RE: Re: Holding back from going on to Kindegarten in the fall???? Need opinions

[Guest guest]

Thanks,

had AML. The other parents who exprienced the ALL could probably give better perspective on their child's experience going to school / immune system.

I know I really kept away from everything for 7+ months, but this isn't possible to do with ALL treatment because it lasts so long.

On a side note, kinda cool that they do have research protocols for our kids.

sp

From: taniabsn1 <taniabsn@...>Subject: [ ] Re: Holding back from going on to Kindegarten in the fall???? Need opinions Date: Tuesday, February 23, 2010, 9:53 PM

:We are in a hold right night waiting to start day 29 of DI. He has ALL and his treatment will end November 2012. We should hit maintenance sometime this spring and hopefully he will be allowed to go back to school. It scares me to let him out of the house. I want to protect him, yet I want him to experience life and be happy. We are in study AALL0331 and he was an early responder, but in the standard arm of things because of the DS. He has Pre B ALL>> > > From: taniabsn1

<taniabsn@.. .>> Subject: [ ] Holding back from going on to Kindegarten in the fall???? Need opinions> > Date: Tuesday, February 23, 2010, 7:57 PM> > > Â > > > > My 4 year old, soon to be 5 year old Nate had a trach then was diagnosed with Leukemia last summer. He started preschool when he was 3, went for 2 months, then got the> trach, went for a couple of weeks last spring and he has been homebound ever> since.> > I am so torn. I know he is a bright little boy, however, I'm not sure it's fair> to him to put him in Kindergarten this fall... wondering if we should repeat> another year of preschool.> > Schaumburg IL

Dist 54 is proposing he go to son to a special program with inclusion in the morning with the reg Kindergarten and then therapies and small groups in the afternoon.> > We are going to observe within the next month..> > I'm also scared to death of the kids who are not immunized due to "religious"> reasons or "beliefs". I'm sorry if I offend anyone on this subject, but these> kids are going to put Nate at risk. All of Nate's immunizations in theory have> been wiped out by the chemo. Once he is off therapy, he will be getting them> all again.. when he is 7 in 2012. The children out there who don't have these> immunizations will put Nate at risk for contracting things like measels,> whooping cough, etc... you get the idea. Unfortunately these kids have healthy> immune systems... if Nate contracts one of these diseases it could take his> life...> > This

SUCKS!! Sorry, feeling very anxious right now...> > Ok.. hit me with your best shot... all opinions greatly valued!!>

[Guest guest]

finished treatment in July when he was 38 months.  I started

him in preschool the following January, but pulled him out after 2 months as he

was constantly sick and missed more than he was there. I started him again in

Sept when he was just over 4 and it was much better that time around.  He has

stayed with is age/peer group since then.  (his birthday is in May)  For the

first few years he got every sniffle that was going around but in the last few

years has been better.  In saying that, he has probably had 2 colds and the flu

since January.....

Hope that helps. 

From:

[mailto: ] On Behalf

Of Pearson

Sent: Tuesday, February 23, 2010 6:59 PM

Subject: Re: [ ] Re: Holding back from going on to Kindegarten

in the fall???? Need opinions

Thanks,

had AML. The other parents who exprienced the

ALL could probably give better perspective on their child's experience going

to school / immune system.

I know I really kept away from everything for 7+

months, but this isn't possible to do with ALL treatment because it lasts so

long.

On a side note, kinda cool that they do have research

protocols for our kids.

sp

From: taniabsn1 <taniabsn@...>

Subject: [ ] Re: Holding back from going on to Kindegarten in the

fall???? Need opinions

Date: Tuesday, February 23, 2010, 9:53 PM

:

We are in a hold right night waiting to start day 29 of DI. He has ALL and

his treatment will end November 2012. We should hit maintenance sometime this

spring and hopefully he will be allowed to go back to school. It scares me to

let him out of the house. I want to protect him, yet I want him to experience

life and be happy.

We are in study AALL0331 and he was an early responder, but in the standard

arm of things because of the DS. He has Pre B ALL>

>

>

> From: taniabsn1 <taniabsn@.. .>

> Subject: [ ] Holding back from going on to Kindegarten in the

fall???? Need opinions

>

> Date: Tuesday, February 23, 2010, 7:57 PM

>

>

> Â

>

>

>

> My 4 year old, soon to be 5 year old Nate had a trach then was diagnosed

with Leukemia last summer. He started preschool when he was 3, went for 2

months, then got the

> trach, went for a couple of weeks last spring and he has been homebound

ever

> since.

>

> I am so torn. I know he is a bright little boy, however, I'm not sure

it's fair

> to him to put him in Kindergarten this fall... wondering if we should

repeat

> another year of preschool.

>

> Schaumburg IL Dist 54 is proposing he go to son to a special

program with inclusion in the morning with the reg Kindergarten and then

therapies and small groups in the afternoon.

>

> We are going to observe within the next month..

>

> I'm also scared to death of the kids who are not immunized due to

" religious "

> reasons or " beliefs " . I'm sorry if I offend anyone on this

subject, but these

> kids are going to put Nate at risk. All of Nate's immunizations in

theory have

> been wiped out by the chemo. Once he is off therapy, he will be getting

them

> all again.. when he is 7 in 2012. The children out there who don't have

these

> immunizations will put Nate at risk for contracting things like measels,

> whooping cough, etc... you get the idea. Unfortunately these kids have

healthy

> immune systems... if Nate contracts one of these diseases it could take

his

> life...

>

> This SUCKS!! Sorry, feeling very anxious right now...

>

> Ok.. hit me with your best shot... all opinions greatly valued!!

>