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Re: Update - hopeful

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Kathy, thanks for the info about injectable MTX. I may need it. The

nausea is worse today than yesterday - is that typical? Does it also

cause awful fatigue and itching? With so many drugs, it's hard to

tell which causes what. LOL

sherry z

[Editor's Note: Sherry, I don't know if MTX could cause nausea or itching a few

days after the shot, but I know from personal experience that it can cause

fatigue for several days. You're right - it is hard to know which drug (if it

even is a drug) that is causing the symptoms. Generally, you have to stop one

drug and see if the symptoms cease and if they do, then that drug was probably

the culprit. MTX is a marvelous drug for many people and it also has been shown

to enhance the performance of other drugs such as Remicade, Enbrel and Humira.

However, it can have side unpleasant side effects in some people. Talk to your

doctor and see what he/she recommends. However, if the nausea subsides but

returns again after you next take MTX, you can be reasonably sure that

methotrexate is the culprit. As I mentioned, the injectable version for SOME

people does not cause the symptoms that the oral version causes. It is also

possible that your body will adjust to it and that the symptoms will go away.

Is the itching psoriasis itching or is it more general? If it is the latter,

you can probably take an anti-histamine and the itching will go away. Kathy F.]

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Oh Sherry...thanks for the update and I'm hoping that this is your

wonder drug too. I would love to read that your feet are cleared up.

I want everyone to be running around like I am. I was not sure that

I ever would be myself again. I do know that there may be times when

it gets rough again but it is so sweet when it is not that I

thoroughly enjoy each step I take. I savor each little one....or big

one! I am slowing down a bit because I had to get off the Enbrel due

to an infection. I can't take another injection until the infections

are clear. But hopefully it won't be too much longer... a week or

so. It reminds me of how much the Enbrel is helping me. So I really

hope that the Mxt is the one for you. And I'm glad the thankful gig

is working for you as it is for Kathy and myself. You CAN be

thankful for MORE than 5 if you want! Five just gets you started.

Love Betz

>

> Haven't posted in a while, but have been enjoying reading everyone

> else's news.

>

> I took my first dose of MTX Wednesday - 10 mg. No adverse side

> effects so far except mild nausea. I'm real hopeful that this will

> be a wonderdrug for me, at least for a while. I'm also taking 1 mg

> of folic acid daily. Rheumy also added Tramadol. She said it's OK

> to take the tramadol, the bufferin, and the naproxen altogether.

> Seems like too much drugs to me, but sometimes I just can't make it

> without them all. Still can't walk more than a few feet at a

time -

> P on feet causing too many open sores - but hands are better. P is

> spreading up my legs and arms now, yuck.

>

> Betz, I have a new item to add to my " count 5 blessings " list.

> Thank God I have PA and not RA, 'cause at least when people see my

> hands and feet they have a slight clue that something really IS

> wrong with me! Otherwise I would appear to be a suddenly lazy bum,

> slacker, hypochondriac. LOL!

>

> I have the best, most compassionate derm in the world! She

actually

> gave me a hug yesterday. I said, " Just a few months ago, I wasn't

> the blithering idiot you see today. " She said, " I don't see a

> blithering idiot, " and came over and gave me a big hug. How kind

is

> THAT???? I wish we all could be blessed with such caring

physicians!

>

> sherry z

>

> [Editor's Note: Sherry, I've been doing the " 5 blessings a day "

routine for years, and I truly believe it has kept my attitude

rosier than it ever would have been without it. Sometimes, I'm

grateful for little things like a new toothbrush and sometimes it's

big things like my a close friend but they're all reasons to

celebrate life. If you continue to have mild nausea from the MTX,

you might ask your rheumy about switching to injectable MTX instead

of oral. Some people experience fewer side effects when taken

intramuscularly instead of orally. Kathy F.]

>

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Deborah - thanks so much for the tips about anti-nausea and anti-itch

meds!!! I will try them both. The nausea got worse the second day

(yesterday) but seems a little better today. Hey, maybe I will lose

some weight? LOL

sherry z

>

> good morning sherry

>

> i am new to the group but i think i have information that will

help you. when i first started taking mtx years ago, i had the same

problems nausea, i found an otc drug emitrol. its a liquid comes in

two flavors cherry and lemon lime. if you take one dosage the night

before you take your mtx pills and one after, it will kill the nausea.

you wont wake up feeling like you are pregnant. lol

>

> also the itching is a side effect of the mtx for alot of people. i

use loratadine 10mg

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Hey Sheri...Deborah is right...this stuff works but make sure you

take it AT NIGHT as it can knock you out. It does me and my

daughter. We always keep some on hand in case we get a barfing belly

bug. Hope it works for ya. -Betz

> >

> > good morning sherry

> >

> > i am new to the group but i think i have information that will

> help you. when i first started taking mtx years ago, i had the

same

> problems nausea, i found an otc drug emitrol. its a liquid comes

in

> two flavors cherry and lemon lime. if you take one dosage the

night

> before you take your mtx pills and one after, it will kill the

nausea.

> you wont wake up feeling like you are pregnant. lol

> >

> > also the itching is a side effect of the mtx for alot of

people. i

> use loratadine 10mg

>

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Hi Deborah. I have a little Cherokee in me. I just found out 3 years

ago and I'd love to know more about my heritage. Welcome to the

group and thanks so much for jumping right in and helping out.

That's what we are all about. I'm sorry to read that you have so

many health issues yourself. If I lived near you, I'd do a

medication run for ya anytime I could. I bet people would be happy

to do that for you down there but maybe that Indian blood makes us

stubborn and self-sufficient. This year, I have learned to let

people help me and it has not hurt as much as I thought it would. It

makes me feel so good to help others and it dawned on me that I was

prohibiting others by not allowing them to help me when I needed it.

Ok...it's still hard to do sometimes but I'm working on it. lol. -

Betz

> Kathy, thanks for the info about injectable MTX. I may

need it. The

> nausea is worse today than yesterday - is that typical? Does it

also

> cause awful fatigue and itching? With so many drugs, it's hard to

> tell which causes what. LOL

>

> sherry z

>

> [Editor's Note: Sherry, I don't know if MTX could cause nausea or

itching a few days after the shot, but I know from personal

experience that it can cause fatigue for several days. You're right -

it is hard to know which drug (if it even is a drug) that is

causing the symptoms. Generally, you have to stop one drug and see

if the symptoms cease and if they do, then that drug was probably

the culprit. MTX is a marvelous drug for many people and it also has

been shown to enhance the performance of other drugs such as

Remicade, Enbrel and Humira. However, it can have side unpleasant

side effects in some people. Talk to your doctor and see what he/she

recommends. However, if the nausea subsides but returns again after

you next take MTX, you can be reasonably sure that methotrexate is

the culprit. As I mentioned, the injectable version for SOME people

does not cause the symptoms that the oral version causes. It is also

possible that your body will adjust to it and that the

> symptoms will go away. Is the itching psoriasis itching or is it

more general? If it is the latter, you can probably take an anti-

histamine and the itching will go away. Kathy F.]

>

>

>

>

>

>

> Bloom, where you are planted.

>

>

>

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> I took my first dose of MTX Wednesday - 10 mg. No adverse side

> effects so far except mild nausea. I'm real hopeful that this will

> be a wonderdrug for me, at least for a while. I'm also taking 1 mg

> of folic acid daily. Rheumy also added Tramadol. She said it's OK

> to take the tramadol, the bufferin, and the naproxen altogether.

> Seems like too much drugs to me, but sometimes I just can't make it

> without them all. sherry z

Sherry, I too take MTX (17.5 by mouth weekly), Tramadol (50mg twice a

day) and " extended release " Indomethacin (75mg.) as my daily NSAID.

A great medicine my doctor prescribed to counteract my nausea

was " Omerprazole " (20mg). I had originally taken it for Indomethacin

nausea, but when the injectable MTX shortage hit about a year or so

ago, I switched to the pill form of MTX and low-and-behold, absolutely

NO nausea. Good luck! Jim

PS - I'm sure you've probably already been told this, but I always take

my MTX dose before bedtime.

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Jim, thanks for the info. I spoke with the rheumy's nurse this a.m.

and hope to hear from her today about what I might take for the

nausea for this Wed.'s dose. Yes, I took it at bedtime. She had

said I could either take all 4 pills at once, or I could take 2 in

the a.m. and 2 in the evening. I took all 4 at once. Would it be

less nauseous to split it up?

sherry z

>

>

> Sherry, I too take MTX (17.5 by mouth weekly), Tramadol (50mg

twice a

> day) and " extended release " Indomethacin (75mg.) as my daily

NSAID.

>

> A great medicine my doctor prescribed to counteract my nausea

> was " Omerprazole " (20mg). I had originally taken it for

Indomethacin

> nausea, but when the injectable MTX shortage hit about a year or

so

> ago, I switched to the pill form of MTX and low-and-behold,

absolutely

> NO nausea. Good luck! Jim

>

> PS - I'm sure you've probably already been told this, but I always

take

> my MTX dose before bedtime.

>

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You must have been thrown together for a reason! -Betz

>

> Betz,

> Here all along I thought my stubbornness was my German heritage.

I must be

> really awful to help. Cherokee from my dad and German from my

mother. lol

>

> However, I'm always out there trying to help others worse off

than me. My

> husband laughs at my sister and I. She uses a walker, her

husband a cane, and

> I've been in a wheelchair until a week ago. But of the three of

us, I'm the

> only one that still drives... off we go shopping. At least when

one says I

> need to rest we all say okay with no questions.

>

> Sandy swOhio

>

>

>

>

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Cool! Thanks Janet!

>

> Betz,

> Since I have been doing my family tree and three of my

grandparents were in

> various land rushes into Oklahoma, I came accross a lady who knows

everything

> you might want to know about the Cherokee Nation and the People.

You can

> reach her on the message boards on Rootweb.com in the section for

the Indian

> Territory. Her name in Jeri Chastain. I don't have her e-mail

handy, but she

> is a no nonsense, very knowledgeable person who will probably be

abel to help

> you. In case you want to research your ancestors. She can also

give you

> instructions for finding out if your ancestors are on the Dawes

Roll (the list

> of full blood Cherokees in title to Land money from old treaties

that were

> broken), you may be able to collect some. You have to prove you

are related to

> a name on that list. There is another one that I don't remember

the name

> of, you Jeri will know.

> Hope the job is going well!

> Love,

> Janet in Ca

>

>

>

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So Barb won't be going with you to your sisters? She'll have to take

care of all your " livestock " won't she??? lol. You guys are good to

take time to care for the pets of others when you have so much on your

plate already. Enjoy your " vacation " . You Rock. -Betz

>

> That is wonderful... I let Barb drive most times... She has arm

troubles but is able to remember area's and things better... I will be

going to my sister's to baby sit her cat, dog and house on the 24th so

I will probably drive there myself... I have to take my oxygen and what

not there, but it will be a nice little get away for four days...

>

> Love and Peace Always

> Shaun and Barb

>

>

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