I'm new here

[Guest guest]

Hello,

My name is . I live in NW Florida, in the panhandle region.

After being diagnosed with papilledema 2 years ago and numerous tests I

was diagnosed with Lyme disease in April of 99. This has baffled all my

doctors because " You can't get Lyme in Florida " . A spinal tap was done

and it showed a white count of 22. Another spinal tap was done and the

white count was 150. I was told I had a positive test and they ran

another test, I think the western blot which was positive as well. The

neurologist said the test results showed a recent infection but the

papilledema had been there for over a year at this time so she was

confused. I was put on rocephin (msp) for 3 months beginning 4/99. I

have now been told I have chronic papilledema, does anybody else out

there have this?. As the result of a move I changed neurologists during

this treatment. The new neurologist thinks I am cured and all my

symptoms are migraines. The picc line was pulled before the spinal tap

was cultured, and I was never given the results. My symptoms at this

time are confusion, vision worsening, chronic daily headaches and head

rushes, severe mood swings, increased temper, a very stiff and sore body

when I get up after sitting for more than 30 minutes (esp in the

evening). I recently started seeing a psychologist and he thinks I

should go to New York to see a doctor that is treating more lyme

patients. I simply do not have the money to do that. I have two

disabled adult children, one suffered a closed head injury in 1985 (he

was nine at the time and is now 23), the other was diagnosed with

hydrocephalus at the age of 18 (she is now 20) and has had 5 brain

surgeries in the past 2 years. Stress is definitely a factor in my life

that can not be avoided. All the information I have gathered and taken

to my neurologist and infectious disease doctor has been ignored. I am

on disability and have medicare. Medicare will not cover medications

and the antibiotics are just too expensive for me to purchase. My

doctors will not take the time to fill out the forms to get them cheaper

from the manufacturers. I feel at this time there is nothing I can do

but it is nice to see there are so many people that are out there

fighting this illness. On another note my son and daughter now see this

same neurologist and I took them both in last week. He looked at me and

said, " you look like you have a headache " , my reply was, " everyday " . He

told me to make an appointment and he would see me and accept my

medicare as full payment. When I went up to make follow-up appointments

for my daughter he had already talked to the receptionist to make sure I

made an appointment. I guess I should give him another try.

Sincerely,

[Guest guest]

Hi ,

Welcome to this lyme-aid mailing list. I hope you will find this useful. It

is a terrific group here and has helped me so much. Do you live near

Pensacola?

elizabeth

[Guest guest]

Hi ,

I am the mother of a LD victim and want to welcome you. I am near West Palm

Beach, my daughter Shana is in Boca Raton. (You can correspond with her at

Broxs@...) We are trying to start a support group over here. I can

recommend a LLDD in West Ft Lauderdale maybe you could get that far. I

think there is one in Clearwater.

Granda who is support leader of Eye on Lyme in ville may know

of others who are closer to you. Write to her at Mcgranda@...

There is also a support group in Orlando. Not sure about Tallahassee.

And yes there is Lyme Disease in FL!!!!! Your story sounds like my

daughter's story, except she doesn't have 2 children to look after. My

heart goes out to you.

Hugs

Penny

>

> Hello,

> My name is . I live in NW Florida, in the panhandle region.

> After being diagnosed with papilledema 2 years ago and numerous tests I

> was diagnosed with Lyme disease in April of 99. This has baffled all my

> doctors because " You can't get Lyme in Florida " . A spinal tap was done

> and it showed a white count of 22. Another spinal tap was done and the

> white count was 150. I was told I had a positive test and they ran

> another test, I think the western blot which was positive as well. The

> neurologist said the test results showed a recent infection but the

> papilledema had been there for over a year at this time so she was

> confused. I was put on rocephin (msp) for 3 months beginning 4/99. I

> have now been told I have chronic papilledema, does anybody else out

> there have this?. As the result of a move I changed neurologists during

> this treatment. The new neurologist thinks I am cured and all my

> symptoms are migraines. The picc line was pulled before the spinal tap

> was cultured, and I was never given the results. My symptoms at this

> time are confusion, vision worsening, chronic daily headaches and head

> rushes, severe mood swings, increased temper, a very stiff and sore body

> when I get up after sitting for more than 30 minutes (esp in the

> evening). I recently started seeing a psychologist and he thinks I

> should go to New York to see a doctor that is treating more lyme

> patients. I simply do not have the money to do that. I have two

> disabled adult children, one suffered a closed head injury in 1985 (he

> was nine at the time and is now 23), the other was diagnosed with

> hydrocephalus at the age of 18 (she is now 20) and has had 5 brain

> surgeries in the past 2 years. Stress is definitely a factor in my life

> that can not be avoided. All the information I have gathered and taken

> to my neurologist and infectious disease doctor has been ignored. I am

> on disability and have medicare. Medicare will not cover medications

> and the antibiotics are just too expensive for me to purchase. My

> doctors will not take the time to fill out the forms to get them cheaper

> from the manufacturers. I feel at this time there is nothing I can do

> but it is nice to see there are so many people that are out there

> fighting this illness. On another note my son and daughter now see this

> same neurologist and I took them both in last week. He looked at me and

> said, " you look like you have a headache " , my reply was, " everyday " . He

> told me to make an appointment and he would see me and accept my

> medicare as full payment. When I went up to make follow-up appointments

> for my daughter he had already talked to the receptionist to make sure I

> made an appointment. I guess I should give him another try.

>

>

> Sincerely,

>

>

>

>

> ------------------------------------------------------------------------

> GET WHO WANTS TO BE A MILLIONAIRE FREE! GET THE OFFICIAL COMPANION

> TO TELEVISION'S HOTTEST GAME SHOW PHENOMENON PLUS 5 MORE BOOKS FOR

> $2. Click for details.

> 1/3014/5/_/484634/_/955560485/

> ------------------------------------------------------------------------

>

> Send to -Offtopiconelist messages unrelated to Lyme, please.

> Archives can be found at:

> /group/lyme-aid.

> They are filed by month, pick a month and search those archives

> for subjects you are interested.

> Lyme chat, go to this URL:

> /chat/lyme-aid

> Should you have trouble opening the page, go back to

/ and make sure you are registered with a password.

You can ask ONELIST to remember you, and will only have to do this one time.

To unsubscribe, send email to -unsubscribeonelist

You may substitute " subscribe " , or " digest " or " normal " for

the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank

both the message and subject header.

[Guest guest]

Hi ,

Welcome hugs to , I am so glad you found us. Sure sounds like

Lyme disease to me, and you do need to be on some sort of antibiotics in

order to feel better. The neurologist you last saw who was able to see you

were in stress and in pain and insisted on your making an appt. sounds like

he may be the key in helping you. Not many doctors I know are that

compassionate. As Vicki mentioned I do have a booklet that lists meds and

the manufacturers that you can write to for free or reduced cost drugs, but

I see that your doctor will not fill out the forms, (what a jerk) I hope the

neurologist will. When you know what drugs you need let me know and I will

send you info on how to order. If that doesn't work, I have another trick

up my sleeve, which I will send you off-list.

God bless you for caring for two handicapped adults and dealing with this

awful disease too. I hope that this list brings you the support and

validation you so badly need at this time. I have a hunch you will like us,

we are a very caring, supportive group.

Hugs,

Marta

The best things in life are free!

Like love. And hope. And laughter.

-----Original Message-----

From: Boyd <nanasue@...>

>Hello,

> My name is . I live in NW Florida, in the panhandle region.

>After being diagnosed with papilledema 2 years ago and numerous tests I

>was diagnosed with Lyme disease in April of 99. This has baffled all my

>doctors because " You can't get Lyme in Florida " . A spinal tap was done

>and it showed a white count of 22. Another spinal tap was done and the

>white count was 150. I was told I had a positive test and they ran

>another test, I think the western blot which was positive as well. The

>neurologist said the test results showed a recent infection but the

>papilledema had been there for over a year at this time so she was

>confused. I was put on rocephin (msp) for 3 months beginning 4/99. I

>have now been told I have chronic papilledema, does anybody else out

>there have this?.

[Guest guest]

Hi ,

Welcome to this lyme-aid mailing list. I hope you will find this useful. It

is a terrific group here and has helped me so much. Do you live near

Pensacola?

elizabeth

[Guest guest]

Hi ,

I am the mother of a LD victim and want to welcome you. I am near West Palm

Beach, my daughter Shana is in Boca Raton. (You can correspond with her at

Broxs@...) We are trying to start a support group over here. I can

recommend a LLDD in West Ft Lauderdale maybe you could get that far. I

think there is one in Clearwater.

Granda who is support leader of Eye on Lyme in ville may know

of others who are closer to you. Write to her at Mcgranda@...

There is also a support group in Orlando. Not sure about Tallahassee.

And yes there is Lyme Disease in FL!!!!! Your story sounds like my

daughter's story, except she doesn't have 2 children to look after. My

heart goes out to you.

Hugs

Penny

>

> Hello,

> My name is . I live in NW Florida, in the panhandle region.

> After being diagnosed with papilledema 2 years ago and numerous tests I

> was diagnosed with Lyme disease in April of 99. This has baffled all my

> doctors because " You can't get Lyme in Florida " . A spinal tap was done

> and it showed a white count of 22. Another spinal tap was done and the

> white count was 150. I was told I had a positive test and they ran

> another test, I think the western blot which was positive as well. The

> neurologist said the test results showed a recent infection but the

> papilledema had been there for over a year at this time so she was

> confused. I was put on rocephin (msp) for 3 months beginning 4/99. I

> have now been told I have chronic papilledema, does anybody else out

> there have this?. As the result of a move I changed neurologists during

> this treatment. The new neurologist thinks I am cured and all my

> symptoms are migraines. The picc line was pulled before the spinal tap

> was cultured, and I was never given the results. My symptoms at this

> time are confusion, vision worsening, chronic daily headaches and head

> rushes, severe mood swings, increased temper, a very stiff and sore body

> when I get up after sitting for more than 30 minutes (esp in the

> evening). I recently started seeing a psychologist and he thinks I

> should go to New York to see a doctor that is treating more lyme

> patients. I simply do not have the money to do that. I have two

> disabled adult children, one suffered a closed head injury in 1985 (he

> was nine at the time and is now 23), the other was diagnosed with

> hydrocephalus at the age of 18 (she is now 20) and has had 5 brain

> surgeries in the past 2 years. Stress is definitely a factor in my life

> that can not be avoided. All the information I have gathered and taken

> to my neurologist and infectious disease doctor has been ignored. I am

> on disability and have medicare. Medicare will not cover medications

> and the antibiotics are just too expensive for me to purchase. My

> doctors will not take the time to fill out the forms to get them cheaper

> from the manufacturers. I feel at this time there is nothing I can do

> but it is nice to see there are so many people that are out there

> fighting this illness. On another note my son and daughter now see this

> same neurologist and I took them both in last week. He looked at me and

> said, " you look like you have a headache " , my reply was, " everyday " . He

> told me to make an appointment and he would see me and accept my

> medicare as full payment. When I went up to make follow-up appointments

> for my daughter he had already talked to the receptionist to make sure I

> made an appointment. I guess I should give him another try.

>

>

> Sincerely,

>

>

>

>

> ------------------------------------------------------------------------

> GET WHO WANTS TO BE A MILLIONAIRE FREE! GET THE OFFICIAL COMPANION

> TO TELEVISION'S HOTTEST GAME SHOW PHENOMENON PLUS 5 MORE BOOKS FOR

> $2. Click for details.

> 1/3014/5/_/484634/_/955560485/

> ------------------------------------------------------------------------

>

> Send to -Offtopiconelist messages unrelated to Lyme, please.

> Archives can be found at:

> /group/lyme-aid.

> They are filed by month, pick a month and search those archives

> for subjects you are interested.

> Lyme chat, go to this URL:

> /chat/lyme-aid

> Should you have trouble opening the page, go back to

/ and make sure you are registered with a password.

You can ask ONELIST to remember you, and will only have to do this one time.

To unsubscribe, send email to -unsubscribeonelist

You may substitute " subscribe " , or " digest " or " normal " for

the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank

both the message and subject header.

[Guest guest]

Hi all.

My name is Jeri and I live in Northwest Indiana. My father was in the Navy

and we have lived in many East Coast regions along with Texas. I believe I

have been infected several times with ticks carring many nasties but the one

that got me was in Sept of 2000. While wating for test results to come back

I ended up in the hospital with acute pain in abdomin. Sure enough night

before scopes were to be done I got the news that not only did I have Lyme

but tests showed I had been infected before. I remember now rashes in 1971

in land. Another in Texas in 1968. And then in Indiana in 1988. The one

that got me in Sept was the one that put me into full blown Lyme. I have

been on treatment for one and half years, including 90 days of IV and the

rest were oral abx. The current one being Doxy, Flagyl, and Quinnnine. The

flagyl makes my ears ring and when the dosage was upped I herxed again. This

is a very complex thing and wanted to join your group in hopes of finding

more Americans that have it too. It is nice to be able to share things on a

global group but was over my head, as many in that group are scientist,

chemist, and other professions. They are very good but felt I needed a group

that was closer to my problem, as we know that many strains of B can be

found through out the world.

I am 40 years old and have a loving husband of 25 years and 2 adult children

on their own ages 19 and 22.They have been very supportive but here in

Indiana I have not found a Lldoc. My GP has been very good about listening

and learning from lyme stuff I take her. We are using Dr. B's treatment and

guildlines but she always wants more stuff from medical journals to continue

treatment. She has a good heart just not enough time to research it herself,

she offered to send me to an infectious disease doc but when I called them

they said they go by the AMA guildlines which if you've had Lyme a while you

know it is not enough. Wanted to say hi and introduce myself to the group.

Is anyone aware of docs in my area that really know about this stuff?

Jeri in IN USA We can do it together!

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp.

[Guest guest]

Dear Jeri and welcome-

This is a WONDERFUL, loving group of lymies that share stories, look to one

another for support and love and some good humor.

I am a mom, 44, chronic with lyme (was paralyzed from the neck down due to

lyme) and had every symptom except testicular pain!! 5 of my 6 kids are

chronic (#6 has not been tested, he is my 25 yr old step-son, I HIGHLY

suspect) and my husband has the very serious heart complications due to lyme.

(taccycardia--racing heart...like 200-240 beats/min. out of nowhere). I TRULY

believe that when someone has the heart involvement, babesia is the culprit.

I am glad to see you are being treated, I can help w/ a LLMD (lyme literate

dr). If you want info about lyme, JUST ASK!!! I can e-mail TONS for your dr.

to follow and read.

Have you been tested for the co-infections for babesia, ehrlichia,

bartonella, mycoplasma (fermentan) , Epstein barr and HHV-6? I had all, cured

of most, doing 99% better.

I am studying to be a Dr. in Naturopathy and will help this group with " reco

mmendations " real soon on natural protocols that will help. (I am currently

doing them myself; I will NEVER recommend something that I haven't tried and

found to be true).

WELCOME!!!

sue in nj

sue massie

[Guest guest]

Jeri,

Welcome! I wrote you privately about my Chicago LLMD.

Martha

[Guest guest]

Welcome Jeri, I hope this group helps you Sounds like you've really had a

run with this lyme

YYYY Jody YYYY

To handle yourself, use your head;

to handle others, use your heart.

o <A HREF= " http://hometown.aol.com/tarabencaitysmom/index.html " >Jeff & Jody's

Family</A> <A

HREF= " http://www.picturetrail.com/gallery/view?username=tarabencaitysmom " >Jody's

Photo Albums</A>o

H

[Guest guest]

Hi

Welcome to our group. Do you take coconut oil? If you are really sensitive you

may just want to take a Tablespoon or 2 to see how you react.

Jeanne OTN

***there are 2 Jeannes on the group. I am in Minnesota and the other Jeanne is

in Mexico. If you see OTN that is me and that means of the north and the other

Jeanne is OTS.of the south.

[Guest guest]

Hi there ,

We're happy to have you join our friendly helpful group. Welcome!

> Hi all, I am new to this forum but have been dealing with candida,

major food allergies and its other symptoms for a while now and I am

working on healing. I have been on the candida diet for 10 months and

I still react to many many foods even vegtables & meats thats all my

diet mainly consists of.

==>, you will need to double-check your diet against what we

recommend, which is contained in the main article " How to

Successfully Overcome Candida " sent to you when you joined. I

suggest that is the first most important step towards getting you on

track. The candida program we recommend is a step by step process,

so you would first get the diet down pat, and after that is well

integrated into your daily life you would start taking antifungals.

The 3rd step after allowing time for the antifungals to do their job

is to start on probiotics. Getting these steps out of sequence or

not completely doing each one affects the ends results, and it also

causes more " die-off " symptoms.

>>My symptoms are fatigue after eating, skin rashes, really bad

itching also I get alot of mucus buildup between my nose and throat

so always having to clear my throat. I get this after consuming

anything.

==>All of your symptoms are the body's healing reactions, so you know

your body is doing its best to heal. That is a good thing.

>I have read the fles and found some interesting info on here. I'm

not sure however how to lessen those symptoms as I have to eat.

==>You would not necessarily want to lessen healing symptoms, but you

can make it easier to handle if you do the candida program on a

gradual step by step basis rather than trying to do too much at

once. The diet is the most important - it will start the process by

killing off a lot of candida and by building up your immune system.

Then you will be better able to handle some strong antifungals, also

started at low doses and gradually increased. This step by step

approach will not overwhelm your body, nor you, and you will have

better wins doing the program because you are not getting sicker.

>>I have started to make the sauerkraut and cabbage rejuvelac so I am

hoping that this will be the next stage in my healing as I haven't

had to much luck with probiotics from the store.

==>More than likely your diet is incorrect - there is no other diet

for candida that recommends what is listed here. Tweak your diet

first, and then you can add antifungals. You probably started on

probiotics too soon as well. They will not be effective until most

of the yeast overgrowth is killed off. From your symptoms I would

say that you shouldn't be taking antifungals, except coconut oil, at

this point. It is definitely too soon.

> I just hope that the fermented foods don't exasperate my allergic

reactons.

==>The allergic reactions you described are not " true allergies " .

They are the body's healing mechanisms. Maybe check out the article

in our files on Healing to further understand.

>The rejuvelac is ready to use today so i wondered how much would be

a good amount to try as I know building up on something new is best.

==>, maybe for the time being you should not take the rejuvelac -

start by tweaking your diet according to the main article. Okay? I

believe you will be better able to handle the symptoms if you do.

Thank you in advance, I'm sure I will have other questions

> and I look forward to any help and advice.

==>We're happy to help you all we can. We've all worked hard to

recover our health and we know what it is like to be in your

position. If you read " Bee's Candida Story " in the files you will

understand how extremely sick I was when I started on the candida

program - that was in the mid 1980s.

The best to you my friend,

Bee

[Guest guest]

Hi everyone. My name is BreAnn and I am new to this group. I have a 10 year

old daughter named and a 17 year old step-son named Josh. My daughter

was diagnoised in January of 2010 with Asperger's Syndrom.

My daughter was originally diagnoised when she was 3 1/2 with Developmental

Language Disorder, she was 18+ months behind in her talking. She didn't talk

til she was four. She would only babble in nonsensical words. She also didn't

potty train until she was four. She was placed in twice a week language class

through our school district. She greatly improved in being able to pronounce

letters due to being in speech class. She started kindergarten when she was was

almost five. She was easily distracted, couldn't write her name and took four

months to willingly sit with the class on the carpet in the room. Her teacher

told me that as long as she improved each day she could stay in the class, if

she did not improve anymore then they would have to remove her and she would

have to go to preschool. She improved each day. She made some good friends in

that class. She then was held back and had to repeat kindergarten. This was

the best choice that I ever made. Her first year of kindergarten was very

relaxed but her second year the teacher had a stricter way to run the class.

The other teacher allowed parents to stay and help in the class. The new

teacher did not have distractions, if a parents volunteer was needed I was the

parent who did so.

was in speech class thru the school for both years of kindergarten until

we moved in April of 2008 from California to the Toronto, Canada area. In

's second year of kindergarten she was showing lack of comprehension so

with a lot of work on my part I got the school to place her in Resource, which

is for kids who need extra help, have a learning disability and so on.

When we moved up here, the school wouldn't accept her California IEP and because

her grades were not bad they couldn't test her for anything. By this point she

had tested out of speech. The following school year, she was in grade 3 and she

got an hour a week working with a special teacher with four other students from

her class in writing and comprehension.

Finally, and I have medical through the provience and found a doctor.

After much leg work done by me, I got a doctor to see her so that they could

send her to get an assessment, since the school can't do it. That wonderful

doctor gave me a letter that states that she has Asperger's Syndrome. With a

diagnoisis from a doctor the school is forced to test her, give her an IEP and

place her in the program.

It has been a constant battle to get her the help she needs since she was two.

This has occupied my life for over eight years. The thing is, that even though

she is in the program at school, she still needs outside of school help.

I have read so many books and read a ton of info on AS, CPAD, and learning

disabilities. has a lot of social issues, she normally spends all her

time at school by herself. A few months back to was allowed to join the class

during recess and lunch for the other learning handicapped children where an

adult runs the activities. is playing with other kids and even has made

a great friend. She had one great friend back in 2nd grade, the year we moved

up here.

Some of her symptoms are: not interacting at all with children her own age,

disorganition, doesn't know to ask for help, can't do well with word problems or

writing. She has problems remembering what she is told and guesses what to do

since she can't remember. She does not interact properlly in conversation, she

is very literal, she doesn't understand jokes or teasing. There are more but

these are the ones that you can see without knowing her background.

She is the sweetest and best behaved child I have ever been around. I am lucky

in that way as she does not act out. When she was younger she would cry at

everything and made it seem like everything was a huge deal. She does that ever

so often now but not like she used to.

So as it is right now, we are waiting on a date for the assessments to begin for

her. Who knows when that will be due to medical being run by the government,

too many children who need assessments and not enough doctors to do this work.

I have been waiting since the beginning of January just to get the appointment.

In the meantime, I have her in the school program and just starting to work with

an Autism Consultant through Kerry's Place Autism Services. With all the years

of frustration and not knowing what the problem was and fighting to get her the

help she needs, with atleast knowing what it is I can look around and find

answers. It is nice to be able to start to understand how her mind works.

~BreAnn

Mom to and Josh

[Guest guest]

Here I am replying to my own post. New developments warrant.

I have imposed on my GI doctor to give me a prescription for Golightly. Drastic

situation calls for drastic measures.

Tom

>

>

>

>

> Just thought I'd join to see if anyone has any advice.

>

> For the past month I've been having, on and off, bouts of what feels like my

insides (bowels mostly) being beaten with a baseball bat. Been to ER's but

nothing resolved.

>

> Failed to mention to the ER docs that I have not had a real BM in all that

time either. Once in a while I would have a liquid " ass pee " but nothing great.

I saw my gastroenterologist on Thursday and he put me on Miralax and told me to

give it a few days to work. It's Saturday night here in NJ and still NOTHING!

>

> I've also been using prune juice which ALWAYS worked for me but now NOTHING!

3 hours ago I drank the entire 10 oz bottle of magnesium citrate and so far

NOTHING! I'm going to wait for the recommended 6-7 hour period and if still

NOTHING I'm going to my local ER and insist that they clean me out.

>

> I know they can do this. The pharmacist who sold me the mag citrate told me

that she was in EXACTLY my shoes and our local ER gave her some " brown stuff " to

drink that put her on one of the hospital's crappers for several hours, on and

off, but the stuff WORKED!

>

> I know that even if they do this it's not the same as a diagnosis but at least

it will bring RELIEF!

>

> I'm 71 but until recently I have not had problems in this area.

>

> Any thoughts, ideas, suggestions?

>

> Tom

>

[Guest guest]

Tom

Have you tried triphala? It is a combination Indian herb composed of 3 herbs or

flowers. It is a laxative in that it regulates the water in the intestines and

in the kidneys. I take a tsp. of it in a glass of water (let it soak for a few

hours before taking) before going to bed. If that does not work then take

another one upon rising in the morning. You can also take a Tbsp. of castor

oil before going to bed with a little ginger powder chased down by some water.

It tastes terrible but effective.

GB

> >

> >

> >

> >

> > Just thought I'd join to see if anyone has any advice.

> >

> > For the past month I've been having, on and off, bouts of what feels like my

insides (bowels mostly) being beaten with a baseball bat. Been to ER's but

nothing resolved.

> >

> > Failed to mention to the ER docs that I have not had a real BM in all that

time either. Once in a while I would have a liquid " ass pee " but nothing great.

I saw my gastroenterologist on Thursday and he put me on Miralax and told me to

give it a few days to work. It's Saturday night here in NJ and still NOTHING!

> >

> > I've also been using prune juice which ALWAYS worked for me but now NOTHING!

3 hours ago I drank the entire 10 oz bottle of magnesium citrate and so far

NOTHING! I'm going to wait for the recommended 6-7 hour period and if still

NOTHING I'm going to my local ER and insist that they clean me out.

> >

> > I know they can do this. The pharmacist who sold me the mag citrate told me

that she was in EXACTLY my shoes and our local ER gave her some " brown stuff " to

drink that put her on one of the hospital's crappers for several hours, on and

off, but the stuff WORKED!

> >

> > I know that even if they do this it's not the same as a diagnosis but at

least it will bring RELIEF!

> >

> > I'm 71 but until recently I have not had problems in this area.

> >

> > Any thoughts, ideas, suggestions?

> >

> > Tom

> >

>

[Guest guest]

Where can I buy triphala? I've read up on it. It may be what I'm looking for.

Tom

> > >

> > >

> > >

> > >

> > > Just thought I'd join to see if anyone has any advice.

> > >

> > > For the past month I've been having, on and off, bouts of what feels like

my insides (bowels mostly) being beaten with a baseball bat. Been to ER's but

nothing resolved.

> > >

> > > Failed to mention to the ER docs that I have not had a real BM in all that

time either. Once in a while I would have a liquid " ass pee " but nothing great.

I saw my gastroenterologist on Thursday and he put me on Miralax and told me to

give it a few days to work. It's Saturday night here in NJ and still NOTHING!

> > >

> > > I've also been using prune juice which ALWAYS worked for me but now

NOTHING! 3 hours ago I drank the entire 10 oz bottle of magnesium citrate and

so far NOTHING! I'm going to wait for the recommended 6-7 hour period and if

still NOTHING I'm going to my local ER and insist that they clean me out.

> > >

> > > I know they can do this. The pharmacist who sold me the mag citrate told

me that she was in EXACTLY my shoes and our local ER gave her some " brown stuff "

to drink that put her on one of the hospital's crappers for several hours, on

and off, but the stuff WORKED!

> > >

> > > I know that even if they do this it's not the same as a diagnosis but at

least it will bring RELIEF!

> > >

> > > I'm 71 but until recently I have not had problems in this area.

> > >

> > > Any thoughts, ideas, suggestions?

> > >

> > > Tom

> > >

> >

>

[Guest guest]

Tom

One place that has it is bazaarofindia.com. They have it in bulok powder form.

Others have it in tablets. I personally like the powder and it is much cheaper.

GB

> > > >

> > > >

> > > >

> > > >

> > > > Just thought I'd join to see if anyone has any advice.

> > > >

> > > > For the past month I've been having, on and off, bouts of what feels

like my insides (bowels mostly) being beaten with a baseball bat. Been to ER's

but nothing resolved.

> > > >

> > > > Failed to mention to the ER docs that I have not had a real BM in all

that time either. Once in a while I would have a liquid " ass pee " but nothing

great. I saw my gastroenterologist on Thursday and he put me on Miralax and

told me to give it a few days to work. It's Saturday night here in NJ and still

NOTHING!

> > > >

> > > > I've also been using prune juice which ALWAYS worked for me but now

NOTHING! 3 hours ago I drank the entire 10 oz bottle of magnesium citrate and

so far NOTHING! I'm going to wait for the recommended 6-7 hour period and if

still NOTHING I'm going to my local ER and insist that they clean me out.

> > > >

> > > > I know they can do this. The pharmacist who sold me the mag citrate

told me that she was in EXACTLY my shoes and our local ER gave her some " brown

stuff " to drink that put her on one of the hospital's crappers for several

hours, on and off, but the stuff WORKED!

> > > >

> > > > I know that even if they do this it's not the same as a diagnosis but at

least it will bring RELIEF!

> > > >

> > > > I'm 71 but until recently I have not had problems in this area.

> > > >

> > > > Any thoughts, ideas, suggestions?

> > > >

> > > > Tom

> > > >

> > >

> >

>

[Guest guest]

Tom

Have you considered having a colonic or a colema?

There was a lot of discussion about colemas in this group some time ago.

I wonder what your diet is like and if you have changed it recently?

Anything else changed?

It's always worth considering that you might have picked up a parasite.

Hope you get it sorted out soon.

Keep us posted.

Sandy

Re: I'm New Here

Tom

One place that has it is bazaarofindia.com. They have it in bulok powder form.

Others have it in tablets. I personally like the powder and it is much cheaper.

GB

> > > >

> > > >

> > > >

> > > >

> > > > Just thought I'd join to see if anyone has any advice.

> > > >

> > > > For the past month I've been having, on and off, bouts of what feels

like my insides (bowels mostly) being beaten with a baseball bat. Been to ER's

but nothing resolved.

> > > >

> > > > Failed to mention to the ER docs that I have not had a real BM in all

that time either. Once in a while I would have a liquid " ass pee " but nothing

great. I saw my gastroenterologist on Thursday and he put me on Miralax and told

me to give it a few days to work. It's Saturday night here in NJ and still

NOTHING!

> > > >

> > > > I've also been using prune juice which ALWAYS worked for me but now

NOTHING! 3 hours ago I drank the entire 10 oz bottle of magnesium citrate and so

far NOTHING! I'm going to wait for the recommended 6-7 hour period and if still

NOTHING I'm going to my local ER and insist that they clean me out.

> > > >

> > > > I know they can do this. The pharmacist who sold me the mag citrate

told me that she was in EXACTLY my shoes and our local ER gave her some " brown

stuff " to drink that put her on one of the hospital's crappers for several

hours, on and off, but the stuff WORKED!

> > > >

> > > > I know that even if they do this it's not the same as a diagnosis but

at least it will bring RELIEF!

> > > >

> > > > I'm 71 but until recently I have not had problems in this area.

> > > >

> > > > Any thoughts, ideas, suggestions?

> > > >

> > > > Tom

> > > >

> > >

> >

>