Not getting what we need for our daughter

[Guest guest]

My daughter just started Kindergarten, 1/2 day typical with a shared

aide and 1/2 day special ed classroom. She has been diagnosed on the

spectrum since 2, had early intervention including spec ed, OT mainly

for sensory, speech.

My daughter is apparently doing GREAT and WONDERFUL in school although

then is some mention on her quarterly report about issues getting along

with other students. None of this was mentioned at the parent-teacher

conference of course... that would just make too much sense. At that

conference I asked if they had seen much sensory behaviors and I could

tell they were lying to me when they said no. I see them at home of

course. My daughter was " screened " for OT which would decide if she

needs an OT evaluation and apparently they decided she doesn't need one.

I don't know what I think about that.

I just know they are going to try to remove her Asperger diagnosis...

Her dev pediatrician basically kept the diagnosis even though she barely

fit anymore because she does still need some social skills help and the

diagnosis allows her to get 2 speech per week by law. We need the

neuropsych eval so I can show them her cognitive difficulties and we can

also see more clearly what those are as well. Some are obvious and I've

told them about them but that's just my word to them... She is entitled

to accommodations for the neurolyme issues on their own if that's what

it ends up being.

Anyway, my daughter needs a neuropsych eval and it HAS to be a specific

practice who are experts in her neurolyme brain issues *and* autism. If

we get a reg eval they're not going to catch most of the problems caused

by neurolyme. If she loses the autism category, she will need proof of

the cognitive issues that remain that get the accommodations that way.

Right now she's doing great academically because she came in knowing way

more than these other kids. She's a sponge despite memory problems, etc.

But her cognitive issues contribute to her behavioral issues which are

basically social skills... playing well with others, rigidity, not

taking turns, controlling play, sore loser...

How do I request the independent eval from the school district so they

will pay for it? I can make a pretty good case that no local doc can do

it, and other children like my daughter have been successful with this

request (not in my district tho as far as I know). But I don't even know

where to send the letter.

Also, at the first IEP meeting, the school district required my

daughter's preschool to do an FBA (that I had been requesting from the

preschool for months prior), to be done before the start of

Kindergarten. It was done and it basically said she was bossy! It was

done by a social worker.

My daughter's team has been apparently talking to a behavioral

consultant and set up a behavior plan but it doesn't really seem to hit

everything I don't think.. but again I need a REAL eval. Her spec ed

teacher tells me that she doesn't think my daughter needs another FBA. I

personally don't feel like she got one in the first place. What

behaviors would deem an FBA appropriate?? Does she need to be biting or

something like that?

Thanks,

Jen