Posted February 14, 2006 Thanks for that, will look into Metamucil and try to cut down the fat in the diet although don't know if I'll have the patience to measure / weigh / calculate the grams! > > Hi Kate > I have had IBS symptoms off and on since the late 70s, not so bad to > require heavy drugs, but bad enough. Surprisingly what seemed to help > was a wee bit of Metamucil - didn't need much, 1 teaspon / tablespoon > ( depending on the doseage on the container ) twice a day did the > trick. I've tried going without and sooner rather than later I start > having symptoms again. > > When it's acting up I also seem to be sensitive to fat in my diet - if > I eat more than 10 grams or so in a meal I will pay for it for a day. > When my guts have been happy for a while I can tolerate fat much better. > > Anyway for me the Metamucil seemed to be the trick. Don't know if this > will help, hope so.... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2006 Report Share Posted February 14, 2006 Thank for your reply . I haven't been tested for Coeliac disease, if the scope doesn't provide answers it's another avenue to try. Kate > > > In a message dated 2/13/2006 12:37:49 P.M. Eastern Standard Time, > kathrinaryan@... writes: > > But I just didn't get a good feeling re the IBS from any of > the health professionals I met at the weekend. > > > Kate, have you been tested for celiac disease? It correlates with PA and is > often mis or not diagnosed at all. Manifests with symptoms like IBS. Might > be worth the test... > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2006 Report Share Posted February 14, 2006 Thanks Marti, I've noticed that the IBS is certainly affecting the flares of PA in my lower spine, hadn't thought of it the other way around so I will try to take more note of that. I never thought I'd say this but I'm glad myself that they are doing the scope, really want this sorted but think I might end up with at least three different diets etc. like you did. I had been trying cutting out different foods etc but I've certainly not found it to be either as easy or as definitive as some doctors would have you believe. But then I think my whole gut is so inflammed at the minute that almost everything is irritating it! > > > > Hi folks, > > > > I joined the group almost four years ago but only made one or two > > posts in the early days. I was diagnosed with PA four years ago, > > after at least a year of chronic fatigue and initial joint > > involvement. Four years on, I'm on Enbrel,Methotrexate and Difene > > and the PA has spread through hands, feet, neck, lower back, knees > > etc. and I have also developed osteoarthritis in one knee. > > Generally though I am managing the PA. I have good days and bad > but > > tend to get on with it. However, this weekend was something > > different. > > > > I had been diagnosed with IBS about 15 years ago (no scope was done > > at the time) but the symptoms had been generally mild; cramping, > > mild constipation/diarrhea etc. Nothing serious that I couldn't > > cope with but in the last couple of months the IBS has returned > with > > a vengence, usually causing quite severe spasms at night. I > thought > > I was coping but over the weekend I ended up in casualty the pain > > from the spasms was so severe. I couldn't sit, stand or lie with > the > > pain. My GP is sending me for a scope but the doctor I met at the > > weekend did not inspire confidence as to how the future management > > of the IBS would progress - " the tablets you are currently taking > > are about the best that are out there, the next step is anti- > > depressants " .... I tell you, I will bloody need anti- depressants > if > > I'm going to have those spasms constantly. > > > > Maybe I have been lucky so far with the PA in the fact that I got a > > quick diagnosis and am lucky enough to have the support of a > > fantastic Rheumatology Nurse through my clinic(I don't contact her > a > > lot but knowing she is there to answer any questions makes it a > > whole lot better). My GP is also very tuned into Arthritis which > > helps. But I just didn't get a good feeling re the IBS from any of > > the health professionals I met at the weekend. I felt like I was > > fussing and that they felt this was an illness you just have to get > > on with! > > > > Has anyone else had severe spasms in the bowel, if so, did they > find > > anything that worked?? Does anyone know how these illnesses link > > together? > > > > Thanks for you help. > > > > Kate > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 In a message dated 13/02/2006 17:37:49 GMT Standard Time, kathrinaryan@... writes: Has anyone else had severe spasms in the bowel, if so, did they find anything that worked?? Does anyone know how these illnesses link together? Sorry Kate, I can't help you with your bowel question but I just wanted to say that it is good that you found your voice again. lol I hope someone can help you. You don't appear to be getting a good reaction from the specialists at the moment but hopefully that will change. Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 Dear Kate, I've had IBS ever since I had a hysterectomy about 18 years ago. Needless to say, there have been a lot of days and nights when I was walking the floor, instead of sleeping. For me, the thing that stops it now is Xanax. Xanax is an anti anxiety drug, but it is also given for muscle spasms and tension. I was put on it for muscle spasms, but I noticed every time I took it my IBS would go away. I used to take Bentyl too, but found the side effects were too miserable. It always made me feel out of it. Anyway, if your doctor would let you try Xanax it really does work well for the muscle spasms from IBS. A lot of doctors worry about it being habit forming though. I've been lucky and haven't had to increase the dosage and I don't need to take it every day. I hope this helps. Take care, Fran In a message dated 13/02/2006 17:37:49 GMT Standard Time, kathrinaryan@... writes: Has anyone else had severe spasms in the bowel, if so, did they find anything that worked?? Does anyone know how these illnesses link together? _____ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.