At what age did you tell your child about diagnosis? AND Behavior advice please

[Guest guest]

Hello,

I haven't posted or read lately, I'm sorry to say. Our third child was born 15

months ago with Goldenhar Syndrome, including many different health problems, so

that has taken a lot of our time.

My first question:

At what age did you tell your child about Asperger Syndrome?

I wondered if telling her about her diagnosis might help with dealing with her

behavior through self-awareness.

Our daughter is 6.5. We haven't done any therapy or anything specific to help

her with AS since our son was born. We finished off a behavior plan we had

started around that time, and it has helped to reduce her tantrums.

However, she struggles (and we parents struggle) with a lot of other behavior

challenges, some days more than others. Six months ago her pediatrician gave me

a name of a developmental behavioral pediatric specialist, but I haven't

contacted her yet, due to our busy family life. Do you think this is a good next

step?

We homeschool her, and she has many good qualities, and we enjoy her, but there

are also many challenges. These include: screaming, anxiety, impulsivity,

distractibility, being silly and wild etc.

She was in OT a couple of years ago, but we haven't returned to that lately.

She no longer follows a sensory diet, but we do know a lot of those choices, and

encourage her to be active throughout the day (outdoor activity, swinging,

mini-trampoline etc.)

What would you do next?

Thanks,