Guest guest Posted August 13, 1999 Report Share Posted August 13, 1999 Wow thanks for the info, I saw some articles in PUD MED, reading up on some of the studies they did, Now I'm going to buy the book and read some more. I know it depends on the stage one is in, for prograf to deter transplantation, So lets see what happens. Thanks LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 1999 Report Share Posted August 13, 1999 What is PUD MED? J >From: MRios81143@... >Reply- onelist > onelist >Subject: Re: [ ] PROGRAF >Date: Fri, 13 Aug 1999 19:30:56 EDT >MIME-Version: 1.0 >From errors-165537-5185-shireen42 Fri Aug 13 16:31:31 1999 >Received: from [209.207.164.225] by hotmail.com (2.1) with ESMTP id >MHotMailB97DF5CB01F5D821979BD1CFA4E14E3F0; Fri Aug 13 16:31:31 1999 >Received: (qmail 7828 invoked by alias); 13 Aug 1999 23:32:09 -0000 >Received: (qmail 7818 invoked from network); 13 Aug 1999 23:32:08 -0000 >Received: from unknown (HELO imo15.mx.aol.com) (198.81.17.5) by >pop.onelist.com with SMTP; 13 Aug 1999 23:32:08 -0000 >Received: from MRios81143@... by imo15.mx.aol.com (mail_out_v22.4.) id >hRSIa07446 (4225) for < onelist>; Fri, 13 Aug 1999 >19:30:57 -0400 (EDT) >Message-ID: <1040f898.24e604b0@...> >X-Mailer: AOL 4.0 for Windows 95 sub 21 >Mailing-List: list onelist; contact > -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >From: MRios81143@... > >Wow thanks for the info, I saw some articles in PUD MED, reading up on >some >of the studies they did, Now I'm going to buy the book and read some more. >I know it depends on the stage one is in, for prograf to deter >transplantation, So lets see what happens. >Thanks >LOL > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 1999 Report Share Posted August 14, 1999 PUD = Peptic Ulcer Disease --- susan johnson <shireen42@...> wrote: > From: " susan johnson " <shireen42@...> > > What is PUD MED? > > J > > > >From: MRios81143@... > >Reply- onelist > > onelist > >Subject: Re: [ ] PROGRAF > >Date: Fri, 13 Aug 1999 19:30:56 EDT > >MIME-Version: 1.0 > >From errors-165537-5185-shireen42 Fri Aug 13 > 16:31:31 1999 > >Received: from [209.207.164.225] by hotmail.com > (2.1) with ESMTP id > >MHotMailB97DF5CB01F5D821979BD1CFA4E14E3F0; Fri Aug > 13 16:31:31 1999 > >Received: (qmail 7828 invoked by alias); 13 Aug > 1999 23:32:09 -0000 > >Received: (qmail 7818 invoked from network); 13 Aug > 1999 23:32:08 -0000 > >Received: from unknown (HELO imo15.mx.aol.com) > (198.81.17.5) by > >pop.onelist.com with SMTP; 13 Aug 1999 23:32:08 > -0000 > >Received: from MRios81143@... by > imo15.mx.aol.com (mail_out_v22.4.) id > >hRSIa07446 (4225) for < onelist>; > Fri, 13 Aug 1999 > >19:30:57 -0400 (EDT) > >Message-ID: <1040f898.24e604b0@...> > >X-Mailer: AOL 4.0 for Windows 95 sub 21 > >Mailing-List: list onelist; > contact > > -owneronelist > >Delivered-mailing list > onelist > >Precedence: bulk > >List-Unsubscribe: > <mailto: -unsubscribeONElist> > > > >From: MRios81143@... > > > >Wow thanks for the info, I saw some articles in > PUD MED, reading up on > >some > >of the studies they did, Now I'm going to buy the > book and read some more. > >I know it depends on the stage one is in, for > prograf to deter > >transplantation, So lets see what happens. > >Thanks > >LOL > > > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 Jerry, Maybe you can also tell me what side effects you experience from Prograf. I had my liver transplant in May 1995 and have been on Prograf since that time. One side effect I have is occasional gastrointestinal distress (vomitting and diarrhea which come on very suddenly). The other problem is that the Prograf is effecting my kidney function...I am now between 50 and 60% on the output, although the BUN and creatine numbers are within normal range. I would be interested in knowing what you think about Prograf. Bonnie (NYS) AIH and post transplant Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 Bonnie....other than blaming it for my development of cancer .. I have had no other side efects that I know of. I know it may be hard on the kidney but I havent had any indication. I like it pretty well and sometimes I forget to take it with no adverse reactions.I`m on 2mgs twice daily but I know they could reduce that and have talked about it a couple of times. It is the only med I take in relation to my transplant. Other than what you told me what else do you face post-transplant? Jerry Jerry, Maybe you can also tell me what side effects you experience from Prograf. I had my liver transplant in May 1995 and have been on Prograf since that time. One side effect I have is occasional gastrointestinal distress (vomitting and diarrhea which come on very suddenly). The other problem is that the Prograf is effecting my kidney function...I am now between 50 and 60% on the output, although the BUN and creatine numbers are within normal range. I would be interested in knowing what you think about Prograf. Bonnie (NYS) AIH and post transplant Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Jerry, As I mentioned, I have occasional bouts of gastro problems with the Prograf. I am a little upset about the kidney function being abnormal and am being followed up every 6 months by a nephrologist. My transplant coordinator has me on 2 mg. of Prograf twice a day and cannot reduce my dosage since I am at the minimal therapeutic level. Her words were "let us worry about it" (the kidney function and prograf). I just wonder what they will do if my kidney function continues to deteriorate. It seems that at some point they would have to lower the medication. Another concern I have about the Prograf is cancer. You stated that your cancer was due to the Prograf. A woman in my transplant support group who has been on Prograf for over 10 years (one of the first at Pittsburgh to receive it) recently was diagnosed with kidney cancer and had one kidney removed. That is not very reassuring. But, like you, Jerry, I try to live one day at a time and be grateful that I am still alive. We can't know what the future holds for us, so we have to appreciate all the time we have been given which we would not have had were we not fortunate enough to receive our transplant. May 21 of this year will mark the 6th anniversary of my liver transplant and that day will certainly be one to celebrate. Best wishes to you, and thank you for being such a great resource and source of insight for this liver support group. Bonnie P. AIH and post transplant Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Took prograf in March for about 2-1/2 weeks when I developed bacterial pneumonia and was hospitalized. A culture revealed bacteria--don't remember name--but doctor explained it is one that everyone's body fights off on regular basis, so was immediately take off the prograf. I have had bronchitis before and had viral pneumonia as a 6 year old child--don't know if that may have set up my susceptibility to pneumonia infection or not--but no doubt drug caused it to occur. Have had two Remicade infusions (two weeks apart) and am scheduled for next one four week interval 10/17; then will have infusion at 8 week intervals. HMO Insurance paying for 100% and benefits have been immediate. My approval with ins. co. came in three days as doctor was able to document no other options left for me as embrel not available until 2003. I have so much more energy, less pain and have reduced prednisone from 15 mg. to 7.5 mg. already. Also take less darvocet--reduced from 2 pills 3Xday to one pill occasionally. So, I am really encouraged so far and my husband is amazed at the increase in my stamina and mobility. in VA [ ] prograf > my rheumy just started me on prograf, one of the last > drugs left for me to try. I would just like to know > if anyone else has tried this drug. Its supposed to be > very similar to cyclosporine. The side effects are > pretty scary, e.g. infections, kidney disease, > cancer/tumors, high blood pressure. I've been on just > about everything else except enbrel(on the waiting > list). Any response would be very much appreciated. > Thank you. mike > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2003 Report Share Posted July 27, 2003 Patty: You took prograf. Did you have any trouble with it. The gastro changed me from neoral to prograf starting Monday. Thanks Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2003 Report Share Posted July 27, 2003 I didn't. I'd much rather take it than prednisone. It is however a drug that they have to check blood levels on, it is toxic if you take too much. Correct dose depends on the person. I hope it works for you. Patty -----Original Message-----From: cris4195@... [mailto:cris4195@...] Sent: Sunday, July 27, 2003 9:03 PM Subject: Re: [ ] Re: PrografPatty:You took prograf. Did you have any trouble with it. The gastro changed me from neoral to prograf starting Monday. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 I am post-transplant and have been taking 4 mg. of prograf daily for the past 8 years. The only problem I have with the drug is that occasionally I have some gastric upset..vomitting and diarrhea. However, this occurs only a few times a year and much less the longer I remain on the medication. Bonnie P. AIH and post transplant (5/95) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 Bonnie Thanks for the updateThe pamphlet made it sound like the one of the worst drugs in the world. It is nice to know someone does well on it. I will be on 1 mg a day. The cyclosporine stopped working and they want me off prednisone. Chris Quote Link to comment Share on other sites More sharing options...
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